By Associate Professor Ursula Margaret Sansom-Daly

Journal articles

Lee J; Evans H; Wakefield CE; Anazodo A; Cohn RJ; McGill BC; Lobb EA; Wiener L; Juhrmann ML; Sansom-Daly UM, 2026, '‘They Need to Hear You Say It’: Healthcare Professionals’ Perspectives on Barriers and Enablers to End-of-Life Discussions With Adolescents and Young Adults With Cancer', Pediatric Blood and Cancer, 73, http://dx.doi.org/10.1002/1545-5017.70369

Irestorm E; Wakefield CE; Houweling R; Hetherington K; McGill BC; McDonald FEJ; Cohn RJ; Sansom-Daly UM, 2026, 'Barriers and facilitators to implementing an online psychological intervention for adolescent and young adult cancer survivors in a community setting', Supportive Care in Cancer, 34, http://dx.doi.org/10.1007/s00520-026-10867-9

Muth E; Maseja N; Harper A; Qi S; Watson L; Link C; Vandale J; Reynolds K; Sansom-Daly UM; Silvius J; Fidler-Benaoudia MM, 2026, 'Medical Assistance in Dying Use Among Adolescent and Young Adult Patients With Cancer', JAMA Oncology, 12, pp. 599 - 608, http://dx.doi.org/10.1001/jamaoncol.2026.0700

Rhodes M; Signorelli C; Donoghoe MW; McLoone JK; Wakefield CE; Anazodo A; Sansom-Daly UM; Darlington AS; Sodergren SC; Cohn RJ; Fardell JE, 2026, 'Factors associated with health-related quality of life in survivors of childhood-onset and adult-onset cancer compared to controls', Supportive Care in Cancer, 34, http://dx.doi.org/10.1007/s00520-026-10775-y

De Silva G; Robertson EG; Bowers A; Schilstra C; Patel SK; McCarthy MC; McLoone J; Pole JD; Sansom-Daly UM; Oppelaar S; Cummings J; Bradford N, 2026, 'What Matters Most: The Top 10 Child and Adolescent Cancer Research Priorities in Australia', Health Expectations, 29, http://dx.doi.org/10.1111/hex.70689

Chitkara U; Chauhan A; Walsan R; Li M; Yeung E; Sansom-Daly UM; Harrison R, 2026, 'Supporting Advance Care Planning Among Mandarin and Cantonese Speaking Communities: A Qualitative Exploratory Study', Current Oncology, 33, http://dx.doi.org/10.3390/curroncol33050288

Haywood D; Hammersley J; Sansom-Daly UM; McLoone J; Dauer E; Wilding H; Hart NH; Walwyn T, 2026, 'Transitioning to adolescent and young adult or adult cancer survivorship care: A systematic review of contemporary guidelines and trials', Supportive Care in Cancer, 34, http://dx.doi.org/10.1007/s00520-026-10579-0

Burns MA; Lah S; Law C; Schilstra CE; Ellis SJ; Wakefield CE; Sansom-Daly UM; Cohn RJ; Marshall GM; Lum A; Donnan B; Walwyn T; Carter A; Fielden P; De Luca CR; Barton B; Drew D; Maguire F; O'Dwyer C; Fardell JE, 2026, 'High School Cancer Experience and Age at Diagnosis: Perspectives of Adolescents, Young Adults, and Parents', JOURNAL OF ADOLESCENT AND YOUNG ADULT ONCOLOGY, http://dx.doi.org/10.1177/21565333261438095

Jeon MS; He S; Shaw J; Koh ES; Kelly B; Pinkham MB; Legge DM; Halkett GKB; Chan RJ; Ownsworth T; Sansom-Daly UM; Kastelan M; Dhillon HM, 2026, 'What constitutes optimal care coordination for primary brain tumors and how do we assess it in Australia and Aotearoa New Zealand? A Delphi consensus study', Neuro Oncology Practice, 13, pp. 162 - 177, http://dx.doi.org/10.1093/nop/npaf082

Vajdic CM; Walker AR; Anazodo AC; Hacker NF; Chapman M; Opdahl S; Jorm L; Norman RJ; Stern C; Sansom-Daly UM; Chambers GM; Venetis C, 2026, 'Cancer Incidence in Women After Medically Assisted Reproduction', JAMA Network Open, 9, http://dx.doi.org/10.1001/jamanetworkopen.2026.1332

