Biography
Dr Hayley Smithers-Sheedy is a Senior Research Associate in Paediatric Population Health at UNSW where she is the study coordinator for the RuralKidsGPS study.
RuralKidsGPS is a paediatric care coordination program for children with complex health conditions which aims to work with local teams to identify opportunities to integrate and share care, deliver virtually-enabled care, streamline appointments, avoid unnecessary hospitalisations, and...view more
Dr Hayley Smithers-Sheedy is a Senior Research Associate in Paediatric Population Health at UNSW where she is the study coordinator for the RuralKidsGPS study.
RuralKidsGPS is a paediatric care coordination program for children with complex health conditions which aims to work with local teams to identify opportunities to integrate and share care, deliver virtually-enabled care, streamline appointments, avoid unnecessary hospitalisations, and prevent ED attendances.
My Grants
2012 (CI) NHMRC Postgraduate Scholarship (GNT1055901), 2017 (CI) NHMRC Early Career Fellowship (GNT1144566), 2019 (AI) NHMRC Project Grant: Neuro-cCMV, (GNT1165376), 2021 (AI) MRFF Research Grant: School Readiness (MRF2007292), 2021 (AI) NHRMC Project Grant: Whole-of-population CRISPR point-of-care testing for congenital cytomegalovirus (GNT2006491) and 2021 (CID) NHMRC Ideas Grant (GNT2012882) MY Voice Library
My Qualifications
BAppSc(SpPath), MPH, PhD
My Research Activities
Mushta, S. M., King, C., Goldsmith, S., Smithers‐sheedy, H., Badahdah, A. M., Rashid, H., . . . McIntyre, S. (2022). Epidemiology of Cerebral Palsy among Children and Adolescents in Arabic‐Speaking Countries: A Systematic Review and Meta‐Analysis. Brain Sciences, 12(7). doi:10.3390/brainsci12070859
Waight, E., McIntyre, S., Woolfenden, S., Watson, L., Reid, S., Scott, H., . . . Smithers-Sheedy, H. (2022). Temporal trends, clinical characteristics, and sociodemographic profile of post-neonatally acquired cerebral palsy in Australia, 1973–2012: A population-based observational study. Developmental Medicine and Child Neurology. doi:10.1111/dmcn.15293
Wilson, Y. A., Smithers-Sheedy, H., Ostojic, K., Waight, E., Kruer, M. C., Fahey, M. C., . . . McIntyre, S. (2022). Common data elements to standardize genomics studies in cerebral palsy. Developmental Medicine and Child Neurology. doi:10.1111/dmcn.15245
Smithers-Sheedy, H., Swinburn, K., Waight, E., King, R., Hui, L., Jones, C. A., . . . Shand, A. (2022). eLearning significantly improves maternity professionals’ knowledge of the congenital cytomegalovirus prevention guidelines. Australian and New Zealand Journal of Obstetrics and Gynaecology, 62(3), 445-452. doi:10.1111/ajo.13500
Jahan, I., Sultana, R., Muhit, M., Akbar, D., Karim, T., Al Imam, M. H., . . . Khandaker, G. (2022). Nutrition Interventions for Children with Cerebral Palsy in Low-and Middle-Income Countries: A Scoping Review. Nutrients, 14(6). doi:10.3390/nu14061211
Smithers-Sheedy, H., Waight, E., Goldsmith, S., Reid, S., Gibson, C., Watson, L., . . . Hinwood, G. (2022). Declining trends in birth prevalence and severity of singletons with cerebral palsy of prenatal or perinatal origin in Australia: A population-based observational study. Developmental Medicine and Child Neurology. doi:10.1111/dmcn.15195
