By Associate Professor Ursula Margaret Sansom-Daly

Journal articles

Sansom-Daly UM, 2023, 'Specialty Palliative Care for Adolescents and Young Adults with Cancer - Developmental Considerations and an Agenda for Future Research', JAMA Network Open, 6, http://dx.doi.org/10.1001/jamanetworkopen.2023.38681

Evans HE; Jessop S; Bedoya SZ; Lyon ME; Wiener L; Sansom-Daly UM, 2023, 'Examining the Cultural Appropriateness of Advance Care Planning Tools for Adolescents and Young Adults With Cancer: An Example of Cross-Cultural Adaptation of the Voicing My CHOiCES Tool', Current Problems in Cancer, 47, http://dx.doi.org/10.1016/j.currproblcancer.2023.101010

Pitt E; Bradford N; Robertson E; Sansom-Daly UM; Alexander K, 2023, 'The effects of cancer clinical decision support systems on patient-reported outcomes: A systematic review', European Journal of Oncology Nursing, 66, http://dx.doi.org/10.1016/j.ejon.2023.102398

Sansom-Daly UM; Zhang M; Evans HE; McLoone J; Wiener L; Cohn RJ; Anazodo A; Patterson P; Wakefield CE, 2023, 'Adapting the Voicing My CHOiCES Advance Care Planning Communication Guide for Australian Adolescents and Young Adults with Cancer: Appropriateness, Acceptability, and Considerations for Clinical Practice', Cancers, 15, pp. n/a - n/a, http://dx.doi.org/10.3390/cancers15072129

Chow WK; Hetherington K; McGill BC; Sansom-Daly UM; Daly R; Miles G; Cohn RJ; Wakefield CE, 2022, '‘Like ships in the night’: A qualitative investigation of the impact of childhood cancer on parents’ emotional and sexual intimacy', Pediatric Blood and Cancer, 69, http://dx.doi.org/10.1002/pbc.30015

Bu S; Smith A; Janssen A; Donnelly C; Dadich A; Mackenzie LJ; Smith AL; Young AL; Wu VS; Smith SJ; Sansom-Daly UM, 2022, 'Optimising implementation of telehealth in oncology: A systematic review examining barriers and enablers using the RE-AIM planning and evaluation framework', Critical Reviews in Oncology Hematology, 180, http://dx.doi.org/10.1016/j.critrevonc.2022.103869

Kapurubandara SC; Lowes B; Sansom-Daly UM; Deans R; Abbott JA, 2022, 'A systematic review of diagnostic tests to detect pelvic floor myofascial pain', International Urogynecology Journal, 33, pp. 2379 - 2389, http://dx.doi.org/10.1007/s00192-022-05258-7

Sansom-Daly UM; McLoone JK; Touyz L; Signorelli C, 2022, 'New Frontiers in Child, Adolescent and Young Adult Psycho-Oncology Survivorship Care', Cancers, 14, http://dx.doi.org/10.3390/cancers14184335

Trang J; Herbert A; Sansom-Daly UM, 2022, 'How can advance care planning tools help young people's voices be heard?', Journal of Paediatrics and Child Health, 58, pp. 1317 - 1322, http://dx.doi.org/10.1111/jpc.16095

Ownsworth T; Lion K; Sansom-Daly UM; Pike K; Koh ES; Halkett GKB; Pinkham MB; Chan RJ; Dhillon HM, 2022, 'Scoping the psychological support practices of Australian health professionals working with people with primary brain tumor and their families', Psycho Oncology, 31, pp. 1313 - 1321, http://dx.doi.org/10.1002/pon.5929

