Select Publications
Book Chapters
, 2016, 'Navigating the impact of serious illness across the family system using evidence-based therapeutic approaches', in Menzies R; Kyrios M; Kazantzis N (ed.), Innovations and Future Directions in the Behavioural and Cognitive Therapies, Australian Academic Press, Queensland, pp. 176 - 181, https://www.australianacademicpress.com.au/books/details/287/Innovations_and_Future_Directions_in_the_Behavioural_and_Cognitive_Therapies
Journal articles
, 2026, 'Optimizing Informed Consent for Australian Newborn Bloodspot Screening and Research: Consensus Workshop Insights and Recommendations', International Journal of Neonatal Screening, 12, pp. 65, http://dx.doi.org/10.3390/ijns12030065
, 2026, 'Family experiences of receiving treatment recommendations in a precision medicine trial for poor-prognosis childhood cancer', npj Genomic Medicine, http://dx.doi.org/10.1038/s41525-026-00591-y
, 2026, '‘They Need to Hear You Say It’: Healthcare Professionals’ Perspectives on Barriers and Enablers to End-of-Life Discussions With Adolescents and Young Adults With Cancer', Pediatric Blood and Cancer, 73, http://dx.doi.org/10.1002/1545-5017.70369
, 2026, 'Barriers and facilitators to implementing an online psychological intervention for adolescent and young adult cancer survivors in a community setting', Supportive Care in Cancer, 34, http://dx.doi.org/10.1007/s00520-026-10867-9
, 2026, 'ID #107 Family experiences of precision-guided treatment recommendations for poor prognosis paediatric Central Nervous System (CNS) cancer', Neuro-Oncology Pediatrics, 2, pp. wuag026.020, http://dx.doi.org/10.1093/neuped/wuag026.020
, 2026, 'ID #661 Psychological distress in parents of children with poor prognosis central nervous system (CNS) cancers participating in the PRISM precision medicine trial', Neuro-Oncology Pediatrics, 2, pp. wuag026.264, http://dx.doi.org/10.1093/neuped/wuag026.264
, 2026, 'ID #673 Bereaved Parents’ Reflections on PRISM Precision Medicine Trial Participation for Poor-Prognosis Paediatric CNS Cancer', Neuro-Oncology Pediatrics, 2, pp. wuag026.272, http://dx.doi.org/10.1093/neuped/wuag026.272
, 2026, 'Recapturing Life: Virtual Peer-Based Psychological Support for Adolescent and Young Adult Cancer Survivors Delivered in the Community', Journal of Adolescent and Young Adult Oncology, 15, pp. 187 - 195, http://dx.doi.org/10.1177/21565333251369689
, 2026, '“I don’t think I even thought of myself” A mixed-methods study of family experiences of trio germline whole genome sequencing in newly diagnosed childhood cancer', British Journal of Cancer, 134, pp. 1336 - 1351, http://dx.doi.org/10.1038/s41416-026-03354-9
, 2026, 'Do young people who have been treated for cancer identify as ‘survivors’? Adolescents and young adults’ preferences for cancer-related identities in survivorship', Journal of Cancer Survivorship, http://dx.doi.org/10.1007/s11764-026-02074-6
, 2026, 'Evaluating patient perspectives about the acceptability of a novel prognostic gene expression signature for high grade serous ovarian cancer: The OTTA-SPOT study', Gynecologic Oncology, 204, pp. 150 - 157, http://dx.doi.org/10.1016/j.ygyno.2025.11.023
, 2026, 'P2.213: Psychological assessment and motivations of potential donors within the first Australian uterine transplant trial.', Transplantation, 110, http://dx.doi.org/10.1097/01.tp.0001252952.96069.9c
, 2025, 'Animated videos for childhood cancer precision medicine: development and evaluation with parents and patients', Supportive Care in Cancer, 33, http://dx.doi.org/10.1007/s00520-025-10191-8
, 2025, 'Psychological risk and resilience in families of children with cancer', Nature Reviews Psychology, 4, pp. 758, http://dx.doi.org/10.1038/s44159-025-00504-3
