By Dr Sarah Jane Ellis

Journal articles

Schilstra CE; Sansom-Daly UM; Ellis SJ; Anazodo AC; Trahair TN; Lindsay T; Amiruddin A; O’Dwyer C; Maguire F; Nevin S; Battisti R; Fardell JE, 2024, 'Social Anxiety Symptoms in Adolescents and Young Adults Recently Diagnosed with Cancer', Journal of Adolescent and Young Adult Oncology, 13, pp. 674 - 682, http://dx.doi.org/10.1089/jayao.2023.0186

Fardell JE; Schilstra C; Hikila J; Collins D; Kelada L; Lah S; Cohn RJ; Wakefield CE; Ellis S, 2024, 'Survivors of child and adolescent cancer experiences of bullying at school or work: self-report and parent proxy report', Journal of Psychosocial Oncology Research and Practice, 6, http://dx.doi.org/10.1097/OR9.0000000000000130

Schilstra CE; Sansom-Daly UM; Ellis SJ; Trahair TN; Anazodo AC; Amiruddin A; Lindsay T; Maguire F; Wakefield CE; Lah S; Bland E; Lenthen K; Rifkin A; Awan A; Kittos T; Hanbury N; Tsalidis S; Patterson P; McDonald F; Fardell JE, 2024, 'Guidelines for Caring for the Social Well-Being of Adolescents and Young Adults with Cancer in Australia', Journal of Adolescent and Young Adult Oncology, 13, pp. 8 - 29, http://dx.doi.org/10.1089/jayao.2023.0027

Schilstra CE; Ellis SJ; Cohen J; Gall A; Diaz A; Clarke K; Dumlao G; Chard J; Cumming TM; Davis E; Dhillon H; Burns MA; Docking K; Koh ES; O'Reilly J; Sansom-Daly UM; Shaw J; Speers N; Taylor N; Warne A; Fardell JE, 2024, 'Exploring Web-Based Information and Resources That Support Adolescents and Young Adults With Cancer to Resume Study and Work: Environmental Scan Study', JMIR Cancer, 10, http://dx.doi.org/10.2196/47944

Signorelli C; Wakefield CE; McLoone JK; Johnston KA; Mertens AC; Osborn M; Cohn RJ; Alvaro F; Corbett R; Downie P; Egan K; Ellis S; Emery J; Fardell J; Foreman T; Gabriel M; Girgis A; Graham K; Johnston K; Jones J; Lockwood L; Maguire A; McCarthy M; Mechinaud F; Molloy S; Moore L; Skeen J; Tapp H; Till T; Truscott J; Turpin K; Williamson J; Walwyn T; Yallop K, 2023, 'Childhood Cancer Survivors' Reported Late Effects, Motivations for Seeking Survivorship Care, and Patterns of Attendance', Oncologist, 28, pp. E276 - E286, http://dx.doi.org/10.1093/oncolo/oyad004

Tan J; McLoone JK; Wakefield CE; Nassar N; Cohn RJ; Signorelli C, 2023, 'Neuroblastoma survivors’ self-reported late effects, quality of life, health-care use, and risk perceptions', Palliative and Supportive Care, 22, pp. 296 - 305, http://dx.doi.org/10.1017/S1478951523000615

Schilstra CE; Sansom-Daly UM; Schaffer M; Fardell JE; Anazodo AC; McCowage G; Fletcher JI; Marshall GM; Buchhorn-White J; Evtushenko M; Trahair TN; Ellis SJ, 2022, '"we Have All This Knowledge to Give, so Use Us as a Resource": Partnering with Adolescent and Young Adult Cancer Survivors to Determine Consumer-Led Research Priorities', Journal of Adolescent and Young Adult Oncology, 11, pp. 211 - 222, http://dx.doi.org/10.1089/jayao.2021.0052

