By Associate Professor Nadine Angele Kasparian

Journal articles

Dieng M; Morton RL; Costa DSJ; Butow PN; Menzies SW; Lo S; Mann GJ; Cust AE; Kasparian NA, 2020, 'Benefits of a brief psychological intervention targeting fear of cancer recurrence in people at high risk of developing another melanoma: 12-month follow-up results of a randomized controlled trial', British Journal of Dermatology, 182, pp. 860 - 868, http://dx.doi.org/10.1111/bjd.17990

O'Donovan C; Ingles J; Broadbent E; Skinner JR; Kasparian NA, 2020, 'How Patient Perceptions Shape Responses and Outcomes in Inherited Cardiac Conditions', Heart Lung and Circulation, 29, pp. 641 - 652, http://dx.doi.org/10.1016/j.hlc.2019.11.003

Wan HWY; Carey KA; D'Silva A; Vucic S; Kiernan MC; Kasparian NA; Farrar MA, 2020, 'Health, wellbeing and lived experiences of adults with SMA: A scoping systematic review', Orphanet Journal of Rare Diseases, 15, pp. 70, http://dx.doi.org/10.1186/s13023-020-1339-3

Schofield DJ; Tan O; Shrestha RN; Rajkumar R; West S; Rice M; Kasparian N; Boyle J; Christie L; Leffler M; Murray L; Tanton R; Li J; Roscioli T; Field M, 2020, 'IDMOD: An Australian microsimulation model of lifetime economic and social factors in familial intellectual disability', International Journal of Microsimulation, 13, pp. 52 - 66, http://dx.doi.org/10.34196/ijm.00212

Strange G; Stewart S; Farthing M; Kasparian NA; Selbie L; O'Donnell C; Ayer J; Cordina R; Celermajer D, 2020, 'Living With, and Caring for, Congenital Heart Disease in Australia: Insights From the Congenital Heart Alliance of Australia and New Zealand Online Survey', Heart Lung and Circulation, 29, pp. 216 - 223, http://dx.doi.org/10.1016/j.hlc.2018.12.009

Marshall KH; D’udekem Y; Sholler GF; Opotowsky AR; Costa DSJ; Sharpe L; Celermajer DS; Winlaw DS; Newburger JW; Kasparian NA, 2020, 'Health-related quality of life in children, adolescents, and adults with a fontan circulation: A meta-analysis', Journal of the American Heart Association, 9, http://dx.doi.org/10.1161/JAHA.119.014172

Zentner D; Celermajer DS; Gentles T; d'Udekem Y; Ayer J; Blue GM; Bridgman C; Burchill L; Cheung M; Cordina R; Culnane E; Davis A; du Plessis K; Eagleson K; Finucane K; Frank B; Greenway S; Grigg L; Hardikar W; Hornung T; Hynson J; Iyengar AJ; James P; Justo R; Kalman J; Kasparian N; Le B; Marshall K; Mathew J; McGiffin D; McGuire M; Monagle P; Moore B; Neilsen J; O'Connor B; O'Donnell C; Pflaumer A; Rice K; Sholler G; Skinner JR; Sood S; Ward J; Weintraub R; Wilson T; Wilson W; Winlaw D; Wood A, 2020, 'Management of People With a Fontan Circulation: a Cardiac Society of Australia and New Zealand Position statement', Heart Lung and Circulation, 29, pp. 5 - 39, http://dx.doi.org/10.1016/j.hlc.2019.09.010

2020, '216 WITHDRAWN: Finding a New Rhythm: Child Health-Related Quality of Life and Parental Mental Health in Families Affected by Cardiac Channelopathies', Heart, Lung and Circulation, 29, pp. S132 - S132, http://dx.doi.org/10.1016/j.hlc.2020.09.223

Eagleson K; McCombs D; Kasparian N; Justo R; Bora S, 2020, '650 Appraising Measures Assessing the Psychosocial Impact and Adaptation to Congenital Heart Disease in Families: A Systematic Review', Heart, Lung and Circulation, 29, pp. S329 - S330, http://dx.doi.org/10.1016/j.hlc.2020.09.657

2020, '667 WITHDRAWN: Journeying With Patients: A Qualitative Study of Health Care Providers’ Perceptions of a Hospital-based Psychological Service for Children With Heart Disease and Their Families', Heart, Lung and Circulation, 29, pp. S337 - S337, http://dx.doi.org/10.1016/j.hlc.2020.09.674