Sansom-Daly UM; Wiener L; Darlington AS; Poort H; Rosenberg AR; Weaver MS; Schulte F; Anazodo A; Phillips C; Sue L; Herbert AR; Mack JW; Lindsay T; Evans H; Wakefield CE; Girgis A; Al-Awamer A; Kirchhoff A; Cohn R; Fair D; Cable M; Wernli K; Donovan L; Mosher P; Fernando R; Trethewie S, 2022, 'Thinking globally to improve care locally: A Delphi study protocol to achieve international clinical consensus on best-practice end-of-life communication with adolescents and young adults with cancer', Plos One, 17, http://dx.doi.org/10.1371/journal.pone.0270797

Patterson P; McDonald FEJ; Allison KR; Bibby H; Osborn M; Matthews K; Sansom-Daly UM; Thompson K; Plaster M; Anazodo A, 2022, 'The Clinical Utility of the Adolescent and Young Adult Psycho-Oncology Screening Tool (AYA-POST): Perspectives of AYA Cancer Patients and Healthcare Professionals', Frontiers in Psychology, 13, http://dx.doi.org/10.3389/fpsyg.2022.872830

Schilstra CE; Sansom-Daly UM; Schaffer M; Fardell JE; Anazodo AC; McCowage G; Fletcher JI; Marshall GM; Buchhorn-White J; Evtushenko M; Trahair TN; Ellis SJ, 2022, '"we Have All This Knowledge to Give, so Use Us as a Resource": Partnering with Adolescent and Young Adult Cancer Survivors to Determine Consumer-Led Research Priorities', Journal of Adolescent and Young Adult Oncology, 11, pp. 211 - 222, http://dx.doi.org/10.1089/jayao.2021.0052

Schilstra CE; Fardell JE; Ellis SJ; Jones KM; Anazodo AC; Trahair TN; Lah S; Cohn RJ; Wakefield CE; Sansom-Daly UM, 2022, 'Social Anxiety Symptoms in Survivors of Childhood and Adolescent Cancer', Journal of Adolescent and Young Adult Oncology, 11, pp. 129 - 137, http://dx.doi.org/10.1089/jayao.2021.0050

Espinoza-Salgado FS; García RR; E.wakefield C; Kelada L; Sansom-Daly UM; McGill BC; Tusie AZ; García FLJ; Cardos RDSC; Zapata-Tarrés M, 2022, 'Mexican cultural adaptation of the CASCAdE intervention program for parents of childhood cancer survivors', Psicooncologia, 19, pp. 63 - 80, http://dx.doi.org/10.5209/psic.80798

Bulsara SM; Sansom-Daly UM; Begley K; Forsythe L; Livermore N; Riashi M, 2022, 'Navigating the scientist-practitioner continuum: strategies to enhance Australian psychologists’ capacity to be research leaders', Australian Psychologist, 57, pp. 1 - 7, http://dx.doi.org/10.1080/00050067.2021.1981743

Sariman JA; Harris NM; Harvey D; Sansom-Daly UM, 2022, 'The Experiences of Young People Living With Cancer in Regional and Remote Australia: A Qualitative Study', Australian Social Work, 75, pp. 205 - 218, http://dx.doi.org/10.1080/0312407X.2021.1977355

Kamaladasa DS; Sansom-Daly UM; Hetherington K; McGill BC; Ellis SJ; Kelada L; Donoghoe MW; Evans H; Anazodo A; Patterson P; Cohn RJ; Wakefield CE, 2021, 'How Are Families Faring? Perceived Family Functioning among Adolescent and Young Adult Cancer Survivors in Comparison to Their Peers', Journal of Adolescent and Young Adult Oncology, 10, pp. 711 - 719, http://dx.doi.org/10.1089/jayao.2020.0215

Harrison R; Raman M; Walpola RL; Chauhan A; Sansom-Daly UM, 2021, 'Preparing for partnerships in cancer care: an explorative analysis of the role of family-based caregivers', BMC Health Services Research, 21, http://dx.doi.org/10.1186/s12913-021-06611-0