, 2025, 'Data Sharing, Biopsies and Patient Confidentiality in a Precision Medicine Trial for Childhood Cancer: A Mixed Method Study of Parents, Oncologists, and Scientists’ Perspectives', Journal of Personalized Medicine, 15, http://dx.doi.org/10.3390/jpm15110531
, 2025, 'Psychological Assessment and Motivations of Potential Donors Within the First Australian Uterine Transplant Trial', Australian and New Zealand Journal of Obstetrics and Gynaecology, 65, pp. 475 - 482, http://dx.doi.org/10.1111/ajo.13934
, 2025, 'Bridging the Gap: Embedding Psychosocial Oncology Research into Comprehensive Cancer Care for Children and Young People', Cancers, 17, pp. 2123 - 2123, http://dx.doi.org/10.3390/cancers17132123
, 2025, 'Delivering Trio Germline Whole Genome Sequencing to Patients Newly Diagnosed With Childhood Cancer: Healthcare Professionals' Perspectives of the PREDICT Study', Cancer Medicine, 14, pp. e70680 - e70680, http://dx.doi.org/10.1002/cam4.70680
, 2025, 'Neurodevelopmental screening in children with early-onset spinal muscular atrophy in the treatment era: A strengths-based cohort study', Brain Communications, 7, http://dx.doi.org/10.1093/braincomms/fcaf272
, 2025, 'Support through the screen: therapeutic alliance and group cohesion processes in group videoconferencing-based psychological programs for young cancer survivors', Australian Psychologist, 60, pp. 125 - 138, http://dx.doi.org/10.1080/00050067.2024.2436922
, 2024, 'Barriers to access of precision guided therapies for children with high-risk cancer', Pediatric Blood and Cancer, 71, http://dx.doi.org/10.1002/pbc.31147
, 2024, 'Communicating with families of young people with hard-to-treat cancers: Healthcare professionals’ perspectives on challenges, skills, and training', Palliative and Supportive Care, 22, pp. 539 - 545, http://dx.doi.org/10.1017/S1478951523001992
, 2024, 'Co-design of a paediatric oncology medicines database (ProCure) to support complex care provision for children with a hard-to-treat cancer', Frontiers in Medicine, 11, pp. 1332434, http://dx.doi.org/10.3389/fmed.2024.1332434
, 2024, 'When genetics and pediatric cancer collide: Understanding and optimizing families' experiences', Neuro Oncology Advances, 6, http://dx.doi.org/10.1093/noajnl/vdae133
, 2023, 'Parents’ expectations, preferences, and recall of germline findings in a childhood cancer precision medicine trial', Cancer, 129, pp. 3620 - 3632, http://dx.doi.org/10.1002/cncr.34917
, 2023, 'The psychosocial impact of childhood dementia on children and their parents: a systematic review', Orphanet Journal of Rare Diseases, 18, pp. 277 - 277, http://dx.doi.org/10.1186/s13023-023-02859-3
, 2022, '‘Like ships in the night’: A qualitative investigation of the impact of childhood cancer on parents’ emotional and sexual intimacy', Pediatric Blood and Cancer, 69, http://dx.doi.org/10.1002/pbc.30015
, 2022, 'Quality of Life (QoL) of Children and Adolescents Participating in a Precision Medicine Trial for High-Risk Childhood Cancer', Cancers, 14, http://dx.doi.org/10.3390/cancers14215310
, 2022, 'Mexican cultural adaptation of the CASCAdE intervention program for parents of childhood cancer survivors', Psicooncologia, 19, pp. 63 - 80, http://dx.doi.org/10.5209/psic.80798
, 2022, 'Psychosocial impact of genetic testing on parents of children with developmental and epileptic encephalopathy', Developmental Medicine and Child Neurology, 64, pp. 95 - 104, http://dx.doi.org/10.1111/dmcn.14971
, 2021, 'How Are Families Faring? Perceived Family Functioning among Adolescent and Young Adult Cancer Survivors in Comparison to Their Peers', Journal of Adolescent and Young Adult Oncology, 10, pp. 711 - 719, http://dx.doi.org/10.1089/jayao.2020.0215
