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Select Publications

Book Chapters

Smith AB; Fardell JE; Butow PN, 2021, 'Fear of Cancer Recurrence', in Butow PN; Lam WWT (ed.), Psycho-Oncology, Oxford University Press (OUP), pp. 755 - 759, http://dx.doi.org/10.1093/med/9780190097653.003.0094

Signorelli C; Fardell JE; Wakefield CE; Webber K; Cohn RJ, 2016, 'The cost of cure: Chronic conditions in survivors of child, adolescent, and young adult cancers', in Koczwara B (ed.), Cancer and Chronic Conditions Addressing the Problem of Multimorbidity in Cancer Patients and Survivors, pp. 371 - 420, http://dx.doi.org/10.1007/978-981-10-1844-2_13

Butow PN; Fardell JE; Smith AB, 2015, 'Fear of Cancer Recurrence', in Psycho-Oncology, Oxford University Press (OUP), pp. 625 - 629, http://dx.doi.org/10.1093/med/9780199363315.003.0084

Journal articles

Fardell JE; Schilstra C; Bradford N; Short M; Mitchell R; Delaney GP; Koczwara B; Maharaj A; Roberts N; Mateos MK; Anazodo A, 2026, 'Use of patient-reported outcome measures in Australian pediatric oncology practice and research', Cancer Survivorship Research & Care, 4, pp. 2725541, http://dx.doi.org/10.1080/28352610.2026.2725541

Stein JN; Haines ER; Ritzwoller DM; Winslow HC; Fardell J; Fern L; Gupta S; Atway R; Hunt JL; Matson M; Swift C; Moreton E; Thom B; Kupelian A; Gan H; Muthukrishnan H; Lux L; Smitherman A, 2026, 'Clinical Practice Guidelines for the Care of Adolescents and Young Adults (AYAs) with Cancer: a Scoping Review', Current Oncology Reports, 28, http://dx.doi.org/10.1007/s11912-026-01768-5

Ghows C; Schilstra CE; McCleary K; Briggs NE; Kotecha RS; Lourenco RDA; Ramachandran S; Cockcroft R; Conyers R; Cross S; Dalla-Pozza L; Downie P; Revesz T; Osborn M; Alvaro F; Wakefield CE; Marshall GM; Trahair T; Mateos MK; Fardell JE, 2026, 'Tracking Health Related Quality of Life From Diagnosis to Follow-Up Among Australian Children With Acute Lymphoblastic Leukaemia', Pediatric Blood and Cancer, 73, http://dx.doi.org/10.1002/1545-5017.70539

Halkett GKB; Davies J; Maxwell-Smith C; Basson M; Rice-Brading T; Sousa MS; Sproul J; De Jong H; Dhillon HM; Farnell C; Lorimer W; Fardell J; Shaw J; O'Connor M, 2026, 'Physical Activity and Nutritional Supportive Care Needs Following a Sarcoma Diagnosis: Barriers and Opportunities for Rare Cancer Survivorship Care', Psycho Oncology, 35, http://dx.doi.org/10.1002/pon.70567

Rhodes M; Signorelli C; Donoghoe MW; McLoone JK; Wakefield CE; Anazodo A; Sansom-Daly UM; Darlington AS; Sodergren SC; Cohn RJ; Fardell JE, 2026, 'Factors associated with health-related quality of life in survivors of childhood-onset and adult-onset cancer compared to controls', Supportive Care in Cancer, 34, http://dx.doi.org/10.1007/s00520-026-10775-y

Alqahtani QM; Mizrahi D; Ha L; Fardell JE; Wakefield CE; Simar D; Cohn RJ; Bray P; Docking K; Dylke E, 2026, 'Self-reported physical fitness domains and perceptions of exercise and fatigue among childhood cancer survivors', Jsams Plus, 7, http://dx.doi.org/10.1016/j.jsampl.2026.100140

Burns MA; Lah S; Law C; Schilstra CE; Ellis SJ; Wakefield CE; Sansom-Daly UM; Cohn RJ; Marshall GM; Lum A; Donnan B; Walwyn T; Carter A; Fielden P; De Luca CR; Barton B; Drew D; Maguire F; O’Dwyer C; Fardell JE, 2026, 'High School Cancer Experience and Age at Diagnosis: Perspectives of Adolescents, Young Adults, and Parents', Journal of Adolescent and Young Adult Oncology, http://dx.doi.org/10.1177/21565333261438095