Sansom-Daly UM; Lobb EA; Evans HE; Breen LJ; Ugalde A; Best M; Zomerdijk N; Beasley EA; Taylor KL; Clayton J; Sharpe L; Bartula I; Olver I, 2021, 'To be mortal is human: Professional consensus around the need for more psychology in palliative care', BMJ Supportive and Palliative Care, 11, pp. 401 - 403, http://dx.doi.org/10.1136/bmjspcare-2021-002884

Sansom‐daly UM; Wakefield CE; Signorelli C; Donoghoe MW; Anazodo A; Sawyer SM; Osborn M; Viney R; Daniell N; Faasse K; Cohn RJ; Sansom-Daly U, 2021, 'Patterns and predictors of healthcare use among adolescent and young adult cancer survivors versus a community comparison group', Cancers, 13, pp. 5270, http://dx.doi.org/10.3390/cancers13215270

Wakefield CE; Sansom‐daly UM; McGill BC; Hetherington K; Ellis SJ; Robertson EG; Donoghoe MW; McCarthy M; Kelada L; Girgis A; King M; Grootenhuis M; Anazodo A; Patterson P; Lowe C; Dalla‐pozza L; Miles G; Cohn RJ; Sansom-Daly U, 2021, 'Providing psychological support to parents of childhood cancer survivors: ‘cascade’ intervention trial results and lessons for the future', Cancers, 13, pp. 5597, http://dx.doi.org/10.3390/cancers13225597

Davies JP; Mcgill BC; Sansom-Daly UM; Wakefield CE; Kelly DM, 2021, '"This Is the First Time I've Talked about This": Considerations When Conducting Qualitative Research Interviews with Adolescents and Young Adults with Cancer', Journal of Adolescent and Young Adult Oncology, 10, pp. 540 - 548, http://dx.doi.org/10.1089/jayao.2020.0122

Ugalde A; Winter N; Sansom-Daly UM; Rhee J; Jongebloed H; Bergin RJ; Livingston PM, 2021, 'Effective integration of caregivers and families as part of the care team for people with cancer', Australian Journal of General Practice, 50, pp. 527 - 531, http://dx.doi.org/10.31128/AJGP-03-21-5897

McLoone J; Wakefield CE; Sansom-Daly UM; Thornton-Benko E; Govender D; Gabriel M; Walwyn T; Signorelli C; Johnston K; Cohn RJ; Thornton E, 2021, 'The lived experience of children and adolescents with cancer', Australian Journal of General Practice, 50, pp. 545 - 549, http://dx.doi.org/10.31128/AJGP-04-21-5945

Sansom‐daly UM; Wakefield CE; Ellis SJ; McGill BC; Donoghoe MW; Butow P; Bryant RA; Sawyer SM; Patterson P; Anazodo A; Plaster M; Thompson K; Holland L; Osborn M; Maguire F; O’dwyer C; Lourenco RDA; Cohn RJ; Sansom-Daly U, 2021, 'Online, group‐based psychological support for adolescent and young adult cancer survivors: Results from the recapture life randomized trial', Cancers, 13, pp. 2460, http://dx.doi.org/10.3390/cancers13102460

Clarke K; Patterson P; McDonald FEJ; Wakefield CE; Sansom-Daly U; Zebrack B, 2021, 'The Development and Process Evaluation of a 3-Day Acceptance and Commitment Therapy Group Program for Adolescent Cancer Survivors', Child and Youth Care Forum, 50, pp. 229 - 246, http://dx.doi.org/10.1007/s10566-020-09571-4

Schilstra CE; Fardell JE; Burns MA; Ellis SJ; Anazodo AC; Trahair TN; Sansom-Daly UM, 2021, 'Determinants of social functioning among adolescents and young adults with cancer: A systematic review', Psycho-Oncology, http://dx.doi.org/10.1002/pon.5740