Smithers-Sheedy, H., Khandaker, G., Raynes-Greenow, C., Flack, L., Britton, P. N., McIntyre, S., . . . Jones, C. A. (2022). The long-term burden of congenital cytomegalovirus: Hospitalisation and mortality in a population-based matched cohort study. European Journal of Paediatric Neurology, 37, 82-86. doi:10.1016/j.ejpn.2022.01.019
Smithers-Sheedy, H., & Henry, G. (2022). What does an aetiological diagnosis actually mean?. Developmental Medicine and Child Neurology, 64(6), 675-676. doi:10.1111/dmcn.15189
Gilmore, R., Ziviani, J., Mcintyre, S., Smithers Sheedy, H., Hilton, N., Williams, T., . . . Balde, I. (2022). Program for the Education and Enrichment of Relational Skills for adolescents with an acquired brain injury: A randomized controlled trial. Developmental Medicine and Child Neurology, 64(6), 771-779. doi:10.1111/dmcn.15144
Lansdown, K., Irving, M., Mathieu Coulton, K., & Smithers-Sheedy, H. (2022). A scoping review of oral health outcomes for people with cerebral palsy. Special Care in Dentistry, 42(3), 232-243. doi:10.1111/scd.12671
Jahan, I., Muhit, M., Hardianto, D., Laryea, F., Amponsah, S. K., Chhetri, A. B., . . . Khandaker, G. (2021). Epidemiology of malnutrition among children with cerebral palsy in low-and middle-income countries: Findings from the global LMIC CP register. Nutrients, 13(11). doi:10.3390/nu13113676
Karim, T., Muhit, M., Jahan, I., Galea, C., Morgan, C., Smithers-Sheedy, H., . . . Khandaker, G. (2021). Outcome of community-based early intervention and rehabilitation for children with cerebral palsy in rural bangladesh: A quasi-experimental study. Brain Sciences, 11(9). doi:10.3390/brainsci11091189
Waight, E., Swinburn, K., Shand, A., Hui, L., Daly, K., Rawlinson, W., . . . Smithers-Sheedy, H. (2021). 319Congenital cytomegalovirus education, translation and prevention. International Journal of Epidemiology, 50(Supplement_1). doi:10.1093/ije/dyab168.688
Jones, C. A., Walker, K. S., Smithers-Sheedy, H., & Trivedi, A. (2021). Antiviral therapy for congenital cytomegalovirus infection in neonates and infants up to 12 months of age. Cochrane Database of Systematic Reviews, 2021(8). doi:10.1002/14651858.CD004340.pub2
Al Imam, M. H., Jahan, I., Muhit, M., Hardianto, D., Laryea, F., Chhetri, A. B., . . . Khandaker, G. (2021). Predictors of rehabilitation service utilisation among children with cerebral palsy (CP) in low-and middle-income countries (LMIC): Findings from the global LMIC CP register. Brain Sciences, 11(7). doi:10.3390/brainsci11070848
Jahan, I., Muhit, M., Hardianto, D., Laryea, F., Chhetri, A. B., Smithers-Sheedy, H., . . . Khandaker, G. (2021). Epidemiology of cerebral palsy in low- and middle-income countries: preliminary findings from an international multi-centre cerebral palsy register. Developmental Medicine and Child Neurology, 63(11), 1327-1336. doi:10.1111/dmcn.14926
Al Imam, M. H., Jahan, I., Das, M. C., Muhit, M., Smithers-Sheedy, H., McIntyre, S., . . . Khandaker, G. (2021). Rehabilitation status of children with cerebral palsy in Bangladesh: Findings from the Bangladesh cerebral palsy register. PLoS ONE, 16(5 May). doi:10.1371/journal.pone.0250640
Al Imam, M. H., Jahan, I., Das, M. C., Muhit, M., Smithers-Sheedy, H., McIntyre, S., . . . Khandaker, G. (2021). Population-based surveillance of children with cerebral palsy enables early diagnosis and intervention. Developmental Medicine and Child Neurology, 63(7), 883-884. doi:10.1111/dmcn.14861