Haywood D; Gleaves S; Fardell J; Houweling R; Griffin H; Haywood J; Hart NH; Sansom-Daly UM, 2026, 'Translating COSA Psychosocial Guidelines Into Practice: Learnings From a National Postacute Care Workshop for Adolescents and Young Adults With Cancer', Asia Pacific Journal of Clinical Oncology, http://dx.doi.org/10.1111/ajco.70155

Cheung YT; Ho M-H; Fardell J; Vardy JL, 2026, 'Assessment and Management of Cancer-Related Cognitive Impairment.', American Society of Clinical Oncology Educational Book, 46, pp. e517676, http://dx.doi.org/10.1200/edbk-26-517676

Wu VS; Smith A; Russell H; Bamgboje-Ayodele A; Beatty L; Pearce A; Dhillon H; Shaw J; Antony J; Fardell J; Pangeni A; Dixon C; Rincones O; Langdon L; Costa D; Girgis A, 2025, 'Assessing the impact of a self-guided digital intervention for fear of cancer recurrence (iConquerFear) in ovarian cancer survivors: a pilot randomised waitlist-controlled trial', BMC Cancer, 25, http://dx.doi.org/10.1186/s12885-025-13639-6

Halkett GKB; Davies J; Maxwell-Smith C; Farnell C; Basson M; Rice-Brading T; Sousa MS; Sproul J; De Jong HM; Dhillon HM; Fardell JE; O’Connor M, 2025, 'Building Better Website Resources: What People Diagnosed with Sarcoma and Their Carers Want to Know', Current Oncology, 32, http://dx.doi.org/10.3390/curroncol32120691

Schilstra CE; Ellis SJ; Sedger A; Burns MA; Miller KA; Wakefield CE; Cohn RJ; Lah S; Sansom-Daly UM; Anazodo AC; Fardell JE, 2025, 'Social Participation Among Long-Term Survivors of Childhood and Adolescent Cancer', Pediatric Blood and Cancer, 72, http://dx.doi.org/10.1002/pbc.32042

Mazariego CG; Avery S; Delaney GP; Fardell JE; Hayes S; Haywood D; Lai-Kwon J; Nolte S; Pearson J; Roberts NA; Signorelli C; Taylor N; Webber K; Koczwara B, 2025, 'Patient-reported outcomes (PROs) as personalised cancer care: report from a 2023 Australian consensus meeting (PROActive)', Eclinicalmedicine, 85, http://dx.doi.org/10.1016/j.eclinm.2025.103295

Sansom-Daly UM; McLoone JK; Fardell JE; Evans HE; McGill BC; Robertson EG; Signorelli C; Ellis S; Ha L; Hetherington K; Houweling RE; Nevin SM; Schilstra CE; Mitchell R; Haber M; Cohn RJ; Wakefield CE, 2025, 'Bridging the Gap: Embedding Psychosocial Oncology Research into Comprehensive Cancer Care for Children and Young People', Cancers, 17, pp. 2123 - 2123, http://dx.doi.org/10.3390/cancers17132123

Parker C; Schilstra CE; McCleary K; Martin M; Trahair TN; Kotecha RS; Ramachandran S; Cockcroft R; Conyers R; Cross S; Dalla-Pozza L; Downie P; Revesz T; Osborn M; Marshall GM; Wakefield CE; Mateos MK; Fardell JE, 2025, 'Psychosocial Outcomes in Parents of Children with Acute Lymphoblastic Leukaemia in Australia and New Zealand Through and Beyond Treatment', Cancers, 17, http://dx.doi.org/10.3390/cancers17071238

Hill RE; Fardell JE; Mercieca-Bebber R; Wakefield CE; Signorelli C; Webber K; Johnston KA; Cohn RJ, 2025, 'Survivorship care plan utilization in Australia and New Zealand: survivors’, parents’ and healthcare providers’ perspectives', Supportive Care in Cancer, 33, http://dx.doi.org/10.1007/s00520-025-09238-7

Lyhne JD; Smith A; Timm S; Klein B; Thewes B; Girgis A; Bamgboje-Ayodele A; Beatty L; Fardell J; Fink P; Butow P; Frostholm L; Jensen LH, 2025, 'E-Health Intervention for Fear of Cancer Recurrence: A Randomized Clinical Trial', JAMA Network Open, http://dx.doi.org/10.1001/jamanetworkopen.2025.42112