De Silva G; Robertson EG; Bowers A; Schilstra C; Patel SK; McCarthy MC; McLoone J; Pole JD; Sansom‐Daly UM; Oppelaar S; Cummings J; Bradford N, 2026, 'Cover Image', Health Expectations, 29, http://dx.doi.org/10.1111/hex.70697

Jessop S; Sankaran H; Sotelo C; Fullbright CD; Finnigan SR; Juhrmann ML; Stein JN; Sansom-Daly UM; Seibel NL; Villani A, 2026, 'Unique Challenges in Sarcoma Care for Adolescents and Young Adults.', Am Soc Clin Oncol Educ Book, 46, pp. e520036, http://dx.doi.org/10.1200/EDBK-26-520036

Chauhan A; Greenberg S; Jessop S; Huang N; Fifield-Smith H; El-Kabbout N; Yeung E; Kenny A; Faiz M; Hellander S; Tieu NT; Hussain E; Sansom-Daly UM; Manias E; Goldhirsch J; Abrahm JL; Harrison R, 2025, 'Codesigning the iCanPlan Program to promote advance care planning among consumers from ethnic minority backgrounds in cancer care', Supportive Care in Cancer, 33, http://dx.doi.org/10.1007/s00520-025-10186-5

Schilstra CE; Ellis SJ; Sedger A; Burns MA; Miller KA; Wakefield CE; Cohn RJ; Lah S; Sansom-Daly UM; Anazodo AC; Fardell JE, 2025, 'Social Participation Among Long-Term Survivors of Childhood and Adolescent Cancer', Pediatric Blood and Cancer, 72, http://dx.doi.org/10.1002/pbc.32042

Kube P; Sansom-Daly UM; Weaver M; Darlington AS; Vokinger AK; Ciampa D; Long K; Wiener L, 2025, 'They had to watch: How parents perceive the suffering of siblings of children with cancer', Palliative and Supportive Care, 23, http://dx.doi.org/10.1017/S1478951525100825

Chitkara U; Chauhan A; Walsan R; Li M; Pervaz Iqbal M; El-Kabbout N; Faiz M; Rocha VM; Sansom-Daly UM; Harrison R, 2025, 'Advance Care Planning in Multicultural Communities: A Document Analysis of Resources to Support Healthcare Staff and Consumers in Australia', Health Expectations, 28, http://dx.doi.org/10.1111/hex.70460

Chauhan A; Sansom-Daly UM; Manias E; Van Poucke M; Sarwar M; Tieu NT; El-Kabbout N; Walsan R; Chitkara U; Faiz M; Rocha VM; Harrison R, 2025, 'Implementing advance care planning with people from ethnic minority backgrounds with cancer: a qualitative study of factors affecting practice in Australia', Supportive Care in Cancer, 33, http://dx.doi.org/10.1007/s00520-025-09707-z

Evans HE; Ralph M; Jaaniste T; Wakefield CE; Sansom-Daly UM, 2025, 'The Rhythm of Connection: Describing the Heartbeats Intervention for Patients and Families Receiving Paediatric Palliative Care', Children, 12, http://dx.doi.org/10.3390/children12070884

Hayes TRC; Sansom-Daly UM; Kelada L; Baenziger J; Hetherington K; Cohn RJ; Holland LR; Plaster M; Houweling R; Wakefield CE, 2025, 'Exploring the impact of cancer on adolescents' and young adults' relational worlds', Journal of Psychosocial Oncology Research and Practice, 7, http://dx.doi.org/10.1097/OR9.0000000000000175

Sansom-Daly UM; McLoone JK; Fardell JE; Evans HE; McGill BC; Robertson EG; Signorelli C; Ellis S; Ha L; Hetherington K; Houweling RE; Nevin SM; Schilstra CE; Mitchell R; Haber M; Cohn RJ; Wakefield CE, 2025, 'Bridging the Gap: Embedding Psychosocial Oncology Research into Comprehensive Cancer Care for Children and Young People', Cancers, 17, pp. 2123 - 2123, http://dx.doi.org/10.3390/cancers17132123