Schilstra CE; Fardell JE; Ellis SJ; Jones KM; Anazodo AC; Trahair TN; Lah S; Cohn RJ; Wakefield CE; Sansom-Daly UM, 2022, 'Social Anxiety Symptoms in Survivors of Childhood and Adolescent Cancer', Journal of Adolescent and Young Adult Oncology, 11, pp. 129 - 137, http://dx.doi.org/10.1089/jayao.2021.0050

Kamaladasa DS; Sansom-Daly UM; Hetherington K; McGill BC; Ellis SJ; Kelada L; Donoghoe MW; Evans H; Anazodo A; Patterson P; Cohn RJ; Wakefield CE, 2021, 'How Are Families Faring? Perceived Family Functioning among Adolescent and Young Adult Cancer Survivors in Comparison to Their Peers', Journal of Adolescent and Young Adult Oncology, 10, pp. 711 - 719, http://dx.doi.org/10.1089/jayao.2020.0215

Fardell JE; Wakefield CE; De Abreu Lourenco R; Signorelli C; McCarthy M; McLoone J; Osborn M; Gabriel M; Anazodo A; Alvaro F; Lockwood L; Walwyn T; Skeen J; Tillemans R; Cohn RJ; Corbett R; Downie P; Egan K; Ellis S; Emery J; Foreman T; Girgis A; Graham K; Johnston K; Jones J; Maguire A; Mechinaud F; Molloy S; Moore L; Tapp H; Till T; Truscott J; Turpin K; Williamson J; Yallop K, 2021, 'Long-term health-related quality of life in young childhood cancer survivors and their parents', Pediatric Blood and Cancer, 68, pp. e29398, http://dx.doi.org/10.1002/pbc.29398

Wakefield CE; Sansom‐daly UM; McGill BC; Hetherington K; Ellis SJ; Robertson EG; Donoghoe MW; McCarthy M; Kelada L; Girgis A; King M; Grootenhuis M; Anazodo A; Patterson P; Lowe C; Dalla‐pozza L; Miles G; Cohn RJ; Sansom-Daly U, 2021, 'Providing psychological support to parents of childhood cancer survivors: ‘cascade’ intervention trial results and lessons for the future', Cancers, 13, pp. 5597, http://dx.doi.org/10.3390/cancers13225597

Sansom‐daly UM; Wakefield CE; Ellis SJ; McGill BC; Donoghoe MW; Butow P; Bryant RA; Sawyer SM; Patterson P; Anazodo A; Plaster M; Thompson K; Holland L; Osborn M; Maguire F; O’dwyer C; Lourenco RDA; Cohn RJ; Sansom-Daly U, 2021, 'Online, group‐based psychological support for adolescent and young adult cancer survivors: Results from the recapture life randomized trial', Cancers, 13, pp. 2460, http://dx.doi.org/10.3390/cancers13102460

Anazodo AC; Choi S; Signorelli C; Ellis S; Johnston K; Wakefield CE; Deans R; Neville KA; Cohn RJ, 2021, 'Reproductive Care of Childhood and Adolescent Cancer Survivors: A 12-Year Evaluation', Journal of Adolescent and Young Adult Oncology, 10, pp. 131 - 141, http://dx.doi.org/10.1089/jayao.2020.0157

Burns MA; Fardell JE; Wakefield CE; Cohn RJ; Marshall GM; Lum A; Ellis SJ; Donnan B; Walwyn T; Carter A; Barton B; Lah S, 2021, 'School and educational support programmes for paediatric oncology patients and survivors: A systematic review of evidence and recommendations for future research and practice', Psycho-Oncology, 30, pp. 431 - 443, http://dx.doi.org/10.1002/pon.5606