Smithers-Sheedy, H. (2021). The Singapore Cerebral Palsy Registry: An important new resource for cerebral palsy research. Annals of the Academy of Medicine, Singapore, 50(2), 109-110. doi:10.47102/annals-acadmedsg.202161
Sellier, E., Goldsmith, S., McIntyre, S., Perra, O., Rackauskaite, G., Badawi, N., . . . Watson, L. (2021). Cerebral palsy in twins and higher multiple births: a Europe-Australia population-based study. Developmental Medicine and Child Neurology, 63(6), 712-720. doi:10.1111/dmcn.14827
Lewis, S. A., Shetty, S., Wilson, B. A., Huang, A. J., Jin, S. C., Smithers-Sheedy, H., . . . Kruer, M. C. (2021). Insights From Genetic Studies of Cerebral Palsy. Frontiers in Neurology, 11. doi:10.3389/fneur.2020.625428
Goldsmith, S., McIntyre, S., Scott, H., Himmelmann, K., Smithers-Sheedy, H., Andersen, G. L., . . . Watson, L. (2021). Congenital anomalies in children with postneonatally acquired cerebral palsy: an international data linkage study. Developmental Medicine and Child Neurology, 63(4), 421-428. doi:10.1111/dmcn.14805
Himmelmann, K., McIntyre, S., Goldsmith, S., Smithers-Sheedy, H., & Watson, L. (2020). Epidemiology of Cerebral Palsy. In Cerebral Palsy (pp. 131-146). Springer International Publishing. doi:10.1007/978-3-319-74558-9_9
Heiyanthuduwage, T. M., Sumanasena, S. P., Kitnasamy, G., Smithers Sheedy, H., Khandaker, G., Fernando, R., . . . Muttiah, N. (2020). Protocol for the Sri Lankan Cerebral Palsy Register pilot study. BMJ open, 10(8), e039353. doi:10.1136/bmjopen-2020-039353
Jahan, I., Al Imam, M. H., Karim, T., Muhit, M., Hardianto, D., Das, M. C., . . . Khandaker, G. (2020). Epidemiology of cerebral palsy in Sumba Island, Indonesia. Developmental Medicine and Child Neurology, 62(12), 1414-1422. doi:10.1111/dmcn.14616
Goldsmith, S., Mcintyre, S., Andersen, G. L., Gibson, C., Himmelmann, K., Blair, E., . . . Garne, E. (2021). Congenital anomalies in children with pre- or perinatally acquired cerebral palsy: an international data linkage study. Developmental Medicine and Child Neurology, 63(4), 413-420. doi:10.1111/dmcn.14602
Shepherd, E., Mcintyre, S., Smithers-Sheedy, H., Ashwood, P., Sullivan, T. R., te Velde, A., . . . Crowther, C. A. (2020). Linking data from a large clinical trial with the Australian Cerebral Palsy Register. Developmental Medicine and Child Neurology, 62(10), 1170-1175. doi:10.1111/dmcn.14556
Britton, P. N., Walker, K., McMullan, B., Galea, C., Burrell, R., Morgan, B., . . . Jones, C. A. (2020). Early Life Parechovirus Infection Neurodevelopmental Outcomes at 3 Years: A Cohort Study. Journal of Pediatrics, 219, 111-117.e1. doi:10.1016/j.jpeds.2019.12.026
Woolfenden, S., Galea, C., Badland, H., Smithers Sheedy, H., Williams, K., Kavanagh, A. M., . . . O'Connor, M. (2020). Use of health services by preschool-aged children who are developmentally vulnerable and socioeconomically disadvantaged: Testing the inverse care law. Journal of Epidemiology and Community Health, 74(6), 495-501. doi:10.1136/jech-2019-213384
Sellier, E., McIntyre, S., Smithers-Sheedy, H., & Platt, M. J. (2020). European and Australian Cerebral Palsy Surveillance Networks Working Together for Collaborative Research. Neuropediatrics, 51(2), 105-112. doi:10.1055/s-0039-3402003