Ha L; Signorelli C; McLoone JK; Wakefield CE; Alchin JE; Venkatesha V; Cohn RJ; Fardell JE, 2025, 'Risky, protective, and screening health behaviours among childhood cancer survivors: A cross-sectional survey in Australia and New Zealand', Journal of Cancer Survivorship, http://dx.doi.org/10.1007/s11764-025-01858-6

Schilstra CE; Sansom-Daly UM; Ellis SJ; Anazodo AC; Trahair TN; Lindsay T; Amiruddin A; O’Dwyer C; Maguire F; Nevin S; Battisti R; Fardell JE, 2024, 'Social Anxiety Symptoms in Adolescents and Young Adults Recently Diagnosed with Cancer', Journal of Adolescent and Young Adult Oncology, 13, pp. 674 - 682, http://dx.doi.org/10.1089/jayao.2023.0186

Smith A; Bamgboje‐Ayodele A; Jegathees S; Butow P; Klein B; Salter M; Turner J; Fardell J; Thewes B; Sharpe L; Beatty L; Pearce A; Beith J; Costa D; Rincones O; Wu VS; Garden FL; Kiely BE; Lim K; Morstyn L; Hanley B; Hodgkin R; Beattie A; Girgis A, 2024, 'Feasibility and preliminary efficacy of iConquerFear: a self-guided digital intervention for fear of cancer recurrence', Journal of Cancer Survivorship, 18, pp. 425 - 438, http://dx.doi.org/10.1007/s11764-022-01233-9

Fardell JE; Schilstra C; Hikila J; Collins D; Kelada L; Lah S; Cohn RJ; Wakefield CE; Ellis S, 2024, 'Survivors of child and adolescent cancer experiences of bullying at school or work: self-report and parent proxy report', Journal of Psychosocial Oncology Research and Practice, 6, http://dx.doi.org/10.1097/OR9.0000000000000130

Schilstra CE; Sansom-Daly UM; Ellis SJ; Trahair TN; Anazodo AC; Amiruddin A; Lindsay T; Maguire F; Wakefield CE; Lah S; Bland E; Lenthen K; Rifkin A; Awan A; Kittos T; Hanbury N; Tsalidis S; Patterson P; McDonald F; Fardell JE, 2024, 'Guidelines for Caring for the Social Well-Being of Adolescents and Young Adults with Cancer in Australia', Journal of Adolescent and Young Adult Oncology, 13, pp. 8 - 29, http://dx.doi.org/10.1089/jayao.2023.0027

Schilstra CE; Ellis SJ; Cohen J; Gall A; Diaz A; Clarke K; Dumlao G; Chard J; Cumming TM; Davis E; Dhillon H; Burns MA; Docking K; Koh ES; O'Reilly J; Sansom-Daly UM; Shaw J; Speers N; Taylor N; Warne A; Fardell JE, 2024, 'Exploring Web-Based Information and Resources That Support Adolescents and Young Adults With Cancer to Resume Study and Work: Environmental Scan Study', Jmir Cancer, 10, http://dx.doi.org/10.2196/47944

Hill RE; Mercieca-Bebber R; Fardell JE; Wakefield CE; Signorelli C; Webber K; Cohn RJ, 2023, 'Relationship between survivorship care plans and unmet information needs, quality of life, satisfaction with care, and propensity to engage with, and attend, follow-up care', Cancer, 129, pp. 3820 - 3832, http://dx.doi.org/10.1002/cncr.34984

Fardell JE; Tan SY; Kerin-Ayres K; Dhillon HM; Vardy JL, 2023, 'Symptom Clusters in Survivorship and Their Impact on Ability to Work among Cancer Survivors', Cancers, 15, http://dx.doi.org/10.3390/cancers15215119

Fardell JE; Hu N; Wakefield CE; Marshall G; Bell J; Lingam R; Nassar N, 2023, 'Impact of Hospitalizations due to Chronic Health Conditions on Early Child Development', Journal of Pediatric Psychology, 48, pp. 799 - 811, http://dx.doi.org/10.1093/jpepsy/jsad025

Fardell JE; Irwin CM; Vardy JL; Bell ML, 2023, 'Anxiety, depression, and concentration in cancer survivors: National Health and Nutrition Examination Survey results', Supportive Care in Cancer, 31, http://dx.doi.org/10.1007/s00520-023-07710-w