Signorelli C; Wakefield CE; McLoone JK; Mateos MK; Aaronson NK; Lavoipierre A; Cohn RJ; Alvaro F; Corbett R; Downie P; Egan K; Ellis S; Emery J; Fardell J; Foreman T; Gabriel M; Girgis A; Graham K; Johnston K; Jones J; Lockwood L; Maguire A; McCarthy M; Mechinaud F; Molloy S; Moore L; Osborn M; Skeen J; Tapp H; Till T; Truscott J; Turpin K; Walwyn T; Williamson J; Yallop K, 2021, 'A cost-effective approach to increasing participation in patient-reported outcomes research in cancer: A randomized trial of video invitations', International Journal of Cancer, 148, pp. 971 - 980, http://dx.doi.org/10.1002/ijc.33244

Burns MA; Aralova M; Ellis SJ; Aslanyan KS; Egorkina T; Wakefield CE, 2021, 'Pediatric psycho-oncology in Russia: Caregiver mental health and sleep outcomes on the oncology wards', Psycho-Oncology, 30, pp. 185 - 193, http://dx.doi.org/10.1002/pon.5547

Schilstra CE; Fardell JE; Burns MA; Ellis SJ; Anazodo AC; Trahair TN; Sansom-Daly UM; Gok C, 2021, 'Determinants of social functioning among adolescents and young adults with cancer: A systematic review', Psycho-Oncology, 30, pp. 1626 - 1642, http://dx.doi.org/10.1002/pon.5740

Hsu J; Sansom-Daly UM; Hetherington K; Ellis SJ; Donoghoe MW; Cohn RJ; Zentella-Tusie A; Wakefield CE, 2021, 'Health service and medication use of parents of childhood cancer survivors: a controlled comparison study', Acta Oncologica, 60, pp. 1325 - 1334, http://dx.doi.org/10.1080/0284186X.2021.1955968

Daniel LC; van Litsenburg RRL; Rogers VE; Zhou ES; Ellis SJ; Wakefield CE; Stremler R; Walter L; Crabtree VML, 2020, 'A call to action for expanded sleep research in pediatric oncology: A position paper on behalf of the International Psycho-Oncology Society Pediatrics Special Interest Group', Psycho-Oncology, 29, pp. 465 - 474, http://dx.doi.org/10.1002/pon.5242

Gabriel MG; Wakefield CE; Vetsch J; Karpelowsky JS; Darlington ASE; Cohn RJ; Signorelli C; Alvaro F; Corbett R; Downie P; Egan K; Ellis S; Emery J; Fardell J; Foreman T; Gabriel M; Girgis A; Graham K; Johnston K; Jones J; Lockwood L; Maguire A; McCarthy M; McLoone J; Mechinaud F; Molloy S; Moore L; Osborn M; Skeen J; Tapp H; Till T; Truscott J; Turpin K; Williamson J; Walwyn T; Yallop K, 2019, 'Paediatric surgery for childhood cancer: Lasting experiences and needs of children and parents', European Journal of Cancer Care, 28, pp. e13116, http://dx.doi.org/10.1111/ecc.13116

Sansom-Daly UM; Wakefield CE; Hetherington K; Evans HE; Ellis SJ; McGill BC; Cohn RJ, 2019, 'Author reply', Internal Medicine Journal, 49, pp. 808 - 809, http://dx.doi.org/10.1111/imj.14320

Mizrahi D; Fardell JE; Wakefield CE; Simar D; Maguire AM; Hubbard G; Cohn RJ; Fardell J; Foreman T; Girgis A; Signorelli C; Ellis S, 2019, 'How physically active do Australian and New Zealander childhood cancer survivors perceive themselves? A report from the ANZCHOG survivorship study', Complementary Therapies in Medicine, 44, pp. 196 - 203, http://dx.doi.org/10.1016/j.ctim.2019.04.020

