Select Publications
Book Chapters
2021, 'Adult Survivors of Childhood Cancer', in Butow PN; Lam WWT (ed.), Psycho-Oncology, Oxford University Press, pp. 767 - 772, http://dx.doi.org/10.1093/med/9780190097653.003.0096
,Journal articles
2024, 'It just never ends: Childhood cancer survivors' perceived psychosocial impacts of recurrence and second cancer', Palliative and Supportive Care, 22, pp. 31 - 40, http://dx.doi.org/10.1017/S1478951522001328
,2023, 'Challenges and solutions to cancer-related financial toxicity according to Australian health professionals: qualitative results from a national survey', Supportive Care in Cancer, 31, pp. 441, http://dx.doi.org/10.1007/s00520-023-07875-4
,2023, 'OUTC-09. PEDIATRIC LOW GRADE GLIOMA SURVIVORS’ NEED FOR SURVIVORSHIP CARE: ‘ENGAGE’ A MULTIDISCIPLINARY, E-HEALTH INTERVENTION', Neuro-Oncology, 25, pp. i37 - i37, http://dx.doi.org/10.1093/neuonc/noad073.146
,2023, 'Childhood Cancer Survivors' Reported Late Effects, Motivations for Seeking Survivorship Care, and Patterns of Attendance', Oncologist, 28, pp. E276 - E286, http://dx.doi.org/10.1093/oncolo/oyad004
,2023, 'Hospitalizations in Australian children with neuroblastoma: A population-based study', Cancer Medicine, 12, pp. 10939 - 10949, http://dx.doi.org/10.1002/cam4.5806
,2023, 'Adapting the Voicing My CHOiCES Advance Care Planning Communication Guide for Australian Adolescents and Young Adults with Cancer: Appropriateness, Acceptability, and Considerations for Clinical Practice', Cancers, 15, pp. n/a - n/a, http://dx.doi.org/10.3390/cancers15072129
,2023, 'Opinions and strategies of Australian health professionals on tackling cancer-related financial toxicity: A nationwide survey', Asia-Pacific Journal of Clinical Oncology, 19, pp. 126 - 135, http://dx.doi.org/10.1111/ajco.13786
,2023, 'Neuroblastoma survivors’ self-reported late effects, quality of life, health-care use, and risk perceptions', Palliative and Supportive Care, 22, pp. 296 - 305, http://dx.doi.org/10.1017/S1478951523000615
,2023, 'A Scoping Review Exploring Access to Survivorship Care for Childhood, Adolescent, and Young Adult Cancer Survivors: How Can We Optimize Care Pathways?', Adolescent Health Medicine and Therapeutics, 14, pp. 153 - 174, http://dx.doi.org/10.2147/ahmt.s428215
,2022, 'eHealth tools for childhood cancer survivorship care: A qualitative analysis of survivors', parents', and general practitioners' views', PEC Innovation, 1, pp. 100010, http://dx.doi.org/10.1016/j.pecinn.2021.100010
,2022, 'Childhood cancer survivorship care: A qualitative study of healthcare providers’ professional preferences', Frontiers in Oncology, 12, http://dx.doi.org/10.3389/fonc.2022.945911
,2022, 'It's made a really hard situation even more difficult: The impact of COVID-19 on families of children with chronic illness', PLoS ONE, 17, http://dx.doi.org/10.1371/journal.pone.0273622
,2022, 'New Frontiers in Child, Adolescent and Young Adult Psycho-Oncology Survivorship Care', Cancers, 14, http://dx.doi.org/10.3390/cancers14184335
,2022, 'Childhood Cancer Survivors’ Adherence to Healthcare Recommendations Made Through a Distance-Delivered Survivorship Program', Journal of Multidisciplinary Healthcare, 15, pp. 1719 - 1734, http://dx.doi.org/10.2147/JMDH.S363653
,2021, 'Long-term health-related quality of life in young childhood cancer survivors and their parents', Pediatric Blood and Cancer, 68, pp. e29398, http://dx.doi.org/10.1002/pbc.29398
,2021, 'The lived experience of children and adolescents with cancer', Australian Journal of General Practice, 50, pp. 545 - 549, http://dx.doi.org/10.31128/AJGP-04-21-5945