Nielson-jones C; Sharpe L; Swinsburg D; Winlaw D; Badawi N; Walker K; Costa D; Sholler G; Kasparian N, 2020, '677 Predictors of Maternal Pregnancy-Specific Anxiety After Fetal Cardiac Diagnosis', Heart, Lung and Circulation, 29, pp. S341 - S341, http://dx.doi.org/10.1016/j.hlc.2020.09.684

Paida K; McKay IR; Coffey MJ; Kasparian N; Katz T; Ooi CY, 2020, 'P374 Evaluation of anxiety levels in a paediatric cystic fibrosis population', Journal of Cystic Fibrosis, 19, pp. S160 - S161, http://dx.doi.org/10.1016/s1569-1993(20)30702-5

Kasparian NA; Kan JM; Sood E; Wray J; Pincus HA; Newburger JW, 2019, 'Mental health care for parents of babies with congenital heart disease during intensive care unit admission: Systematic review and statement of best practice', Early Human Development, 139, http://dx.doi.org/10.1016/j.earlhumdev.2019.104837

Paguinto SG; Kasparian NA; Bray P; Farrar M, 2019, 'Parents’ perceptions of power wheelchair prescription for children with a neuromuscular disorder: a scoping review', Disability and Rehabilitation, 41, pp. 2750 - 2757, http://dx.doi.org/10.1080/09638288.2018.1474496

Lum A; Wakefield CE; Donnan B; Burns MA; Fardell JE; Jaffe A; Kasparian NA; Kennedy SE; Leach ST; Lemberg DA; Marshall GM, 2019, 'Facilitating engagement with school in students with chronic illness through positive education: A mixed-methods comparison study', School Psychology, 34, pp. 677 - 686, http://dx.doi.org/10.1037/spq0000315

Lum A; Wakefield CE; Donnan B; Burns MA; Fardell JE; Jaffe A; Kasparian NA; Kennedy SE; Leach ST; Lemberg DA; Marshall GM, 2019, 'School students with chronic illness have unmet academic, social, and emotional school needs', School Psychology, 34, pp. 627 - 636, http://dx.doi.org/10.1037/spq0000311

Dieng M; Khanna N; Kasparian NA; Costa DSJ; Butow PN; Menzies SW; Mann GJ; Cust AE; Morton RL, 2019, 'Cost-Effectiveness of a Psycho-Educational Intervention Targeting Fear of Cancer Recurrence in People Treated for Early-Stage Melanoma', Applied Health Economics and Health Policy, 17, pp. 669 - 681, http://dx.doi.org/10.1007/s40258-019-00483-6

Battistuzzi L; Franiuk M; Kasparian N; Rania N; Migliorini L; Varesco L, 2019, 'A qualitative study on decision-making about BRCA1/2 testing in Italian women', European Journal of Cancer Care, 28, http://dx.doi.org/10.1111/ecc.13083

Kasparian NA, 2019, 'Heart care before birth: A psychobiological perspective on fetal cardiac diagnosis', Progress in Pediatric Cardiology, 54, http://dx.doi.org/10.1016/j.ppedcard.2019.101142

Verrall CE; Blue GM; Loughran-Fowlds A; Kasparian N; Gecz J; Walker K; Dunwoodie SL; Cordina R; Sholler G; Badawi N; Winlaw D, 2019, ''Big issues' in neurodevelopment for children and adults with congenital heart disease', Open Heart, 6, pp. e000998, http://dx.doi.org/10.1136/openhrt-2018-000998

Wan HWY; Carey KA; D'Silva A; Kasparian NA; Farrar MA, 2019, '"Getting ready for the adult world": How adults with spinal muscular atrophy perceive and experience healthcare, transition and well-being', Orphanet Journal of Rare Diseases, 14, pp. 74, http://dx.doi.org/10.1186/s13023-019-1052-2

Marokakis S; Kasparian NA; Kennedy SE, 2019, 'Re: Caring for infants with posterior urethral valves: A qualitative study of parents' experiences', Journal of Urology, 201, pp. 429, http://dx.doi.org/10.1097/01.JU.0000553675.33041.9a

Denniss DL; Sholler GF; Costa DSJ; Winlaw DS; Kasparian NA, 2019, 'Need for Routine Screening of Health-Related Quality of Life in Families of Young Children with Complex Congenital Heart Disease', Journal of Pediatrics, 205, pp. 21 - 28.e2, http://dx.doi.org/10.1016/j.jpeds.2018.09.037

Tesson S; Butow PN; Sholler GF; Sharpe L; Kovacs AH; Kasparian NA, 2019, 'Psychological interventions for people affected by childhood-onset heart disease: A systematic review', Health Psychology, 38, pp. 151 - 161, http://dx.doi.org/10.1037/hea0000704