Signorelli C; Wakefield CE; McLoone JK; Johnston KA; Mertens AC; Osborn M; Cohn RJ; Alvaro F; Corbett R; Downie P; Egan K; Ellis S; Emery J; Fardell J; Foreman T; Gabriel M; Girgis A; Graham K; Johnston K; Jones J; Lockwood L; Maguire A; McCarthy M; Mechinaud F; Molloy S; Moore L; Skeen J; Tapp H; Till T; Truscott J; Turpin K; Williamson J; Walwyn T; Yallop K, 2023, 'Childhood Cancer Survivors' Reported Late Effects, Motivations for Seeking Survivorship Care, and Patterns of Attendance', Oncologist, 28, pp. E276 - E286, http://dx.doi.org/10.1093/oncolo/oyad004

Fardell JE; Walker A; Chan RJ; Vardy JL, 2023, 'receiving endocrine therapy: what are the impacts?', Jnci Cancer Spectrum, 7, http://dx.doi.org/10.1093/jncics/pkad026

Tan J; McLoone JK; Wakefield CE; Nassar N; Cohn RJ; Signorelli C, 2023, 'Neuroblastoma survivors’ self-reported late effects, quality of life, health-care use, and risk perceptions', Palliative and Supportive Care, 22, pp. 296 - 305, http://dx.doi.org/10.1017/S1478951523000615

Schilstra CE; McCleary K; Fardell JE; Donoghoe MW; McCormack E; Kotecha RS; Lourenco RDA; Ramachandran S; Cockcroft R; Conyers R; Cross S; Dalla-Pozza L; Downie P; Revesz T; Osborn M; Alvaro F; Wakefield CE; Marshall GM; Mateos MK; Trahair TN, 2022, 'Prospective longitudinal evaluation of treatment-related toxicity and health-related quality of life during the first year of treatment for pediatric acute lymphoblastic leukemia', BMC Cancer, 22, pp. 985, http://dx.doi.org/10.1186/s12885-022-10072-x

Hetherington K; Wakefield CE; Kunalan KPK; Donoghoe MW; McGill BC; Fardell JE; Daly R; Deyell RJ; Ziegler DS, 2022, 'Quality of Life (QoL) of Children and Adolescents Participating in a Precision Medicine Trial for High-Risk Childhood Cancer', Cancers, 14, http://dx.doi.org/10.3390/cancers14215310

Fardell JE; Bray V; Bell ML; Rabe B; Dhillon H; Vardy JL, 2022, 'Screening for cognitive symptoms among cancer patients during chemotherapy: Sensitivity and specificity of a single item self-report cognitive change score', Psycho Oncology, 31, pp. 1294 - 1301, http://dx.doi.org/10.1002/pon.5928

Schilstra CE; Sansom-Daly UM; Schaffer M; Fardell JE; Anazodo AC; McCowage G; Fletcher JI; Marshall GM; Buchhorn-White J; Evtushenko M; Trahair TN; Ellis SJ, 2022, '"we Have All This Knowledge to Give, so Use Us as a Resource": Partnering with Adolescent and Young Adult Cancer Survivors to Determine Consumer-Led Research Priorities', Journal of Adolescent and Young Adult Oncology, 11, pp. 211 - 222, http://dx.doi.org/10.1089/jayao.2021.0052

Schilstra CE; Fardell JE; Ellis SJ; Jones KM; Anazodo AC; Trahair TN; Lah S; Cohn RJ; Wakefield CE; Sansom-Daly UM, 2022, 'Social Anxiety Symptoms in Survivors of Childhood and Adolescent Cancer', Journal of Adolescent and Young Adult Oncology, 11, pp. 129 - 137, http://dx.doi.org/10.1089/jayao.2021.0050

Hu N; Fardell J; Wakefield CE; Marshall GM; Bell JC; Nassar N; Lingam R, 2022, 'School academic performance of children hospitalised with a chronic condition', Archives of Disease in Childhood, 107, pp. 289 - 296, http://dx.doi.org/10.1136/archdischild-2020-321285

Alchin JE; Signorelli C; McLoone JK; Wakefield CE; Fardell JE; Johnston K; Cohn RJ, 2022, 'Childhood Cancer Survivors’ Adherence to Healthcare Recommendations Made Through a Distance-Delivered Survivorship Program', Journal of Multidisciplinary Healthcare, 15, pp. 1719 - 1734, http://dx.doi.org/10.2147/JMDH.S363653