,2021, 'A cost-effective approach to increasing participation in patient-reported outcomes research in cancer: A randomized trial of video invitations', International Journal of Cancer, 148, pp. 971 - 980, http://dx.doi.org/10.1002/ijc.33244
,2020, 'Genetic Testing in the Pediatric Nephrology Clinic: Understanding Families' Experiences', JOURNAL OF PEDIATRIC GENETICS, 11, pp. 117 - 125, http://dx.doi.org/10.1055/s-0040-1721439
,2020, 'The COVID-19 pandemic: Distance-delivered care for childhood cancer survivors', Pediatric Blood and Cancer, 67, http://dx.doi.org/10.1002/pbc.28715
,2020, 'Re-engage: A novel nurse-led program for survivors of childhood cancer who are disengaged from cancer-related care', JNCCN Journal of the National Comprehensive Cancer Network, 18, pp. 1067 - 1074, http://dx.doi.org/10.6004/jnccn.2020.7552
,2019, 'Perceived cancer-related pain and fatigue, information needs, and fear of cancer recurrence among adult survivors of childhood cancer', Patient Education and Counseling, 102, pp. 2270 - 2278, http://dx.doi.org/10.1016/j.pec.2019.06.022
,2019, 'Childhood cancer survivorship: barriers and preferences', BMJ Supportive and Palliative Care, 12, pp. E687 - E695, http://dx.doi.org/10.1136/bmjspcare-2019-002001
,2019, 'Paediatric surgery for childhood cancer: Lasting experiences and needs of children and parents', European Journal of Cancer Care, 28, pp. e13116, http://dx.doi.org/10.1111/ecc.13116
,2019, 'The Role of Primary Care Physicians in Childhood Cancer Survivorship Care: Multiperspective Interviews', Oncologist, 24, pp. 710 - 719, http://dx.doi.org/10.1634/theoncologist.2018-0103
,2019, '‘Why us?’ Causal attributions of childhood cancer survivors, survivors’ parents and community comparisons - a mixed methods analysis', Acta Oncologica, 58, pp. 209 - 217, http://dx.doi.org/10.1080/0284186X.2018.1532600
,2018, 'Attitudes and experiences of childhood cancer survivors transitioning from pediatric care to adult care', Supportive Care in Cancer, 26, pp. 2743 - 2750, http://dx.doi.org/10.1007/s00520-018-4077-5
,2018, 'Recruiting primary care physicians to qualitative research: Experiences and recommendations from a childhood cancer survivorship study', Pediatric Blood and Cancer, 65, http://dx.doi.org/10.1002/pbc.26762
,2017, 'Models of childhood cancer survivorship care in Australia and New Zealand: Strengths and challenges', Asia-Pacific Journal of Clinical Oncology, 13, pp. 407 - 415, http://dx.doi.org/10.1111/ajco.12700
,2017, 'The impact of long-term follow-up care for childhood cancer survivors: A systematic review', Critical Reviews in Oncology/Hematology, 114, pp. 131 - 138, http://dx.doi.org/10.1016/j.critrevonc.2017.04.007
,2017, 'Transition of childhood cancer survivors to adult care: The survivor perspective', Pediatric Blood and Cancer, 64, http://dx.doi.org/10.1002/pbc.26354
,2017, '“Forewarned and forearmed”: Long-term childhood cancer survivors’ and parents’ information needs and implications for survivorship models of care', Patient Education and Counseling, 100, pp. 355 - 363, http://dx.doi.org/10.1016/j.pec.2016.09.013
,2016, 'Primary Care Physicians’ Perspectives of Their Role in Cancer Care: A Systematic Review', Journal of General Internal Medicine, 31, pp. 1222 - 1236, http://dx.doi.org/10.1007/s11606-016-3746-7
,2016, 'Fertility concerns among child and adolescent cancer survivors and their parents: A qualitative analysis', Journal of Psychosocial Oncology, 34, pp. 347 - 362, http://dx.doi.org/10.1080/07347332.2016.1196806