Jeon MS; Banks H; He S; Carlick T; Shaw JM; Kelly B; Koh ES; Halkett GKB; Ownsworth T; Chan RJ; Pinkham MB; Sansom-Daly UM; Dhillon HM; Agar M; Blackler T; Chan R; Haydon H; Legge D; Leonard R; Kelly B; Koh ES; Nowak A; Ownsworth T; Pike K; Rankin N; Pinkham M; Sansom-Daly U; Rhee J; Miller A; Milley K; Faris M; Campbell R; Jeon MS; Lion K; Banks H; Chen J; Fazon T; Lyne M; Virtue-Griffiths S; Buster J; McDougall E, 2025, 'Identifying components of care coordination for primary brain tumor: A scoping review', Neuro Oncology Practice, 12, pp. 357 - 375, http://dx.doi.org/10.1093/nop/npaf003

Kirchhofer SM; Orm S; Briggs NE; Fredriksen T; Zahl E; Prentice CM; Botta M; Kelada L; Sansom-Daly UM; Vatne TM; Fjermestad KW, 2025, 'Siblings in families of children with chronic disorders: A model of risk and protective factors', Journal of Pediatric Psychology, 50, pp. 488 - 499, http://dx.doi.org/10.1093/jpepsy/jsaf017

Campbell R; Shaw JM; Banks H; Carlick T; Faris MM; Jeon MS; Legge D; Foster C; Leonard R; Chan RJ; Agar MR; Miller A; Dhillon HM; McDougall E; Buster J; Vitangcol K; Virtue-Griffiths S; Lyne M; Fazon T; Chen J; Lion K; Milley K; Rhee J; Sansom-Daly U; Rankin N; Pike K; Ownsworth T; Nowak A; Koh ES; Kelly B; Haydon H; Halkett G; Blackler T, 2025, 'Co-designing a web-based intervention (RESTORE) to support self-management of cancer-related fatigue in people living with a brain tumour', Supportive Care in Cancer, 33, http://dx.doi.org/10.1007/s00520-025-09471-0

Pike KE; Virtue-Griffiths SEB; Campbell R; Legge DM; Lion K; Moller CI; Ownsworth T; Pinkham MB; Saliba L; Sansom-Daly UM; Vuksanovic D; Shaw J; Dhillon HM, 2025, 'A randomized controlled trial of a telehealth group cognitive intervention (LaTCH-BRAINS) to improve cognition after primary brain tumor diagnosis', Neuro Oncology Advances, 7, http://dx.doi.org/10.1093/noajnl/vdaf182

Irestorm E; Wakefield CE; Hetherington K; McGill BC; Evans HE; McDonald F; Patterson P; Beattie A; Cohn RJ; Sansom-Daly UM, 2025, 'Recapturing Life: Virtual Peer-Based Psychological Support for Adolescent and Young Adult Cancer Survivors Delivered in the Community', Journal of Adolescent and Young Adult Oncology, http://dx.doi.org/10.1177/21565333251369689

Kube P; Weaver M; Sansom-Daly U; Darlington AS; Wiener L, 2025, 'Suffering is a Useful Concept When We Understand the Sufferer', American Journal of Bioethics, 25, pp. 30 - 32, http://dx.doi.org/10.1080/15265161.2025.2525783

Sansom-Daly UM; Kirton C; Lim CYS; Wakefield CE; Hetherington K; McGill BC; Evans HE; Patterson P; Ellis SJ, 2025, 'Support through the screen: therapeutic alliance and group cohesion processes in group videoconferencing-based psychological programs for young cancer survivors', Australian Psychologist, 60, pp. 125 - 138, http://dx.doi.org/10.1080/00050067.2024.2436922

Nic Giolla Easpaig B; Newman B; Johnson J; Laidsaar-Powell R; Sansom-Daly UM; Jones L; Hofstätter L; Robertson EG; Mears S; Sattarshetty K; Houweling RE; Edge R; Cummings J; Harrison R, 2025, 'What can we learn from the evidence of psychosocial support for carers of people with cancer and how do we advance our efforts? A meta-review study', Journal of Cancer Survivorship, http://dx.doi.org/10.1007/s11764-025-01802-8

Sansom-Daly UM; Evans HE; Darlington AS; Weaver MS; Rosenberg AR; Wiener L; Anazodo A; Sue L; Cable M; Fernando RA; Herbert AR; Lindsay T; Cohn RJ; Wakefield CE, 2024, 'Alignment of Palliative Care Service Structure and Standards of Care for Adolescents and Young Adults with Cancer: An International Survey of Clinical Practice', Journal of Palliative Medicine, 27, pp. 1606 - 1617, http://dx.doi.org/10.1089/jpm.2024.0141

