By Dr Eden Grace Robertson

Journal articles

Rich V; Plummer K; Padhy S; Barratt T; Tran J; Treadgold C; Robertson EG, 2024, 'Captains on call: A qualitative investigation of an intervention to support children with retinoblastoma undergoing regular eye examinations', Psycho-Oncology, 33, http://dx.doi.org/10.1002/pon.6315

Robertson EG; Kelada L; Best S; Goranitis I; Pierce K; Roberts NJ; Sachdev R; Le Marne F; Macintosh R; Beavis E; Bye A; Palmer EE, 2024, 'Quality of life in caregivers of a child with a developmental and epileptic encephalopathy', Developmental Medicine and Child Neurology, 66, pp. 206 - 215, http://dx.doi.org/10.1111/dmcn.15695

Kelada L; Robertson EG; McKay S; McGill BC; Daly R; Mazariego C; Taylor N; Tyedmers E; Armitage N; Evans HE; Wakefield CE; Ziegler DS, 2024, 'Communicating with families of young people with hard-to-treat cancers: Healthcare professionals’ perspectives on challenges, skills, and training', Palliative and Supportive Care, http://dx.doi.org/10.1017/S1478951523001992

Robertson EG; Kelada L; Ilin R; Palmer EE; Bye A; Jaffe A; Kennedy SE; Ooi CY; Drew D; Wakefield CE, 2024, 'Psychological wellbeing among parents of a child living with a serious chronic illness: A cross-sectional survey study', Journal of Child Health Care, http://dx.doi.org/10.1177/13674935241238485

Gereis JM; Hetherington K; Robertson EG; Daly R; Donoghoe MW; Ziegler DS; Marshall GM; Lau LMS; Marron JM; Wakefield CE, 2023, 'Parents’ and adolescents’ perspectives and understanding of information about childhood cancer precision medicine', Cancer, 129, pp. 3645 - 3655, http://dx.doi.org/10.1002/cncr.34914

Wakefield CE; Hetherington K; Robertson EG; Donoghoe MW; Hunter JD; Vetsch J; Marron JM; Tucker KM; Marshall GM; Broom A; Haber M; Tyrrell V; Malkin D; Lau L; Mateos MK; O’Brien TA; Ziegler DS, 2023, 'Hopes, concerns, satisfaction and regret in a precision medicine trial for childhood cancer: a mixed-methods study of parent and patient perspectives', British Journal of Cancer, 129, pp. 1634 - 1644, http://dx.doi.org/10.1038/s41416-023-02429-1

Robertson EG; Roberts NJ; Le Marne F; Beavis E; Macintosh R; Kelada L; Best S; Goranitis I; Pierce K; Gill D; Sachdev R; Bye A; Palmer EE, 2023, '“Somewhere to turn to with my questions”: A pre-post pilot of an information linker service for caregivers who have a child with a Developmental and Epileptic Encephalopathy', European Journal of Paediatric Neurology, 47, pp. 94 - 104, http://dx.doi.org/10.1016/j.ejpn.2023.09.010

Signorelli C; Robertson EG; Valentin C; Alchin JE; Treadgold C, 2023, 'A Review of Creative Play Interventions to Improve Children’s Hospital Experience and Wellbeing', Hospital Pediatrics, 13, pp. E355 - E364, http://dx.doi.org/10.1542/hpeds.2022-006994

Pitt E; Bradford N; Robertson E; Sansom-Daly UM; Alexander K, 2023, 'The effects of cancer clinical decision support systems on patient-reported outcomes: A systematic review', European Journal of Oncology Nursing, 66, http://dx.doi.org/10.1016/j.ejon.2023.102398

Zavadil J; Singh M; Robertson EG; Clark L; Snaman JM; McNeil M; Acerra A; Baker JN, 2023, 'Going Virtual: Adapting an Institutional Annual Bereavement Event During the COVID-19 Pandemic', Journal of Pediatrics, 257, http://dx.doi.org/10.1016/j.jpeds.2023.03.007

Robertson Eden G; Josie C; Carlos T; Baker Justin N; Lisa C; Spraker-Perlman Holly L; Kaye Erica C, 2023, 'Medical experts and trusted confidants: parent perceptions of the clinician-parent relationship in childhood cancer', Supportive Care in Cancer, 31, http://dx.doi.org/10.1007/s00520-023-07575-z

Garcia-Quintero X; Cleves D; Cuervo MI; McNeil M; Salek M; Robertson EG; Gomez W; Baker JN; Kaye EC, 2023, 'Communication of Early Integration of Palliative Care for Children With Cancer in Latin America: The Care as a Vessel Metaphor', JCO global oncology, 9, pp. e2200281, http://dx.doi.org/10.1200/GO.22.00281

