By Dr Carolyn Mazariego

Journal articles

Clausen MH; Mazariego C; Lai-Kwon J; Kichenadasse G, 2026, 'Patient-reported outcomes in Australian oncology: from emerging practice to system-wide care', Internal Medicine Journal, 56, pp. 1483 - 1487, http://dx.doi.org/10.1111/imj.70617

Chan J; Hastings J; Tiernan G; Paterson J; Lovell N; Betbeder-Matibet L; Tung PKM; Pink S; Lanzeni D; Donovan T; Milat A; Jorm L; Mazariego C; Zhang C; Fontaine G; Best S; Kennedy G; Michie S; Lin F; Taylor N, 2026, 'Combining implementation and data sciences to accelerate evidence integration into healthcare – ImpleMATE', F1000Research, 14, pp. 1184, http://dx.doi.org/10.12688/f1000research.169999.2

Mazariego C; Ramanathan M; Johnston DA; Li Z; McGill BC; Okamura M; Kelada L; Juraskova I; Wakefield CE; Taylor N, 2026, 'Optimizing Informed Consent for Australian Newborn Bloodspot Screening and Research: Consensus Workshop Insights and Recommendations', International Journal of Neonatal Screening, 12, pp. 65, http://dx.doi.org/10.3390/ijns12030065

Ambrens M; Shoesmith A; Mazariego C; Taylor N; Perry L; Poulos CJ; Barker AL; Taylor ME; McClean T; Lung T; Lim ML; Brown A; Miles L; Ngo M; Delbaere K; van Schooten KS, 2026, 'Co-creating an implementation model for digital health solutions for community aged care: an eHealth fall prevention program', Health Policy and Technology, 15, http://dx.doi.org/10.1016/j.hlpt.2026.101204

Ouyang Y; Tran H; Gellert B; Kennedy E; Mazariego-Jones C; David M; Vardy J, 2026, 'Exploring the barriers to optimal survivorship care for people living with Cancer in NSW', Supportive Care in Cancer, 34, http://dx.doi.org/10.1007/s00520-026-10921-6

Rammant E; Ramsey I; M. de Ligt K; Mazariego C; Pogoda K; Schmidt H; Beernaert K; Lidington E; Javan RC; Koczwara B; Sztankay M; van de Poll-Franse L; Van Hemelrijck M, 2026, 'Barriers and facilitators for implementing patient-reported outcome measures in oncology practices: an umbrella review', Quality of Life Research, 35, http://dx.doi.org/10.1007/s11136-026-04205-z

Sarkies M; Manski-Nankervis JA; Srinivasan S; Raffoul N; Mazariego C; Carrigan A; Hemmert C; Glenn N; Sullivan D; Radford J; Horton A; Taylor N; Best S; Moullin JC; Pang J; Braithwaite J; Watts GF, 2026, 'Barriers and Facilitators to Implementing Guideline Recommendations for Key Aspects of Familial Hypercholesterolemia Management in Australia: Primary Care Integration, Paediatric Management, and Treatment Adherence', Heart Lung and Circulation, 35, pp. 517 - 528, http://dx.doi.org/10.1016/j.hlc.2025.09.013

Mazariego C; Williamson K; McCarthy K; Gazzard A; Stuart K; Leon S; Taylor N; Rushton S; O’Brien T, 2026, 'Driving statewide digital transformation in oncology care: a change management case study using ADKAR methodology for the implementation of patient-reported outcomes in cancer clinical care', Jbi Evidence Implementation, Publish Ahead of Print, http://dx.doi.org/10.1097/XEB.0000000000000559

McKay S; Elias J; Mazariego C; Tyedmers E; Morrow A; Wakefield CE; Ziegler DS; Smith JD; Taylor N, 2026, 'A single logic model capturing clinical, service, and implementation interventions using a practical example in pediatric precision medicine', Jbi Evidence Implementation, http://dx.doi.org/10.1097/XEB.0000000000000600

Mazariego C; Gul H; Liang S; Kelly-Hanku A; Brady B; Allida S; Baffsky R; McErlean G; Crespo C; Hodgins M; Christie L; Peiris D; Debono D; MacMillan F; Ferguson C; Heneka N; Kennedy SG; Liu H; Morrow A; Fontaine G; Findlay M; Middleton S; Lim D; Straiton N; Taylor N, 2026, 'Critical actions for embedding research evidence into practice: how to get the most out of your implementation scientist', Jbi Evidence Implementation, 24, pp. 223 - 231, http://dx.doi.org/10.1097/XEB.0000000000000518