, 2021, 'Providing psychological support to parents of childhood cancer survivors: ‘cascade’ intervention trial results and lessons for the future', Cancers, 13, pp. 5597, http://dx.doi.org/10.3390/cancers13225597
, 2021, '"This Is the First Time I've Talked about This": Considerations When Conducting Qualitative Research Interviews with Adolescents and Young Adults with Cancer', Journal of Adolescent and Young Adult Oncology, 10, pp. 540 - 548, http://dx.doi.org/10.1089/jayao.2020.0122
, 2021, 'Online, group‐based psychological support for adolescent and young adult cancer survivors: Results from the recapture life randomized trial', Cancers, 13, pp. 2460, http://dx.doi.org/10.3390/cancers13102460
, 2020, 'The information needs of parents of children with early-onset epilepsy: A systematic review', Epilepsy and Behavior, 112, pp. 107382, http://dx.doi.org/10.1016/j.yebeh.2020.107382
, 2020, 'Understanding parents’ communication experiences in childhood cancer: a qualitative exploration and model for future research', Supportive Care in Cancer, 28, pp. 4467 - 4476, http://dx.doi.org/10.1007/s00520-019-05270-6
, 2020, '“Balancing Expectations with Actual Realities”: Conversations with Clinicians and Scientists in the First Year of a High-Risk Childhood Cancer Precision Medicine Trial', Journal of Personalized Medicine, 10, pp. 9, http://dx.doi.org/10.3390/jpm10010009
, 2019, 'Decision-making in childhood cancer: parents’ and adolescents’ views and perceptions', Supportive Care in Cancer, 27, pp. 4331 - 4340, http://dx.doi.org/10.1007/s00520-019-04728-x
, 2019, '“I remember how I felt, but I don't remember the gene”: Families’ experiences of cancer-related genetic testing in childhood', Pediatric Blood and Cancer, 66, http://dx.doi.org/10.1002/pbc.27762
, 2019, 'Impact of physical appearance changes reported by adolescent and young adult cancer survivors: A qualitative analysis', European Journal of Cancer Care, 28, http://dx.doi.org/10.1111/ecc.13052
, 2019, 'Author reply', Internal Medicine Journal, 49, pp. 808 - 809, http://dx.doi.org/10.1111/imj.14320
, 2019, 'How Parents of Childhood Cancer Survivors Perceive Support From Their Extended Families', Journal of Child and Family Studies, 28, pp. 1537 - 1547, http://dx.doi.org/10.1007/s10826-019-01394-9
, 2019, '‘Why us?’ Causal attributions of childhood cancer survivors, survivors’ parents and community comparisons - a mixed methods analysis', Acta Oncologica, 58, pp. 209 - 217, http://dx.doi.org/10.1080/0284186X.2018.1532600
, 2019, 'Children and young people's understanding of inherited conditions and their attitudes towards genetic testing: A systematic review', Clinical Genetics, 95, pp. 10 - 22, http://dx.doi.org/10.1111/cge.13253
, 2019, 'Parents', health care professionals', and scientists' experiences of a precision medicine pilot trial for patients with high-risk childhood cancer: A qualitative study', JCO Precision Oncology, 3, pp. 1 - 11, http://dx.doi.org/10.1200/PO.19.00235
, 2018, 'Adolescent and young adult cancer survivors' memory and future thinking processes place them at risk for poor mental health', Psycho Oncology, 27, pp. 2709 - 2716, http://dx.doi.org/10.1002/pon.4856
, 2018, 'Feasibility, acceptability, and safety of the Recapture Life videoconferencing intervention for adolescent and young adult cancer survivors', Psycho-Oncology, http://dx.doi.org/10.1002/pon.4938
, 2018, 'Comorbidity of distress experienced by parents of childhood cancer survivors points to the importance of understanding transdiagnostic cognitive-affective mechanisms.', Acta Oncologica, pp. 1 - 2, http://dx.doi.org/10.1080/0284186X.2018.1512157
, 2018, 'Cancer-Related Genetic Testing and Personalized Medicine for Adolescents: A Narrative Review of Impact and Understanding', Journal of Adolescent and Young Adult Oncology, 7, pp. 259 - 262, http://dx.doi.org/10.1089/jayao.2017.0102