Gereis J; Hetherington K; Ha L; Robertson EG; Ziegler DS; Barlow-Stewart K; Tucker KM; Marron JM; Wakefield CE, 2022, 'Parents’ understanding of genome and exome sequencing for pediatric health conditions: a systematic review', European Journal of Human Genetics, 30, pp. 1216 - 1225, http://dx.doi.org/10.1038/s41431-022-01170-2

Robertson EG; Kelada L; Best S; Goranitis I; Grainger N; Le Marne F; Pierce K; Nevin SM; Macintosh R; Beavis E; Sachdev R; Bye A; Palmer EE, 2022, 'Acceptability and feasibility of an online information linker service for caregivers who have a child with genetic epilepsy: A mixed-method pilot study protocol', BMJ Open, 12, pp. e063249, http://dx.doi.org/10.1136/bmjopen-2022-063249

Hunter JD; Robertson EG; Hetherington K; Ziegler DS; Marshall GM; Kirk J; Marron JM; Denburg AE; Barlow-Stewart K; Warby M; Tucker KM; Lee BM; O’Brien TA; Wakefield CE; O'Brien T, 2022, 'What’s in a Name? Parents’ and Healthcare Professionals’ Preferred Terminology for Pathogenic Variants in Childhood Cancer Predisposition Genes', Journal of Personalized Medicine, 12, pp. 1327, http://dx.doi.org/10.3390/jpm12081327

Robertson E; Treadgold C; Cosby I; Sinclair M; Elsmore B; Ellis R; Franken C, 2022, 'Facilitating the Voice of Adolescents in Hospitals Through Art: A Case Report', Journal of Adolescent Health, 70, pp. 507 - 513, http://dx.doi.org/10.1016/j.jadohealth.2021.09.027

Wakefield CE; Sansom‐daly UM; McGill BC; Hetherington K; Ellis SJ; Robertson EG; Donoghoe MW; McCarthy M; Kelada L; Girgis A; King M; Grootenhuis M; Anazodo A; Patterson P; Lowe C; Dalla‐pozza L; Miles G; Cohn RJ; Sansom-Daly U, 2021, 'Providing psychological support to parents of childhood cancer survivors: ‘cascade’ intervention trial results and lessons for the future', Cancers, 13, pp. 5597, http://dx.doi.org/10.3390/cancers13225597

Treadgold C; Robertson E; Parker B, 2021, 'Starlight's “Captains on Call” Initiative: A partnership model that aims to positively distract children during medical procedures', International Journal of Integrated Care, 20, pp. 109 - 109, http://dx.doi.org/10.5334/ijic.s4109

Robertson EG; Wakefield CE; Tsoli M; Kellie SJ; Alvaro F; Gifford AJ; Weber MA; Rodriguez M; Kirby M; Ziegler DS, 2021, 'Parents' experiences of postmortem tumor donation for high-grade gliomas: Benefits and suggested improvements', Neuro-Oncology Advances, 3, pp. vdab087-, http://dx.doi.org/10.1093/noajnl/vdab087

Buchhorn-White J; Robertson EG; Wakefield CE; Cohen J, 2020, 'A decision aid for nutrition support is acceptable in the pediatric hospital setting', Journal of Pediatric Nursing, 55, pp. 165 - 173, http://dx.doi.org/10.1016/j.pedn.2020.08.013

Robertson E; Treadgold C; Parker B; Quinn L, 2020, 'Positive distraction for children during burn wound care in Australia — An evaluation of the ‘Captains on Call’ pilot', Journal of Pediatric Nursing, 54, pp. 10 - 17, http://dx.doi.org/10.1016/j.pedn.2020.05.001

Robertson EG; Cohen J; Signorelli C; Grant DM; Fardell JE; Wakefield CE, 2020, 'What instruments should we use to assess paediatric decision-making interventions? A narrative review', Journal of Child Health Care, 24, pp. 458 - 472, http://dx.doi.org/10.1177/1367493519869717

Robertson EG; Wakefield CE; Shaw J; Darlington AS; McGill BC; Cohn RJ; Fardell JE, 2019, 'Decision-making in childhood cancer: parents’ and adolescents’ views and perceptions', Supportive Care in Cancer, 27, pp. 4331 - 4340, http://dx.doi.org/10.1007/s00520-019-04728-x

Robertson EG; Wakefield CE; Cohn RJ; Battisti RA; Donoghoe MW; Ziegler DS; Fardell JE; Mitchell R; O'Brien TA, 2019, 'Piloting a parent and patient decision aid to support clinical trial decision making in childhood cancer', Psycho-Oncology, 28, pp. 1520 - 1529, http://dx.doi.org/10.1002/pon.5109

Sansom-Daly UM; Wakefield CE; Robertson EG; McGill BC; Wilson HL; Bryant RA, 2018, 'Adolescent and young adult cancer survivors' memory and future thinking processes place them at risk for poor mental health', Psycho-Oncology, 27, pp. 2709 - 2716, http://dx.doi.org/10.1002/pon.4856

