By Dr Janine Anita Vetsch

Journal articles

Vetsch J; Wakefield CE; Tucker KM; McCarthy M; Signorelli C; Walwyn T; Alvaro F; Cohn RJ, 2020, 'Genetics-related service and information needs of childhood cancer survivors and parents: a mixed-methods study', European Journal of Human Genetics, 28, pp. 6 - 16, http://dx.doi.org/10.1038/s41431-019-0481-7

Michel G; Mulder RL; van der Pal HJH; Skinner R; Bárdi E; Brown MC; Vetsch J; Frey E; Windsor R; Kremer LCM; Levitt G, 2019, 'Evidence-based recommendations for the organization of long-term follow-up care for childhood and adolescent cancer survivors: a report from the PanCareSurFup Guidelines Working Group', Journal of Cancer Survivorship, 13, pp. 759 - 772, http://dx.doi.org/10.1007/s11764-019-00795-5

Gabriel MG; Wakefield CE; Vetsch J; Karpelowsky JS; Darlington ASE; Cohn RJ; Signorelli C; Alvaro F; Corbett R; Downie P; Egan K; Ellis S; Emery J; Fardell J; Foreman T; Gabriel M; Girgis A; Graham K; Johnston K; Jones J; Lockwood L; Maguire A; McCarthy M; McLoone J; Mechinaud F; Molloy S; Moore L; Osborn M; Skeen J; Tapp H; Till T; Truscott J; Turpin K; Williamson J; Walwyn T; Yallop K, 2019, 'Paediatric surgery for childhood cancer: Lasting experiences and needs of children and parents', European Journal of Cancer Care, 28, pp. e13116, http://dx.doi.org/10.1111/ecc.13116

McGill BC; Wakefield CE; Vetsch J; Lim Q; Warby M; Metcalfe A; Byrne JA; Cohn RJ; Tucker KM, 2019, '“I remember how I felt, but I don't remember the gene”: Families’ experiences of cancer-related genetic testing in childhood', Pediatric Blood and Cancer, 66, http://dx.doi.org/10.1002/pbc.27762

Vetsch J; Wakefield CE; Techakesari P; Warby M; Ziegler DS; O'Brien TA; Drinkwater C; Neeman N; Tucker K, 2019, 'Healthcare professionals’ attitudes toward cancer precision medicine: A systematic review', Seminars in Oncology, 46, pp. 291 - 303, http://dx.doi.org/10.1053/j.seminoncol.2019.05.001

Vetsch J; Wakefield CE; Doolan EL; Signorelli C; McGill BM; Moore L; Techakesari P; Pieters R; Patenaude AF; McCarthy M; Cohn RJ; Wakefield C; Cohn R; Girgis A; McLoone J; Fardell J, 2019, '‘Why us?’ Causal attributions of childhood cancer survivors, survivors’ parents and community comparisons - a mixed methods analysis', Acta Oncologica, 58, pp. 209 - 217, http://dx.doi.org/10.1080/0284186X.2018.1532600

Mader L; Roser K; Baenziger J; Vetsch J; Winther JF; Scheinemann K; Michel G, 2019, 'Relationship status and quality of the partner relationship in parents of long-term childhood cancer survivors: The Swiss Childhood Cancer Survivor Study-Parents', Psycho-Oncology, 28, pp. 309 - 316, http://dx.doi.org/10.1002/pon.4941

McGill BC; Wakefield CE; Vetsch J; Barlow-Stewart K; Kasparian NA; Patenaude AF; Young MA; Cohn RJ; Tucker KM, 2019, 'Children and young people's understanding of inherited conditions and their attitudes towards genetic testing: A systematic review', Clinical Genetics, 95, pp. 10 - 22, http://dx.doi.org/10.1111/cge.13253

Warby M; Wakefield CE; Vetsch J; Tucker KM, 2019, 'Families’ and health care professionals’ attitudes towards Li-Fraumeni syndrome testing in children: A systematic review', Clinical Genetics, 95, pp. 140 - 150, http://dx.doi.org/10.1111/cge.13442

Christen S; Weishaupt E; Vetsch J; Rueegg CS; Mader L; Dehler S; Michel G, 2019, 'Perceived information provision and information needs in adolescent and young adult cancer survivors', European Journal of Cancer Care, 28, http://dx.doi.org/10.1111/ecc.12892

Vetsch J; McGill BC; Sansom-Daly UM; Hetherington K; Ellis SJ; Marshall KH; Wakefield CE, 2018, 'Comorbidity of distress experienced by parents of childhood cancer survivors points to the importance of understanding transdiagnostic cognitive-affective mechanisms.', Acta Oncologica, 58, pp. 1 - 2, http://dx.doi.org/10.1080/0284186X.2018.1512157

Vetsch J; Wakefield CE; Warby M; Tucker K; Patterson P; McGill BC; Metcalfe A; Cohn RJ; Fardell JE, 2018, 'Cancer-Related Genetic Testing and Personalized Medicine for Adolescents: A Narrative Review of Impact and Understanding', Journal of Adolescent and Young Adult Oncology, 7, pp. 259 - 262, http://dx.doi.org/10.1089/jayao.2017.0102