Hsu J; Sansom-Daly UM; Hetherington K; Ellis SJ; Donoghoe MW; Cohn RJ; Zentella-Tusie A; Wakefield CE, 2021, 'Health service and medication use of parents of childhood cancer survivors: a controlled comparison study', Acta Oncologica, 60, pp. 1325 - 1334, http://dx.doi.org/10.1080/0284186X.2021.1955968

Sansom-Daly UM; Hetherington K; Hetherington K; McGill BC; McGill BC; Kelada L; Kelada L; McLoone J; McLoone J; Signorelli C; Signorelli C; Winkler L; Winkler L; Robertson EG; Robertson EG; Wakefield CE; Wakefield CE; Ellis SJ; Ellis SJ, 2021, 'Promise, pitfalls and progress of on-line cognitive behavioural therapy: Lessons learned from a paediatric oncology unit', Quaderni di Psicoterapia Cognitiva, pp. 85 - 100, http://dx.doi.org/10.3280/qpc47-2020oa11207

McLoone J; Wakefield CE; Taylor N; Johnston K; Sansom-Daly UM; Cohen J; O'Brien TA; Cohn RJ; Signorelli C, 2020, 'The COVID-19 pandemic: Distance-delivered care for childhood cancer survivors', Pediatric Blood and Cancer, 67, http://dx.doi.org/10.1002/pbc.28715

Lorimer SB; Sansom-Daly UM; Stech EP; Newby JM, 2020, 'Predictors of health anxiety in cancer patients' loved ones: A controlled comparison', Psycho Oncology, 29, pp. 1874 - 1882, http://dx.doi.org/10.1002/pon.5517

Sansom-Daly UM; Bradford N, 2020, 'Grappling with the “human” problem hiding behind the technology: Telehealth during and beyond COVID-19', Psycho Oncology, 29, pp. 1404 - 1408, http://dx.doi.org/10.1002/pon.5462

Baenziger J; Hetherington K; Wakefield CE; Carlson L; McGill BC; Cohn RJ; Michel G; Sansom-Daly UM, 2020, 'Understanding parents’ communication experiences in childhood cancer: a qualitative exploration and model for future research', Supportive Care in Cancer, 28, pp. 4467 - 4476, http://dx.doi.org/10.1007/s00520-019-05270-6

Kelada L; Wakefield CE; Vetsch J; Schofield D; Sansom-Daly UM; Hetherington K; O'Brien T; Cohn RJ; Anazodo A; Viney R; Zeppel MJB, 2020, 'Financial toxicity of childhood cancer and changes to parents’ employment after treatment completion', Pediatric Blood and Cancer, 67, http://dx.doi.org/10.1002/pbc.28345

Husson O; Poort H; Sansom-Daly UM; Netea-Maier R; Links T; Mols F, 2020, 'Psychological Distress and Illness Perceptions in Thyroid Cancer Survivors: Does Age Matter?', Journal of Adolescent and Young Adult Oncology, 9, pp. 375 - 383, http://dx.doi.org/10.1089/jayao.2019.0153

Sansom-Daly UM; Wakefield CE; Patterson P; Cohn RJ; Rosenberg AR; Wiener L; Fardell JE, 2020, 'End-of-Life Communication Needs for Adolescents and Young Adults with Cancer: Recommendations for Research and Practice', Journal of Adolescent and Young Adult Oncology, 9, pp. 157 - 165, http://dx.doi.org/10.1089/jayao.2019.0084

Sariman JA; Harris NM; Harvey D; Sansom-Daly UM, 2020, 'Experiences of Young People Living with Cancer in Nonmetropolitan Areas: A Review of the Literature', Journal of Adolescent and Young Adult Oncology, 9, pp. 133 - 144, http://dx.doi.org/10.1089/jayao.2019.0053

Evans HE; Sansom-Daly UM; Bryant R, 2020, 'Paediatric advance care plans: a cross-sectional survey of healthy young adults', BMJ Supportive and Palliative Care, 12, pp. E654 - E655, http://dx.doi.org/10.1136/bmjspcare-2019-001963