Sansom-Daly UM; Wakefield CE; Bryant RA; Patterson P; Anazodo A; Butow P; Sawyer SM; McGill BC; Evans HE; Cohn RJ; Robertson E, 2018, 'Feasibility, acceptability, and safety of the Recapture Life videoconferencing intervention for adolescent and young adult cancer survivors', Psycho-Oncology, 28, pp. 284 - 292, http://dx.doi.org/10.1002/pon.4938

Robertson EG; Wakefield CE; Signorelli C; Cohn RJ; Patenaude A; Foster C; Pettit T; Fardell JE, 2018, 'Strategies to facilitate shared decision-making about pediatric oncology clinical trial enrollment: A systematic review', Patient Education and Counseling, 101, pp. 1157 - 1174, http://dx.doi.org/10.1016/j.pec.2018.02.001

Vetsch J; Wakefield CE; Robertson EG; Trahair TN; Mateos MK; Grootenhuis M; Marshall GM; Cohn RJ; Fardell JE, 2018, 'Health-related quality of life of survivors of childhood acute lymphoblastic leukemia: a systematic review', Quality of Life Research, 27, pp. 1431 - 1443, http://dx.doi.org/10.1007/s11136-018-1788-5

Robertson EG; Wakefield CE; Cohn RJ; O'Brien T; Ziegler DS; Fardell JE, 2018, 'The development of delta: Using agile to develop a decision aid for pediatric oncology clinical trial enrollment', JMIR Research Protocols, 7, pp. e119, http://dx.doi.org/10.2196/resprot.9258

McGill BC; Sansom-Daly UM; Wakefield CE; Ellis SJ; Robertson EG; Cohn RJ, 2017, 'Therapeutic Alliance and Group Cohesion in an Online Support Program for Adolescent and Young Adult Cancer Survivors: Lessons from "recapture Life"', Journal of Adolescent and Young Adult Oncology, 6, pp. 568 - 572, http://dx.doi.org/10.1089/jayao.2017.0001

May E; mcgill B; Anazodo A; wakefield C; Sansom-Daly U; Robertson E, 2017, 'Adolescent and Young Adult Cancer Survivors’ Experiences of the Healthcare System: A Qualitative Study.', Journal of Adolescent and Young Adult Oncology, 7, pp. 88 - 96, http://dx.doi.org/10.1089/jayao.2017.0015

Signorelli C; Wakefield CE; Fardell JE; Wallace WHB; Robertson EG; McLoone JK; Cohn RJ, 2017, 'The impact of long-term follow-up care for childhood cancer survivors: A systematic review', Critical Reviews in Oncology/Hematology, 114, pp. 131 - 138, http://dx.doi.org/10.1016/j.critrevonc.2017.04.007

Ellis SJ; Wakefield CE; McLoone JK; Robertson EG; Cohn RJ, 2016, 'Fertility concerns among child and adolescent cancer survivors and their parents: A qualitative analysis', Journal of Psychosocial Oncology, 34, pp. 347 - 362, http://dx.doi.org/10.1080/07347332.2016.1196806

Robertson EG; Sansom-Daly UM; Wakefield CE; Ellis SJ; Mcgill BC; Doolan EL; Cohn RJ, 2016, 'Sexual and romantic relationships: Experiences of adolescent and young adult cancer survivors', Journal of Adolescent and Young Adult Oncology, 5, pp. 286 - 291, http://dx.doi.org/10.1089/jayao.2015.0061

Sansom-Daly UM; McGill BC; Anazodo AC; Plaster M; Maguire F; O'Dwyer C; Ellis SJ; Robertson EG; Cohn RJ; Wakefield CE, 2016, 'The Reality of Relapse: Impact of Cancer Relapse on Survivorship Interventions and Patient-Reported Outcomes Data', Pediatric Blood and Cancer, 63, pp. 1492 - 1493, http://dx.doi.org/10.1002/pbc.26001

Wakefield CE; Sansom-Daly UM; McGill BC; Ellis SJ; Doolan EL; Robertson EG; Mathur S; Cohn RJ, 2016, 'Acceptability and feasibility of an e-mental health intervention for parents of childhood cancer survivors: “Cascade”', Supportive Care in Cancer, 24, pp. 2685 - 2694, http://dx.doi.org/10.1007/s00520-016-3077-6

Sansom-Daly UM; Lin M; Robertson EG; Wakefield CE; McGill BC; Girgis A; Cohn RJ, 2016, 'Health Literacy in Adolescents and Young Adults: An Updated Review', Journal of Adolescent and Young Adult Oncology, 5, pp. 106 - 118, http://dx.doi.org/10.1089/jayao.2015.0059