Vetsch J; Wakefield CE; Robertson EG; Trahair TN; Mateos MK; Grootenhuis M; Marshall GM; Cohn RJ; Fardell JE, 2018, 'Health-related quality of life of survivors of childhood acute lymphoblastic leukemia: a systematic review', Quality of Life Research, 27, pp. 1431 - 1443, http://dx.doi.org/10.1007/s11136-018-1788-5

Vetsch J; Rueegg CS; Mader L; Bergstraesser E; Diezi M; Kuehni CE; Michel G; Ammann R; Angst R; Ansari PDM; Beck-Popovic PDM; Brazzola P; Greiner J; Grotzer M; Hengartner H; Kuehne T; Leibundgut K; Niggli F; Rischewski PDJ; on der Weid N, 2018, 'Parents' preferences for the organisation of long-term follow-up of childhood cancer survivors', European Journal of Cancer Care, 27, http://dx.doi.org/10.1111/ecc.12649

Gabriel MG; Wakefield CE; Vetsch J; Karpelowsky JS; Darlington ASE; Grant DM; Signorelli C, 2018, 'The Psychosocial Experiences and Needs of Children Undergoing Surgery and Their Parents: A Systematic Review', Journal of Pediatric Health Care, 32, pp. 133 - 149, http://dx.doi.org/10.1016/j.pedhc.2017.08.003

Vetsch J; Wakefield CE; McGill BC; Cohn RJ; Ellis SJ; Stefanic N; Sawyer SM; Zebrack B; Sansom-Daly UM, 2018, 'Educational and vocational goal disruption in adolescent and young adult cancer survivors', Psycho-Oncology, 27, pp. 532 - 538, http://dx.doi.org/10.1002/pon.4525

Young AL; Butow PN; Vetsch J; Quinn VF; Patenaude AF; Tucker KM; Wakefield CE, 2017, 'Family Communication, Risk Perception and Cancer Knowledge of Young Adults from BRCA1/2 Families: a Systematic Review', Journal of Genetic Counseling, 26, pp. 1179 - 1196, http://dx.doi.org/10.1007/s10897-017-0125-4

Fardell JE; Vetsch J; Trahair T; Mateos MK; Grootenhuis MA; Touyz LM; Marshall GM; Wakefield CE, 2017, 'Health-related quality of life of children on treatment for acute lymphoblastic leukemia: A systematic review', Pediatric Blood and Cancer, 64, http://dx.doi.org/10.1002/pbc.26489

Vetsch J; Fardell JE; Wakefield CE; Signorelli C; Michel G; McLoone JK; Walwyn T; Tapp H; Truscott J; Cohn RJ, 2017, '“Forewarned and forearmed”: Long-term childhood cancer survivors’ and parents’ information needs and implications for survivorship models of care', Patient Education and Counseling, 100, pp. 355 - 363, http://dx.doi.org/10.1016/j.pec.2016.09.013

Mader L; Vetsch J; Christen S; Baenziger J; Roser K; Dehler S; Michel G, 2017, 'Education, employment and marriage in long-term survivors of teenage and young adult cancer compared with healthy controls.', Swiss Med Wkly, 147, pp. w14419, http://dx.doi.org/10.4414/smw.2017.14419

Michel G; Gianinazzi ME; Vetsch J; Mader L; Lupatsch JE; von der Weid NX; Rueegg CS, 2017, 'Physicians' experience with follow-up care of childhood cancer survivors - challenges and needs.', Swiss Med Wkly, 147, pp. w14457, http://dx.doi.org/10.4414/smw.2017.14457

Gianinazzi ME; Rueegg CS; Vetsch J; Lüer S; Kuehni CE; Michel G; Swiss Pediatric Oncology Group (SPOG) , 2016, 'Cancer's positive flip side: posttraumatic growth after childhood cancer.', Support Care Cancer, 24, pp. 195 - 203, http://dx.doi.org/10.1007/s00520-015-2746-1

Mader L; Rueegg CS; Vetsch J; Rischewski J; Ansari M; Kuehni CE; Michel G; Swiss Paediatric Oncology Group (SPOG) , 2016, 'Employment Situation of Parents of Long-Term Childhood Cancer Survivors.', PLoS One, 11, pp. e0151966, http://dx.doi.org/10.1371/journal.pone.0151966

Vetsch J; Rueegg CS; Mader L; Bergstraesser E; Rischewski J; Kuehni CE; Michel G; Swiss Paediatric Oncology Group , 2016, 'Follow-up care of young childhood cancer survivors: attendance and parental involvement.', Support Care Cancer, 24, pp. 3127 - 3138, http://dx.doi.org/10.1007/s00520-016-3121-6