Signorelli C; Wakefield CE; Fardell JE; Foreman T; Johnston KA; Emery J; Thornton-Benko E; Girgis A; Lie HC; Cohn RJ; Alvaro F; Corbett R; Downie P; Egan K; Ellis S; Gabriel M; Graham K; Jones J; Lockwood L; Maguire A; McCarthy M; McLoone J; Mechinaud F; Molloy S; Moore L; Osborn M; Skeen J; Tapp H; Till T; Truscott J; Turpin K; Walwyn T; Yallop K; Thornton E, 2019, 'The Role of Primary Care Physicians in Childhood Cancer Survivorship Care: Multiperspective Interviews', Oncologist, 24, pp. 710 - 719, http://dx.doi.org/10.1634/theoncologist.2018-0103

Ellis SJ; Fardell JE; Wakefield CE; Schilstra CE; Burns MA; Donnan B; Walwyn T; Lum A; Marshall G; Carter A; Barton B; Cohn RJ; Gok C, 2019, 'Are we meeting the training needs of healthcare and education professionals supporting children with cancer in their return to school?', Pediatric Blood and Cancer, 66, pp. e27575, http://dx.doi.org/10.1002/pbc.27575

Collins DE; Ellis SJ; Janin MM; Wakefield CE; Bussey K; Cohn RJ; Lah S; Fardell JE, 2019, 'A Systematic Review Summarizing the State of Evidence on Bullying in Childhood Cancer Patients/Survivors', Journal of Pediatric Oncology Nursing, 36, pp. 55 - 68, http://dx.doi.org/10.1177/1043454218810136

Janin MMH; Ellis SJ; Wakefield CE; Fardell JE, 2018, 'Talking about Cancer among Adolescent and Young Adult Cancer Patients and Survivors: A Systematic Review', Journal of Adolescent and Young Adult Oncology, 7, pp. 515 - 524, http://dx.doi.org/10.1089/jayao.2017.0131

Vetsch J; McGill BC; Sansom-Daly UM; Hetherington K; Ellis SJ; Marshall KH; Wakefield CE, 2018, 'Comorbidity of distress experienced by parents of childhood cancer survivors points to the importance of understanding transdiagnostic cognitive-affective mechanisms.', Acta Oncologica, 58, pp. 1 - 2, http://dx.doi.org/10.1080/0284186X.2018.1512157

Janin MMH; Ellis SJ; Lum A; Wakefield CE; Fardell JE, 2018, 'Parents’ Perspectives on Their Child's Social Experience in the Context of Childhood Chronic Illness: A Qualitative Study', Journal of Pediatric Nursing, 42, pp. e10 - e18, http://dx.doi.org/10.1016/j.pedn.2018.06.010

Nandakumar BS; Fardell JE; Wakefield CE; Signorelli C; McLoone JK; Skeen J; Maguire AM; Cohn RJ; Alvaro F; Corbett R; Downie P; Egan K; Emery J; Ellis S; Foreman T; Gabriel M; Girgis A; Graham K; Johnston K; Jones J; Lockwood L; McCarthy M; Molloy S; Osborn M; Tapp H; Till T; Truscott J; Turpin K; Walwyn T; Yallop K, 2018, 'Attitudes and experiences of childhood cancer survivors transitioning from pediatric care to adult care', Supportive Care in Cancer, 26, pp. 2743 - 2750, http://dx.doi.org/10.1007/s00520-018-4077-5

Vetsch J; Wakefield CE; McGill BC; Cohn RJ; Ellis SJ; Stefanic N; Sawyer SM; Zebrack B; Sansom-Daly UM, 2018, 'Educational and vocational goal disruption in adolescent and young adult cancer survivors', Psycho-Oncology, 27, pp. 532 - 538, http://dx.doi.org/10.1002/pon.4525

McGill BC; Sansom-Daly UM; Wakefield CE; Ellis SJ; Robertson EG; Cohn RJ, 2017, 'Therapeutic Alliance and Group Cohesion in an Online Support Program for Adolescent and Young Adult Cancer Survivors: Lessons from "recapture Life"', Journal of Adolescent and Young Adult Oncology, 6, pp. 568 - 572, http://dx.doi.org/10.1089/jayao.2017.0001