Aralova M; Robertson E; Putrya A; Goncharova L; Wakefield C; Aslanyan K, 2016, 'Relationships between Russian mothers and their children with, and without, cancer: A controlled study', International Journal of Healthcare, 2, http://dx.doi.org/10.5430/ijh.v2n2p73

Robertson E; Wakefield C; Marshall K; Sansom-Daly U, 2015, 'Strategies to improve adherence to treatment in adolescents and young adults with cancer: a systematic review', Clinical Oncology in Adolescents and Young Adults, Volume 5, pp. 35 - 49, http://dx.doi.org/10.2147/coaya.s85988

Conference Papers

Robertson E; Wakefield C; Hetherington K; Ziegler D, 2020, 'Parents' Expectations and Experiences of a Precision Medicine Trial for High-Risk Paediatric Cancer', in PEDIATRIC BLOOD & CANCER, WILEY, pp. S47 - S47, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000581769200091&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1

Robertson EG; Mitchell R; Wakefield CE; Lewis P; Cousens N; Marshall GM; Russell SJ; Ziegler DS; Anazodo AC; Trahair TN; Barbaric D; Cohn RJ; Alvaro F; O'Brien T, 2018, 'Enrolment in early phase paediatric oncology clinical trials: the healthcare professionals’ perspective (poster)', in Enrolment in early phase paediatric oncology clinical trials: the healthcare professionals’ perspective (poster), Australian and New Zealand Children’s Haematology and Oncology Group (ANZCHOG), Sydney, presented at Australian and New Zealand Children’s Haematology and Oncology Group (ANZCHOG), Sydney, 14 June 2018 - 16 June 2018

Robertson EG; Fardell J; Cohn R; Wakefield C, 2017, 'Decision-Making in Pediatric Oncology: Needs, Preferences and Experiences of Families', in PEDIATRIC BLOOD & CANCER, WILEY, pp. S491 - S492, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000408978204230&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1

Conference Presentations

Sansom-Daly U; Wakefield C; McGill B; Wilson H; Robertson E; Ellis S; Doolan E; Patterson P; Cohn R, 2015, 'Clinical challenges in implementing psychosocial support in the online space: experiences from the 'Recapture Life' trial', Vol. 24, pp. 14 - 14, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000358255000027&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1

Conference Abstracts

Gereis J; Hetherington K; Robertson E; Ziegler D; Wakefield C, 2022, 'PARENTS' AND PATIENTS' UNDERSTANDING OF A PRECISION MEDICINE TRIAL FOR HIGH-RISK CHILDHOOD CANCER', in PEDIATRIC BLOOD & CANCER, WILEY, Vol. 69, pp. S399 - S399, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000859203901450&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1

Robertson E; Wakefield C; Cohn R; Robert B; Donoghoe M; Ziegler D; Fardell J; Mitchell R; O'Brien T, 2019, 'Delta: A Parent and Patient Decision Aid to Support Clinical Trial Decision-Making in Childhood Cancer', in PEDIATRIC BLOOD & CANCER, WILEY, Vol. 66, pp. S118 - S118, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000488458001090&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1

Robertson E; Wakefield C; Cohn R; Fardell J, 2018, 'The Development of Delta: A Decision Aid to Help Parents Considering Enroling their Child in a Paediatric Oncology Clinical Trial', in PEDIATRIC BLOOD & CANCER, WILEY, Vol. 65, pp. S587 - S587, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000445195005094&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1

Robertson EG; Mitchell R; Wakefield CE; Lewis P; Cousens N; Marshall GM; Russell SJ; Ziegler DS; Anazodo A; Trahair TN; Barbaric D; Cohn RJ; Alvaro F; O'Brien TA, 2018, 'Enrolment in early phase paediatric oncology clinical trials: the healthcare professionals’ perspective.', Hong Kong, presented at International Psycho-Oncology Society, Hong Kong, 31 October 2018 - 02 November 2018

Robertson EG; Wakefield CE; Cohn RJ; Fardell JE, 2018, 'The development of Delta: A decision aid to help parents considering enroling their child in a paediatric oncology clinical trial', in PSYCHO-ONCOLOGY, WILEY, Vol. 27, pp. 215 - 215, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000448188000574&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1

Robertson E; Wakefield C; Cohn R; McGill B; Fardell J, 2018, 'Decision making in paediatric oncology: experiences and preferences of parents', in PSYCHO-ONCOLOGY, WILEY, Vol. 27, pp. 3 - 3, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000426522700002&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1

Robertson E; Wakefield C; Cohn R; O'Brien T; Ziegler D; Fardell J, 2018, 'The development of Delta: a decision aid to help parents considering enroling their child in a paediatric oncology clinical trial', in PSYCHO-ONCOLOGY, WILEY, Vol. 27, pp. 10 - 10, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000426522700019&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1

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