Manlongat, E., Mcintyre, S., Smithers-Sheedy, H., Trivedi, A., Muhit, M., Badawi, N., & Khandaker, G. (2020). Congenital anomalies in children with cerebral palsy in rural Bangladesh. Developmental Medicine and Child Neurology, 62(4), 463-469. doi:10.1111/dmcn.14456
May, P., Smithers-Sheedy, H., Muhit, M., Cumming, R., Jones, C., Booy, R., . . . Khandaker, G. (2020). Immunisation status of children with cerebral palsy in rural bangladesh: Results from the bangladesh cerebral palsy register (bcpr). Infectious Disorders - Drug Targets, 20(3), 318-322. doi:10.2174/1871526518666181024101002
Midgley, G., Smithers-Sheedy, H., McIntyre, S., Badawi, N., Keogh, J., & Jones, C. A. (2020). Congenital cytomegalovirus prevention, awareness and policy recommendations-a scoping study. Infectious Disorders - Drug Targets, 20(3), 291-302. doi:10.2174/1871526518666181009093725
Lansdown, K., Smithers-Sheedy, H., Mathieu Coulton, K., & Irving, M. (2019). Oral health outcomes for people with cerebral palsy: A scoping review protocol. JBI Database of Systematic Reviews and Implementation Reports, 17(12), 2551-2558. doi:10.11124/JBISRIR-2017-004037
Karim, T., Al Imam, M. H., Golland, P., Khan, A. I., Hossain, I., Smithers-Sheedy, H., . . . Khandaker, G. (2019). Hip dysplasia among children with spastic cerebral palsy in rural Bangladesh. BMC Musculoskeletal Disorders, 20(1). doi:10.1186/s12891-019-2805-8
Jahan, I., Muhit, M., Hardianto, D., Karim, T., Al Imam, M. H., Das, M. C., . . . Khandaker, G. (2021). Nutritional status of children with cerebral palsy in remote Sumba Island of Indonesia: a community-based key informants study. Disability and Rehabilitation, 43(13), 1819-1828. doi:10.1080/09638288.2019.1676833
Gilmore, R., Sakzewski, L., Ziviani, J., McIntyre, S., Smithers Sheedy, H., Hilton, N., . . . Chatfield, M. (2019). Multicentre, randomised waitlist control trial investigating a parent-assisted social skills group programme for adolescents with brain injuries: Protocol for the friends project. BMJ Open, 9(8). doi:10.1136/bmjopen-2019-029587
Woolfenden, S., Galea, C., Badland, H., Smithers-Sheedy, H., Williams, K., Kavanagh, A., . . . O'Connor, M. (n.d.). The intersection of developmental vulnerability and socioeconomic disadvantage on access to health care for preschool aged children: evidence for the inverse-care law. doi:10.21203/rs.2.10731/v1
Jahan, I., Karim, T., Das, M. C., Muhit, M., Mcintyre, S., Smithers-Sheedy, H., . . . Khandaker, G. (2019). Mortality in children with cerebral palsy in rural Bangladesh: a population-based surveillance study. Developmental Medicine and Child Neurology, 61(11), 1336-1343. doi:10.1111/dmcn.14256
MacLennan, A. H., Lewis, S., Moreno-De-Luca, A., Fahey, M., Leventer, R. J., McIntyre, S., . . . Gecz, J. (2019). Genetic or Other Causation Should Not Change the Clinical Diagnosis of Cerebral Palsy. Journal of Child Neurology, 34(8), 472-476. doi:10.1177/0883073819840449
Akhter, R., Hassan, N. M. M., Martin, E. F., Muhit, M., Smithers-sheedy, H., Badawi, N., & Khandaker, G. (2019). Caries experience and oral health-related quality of life (OHRQoL) of children and adolescents with cerebral palsy in a low-resource setting. BMC Oral Health, 19(1). doi:10.1186/s12903-018-0704-2