Chan J; Tyedmers E; Gonzalez M; Mckay S; Liang S; Tiernan G; Mazariego C; Elias J; Robles AT; Taylor N, 2026, 'Harnessing data science and artificial intelligence to advance implementation research and practice', Jbi Evidence Implementation, Publish Ahead of Print, http://dx.doi.org/10.1097/XEB.0000000000000635

Smith AL; Ly P; Keogh H; Rewais I; Valencour M; Wang Q; Hart NH; Mazariego C; Nekhlyudov L, 2026, 'Mapping advanced and metastatic cancer survivorship research in Australia: a systematic scoping review', Journal of Cancer Survivorship, http://dx.doi.org/10.1007/s11764-025-01937-8

Mazariego C; Williamson K; Leon S; McCarthy K; Stuart K; Gazzard A; Arnold A; Delaney G; Girgis A; Rushton S; O'Brien T, 2025, 'Statewide integration of electronic patient-reported outcome measures into routine oncology care: a mixed-methods implementation study', Eclinicalmedicine, 89, http://dx.doi.org/10.1016/j.eclinm.2025.103547

Chan J; Hastings J; Tiernan G; Paterson J; Lovell N; Betbeder-Matibet L; Tung PKM; Pink S; Lanzeni D; Donovan T; Milat A; Jorm L; Mazariego C; Zhang C; Fontaine G; Best S; Kennedy G; Michie S; Lin F; Taylor N, 2025, 'Combining implementation and data sciences to accelerate evidence integration into healthcare – ImpleMATE', F1000Research, 14, pp. 1184, http://dx.doi.org/10.12688/f1000research.169999.1

Mazariego CG; Avery S; Delaney GP; Fardell JE; Hayes S; Haywood D; Lai-Kwon J; Nolte S; Pearson J; Roberts NA; Signorelli C; Taylor N; Webber K; Koczwara B, 2025, 'Patient-reported outcomes (PROs) as personalised cancer care: report from a 2023 Australian consensus meeting (PROActive)', Eclinicalmedicine, 85, http://dx.doi.org/10.1016/j.eclinm.2025.103295

Okamura M; Minchin E; Mazariego C; Hersch J; Taylor N; Juraskova I, 2025, 'Informed Consent for Newborn Genomic Screening: Interest-Holder Perspectives on Dynamic Consent in an Evolving Landscape', International Journal of Neonatal Screening, 11, http://dx.doi.org/10.3390/ijns11020041

Li Z; Laginha KJ; Boyle F; Daly M; Dinner F; Hirsch P; Hobbs K; Kirsten L; Mazariego C; McAuley R; O’Brien M; O’Reilly A; Taylor N; Tobin L; Lewis S; Smith AL, 2025, 'Professionally led support groups for people living with advanced or metastatic cancer: a systematic scoping review of effectiveness and factors critical to implementation success within real-world healthcare and community settings', Journal of Cancer Survivorship, 19, pp. 957 - 977, http://dx.doi.org/10.1007/s11764-023-01515-w

Taylor N; Mazariego C; Baffsky R; Liang S; Wolfenden L; Presseau J; Fontaine G; Carland J; Shiner C; Wise S; Debono D; McKay S; Best S; Morrow A, 2025, 'Advancing the speed and science of implementation using mixed-methods process mapping – best practice recommendations', International Journal of Qualitative Methods, 24, pp. 16094069251340908, http://dx.doi.org/10.1177/16094069251340908

Elias J; McLoone JK; McKay S; Signorelli C; Cohn RJ; Wakefield CE; Mazariego C; Taylor N, 2025, 'Planning for Scale-Up and Sustainability: A Multi-site Process Evaluation Protocol for a Novel Intervention for Survivors of Childhood Brain Cancer', Global Implementation Research and Applications, 5, pp. 290 - 305, http://dx.doi.org/10.1007/s43477-025-00159-5

Mazariego C; Cox R; Kennedy E; Whittaker K; Taylor N; Varlow M, 2025, 'Investigating processes to support and improve informed financial consent in Australian cancer services: an implementation process mapping study and analysis', BMJ Open, 15, http://dx.doi.org/10.1136/bmjopen-2023-082622