Sansom-Daly UM; Evans HE; Ellis SJ; McGill BC; Hetherington K; Wakefield CE, 2017, 'Something's got to give: time–cost trade-offs in site-specific research approval can negatively impact patient recruitment in multi-institutional studies', Internal Medicine Journal, 47, pp. 1088 - 1089, http://dx.doi.org/10.1111/imj.13535

Fardell JE; Wakefield CE; Signorelli C; Hill R; Skeen J; Maguire AM; McLoone JK; Cohn RJ; Alvaro F; Corbett R; Downie P; Egan K; Ellis S; Foreman T; Gabriel M; Girgis A; Graham K; Johnston K; Jones J; Lockwood L; McCarthy M; Molloy S; Osborn M; Tapp H; Till T; Truscott J; Turpin K; Walwyn T; Yallop K, 2017, 'Transition of childhood cancer survivors to adult care: The survivor perspective', Pediatric Blood and Cancer, 64, http://dx.doi.org/10.1002/pbc.26354

Ellis SJ; Wakefield CE; Antill G; Burns M; Patterson P, 2017, 'Supporting children facing a parent's cancer diagnosis: a systematic review of children's psychosocial needs and existing interventions', European Journal of Cancer Care, 26, pp. e12432, http://dx.doi.org/10.1111/ecc.12432

Ellis SJ; Wakefield CE; McLoone JK; Robertson EG; Cohn RJ, 2016, 'Fertility concerns among child and adolescent cancer survivors and their parents: A qualitative analysis', Journal of Psychosocial Oncology, 34, pp. 347 - 362, http://dx.doi.org/10.1080/07347332.2016.1196806

Robertson EG; Sansom-Daly UM; Wakefield CE; Ellis SJ; Mcgill BC; Doolan EL; Cohn RJ, 2016, 'Sexual and romantic relationships: Experiences of adolescent and young adult cancer survivors', Journal of Adolescent and Young Adult Oncology, 5, pp. 286 - 291, http://dx.doi.org/10.1089/jayao.2015.0061

Sansom-Daly UM; McGill BC; Anazodo AC; Plaster M; Maguire F; O'Dwyer C; Ellis SJ; Robertson EG; Cohn RJ; Wakefield CE, 2016, 'The Reality of Relapse: Impact of Cancer Relapse on Survivorship Interventions and Patient-Reported Outcomes Data', Pediatric Blood and Cancer, 63, pp. 1492 - 1493, http://dx.doi.org/10.1002/pbc.26001

Wakefield CE; Sansom-Daly UM; McGill BC; Ellis SJ; Doolan EL; Robertson EG; Mathur S; Cohn RJ, 2016, 'Acceptability and feasibility of an e-mental health intervention for parents of childhood cancer survivors: “Cascade”', Supportive Care in Cancer, 24, pp. 2685 - 2694, http://dx.doi.org/10.1007/s00520-016-3077-6

Wakefield CE; McLoone JK; Evans NT; Ellis SJ; Cohn RJ, 2014, 'It's More than Dollars and Cents: The Impact of Childhood Cancer on Parents Occupational and Financial Health', Journal of Psychosocial Oncology, 32, pp. 602 - 621, http://dx.doi.org/10.1080/07347332.2014.936653

Wakefield CE; Drew D; Ellis SJ; Doolan EL; McLoone JK; Cohn RJ, 2014, 'Grandparents of children with cancer: A controlled study of distress, support, and barriers to care', Psycho-Oncology, 23, pp. 855 - 861, http://dx.doi.org/10.1002/pon.3513

Cheung LLT; Wakefield CE; Ellis SJ; Mandalis A; Frow E; Cohn RJ, 2014, 'Neuropsychology reports for childhood brain tumor survivors: Implementation of recommendations at home and school', Pediatric Blood and Cancer, 61, pp. 1080 - 1087, http://dx.doi.org/10.1002/pbc.24940