Chauhan A; Chitkara U; Walsan R; Sansom-Daly UM; Manias E; Seah D; Dalli A; El-Kabbout N; Tieu T; Sarwar M; Faiz M; Huang N; Rocha VM; Pal A; Harrison R, 2024, 'Co-designing strategies to improve advance care planning among people from culturally and linguistically diverse backgrounds with cancer: iCanCarePlan study protocol', BMC Palliative Care, 23, http://dx.doi.org/10.1186/s12904-024-01453-z

Easpaig BNG; Newman B; Johnson J; Sansom-Daly UM; Jones L; Hofstätter L; Robertson EG; Harrison R, 2024, 'Adapting a Preparatory Skills-Building Programme for Carers of People With Cancer Through Co-Design: The iCanSupport Project', Health Expectations, 27, http://dx.doi.org/10.1111/hex.70061

Schilstra CE; Sansom-Daly UM; Ellis SJ; Anazodo AC; Trahair TN; Lindsay T; Amiruddin A; O’Dwyer C; Maguire F; Nevin S; Battisti R; Fardell JE, 2024, 'Social Anxiety Symptoms in Adolescents and Young Adults Recently Diagnosed with Cancer', Journal of Adolescent and Young Adult Oncology, 13, pp. 674 - 682, http://dx.doi.org/10.1089/jayao.2023.0186

Faris MM; Dhillon HM; Campbell R; Halkett GKB; Miller A; Chan RJ; Haydon HM; Sansom-Daly UM; Koh ES; Ownsworth T; Nowak AK; Kelly B; Leonard R; Pike KE; Legge DM; Pinkham MB; Agar MR; Shaw J, 2024, 'Unmet needs in people with high-grade glioma: defining criteria for stepped care intervention', Jnci Cancer Spectrum, 8, http://dx.doi.org/10.1093/jncics/pkae034

Evans HE; Sansom-Daly UM; Bryant RA, 2024, 'Attachment as a mechanism influencing end-of-life communication: An analogue investigation', Plos One, 19, http://dx.doi.org/10.1371/journal.pone.0303652

Schilstra CE; Sansom-Daly UM; Ellis SJ; Trahair TN; Anazodo AC; Amiruddin A; Lindsay T; Maguire F; Wakefield CE; Lah S; Bland E; Lenthen K; Rifkin A; Awan A; Kittos T; Hanbury N; Tsalidis S; Patterson P; McDonald F; Fardell JE, 2024, 'Guidelines for Caring for the Social Well-Being of Adolescents and Young Adults with Cancer in Australia', Journal of Adolescent and Young Adult Oncology, 13, pp. 8 - 29, http://dx.doi.org/10.1089/jayao.2023.0027

Schilstra CE; Ellis SJ; Cohen J; Gall A; Diaz A; Clarke K; Dumlao G; Chard J; Cumming TM; Davis E; Dhillon H; Burns MA; Docking K; Koh ES; O'Reilly J; Sansom-Daly UM; Shaw J; Speers N; Taylor N; Warne A; Fardell JE, 2024, 'Exploring Web-Based Information and Resources That Support Adolescents and Young Adults With Cancer to Resume Study and Work: Environmental Scan Study', Jmir Cancer, 10, http://dx.doi.org/10.2196/47944

Baenziger J; Roser K; Mader L; Ilic A; Sansom-Daly UM; von Bueren AO; Tinner EM; Michel G, 2024, 'Post-traumatic growth in parents of long-term childhood cancer survivors compared to the general population: A report from the Swiss childhood cancer survivor study—Parents', Psycho Oncology, 33, http://dx.doi.org/10.1002/pon.6246

Easpaig BNG; Newman B; Johnson J; Laidsaar-Powell R; Sansom-Daly UM; Jones L; Hofstätter L; Robertson EG; Mears S; Sattarshetty K; Harrison R, 2024, 'Supporting Carers: Study Protocol of a Meta-Review of Psychosocial Interventions for Carers of People With Cancer', Jmir Research Protocols, 13, http://dx.doi.org/10.2196/56403

McLoone JK; Sansom-Daly UM; Paglia A; Chia J; Larsen HB; Fern LA; Cohn RJ; Signorelli C, 2023, 'A Scoping Review Exploring Access to Survivorship Care for Childhood, Adolescent, and Young Adult Cancer Survivors: How Can We Optimize Care Pathways?', Adolescent Health Medicine and Therapeutics, 14, pp. 153 - 174, http://dx.doi.org/10.2147/ahmt.s428215