,2016, 'Development and Evaluation of an Information Booklet for Grandparents of Children With Cancer', Journal of Pediatric Oncology Nursing, 33, pp. 361 - 369, http://dx.doi.org/10.1177/1043454215602689
,2016, 'The psychological impact of genetic information on children: A systematic review', Genetics in Medicine, 18, pp. 755 - 762, http://dx.doi.org/10.1038/gim.2015.181
,2016, 'Cancer survivorship services for indigenous peoples: where we stand, where to improve? A systematic review', Journal of Cancer Survivorship, 10, pp. 330 - 341, http://dx.doi.org/10.1007/s11764-015-0479-2
,2016, 'Sleep Disturbances in Childhood Cancer Survivors', Pediatric Blood and Cancer, 63, pp. 759 - 760, http://dx.doi.org/10.1002/pbc.25858
,2015, 'Dental hygiene in childhood cancer survivors: The importance of tertiary long term follow-up care', Pediatric Blood and Cancer, 62, pp. 921, http://dx.doi.org/10.1002/pbc.25421
,2015, 'Thank you for your lovely card: ethical considerations in responding to bereaved parents invited in error to participate in childhood cancer survivorship research', Medicine, Health Care and Philosophy, 18, pp. 113 - 119, http://dx.doi.org/10.1007/s11019-014-9587-4
,2015, 'Familial diagnostic experiences in paediatric oncology', British Journal of Cancer, 112, pp. 20 - 23, http://dx.doi.org/10.1038/bjc.2014.516
,2014, 'CENTRALISED LONG TERM FOLLOW-UP CLINICS FOR CHILDHOOD CANCER SURVIVORS: WHY DO SO MANY SURVIVORS NOT ATTEND?', PEDIATRIC BLOOD & CANCER, 61, pp. S306 - S306, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000343932100837&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
,2014, 'CHILDHOOD CANCER SURVIVORS: WHAT ARE THEIR MOTIVATORS AND BARRIERS TO PARTICIPATING IN LONG TERM FOLLOW-UP CARE?', ASIA-PACIFIC JOURNAL OF CLINICAL ONCOLOGY, 10, pp. 88 - 88, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000345350900041&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
,2014, 'Are Childhood Cancer Survivors and Their Parents Interested in Receiving Genetics-related Information and Services? A Multi-perspective, Mixed Methods Study', PSYCHO-ONCOLOGY, 23, pp. 91 - 92, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000344003700130&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
,2014, 'It's More than Dollars and Cents: The Impact of Childhood Cancer on Parents Occupational and Financial Health', Journal of Psychosocial Oncology, 32, pp. 602 - 621, http://dx.doi.org/10.1080/07347332.2014.936653
,2014, 'Perceptions of melanoma risk among Australian adolescents: Barriers to sun protection and recommendations for improvement', Australian & New Zealand Journal of Public Health, 38, pp. 321 - 325, http://dx.doi.org/10.1111/1753-6405.12209
,2014, 'Grandparents of children with cancer: A controlled study of distress, support, and barriers to care', Psycho-Oncology, 23, pp. 855 - 861, http://dx.doi.org/10.1002/pon.3513
,2014, '‘What they’re not telling you’: A new scale to measure grandparents’ information needs when their grandchild has cancer', Patient Education and Counseling, 94, pp. 351 - 355, http://dx.doi.org/10.1016/j.pec.2013.10.030
,2013, '‘Give as much help as you can, but tread carefully’: Grandparenting across the generations when a grandchild is diagnosed with cancer', European Journal of Oncology Nursing, 17, pp. 896 - 896, http://dx.doi.org/10.1016/j.ejon.2013.09.024
,2013, 'Childhood cancer survivors' school (re)entry: Australian parents' perceptions', European Journal of Cancer Care, 22, pp. 484 - 492, http://dx.doi.org/10.1111/ecc.12054
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