Wakefield CE; Drew D; Ellis SJ; Doolan EL; McLoone JK; Cohn RJ, 2014, '‘What they’re not telling you’: A new scale to measure grandparents’ information needs when their grandchild has cancer', Patient Education and Counseling, 94, pp. 351 - 355, http://dx.doi.org/10.1016/j.pec.2013.10.030

Ellis SJ; Drew D; Wakefield CE; Saikal SL; Punch D; Cohn RJ, 2013, 'Results of a Nurse-Led Intervention: Connecting Pediatric Cancer Patients From the Hospital to the School Using Videoconferencing Technologies', Journal of Pediatric Oncology Nursing, 30, pp. 333 - 341, http://dx.doi.org/10.1177/1043454213514633

Drew D; Wakefield CE; Ellis SJ; Doolan EL; McLoone JK; Cohn RJ, 2013, '‘Give as much help as you can, but tread carefully’: Grandparenting across the generations when a grandchild is diagnosed with cancer', European Journal of Oncology Nursing, 17, pp. 896 - 896, http://dx.doi.org/10.1016/j.ejon.2013.09.024

Drew D; Wakefield CE; Ellis SE; Cohn RJ, 2012, '"The Forgotten Caregivers": Information and Support Needs of Grandparents of Children With Cancer', PSYCHO-ONCOLOGY, 21, pp. 62 - 63, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000299780800110&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1

Drew D; Wakefield CE; Punch D; Ellis SJ; Cohn RJ, 2012, 'From the Hospital Bed to the Classroom - Connecting Children With Cancer Using Online Videoconferencing', PSYCHO-ONCOLOGY, 21, pp. 62 - 62, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000299780800109&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1

Conference Papers

Sansom-Daly UM; Wakefield CE; Bryant RA; Ellis S; Doolan E; Cohn RJ, 2014, 'Adapting evidence-based psychological therapy to the computer screen for adolescent and young adult cancer survivors: preliminary results from the 'recapture life' randomised controlled trial', in Asia-Pacific Journal of Clinical Oncology, Wiley-Blackwell, pp. 36 - 36, http://gateway.webofknowledge.com/gateway/Gateway.cgi?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000346343700102&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1

Sansom-Daly UM; Wakefield CE; Bryant RA; Ellis SJ; Doolan EL; Cohn RJ, 2013, 'Adapting Evidence-Based Therapy to the Computer Screen in Adolescent and Young Adult Oncology: A Randomised Controlled Trial Evaluating the `Recapture Life' Program', in PSYCHO-ONCOLOGY, WILEY-BLACKWELL, pp. 99 - 99, 04 November 2013 - 08 November 2013, http://gateway.webofknowledge.com/gateway/Gateway.cgi?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=000325687200150&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1

Wakefield CE; Drew D; Ellis SJ; Doolan EJ; Cohn RJ, 2012, 'PREVALENCE OF GRANDPARENTAL DISTRESS, SUPPORT SERVICE USAGE AND BARRIERS TO ACCESS: A COMPARISON OF GRANDPARENTS OF CHILDREN WITH CANCER AND MATCHED CONTROLS', in PEDIATRIC BLOOD & CANCER, WILEY PERIODICALS, INC, pp. 1127 - 1127, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000309754300666&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1

Wakefield CE; Drew D; Doolan EJ; McLoone J; Cohn RJ; Ellis S, 2012, 'Grandparents of children with cancer: A controlled study of distress, support and barriers to care.', in 2012 IPOS 14th World Congress of Psycho-Oncology and Psychosocial Academy, Wiley-Blackwell, Brisbane, QLD, Australia, presented at 2012 IPOS 14th World Congress of Psycho-Oncology and Psychosocial Academy, Brisbane, QLD, Australia, 13 November 2012 - 15 November 2012, http://cosa-ipos-2012.p.asnevents.com.au/event/abstract/912

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