McGill BC; Wakefield CE; Vetsch J; Barlow-Stewart K; Kasparian NA; Patenaude AF; Young MA; Cohn RJ; Tucker KM, 2019, 'Children and young people's understanding of inherited conditions and their attitudes towards genetic testing: A systematic review', Clinical Genetics, 95, pp. 10 - 22, http://dx.doi.org/10.1111/cge.13253

Ayling L; Henry A; Tracy S; Donkin C; Kasparian NA; Welsh AW, 2019, 'How well do women understand and remember information in labour versus in late pregnancy? A pilot randomised study', Journal of Obstetrics and Gynaecology, 39, pp. 913 - 921, http://dx.doi.org/10.1080/01443615.2019.1575341

Kan JM; Cowan CSM; Ooi CY; Kasparian NA, 2019, 'What can the gut microbiome teach us about the connections between child physical and mental health? A systematic review', Developmental Psychobiology, 61, pp. 700 - 713, http://dx.doi.org/10.1002/dev.21819

Marshall K; d’Udekem Y; Sholler G; Costa D; Celermajer D; Winlaw D; Kasparian N, 2019, 'Depression and Anxiety Among People with a Fontan Circulation: Findings from the Australian and New Zealand Fontan Registry', Heart, Lung and Circulation, 28, pp. S348 - S348, http://dx.doi.org/10.1016/j.hlc.2019.06.498

Marshall K; d’Udekem Y; Sholler G; Costa D; Celermajer D; Winlaw D; Kasparian N, 2019, 'Mental Health of Parents of Children, Adolescents and Adults with a Fontan Circulation: Findings from the Australian and New Zealand Fontan Registry', Heart, Lung and Circulation, 28, pp. S351 - S351, http://dx.doi.org/10.1016/j.hlc.2019.06.506

2019, 'This abstract has been withdrawn', Heart, Lung and Circulation, 28, pp. S347 - S347, http://dx.doi.org/10.1016/j.hlc.2019.06.497

Kasparian NA; De Abreu Lourenco R; Winlaw DS; Sholler GF; Viney R; Kirk EPE, 2018, 'Tell me once, tell me soon: parents’ preferences for clinical genetics services for congenital heart disease', Genetics in Medicine, 20, pp. 1387 - 1395, http://dx.doi.org/10.1038/gim.2018.16

Farrar MA; Carey KA; Paguinto SG; Chambers G; Kasparian NA, 2018, 'Financial, opportunity and psychosocial costs of spinal muscular atrophy: an exploratory qualitative analysis of Australian carer perspectives.', BMJ Opem, 8, pp. e020907, http://dx.doi.org/10.1136/bmjopen-2017-020907

Chong LSH; Fitzgerald DA; Craig JC; Manera KE; Hanson CS; Celermajer D; Ayer J; Kasparian NA; Tong A, 2018, 'Children’s experiences of congenital heart disease: a systematic review of qualitative studies', European Journal of Pediatrics, 177, pp. 319 - 336, http://dx.doi.org/10.1007/s00431-017-3081-y

Dieng M; Kasparian NA; Cust AE; Costa DSJ; Tran A; Butow PN; Menzies SW; Mann GJ; Morton RL, 2018, 'Sensitivity of preference-based quality-of-life measures for economic evaluations in early-stage Melanoma', JAMA Dermatology, 154, pp. 52 - 59, http://dx.doi.org/10.1001/jamadermatol.2017.4701

Marokakis S; Kasparian NA; Kennedy SE, 2017, 'Caring for infants with posterior urethral valves: A qualitative study of parents’ experiences', Journal of Child Health Care, 21, pp. 424 - 434, http://dx.doi.org/10.1177/1367493517725833

Liang R; Meiser B; Smith S; Kasparian NA; Lewis CR; Chin M; Long GV; Ward R; Menzies AM; Harris-Wai JN; Kaur R, 2017, 'Advanced cancer patients’ attitudes towards, and experiences with, screening for somatic mutations in tumours: a qualitative study', European Journal of Cancer Care, 26, http://dx.doi.org/10.1111/ecc.12600

Dieng M; Kasparian NA; Mireskandari S; Butow P; Costa D; Morton R; Mann G; Menzies S; Cust A, 2017, 'Psychoeducational intervention for people at high risk of developing another melanoma: A pilot randomised controlled trial', BMJ Open, 7, pp. e015195, http://dx.doi.org/10.1136/bmjopen-2016-015195