Khandaker, G., Muhit, M., Karim, T., Smithers-Sheedy, H., Novak, I., Jones, C., & Badawi, N. (2019). Epidemiology of cerebral palsy in Bangladesh: a population-based surveillance study. Developmental Medicine and Child Neurology, 61(5), 601-609. doi:10.1111/dmcn.14013
Woolfenden, S., Galea, C., Smithers-Sheedy, H., Blair, E., Mcintyre, S., Reid, S., . . . Badawi, N. (2019). Impact of social disadvantage on cerebral palsy severity. Developmental Medicine and Child Neurology, 61(5), 586-592. doi:10.1111/dmcn.14026
Galea, C., Mcintyre, S., Smithers-Sheedy, H., Reid, S. M., Gibson, C., Delacy, M., . . . Blair, E. (2019). Cerebral palsy trends in Australia (1995–2009): a population-based observational study. Developmental Medicine and Child Neurology, 61(2), 186-193. doi:10.1111/dmcn.14011
Himmelmann, K., McIntyre, S., Goldsmith, S., Smithers-Sheedy, H., & Watson, L. (2018). Epidemiology of Cerebral Palsy. In Cerebral Palsy (pp. 1-16). Springer International Publishing. doi:10.1007/978-3-319-50592-3_9-1
Goldsmith, S., Garcia Jalon, G., Badawi, N., Blair, E., Garne, E., Gibson, C., . . . Andersen, G. L. (2018). Comprehensive investigation of congenital anomalies in cerebral palsy: Protocol for a European-Australian population-based data linkage study (The Comprehensive CA-CP Study). BMJ Open, 8(7). doi:10.1136/bmjopen-2018-022190
Jahan, I., Muhit, M., Karim, T., Smithers-Sheedy, H., Novak, I., Jones, C., . . . Khandaker, G. (2019). What makes children with cerebral palsy vulnerable to malnutrition? Findings from the bangladesh cerebral palsy register (BCPR). Disability and Rehabilitation, 41(19), 2247-2254. doi:10.1080/09638288.2018.1461260
Smithers-Sheedy, H., Raynes-Greenow, C., Badawi, N., Fernandez, M. A., Kesson, A., McIntyre, S., . . . Jones, C. A. (2017). Congenital Cytomegalovirus among Children with Cerebral Palsy. Journal of Pediatrics, 181, 267-271.e1. doi:10.1016/j.jpeds.2016.10.024
Smithers-Sheedy, H., Raynes-Greenow, C., Badawi, N., Fernandez, M. A., Kesson, A., Intyre, S. M., . . . Jones, C. A. (2017). Congenital cytomegalovirus among children with cerebral palsy. Obstetrical and Gynecological Survey, 72(7), 403-405. doi:10.1097/01.ogx.0000520631.42677.1c
Akhter, R., Hassan, N. M. M., Martin, E. F., Muhit, M., Haque, M. R., Smithers-Sheedy, H., . . . Khandaker, G. (2017). Risk factors for dental caries among children with cerebral palsy in a low-resource setting. Developmental Medicine and Child Neurology, 59(5), 538-543. doi:10.1111/dmcn.13359
Badawi, N., Balde, I., Goldsmith, S., Karlsson, P., McIntyre, S., Novak, I., . . . Watson, L. (2016). Australia and the Australian Cerebral Palsy Register for the birth cohort 1993 to 2006. Developmental Medicine and Child Neurology, 58, 3-4. doi:10.1111/dmcn.13002
Goldsmith, S., Mcintyre, S., Smithers-Sheedy, H., Blair, E., Cans, C., Watson, L., & Yeargin-Allsopp, M. (2016). An international survey of cerebral palsy registers and surveillance systems. Developmental Medicine and Child Neurology, 58, 11-17. doi:10.1111/dmcn.12999
Blair, E., & Smithers-Sheedy, H. (2016). Strabismus, a preventable barrier to social participation: A short report. Developmental Medicine and Child Neurology, 58, 57-59. doi:10.1111/dmcn.13020