Vardy JL; Fardell J, 2022, 'Understanding Longitudinal Changes in Cognitive Function in Lymphoma Patients: Where to Next?', Journal of the National Cancer Institute, 114, pp. 3 - 4, http://dx.doi.org/10.1093/jnci/djab134

Ha L; Wakefield CE; Fardell J; Cohn RJ; Simar D; Signorelli C; Mizrahi D, 2022, 'Parent perceptions of their child's and their own physical activity after treatment for childhood cancer.', Support Care Cancer, 30, pp. 8947 - 8957, http://dx.doi.org/10.1007/s00520-022-07288-9

Fardell JE; Wakefield CE; De Abreu Lourenco R; Signorelli C; McCarthy M; McLoone J; Osborn M; Gabriel M; Anazodo A; Alvaro F; Lockwood L; Walwyn T; Skeen J; Tillemans R; Cohn RJ; Corbett R; Downie P; Egan K; Ellis S; Emery J; Foreman T; Girgis A; Graham K; Johnston K; Jones J; Maguire A; Mechinaud F; Molloy S; Moore L; Tapp H; Till T; Truscott J; Turpin K; Williamson J; Yallop K, 2021, 'Long-term health-related quality of life in young childhood cancer survivors and their parents', Pediatric Blood and Cancer, 68, pp. e29398, http://dx.doi.org/10.1002/pbc.29398

Bamgboje-Ayodele A; Smith AB; Short CE; Fardell JE; Shaw J; Beatty L; Higgins K; Tutelman PR; Chambers CT; Girgis A, 2021, 'Barriers and facilitators to the availability of efficacious self-directed digital health tools for adults living with cancer and their caregivers: A systematic literature review and author survey study', Patient Education and Counseling, 104, pp. 2480 - 2489, http://dx.doi.org/10.1016/j.pec.2021.03.012

Burns MA; Fardell JE; Wakefield CE; Cohn RJ; Marshall GM; Lum A; Ellis SJ; Donnan B; Walwyn T; Carter A; Barton B; Lah S, 2021, 'School and educational support programmes for paediatric oncology patients and survivors: A systematic review of evidence and recommendations for future research and practice', Psycho Oncology, 30, pp. 431 - 443, http://dx.doi.org/10.1002/pon.5606

Signorelli C; Wakefield CE; McLoone JK; Mateos MK; Aaronson NK; Lavoipierre A; Cohn RJ; Alvaro F; Corbett R; Downie P; Egan K; Ellis S; Emery J; Fardell J; Foreman T; Gabriel M; Girgis A; Graham K; Johnston K; Jones J; Lockwood L; Maguire A; McCarthy M; Mechinaud F; Molloy S; Moore L; Osborn M; Skeen J; Tapp H; Till T; Truscott J; Turpin K; Walwyn T; Williamson J; Yallop K, 2021, 'A cost-effective approach to increasing participation in patient-reported outcomes research in cancer: A randomized trial of video invitations', International Journal of Cancer, 148, pp. 971 - 980, http://dx.doi.org/10.1002/ijc.33244

Schilstra CE; Fardell JE; Burns MA; Ellis SJ; Anazodo AC; Trahair TN; Sansom-Daly UM, 2021, 'Determinants of social functioning among adolescents and young adults with cancer: A systematic review', Psycho-Oncology, http://dx.doi.org/10.1002/pon.5740

Donovan LA; Wakefield CE; Russell V; Fardell J; Mallitt KA; Hetherington K; Cohn R, 2021, 'Variables associated with grief and personal growth following the death of a child from cancer: A mixed method analysis', Death Studies, 45, pp. 702 - 713, http://dx.doi.org/10.1080/07481187.2019.1682087

Bell J; Lingam R; Wakefield CE; Fardell JE; Zeltzer J; Hu N; Woolfenden S; Callander E; Marshall GM; Nassar N, 2020, 'Prevalence, hospital admissions and costs of child chronic conditions: A population-based study', Journal of Paediatrics and Child Health, 56, pp. 1365 - 1370, http://dx.doi.org/10.1111/jpc.14932

Robertson EG; Cohen J; Signorelli C; Grant DM; Fardell JE; Wakefield CE, 2020, 'What instruments should we use to assess paediatric decision-making interventions? A narrative review', Journal of Child Health Care, 24, pp. 458 - 472, http://dx.doi.org/10.1177/1367493519869717


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