Chan J; Hastings J; Tiernan G; Paterson J; Lovell N; Betbeder-Matibet L; Tung PKM; Pink S; Lanzeni D; Donovan T; Milat A; Jorm L; Mazariego C; Zhang C; Fontaine G; Best S; Kennedy G; Michie S; Lin F; Taylor N, 2025, 'Combining Implementation and Data Sciences to Accelerate Evidence Integration into Healthcare - ImpleMATE', F1000research, 14, pp. 1184, http://dx.doi.org/10.12688/f1000research.169999.3

Mazariego C; Daly R; McGill B; Kelada L; McKay S; Hetherington K; Ziegler DS; Wakefield CE; Taylor N, 2024, 'Barriers to access of precision guided therapies for children with high-risk cancer', Pediatric Blood and Cancer, 71, http://dx.doi.org/10.1002/pbc.31147

Kelada L; Jaaniste T; Cuganesan A; Chin WL; Tan SC; Wu J; Ilin R; Robertson E; Drew D; Wakefield CE, 2024, 'Illness-related communication between siblings and parents of children with chronic illness and life-limiting conditions: A qualitative analysis', Palliative and Supportive Care, 22, pp. 1353 - 1359, http://dx.doi.org/10.1017/S1478951524001056

Kelada L; Robertson EG; McKay S; McGill BC; Daly R; Mazariego C; Taylor N; Tyedmers E; Armitage N; Evans HE; Wakefield CE; Ziegler DS, 2024, 'Communicating with families of young people with hard-to-treat cancers: Healthcare professionals’ perspectives on challenges, skills, and training', Palliative and Supportive Care, 22, pp. 539 - 545, http://dx.doi.org/10.1017/S1478951523001992

Roberts NA; Esler R; Pearce A; Wyld D; Smith M; Woollett K; Mazariego C; Roberts MJ, 2024, 'Exploring Unmet Needs in Prostate Cancer Care: A Cross-sectional Descriptive Study', European Urology Open Science, 62, pp. 36 - 42, http://dx.doi.org/10.1016/j.euros.2024.01.018

Mazariego CG; McKay S; Tyedmers E; Kelada L; McGill BC; Daly R; Wakefield CE; Ziegler DS; Taylor N, 2024, 'Co-design of a paediatric oncology medicines database (ProCure) to support complex care provision for children with a hard-to-treat cancer', Frontiers in Medicine, 11, pp. 1332434, http://dx.doi.org/10.3389/fmed.2024.1332434

Signorelli C; Høeg BL; Asuzu C; Centeno I; Estapé T; Fisher P; Lam W; Levkovich I; Manne S; Miles A; Mullen L; Nekhlyudov L; Sade C; Shaw J; Singleton A; Travado L; Tsuchiya M; Lemmen J; Li J; Jefford M; Altman S; Anang R; Barrera M; Basen-Engquist K; Bidstrup P; Bilodeau K; Christodoulidou S; Cirila A; Cohee A; Dégi LC; Dhillon H; Duijts S; Fisher P; Foster C; Fournier V; Gitonga I; Goswami S; Ha L; Hack T; Heathcote L; Howard F; Hulbert-Williams N; Jacobsen P; Kassianos A; Koczwara B; Lam W; Lasebikan V; Lebel S; Leslie M; Levkovich I; Li J; Lim Høeg B; Liu X; Luigjes Y; Manne S; Martinez Tyson D; Mazariego C; Mirov Y; Nandakumar D; Larissa Nekhlyudo RN; Odiyo P; Ortolan P; Reshetova M; Ruble K; Smith B; Smrdel Š; Taylor C; Turner J; Veeraiah S; Wells E; Xu L; Zhang A, 2024, 'International Survey of Psychosocial Care for Cancer Survivors in Low-/Middle- and High-Income Countries: Current Practices, Barriers, and Facilitators to Care', JCO Global Oncology, 10, http://dx.doi.org/10.1200/GO.23.00418

Joshy G; Khalatbari-Soltani S; Soga K; Butow P; Laidsaar-Powell R; Koczwara B; Rankin NM; Brown S; Weber M; Mazariego C; Grogan P; Stubbs J; Thottunkal S; Canfell K; Blyth FM; Banks E, 2023, 'Pain and its interference with daily living in relation to cancer: a comparative population-based study of 16,053 cancer survivors and 106,345 people without cancer', BMC Cancer, 23, http://dx.doi.org/10.1186/s12885-023-11214-5