McKean EB; Kasparian NA; Batra S; Sholler GF; Winlaw DS; Dalby-Payne J, 2017, 'Feeding difficulties in neonates following cardiac surgery: Determinants of prolonged feeding-tube use', Cardiology in the Young, 27, pp. 1203 - 1211, http://dx.doi.org/10.1017/S1047951116002845

Kasparian NA; Lieu N; Winlaw DS; Cole A; Kirk E; Sholler GF, 2017, 'EHealth literacy and preferences for eHealth resources in parents of children with complex CHD', Cardiology in the Young, 27, pp. 722 - 730, http://dx.doi.org/10.1017/S1047951116001177

Farrar M; Carey K; Paguinto S-G; Chamber G; Kasparian N, 2017, 'Counting the uncounted costs of Spinal muscular atrophy (P4.120)', Neurology, 88, http://dx.doi.org/10.1212/wnl.88.16_supplement.p4.120

Marokakis S; Kasparian NA; Kennedy SE, 2017, 'Parents’ perceptions of counselling following prenatal diagnosis of congenital anomalies of the kidney and urinary tract: a qualitative study', BJU International, 119, pp. 474 - 481, http://dx.doi.org/10.1111/bju.13668

te West NID; Parkin K; Hayes W; Costa DSJ; Kasparian NA; Moore KH, 2017, 'Does motivation predict outcome of pelvic floor muscle retraining?', Neurourology and Urodynamics, 36, pp. 316 - 321, http://dx.doi.org/10.1002/nau.22917

Denniss D; Sholler G; Winlaw D; Kasparian N, 2017, 'Critical Appraisal of the Evidence on Quality of Life and Psychological Outcomes in Infants and Young Children with Congenital Heart Disease', Heart, Lung and Circulation, 26, pp. S322 - S322, http://dx.doi.org/10.1016/j.hlc.2017.06.650

Denniss D; Sholler G; Winlaw D; Costa D; Kasparian N, 2017, 'Health-Related Quality of Life and its Determinants in Young Children with Complex Congenital Heart Disease and Their Mothers: An Australian Perspective', Heart, Lung and Circulation, 26, pp. S324 - S324, http://dx.doi.org/10.1016/j.hlc.2017.06.654

Dieng M; Butow PN; Costa DSJ; Morton RL; Menzies SW; Mireskandari S; Tesson S; Mann GJ; Cust AE; Kasparian NA, 2016, 'Psychoeducational intervention to reduce fear of cancer recurrence in people at high risk of developing another primarymelanoma: results of a randomized controlled trial', Journal of Clinical Oncology, 34, pp. 4405 - 4414, http://dx.doi.org/10.1200/JCO.2016.68.2278

Kasparian NA; Mireskandari S; Butow PN; Dieng M; Cust AE; Meiser B; Barlow-Stewart K; Menzies S; Mann GJ, 2016, '“Melanoma: Questions and Answers.” Development and evaluation of a psycho-educational resource for people with a history of melanoma', Supportive Care in Cancer, 24, pp. 4849 - 4859, http://dx.doi.org/10.1007/s00520-016-3339-3

Dieng M; Cust AE; Kasparian NA; Mann GJ; Morton RL, 2016, 'Economic evaluations of psychosocial interventions in cancer: a systematic review', Psycho-Oncology, 25, pp. 1380 - 1392, http://dx.doi.org/10.1002/pon.4075

Caleshu C; Kasparian NA; Edwards KS; Yeates L; Semsarian C; Perez M; Ashley E; Turner CJ; Knowles JW; Ingles J, 2016, 'Interdisciplinary psychosocial care for families with inherited cardiovascular diseases', Trends in Cardiovascular Medicine, 26, pp. 647 - 653, http://dx.doi.org/10.1016/j.tcm.2016.04.010

Kasparian NA; Winlaw DS; Sholler GF, 2016, '“Congenital heart health”: How psychological care can make a difference', Medical Journal of Australia, 205, pp. 104 - 106.e1, http://dx.doi.org/10.5694/mja16.00392

Celermajer D; Strange G; Cordina R; Selbie L; Sholler G; Winlaw D; Alphonso N; Justo R; Nicholae M; Kasparian N; Weintraub RG; Cheung M; Grigg LE; Brizard CP; Wheaton G; Disney P; Stewart S; Bullock A; Ramsay J; Gentles T; d'Udekem Y, 2016, 'Congenital Heart Disease Requires a Lifetime Continuum of Care: A Call for a Regional Registry', Heart Lung and Circulation, 25, pp. 750 - 754, http://dx.doi.org/10.1016/j.hlc.2016.03.018

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