Mcintyre, S., Blair, E., Goldsmith, S., Badawi, N., Gibson, C., Scott, H., & Smithers-Sheedy, H. (2016). Congenital anomalies in cerebral palsy: Where to from here?. Developmental Medicine and Child Neurology, 58, 71-75. doi:10.1111/dmcn.13015
Delacy, M. J., Louca, C., Smithers-Sheedy, H., & Mcintyre, S. (2016). Change in residential remoteness during the first 5 years of life in an Australian cerebral palsy cohort. Developmental Medicine and Child Neurology, 58, 60-65. doi:10.1111/dmcn.13013
Smithers-Sheedy, H., Mcintyre, S., Gibson, C., Meehan, E., Scott, H., Goldsmith, S., . . . Blair, E. (2016). A special supplement: Findings from the Australian Cerebral Palsy Register, birth years 1993 to 2006. Developmental Medicine and Child Neurology, 58, 5-10. doi:10.1111/dmcn.13026
Khandaker, G., Smithers-Sheedy, H., Islam, J., Alam, M., Jung, J., Novak, I., . . . Muhit, M. (2015). Bangladesh Cerebral Palsy Register (BCPR): A pilot study to develop a national cerebral palsy (CP) register with surveillance of children for CP. BMC Neurology, 15(1). doi:10.1186/s12883-015-0427-9
Smithers-Sheedy, H. (2016). Declining prevalence of cerebral palsy in Europe: Good news?. Developmental Medicine and Child Neurology, 58(1), 14. doi:10.1111/dmcn.12885
Smithers-Sheedy, H., Raynes-Greenow, C., Badawi, N., Khandaker, G., Menzies, R., & Jones, C. A. (2015). Cytomegalovirus-related childhood mortality in Australia 1999-2011. Journal of Paediatrics and Child Health, 51(9), 901-905. doi:10.1111/jpc.12896
Smithers-Sheedy, H., Raynes-Greenow, C., Badawi, N., Mcintyre, S., & Jones, C. A. (2014). Congenital cytomegalovirus is associated with severe forms of cerebral palsy and female sex in a retrospective population-based study. Developmental Medicine and Child Neurology, 56(9), 846-852. doi:10.1111/dmcn.12467
Khandaker, G., Raynes-Greenow, C., Smithers-Sheedy, H., Booy, R., Menzies, R., & Jones, C. (2014). Mortality from herpes simplex virus (HSV) infection in Australian children, 1999-2011 using national datasets. Infectious Disorders - Drug Targets, 14(2), 89-92. doi:10.2174/1871526514666140714084934
Smithers-Sheedy, H., Raynes-Greenow, C., Badawi, N., Reid, S. M., Meehan, E., Gibson, C. S., . . . Jones, C. A. (2014). Neuroimaging findings in a series of children with cerebral palsy and congenital cytomegalovirus infection. Infectious Disorders - Drug Targets, 14(3), 185-190. doi:10.2174/1871526515999150320154858
Smithers-Sheedy, H., Badawi, N., Blair, E., Cans, C., Himmelmann, K., Krägeloh-Mann, I., . . . Wilson, M. (2014). What constitutes cerebral palsy in the twenty-first century?. Developmental Medicine and Child Neurology, 56(4), 323-328. doi:10.1111/dmcn.12262
Novak, I., Smithers-Sheedy, H., & Morgan, C. (2012). Predicting equipment needs of children with cerebral palsy using the Gross Motor Function Classification System: A cross-sectional study. Disability and Rehabilitation: Assistive Technology, 7(1), 30-36. doi:10.3109/17483107.2011.556210
Ison, N., McIntyre, S., Rothery, S., Smithers-Sheedy, H., Goldsmith, S., Parsonage, S., & Foy, L. (2010). "Just like you": A disability awareness programme for children that enhanced knowledge, attitudes and acceptance: Pilot study findings. Developmental Neurorehabilitation, 13(5), 360-368. doi:10.3109/17518423.2010.496764