Mullen L; Signorelli C; Nekhlyudov L; Jacobsen PB; Gitonga I; Estapé T; Lim Høeg B; Miles A; Sade C; Mazariego C; Degi CL; Howard F; Manne S; Travado L; Jefford M; Mazariego-Jones C, 2023, 'Psychosocial care for cancer survivors: A global review of national cancer control plans', Psycho-Oncology, 32, pp. 1684 - 1693, http://dx.doi.org/10.1002/pon.6218

Todio E; Sharp J; Morrow A; Taylor N; Schofield P; Mazariego C, 2023, 'Examining the effectiveness and implementation of patient treatment decision-aid tools for men with localised prostate cancer: A systematic review', Psycho Oncology, 32, pp. 469 - 491, http://dx.doi.org/10.1002/pon.6094

Chiam K; Crowe J; Grogan P; Vaneckova P; Kohar A; Mazariego C; Nair-Shalliker V; Smith DP, 2023, 'Making informed decisions about prostate cancer testing Locally tailored factsheets on the burden of prostate cancer in Australia', Australian Journal of General Practice, 52, pp. 102 - 105, http://dx.doi.org/10.31128/AJGP-07-22-6500

Mazariego C; Jefford M; Chan RJ; Roberts N; Millar L; Anazodo A; Hayes S; Brown B; Saunders C; Webber K; Vardy J; Girgis A; Koczwara B, 2022, 'Priority recommendations for the implementation of patient-reported outcomes in clinical cancer care: a Delphi study', Journal of Cancer Survivorship, 16, pp. 33 - 43, http://dx.doi.org/10.1007/s11764-021-01135-2

Mazariego CG; Laidsaar-Powell R; Smith DP; Juraskova I, 2021, 'Avoiding the ‘survivorship abyss’: Qualitative insights from 15-year prostate cancer survivors', Psycho Oncology, 30, pp. 1745 - 1755, http://dx.doi.org/10.1002/pon.5738

Edge R; Meyers J; Tiernan G; Li Z; Schiavuzzi A; Chan P; Vassallo A; Morrow A; Mazariego C; Wakefield CE; Canfell K; Taylor N, 2021, 'Cancer care disruption and reorganisation during the COVID-19 pandemic in Australia: A patient, carer and healthcare worker perspective', Plos One, 16, pp. e0257420, http://dx.doi.org/10.1371/journal.pone.0257420

Edge R; Mazariego C; Li Z; Canfell K; Miller A; Koczwara B; Shaw J; Taylor N, 2021, 'Psychosocial impact of COVID-19 on cancer patients, survivors, and carers in Australia: a real-time assessment of cancer support services', Supportive Care in Cancer, 29, pp. 5463 - 5473, http://dx.doi.org/10.1007/s00520-021-06101-3

Keane A; Shi JF; Simms KT; Liu YJ; Lew JB; Mazariego C; Yuill S; Wu RF; Liu ZH; Zhao FH; Jeronimo J; Canfell K; Qiao YL, 2021, 'Health economic evaluation of primary human papillomavirus screening in urban populations in China', Cancer Epidemiology, 70, http://dx.doi.org/10.1016/j.canep.2020.101861

Mazariego CG; Juraskova I; Campbell R; Smith DP, 2020, 'Long-term unmet supportive care needs of prostate cancer survivors: 15-year follow-up from the NSW Prostate Cancer Care and Outcomes Study', Supportive Care in Cancer, 28, pp. 5511 - 5520, http://dx.doi.org/10.1007/s00520-020-05389-x

Mazariego CG; Egger S; King MT; Juraskova I; Woo H; Berry M; Armstrong BK; Smith DP, 2020, 'Fifteen year quality of life outcomes in men with localised prostate cancer: Population based Australian prospective study', BMJ, 371, http://dx.doi.org/10.1136/bmj.m3503

Laidsaar-Powell R; Konings S; Rankin N; Koczwara B; Kemp E; Mazariego C; Butow P, 2019, 'A meta-review of qualitative research on adult cancer survivors: current strengths and evidence gaps', Journal of Cancer Survivorship, 13, pp. 852 - 889, http://dx.doi.org/10.1007/s11764-019-00803-8