Goodwin B; Anderson L; Collins K; Sanjida S; Riba M; Singh GK; Campbell KM; Green H; Ishaque S; Kwok A; Opozda MJ; Pearn A; Shaw J; Sansom-Daly UM; Tsirgiotis JM; Janda M; Grech L, 2023, 'Anticipatory anxiety and participation in cancer screening. A systematic review', Psycho Oncology, 32, pp. 1773 - 1786, http://dx.doi.org/10.1002/pon.6238

Patterson P; Jacobsen RL; McDonald FEJ; Pflugeisen CM; Bibby K; Macpherson CF; Thompson K; Murnane A; Anazodo A; Sansom-Daly UM; Osborn MP; Hayward A; Kok C; Johnson RH, 2023, 'Beyond Medical Care: How Different National Models of Care Impact the Experience of Adolescent and Young Adult Cancer Patients', Journal of Adolescent and Young Adult Oncology, 12, pp. 859 - 867, http://dx.doi.org/10.1089/jayao.2022.0182

Sansom-Daly UM; Mack JW, 2023, 'Who gets to die at home? Race and disease-related cause of death impacts young adults’ place of death', Evidence Based Nursing, 27, pp. 79, http://dx.doi.org/10.1136/ebnurs-2023-103809

Sansom-Daly UM, 2023, 'Specialty Palliative Care for Adolescents and Young Adults with Cancer - Developmental Considerations and an Agenda for Future Research', JAMA Network Open, 6, http://dx.doi.org/10.1001/jamanetworkopen.2023.38681

Evans HE; Jessop S; Bedoya SZ; Lyon ME; Wiener L; Sansom-Daly UM, 2023, 'Examining the Cultural Appropriateness of Advance Care Planning Tools for Adolescents and Young Adults With Cancer: An Example of Cross-Cultural Adaptation of the Voicing My CHOiCES Tool', Current Problems in Cancer, 47, http://dx.doi.org/10.1016/j.currproblcancer.2023.101010

Pitt E; Bradford N; Robertson E; Sansom-Daly UM; Alexander K, 2023, 'The effects of cancer clinical decision support systems on patient-reported outcomes: A systematic review', European Journal of Oncology Nursing, 66, http://dx.doi.org/10.1016/j.ejon.2023.102398

Sansom-Daly UM; Zhang M; Evans HE; McLoone J; Wiener L; Cohn RJ; Anazodo A; Patterson P; Wakefield CE, 2023, 'Adapting the Voicing My CHOiCES Advance Care Planning Communication Guide for Australian Adolescents and Young Adults with Cancer: Appropriateness, Acceptability, and Considerations for Clinical Practice', Cancers, 15, pp. n/a - n/a, http://dx.doi.org/10.3390/cancers15072129

Chow WK; Hetherington K; McGill BC; Sansom-Daly UM; Daly R; Miles G; Cohn RJ; Wakefield CE, 2022, '‘Like ships in the night’: A qualitative investigation of the impact of childhood cancer on parents’ emotional and sexual intimacy', Pediatric Blood and Cancer, 69, http://dx.doi.org/10.1002/pbc.30015

Bu S; Smith A; Janssen A; Donnelly C; Dadich A; Mackenzie LJ; Smith AL; Young AL; Wu VS; Smith SJ; Sansom-Daly UM, 2022, 'Optimising implementation of telehealth in oncology: A systematic review examining barriers and enablers using the RE-AIM planning and evaluation framework', Critical Reviews in Oncology Hematology, 180, http://dx.doi.org/10.1016/j.critrevonc.2022.103869

Kapurubandara SC; Lowes B; Sansom-Daly UM; Deans R; Abbott JA, 2022, 'A systematic review of diagnostic tests to detect pelvic floor myofascial pain', International Urogynecology Journal, 33, pp. 2379 - 2389, http://dx.doi.org/10.1007/s00192-022-05258-7

Sansom-Daly UM; McLoone JK; Touyz L; Signorelli C, 2022, 'New Frontiers in Child, Adolescent and Young Adult Psycho-Oncology Survivorship Care', Cancers, 14, http://dx.doi.org/10.3390/cancers14184335

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