Christen S; Vetsch J; Mader L; Dehler S; Korol D; Kuehni C; Rueegg CS; Michel G, 2016, 'Preferences for the organization of long-term follow-up in adolescent and young adult cancer survivors.', Support Care Cancer, 24, pp. 3425 - 3436, http://dx.doi.org/10.1007/s00520-016-3157-7

Vetsch J; Rueegg CS; Gianinazzi ME; Bergsträsser E; von der Weid NX; Michel G; Swiss Paediatric Oncology Group (SPOG) , 2015, 'Information needs in parents of long-term childhood cancer survivors.', Pediatr Blood Cancer, 62, pp. 859 - 866, http://dx.doi.org/10.1002/pbc.25418

Michel G; Vetsch J, 2015, 'Screening for psychological late effects in childhood, adolescent and young adult cancer survivors: a systematic review.', Curr Opin Oncol, 27, pp. 297 - 305, http://dx.doi.org/10.1097/CCO.0000000000000196

Conference Abstracts

Mcgill B; Wakefield C; Vetsch J; Duve E; Warby M; Cohn R; Tucker K, 2019, 'Parents' and Young Adults' Perspectives on Undertaking Cancer-Related Genetic Testing in Childhood: A Mixed-Methods Study', in PEDIATRIC BLOOD & CANCER, WILEY, Vol. 66, pp. S117 - S118, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000488458001089&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1

Vetsch J; Wakefield CE; Warby M; Tucker K; Duve E; Marshall G; Trahair T; O'Brien T; Lau L; Ziegler D, 2019, 'Families' and healthcare professionals' uncertainties in the era of cancer precision medicine: results from PRISM', in EUROPEAN JOURNAL OF HUMAN GENETICS, NATURE PUBLISHING GROUP, SWEDEN, Gothenburg, Vol. 27, pp. 1172 - 1172, presented at 52nd Conference of the European-Society-of-Human-Genetics (ESHG), SWEDEN, Gothenburg, 15 June 2019 - 18 June 2019, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000489313900238&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1

Wakefield CE; Vetsch J; Tucker KM; Warby M; O'Brien T; Techakesari P; Glenn M; Trahair TN; Marron JM; Lau L; Tyrell V; Ziegler D, 2018, 'Families' and Healthcare Professionals' Hopes and Expectations Participating in a Precision Medicine Trial for Children with High-Risk Cancer: The PRISM-Impact Study', in PEDIATRIC BLOOD & CANCER, WILEY, Vol. 65, pp. S62 - S62, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000445195000120&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1

Signorelli C; Wakefield C; Gabriel M; Vetsch J; Karpelowsky J; Darlington AS; Richard C, 2018, 'How Does Surgery Impact Childhood Cancer Patients? The Lasting Experiences and Needs of Survivors and Their Parents', in PEDIATRIC BLOOD & CANCER, WILEY, Vol. 65, pp. S490 - S490, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000445195004114&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1

McGill BC; Wakefield CE; Vetsch J; Cohn RJ; Warby M; Tucker KM, 2018, 'Families' experiences of genetic testing in the context of childhood cancer: The "GenPact" study', in PSYCHO-ONCOLOGY, WILEY, Vol. 27, pp. 59 - 60, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000448188000150&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1

Signorelli C; Wakefield C; Gabriel M; Vetsch J; Karpelowsky J; Darlington A-S; Cohn R, 2018, 'The Lasting Impact of Surgery for Childhood Cancer: Survivors' and Parents' Experiences and Needs', in PSYCHO-ONCOLOGY, WILEY, Vol. 27, pp. 141 - 142, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000448188000374&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1

McGill BC; Wakefield CE; Vetsch J; Cohn RJ; Warby M; Tucker KM, 2018, 'I remember the feeling not the gene: Families' experiences of and attitudes towards genetic testing in childhood cancer', in EUROPEAN JOURNAL OF HUMAN GENETICS, NATURE PUBLISHING GROUP, ITALY, Milan, Vol. 27, pp. 701 - 702, presented at 51st Conference of the European-Society-of-Human-Genetics (ESHG) in conjunction with the European Meeting on Psychosocial Aspects of Genetics (EMPAG), ITALY, Milan, 16 June 2018 - 19 June 2018, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000489313105163&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1

Vetsch J; Wakefield CE; Tucker K; Warby M; Techakesari P; Marshall G; Trahair TN; O'Brien T; Marron JM; Lau L; Tyrell V; Ziegler D, 2018, 'The PRISM-IMPACT study: What are the hopes and expectations of families and health care professionals enrolling in a personalised medicine trial for high risk childhood cancers?', in EUROPEAN JOURNAL OF HUMAN GENETICS, NATURE PUBLISHING GROUP, ITALY, Milan, Vol. 27, pp. 690 - 691, presented at 51st Conference of the European-Society-of-Human-Genetics (ESHG) in conjunction with the European Meeting on Psychosocial Aspects of Genetics (EMPAG), ITALY, Milan, 16 June 2018 - 19 June 2018, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000489313105140&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1

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