Liu YJ; Keane A; Simms KT; Lew JB; Shi JF; Mazariego C; Yuill S; Jeronimo J; Qiao YL; Canfell K, 2019, 'Development and application of a framework to estimate health care costs in China: The cervical cancer example', Plos One, 14, http://dx.doi.org/10.1371/journal.pone.0222760

Conference Papers

Gazzard A; Williamson K; Rushton S; Mazariego C, 2025, 'Digital Transformation in Oncology Care: A Case Study for the Implementation of Patient-Reported Outcomes in Oncology Services', in ASIA-PACIFIC JOURNAL OF CLINICAL ONCOLOGY, WILEY

Elias J; Mcloone J; Signorelli C; Liang S; Mckay S; Mazariego C; Wakefield C; Cohn R; Alchin J; Taylor N, 2025, 'Integrating Paediatric Cancer Survivorship Care Plans Into Primary Care: A Qualitative Study of Practitioners' Experiences', in PEDIATRIC BLOOD & CANCER, WILEY, pp. S928 - S929

Smith AL; Boyle F; Daly M; Dinner F; Franklin M; Hamilton M; Hirsch P; Hobbs K; Kirsten L; Laginha K-J; Lentern S; Lewis S; Li Z; Mackie G; Mazariego C; Chao R; O'Brien M; O'Reilly A; Persson JE; Taylor N; Tobin L, 2024, 'Equitable access to support groups for people with metastatic cancer: Do we have the evidence to support their implementation? And if so, what factors are impacting on their adoption and roll-out across Australia?', in ASIA-PACIFIC JOURNAL OF CLINICAL ONCOLOGY, WILEY, pp. 170 - 171

Tyedmers E; Mazariego C; Dobson M; Mckay S; Kelada L; McGill B; Daly R; Wakefield C; Ziegler D; Taylor N, 2023, 'Designing for implementation: co-design of a paediatric oncology medicines database (ProCure) to support complex care provision for children with a hard-to-treat cancer', in IMPLEMENTATION SCIENCE, BMC

Mckay S; Mazariego C; Dobson M; Tyedmers E; Kelada L; McGill B; Daly R; Wakefield CE; Ziegler D; Taylor N, 2023, 'Development of an implementation-focused logic model framework: a practical example of use to design and support complex care provision for children with a hard-to-treat-cancer', in IMPLEMENTATION SCIENCE, BMC

Mazariego C; Krzyzanowska M; Lovas M; Delaney G; Jefford M; Chan R; Anazodo A; Brown B; Millar L; Roberts N; Koczwara B, 2023, 'Strategies for sustainability: Implementation insights for long-term sustainment of programs that routinely collect Patient Reported Outcomes in cancer care clinical settings', in IMPLEMENTATION SCIENCE, BMC

Kelada L; Robertson E; McGill BC; Daly R; Mazariego C; Taylor N; McKay S; Tyedmers E; Wakefield CE; Ziegler D, 2023, 'CHALLENGES FACED BY HEALTHCARE PROFESSIONALS WHEN COMMUNICATING WITH FAMILIES OF YOUNG PEOPLE WITH A HARD-TO-TREAT CANCER', in INTERNATIONAL JOURNAL OF BEHAVIORAL MEDICINE, SPRINGER, pp. S90 - S90

Gerges M; Mazariego C; Meyers J; Gellert B; Sheppard J, 2022, 'Australian cancer survivors' unmet supportive care needs: A meta-review of what's next?', in ASIA-PACIFIC JOURNAL OF CLINICAL ONCOLOGY, WILEY, pp. 212 - 212

Mazariego C; Cox R; Whittaker K; Kennedy E; Varlow M, 2022, 'Informed financial consent processes in cancer services: Implementation recommendations from early adopters in Australia', in ASIA-PACIFIC JOURNAL OF CLINICAL ONCOLOGY, WILEY, pp. 200 - 201

Li Z; Laginha K-J; Boyle F; Daly M; Dinner F; Hirsch P; Hobbs K; Kirsten L; Lewis S; Mazariego C; McAuley R; O'Brien M; O'Rielly A; Taylor N; Tobin L; Smith AL, 2022, 'Professionally-led support groups for people living with advanced cancer: A systematic scoping review of effectiveness and factors critical to implementation success within real-world healthcare settings', in ASIA-PACIFIC JOURNAL OF CLINICAL ONCOLOGY, WILEY, pp. 198 - 198

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