Radomski AD; Bagnell A; Curtis S; Hartling L; Newton AS, 2020, 'Examining the Usage, User Experience, and Perceived Impact of an Internet-Based Cognitive Behavioral Therapy Program for Adolescents With Anxiety: Randomized Controlled Trial', JMIR Mental Health, 7, pp. e15795, http://dx.doi.org/10.2196/15795

Sansom-Daly UM, 2019, 'Cancer, Sex, Drugs and Death: A Guide for the Psychological Management of Young People with Cancer by Dr. Toni Lindsay', Journal of Adolescent and Young Adult Oncology, 8, pp. 707 - 708, http://dx.doi.org/10.1089/jayao.2019.0066

Gessler D; Juraskova I; Sansom-Daly UM; Shepherd HL; Patterson P; Muscat DM, 2019, 'Clinician-patient-family decision-making and health literacy in adolescents and young adults with cancer and their families: A systematic review of qualitative studies', Psycho Oncology, 28, pp. 1408 - 1419, http://dx.doi.org/10.1002/pon.5110

Brierley MEE; Sansom-Daly UM; Baenziger J; McGill B; Wakefield CE, 2019, 'Impact of physical appearance changes reported by adolescent and young adult cancer survivors: A qualitative analysis', European Journal of Cancer Care, 28, http://dx.doi.org/10.1111/ecc.13052

Sansom-Daly UM; Wakefield CE; Hetherington K; Evans HE; Ellis SJ; McGill BC; Cohn RJ, 2019, 'Author reply', Internal Medicine Journal, 49, pp. 808 - 809, http://dx.doi.org/10.1111/imj.14320

Kelada L; Wakefield CE; Carlson L; Hetherington K; McGill BC; McCarthy MC; Miles G; Cohn RJ; Sansom-Daly UM, 2019, 'How Parents of Childhood Cancer Survivors Perceive Support From Their Extended Families', Journal of Child and Family Studies, 28, pp. 1537 - 1547, http://dx.doi.org/10.1007/s10826-019-01394-9

Sansom-Daly UM; Wakefield CE; Robertson EG; McGill BC; Wilson HL; Bryant RA, 2018, 'Adolescent and young adult cancer survivors' memory and future thinking processes place them at risk for poor mental health', Psycho Oncology, 27, pp. 2709 - 2716, http://dx.doi.org/10.1002/pon.4856

Ferraz de Arruda-Colli MN; Sansom-Daly U; Santos MAD; Wiener L, 2018, 'Considerations for the cross-cultural adaptation of an advance care planning guide for youth with cancer', Clinical Practice in Pediatric Psychology, 6, pp. 341 - 354, http://dx.doi.org/10.1037/cpp0000254

Sansom-Daly UM; Wakefield CE; Bryant RA; Patterson P; Anazodo A; Butow P; Sawyer SM; McGill BC; Evans HE; Cohn RJ, 2018, 'Feasibility, acceptability, and safety of the Recapture Life videoconferencing intervention for adolescent and young adult cancer survivors', Psycho-Oncology, http://dx.doi.org/10.1002/pon.4938

Vetsch J; McGill BC; Sansom-Daly UM; Hetherington K; Ellis SJ; Marshall KH; Wakefield CE, 2018, 'Comorbidity of distress experienced by parents of childhood cancer survivors points to the importance of understanding transdiagnostic cognitive-affective mechanisms.', Acta Oncologica, pp. 1 - 2, http://dx.doi.org/10.1080/0284186X.2018.1512157

Chalmers J; Sansom-Daly U; Patterson P; McCowage G; Anazodo A, 2018, 'Psychosocial Assessment Using Telehealth in Adolescents and Young Adults With Cancer: A Partially Randomized Patient Preference Pilot Study.', JMIR Research Protocols, Vol 7, http://dx.doi.org/10.2196/resprot.8886

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