Select Publications
Journal articles
2024, 'Barriers to access of precision guided therapies for children with high-risk cancer', Pediatric Blood and Cancer, 71, http://dx.doi.org/10.1002/pbc.31147
,2024, 'Communicating with families of young people with hard-to-treat cancers: Healthcare professionals’ perspectives on challenges, skills, and training', Palliative and Supportive Care, 22, pp. 539 - 545, http://dx.doi.org/10.1017/S1478951523001992
,2024, 'Co-design of a paediatric oncology medicines database (ProCure) to support complex care provision for children with a hard-to-treat cancer', Frontiers in Medicine, 11, pp. 1332434, http://dx.doi.org/10.3389/fmed.2024.1332434
,2024, 'When genetics and pediatric cancer collide: Understanding and optimizing families' experiences', Neuro-Oncology Advances, 6, http://dx.doi.org/10.1093/noajnl/vdae133
,2023, 'The psychosocial impact of childhood dementia on children and their parents: a systematic review', Orphanet Journal of Rare Diseases, 18, http://dx.doi.org/10.1186/s13023-023-02859-3
,2023, 'Parents’ expectations, preferences, and recall of germline findings in a childhood cancer precision medicine trial', Cancer, 129, pp. 3620 - 3632, http://dx.doi.org/10.1002/cncr.34917
,2022, '‘Like ships in the night’: A qualitative investigation of the impact of childhood cancer on parents’ emotional and sexual intimacy', Pediatric Blood and Cancer, 69, http://dx.doi.org/10.1002/pbc.30015
,2022, 'Quality of Life (QoL) of Children and Adolescents Participating in a Precision Medicine Trial for High-Risk Childhood Cancer', Cancers, 14, http://dx.doi.org/10.3390/cancers14215310
,2022, 'Psychosocial impact of genetic testing on parents of children with developmental and epileptic encephalopathy', Developmental Medicine and Child Neurology, 64, pp. 95 - 104, http://dx.doi.org/10.1111/dmcn.14971
,2021, 'How Are Families Faring? Perceived Family Functioning among Adolescent and Young Adult Cancer Survivors in Comparison to Their Peers', Journal of Adolescent and Young Adult Oncology, 10, pp. 711 - 719, http://dx.doi.org/10.1089/jayao.2020.0215
,2021, 'Providing psychological support to parents of childhood cancer survivors: ‘cascade’ intervention trial results and lessons for the future', Cancers, 13, pp. 5597, http://dx.doi.org/10.3390/cancers13225597
,2021, '"This Is the First Time I've Talked about This": Considerations When Conducting Qualitative Research Interviews with Adolescents and Young Adults with Cancer', Journal of Adolescent and Young Adult Oncology, 10, pp. 540 - 548, http://dx.doi.org/10.1089/jayao.2020.0122
,2021, 'Online, group‐based psychological support for adolescent and young adult cancer survivors: Results from the recapture life randomized trial', Cancers, 13, pp. 2460, http://dx.doi.org/10.3390/cancers13102460
,2020, 'The information needs of parents of children with early-onset epilepsy: A systematic review', Epilepsy and Behavior, 112, pp. 107382, http://dx.doi.org/10.1016/j.yebeh.2020.107382
,2020, 'Understanding parents’ communication experiences in childhood cancer: a qualitative exploration and model for future research', Supportive Care in Cancer, 28, pp. 4467 - 4476, http://dx.doi.org/10.1007/s00520-019-05270-6
,2020, '“Balancing Expectations with Actual Realities”: Conversations with Clinicians and Scientists in the First Year of a High-Risk Childhood Cancer Precision Medicine Trial', Journal of Personalized Medicine, 10, pp. 9, http://dx.doi.org/10.3390/jpm10010009
,2019, 'Decision-making in childhood cancer: parents’ and adolescents’ views and perceptions', Supportive Care in Cancer, 27, pp. 4331 - 4340, http://dx.doi.org/10.1007/s00520-019-04728-x
,2019, '“I remember how I felt, but I don't remember the gene”: Families’ experiences of cancer-related genetic testing in childhood', Pediatric Blood and Cancer, 66, http://dx.doi.org/10.1002/pbc.27762
,2019, 'Impact of physical appearance changes reported by adolescent and young adult cancer survivors: A qualitative analysis', European Journal of Cancer Care, 28, http://dx.doi.org/10.1111/ecc.13052
,2019, 'Author reply', Internal Medicine Journal, 49, pp. 808 - 809, http://dx.doi.org/10.1111/imj.14320
,2019, 'How Parents of Childhood Cancer Survivors Perceive Support From Their Extended Families', Journal of Child and Family Studies, 28, pp. 1537 - 1547, http://dx.doi.org/10.1007/s10826-019-01394-9
,2019, '‘Why us?’ Causal attributions of childhood cancer survivors, survivors’ parents and community comparisons - a mixed methods analysis', Acta Oncologica, 58, pp. 209 - 217, http://dx.doi.org/10.1080/0284186X.2018.1532600
,2019, 'Children and young people's understanding of inherited conditions and their attitudes towards genetic testing: A systematic review', Clinical Genetics, 95, pp. 10 - 22, http://dx.doi.org/10.1111/cge.13253
,2019, 'Parents', health care professionals', and scientists' experiences of a precision medicine pilot trial for patients with high-risk childhood cancer: A qualitative study', JCO Precision Oncology, 3, pp. 1 - 11, http://dx.doi.org/10.1200/PO.19.00235
,2018, 'Adolescent and young adult cancer survivors' memory and future thinking processes place them at risk for poor mental health', Psycho-Oncology, 27, pp. 2709 - 2716, http://dx.doi.org/10.1002/pon.4856
,2018, 'Feasibility, acceptability, and safety of the Recapture Life videoconferencing intervention for adolescent and young adult cancer survivors', Psycho-Oncology, 28, pp. 284 - 292, http://dx.doi.org/10.1002/pon.4938
,2018, 'Comorbidity of distress experienced by parents of childhood cancer survivors points to the importance of understanding transdiagnostic cognitive-affective mechanisms.', Acta Oncologica, 58, pp. 1 - 2, http://dx.doi.org/10.1080/0284186X.2018.1512157
,2018, 'Cancer-Related Genetic Testing and Personalized Medicine for Adolescents: A Narrative Review of Impact and Understanding', Journal of Adolescent and Young Adult Oncology, 7, pp. 259 - 262, http://dx.doi.org/10.1089/jayao.2017.0102
,2018, 'Examining a transdiagnostic measure of repetitive thinking in depressed, formerly depressed and never-depressed individuals', Journal of Affective Disorders, 229, pp. 515 - 522, http://dx.doi.org/10.1016/j.jad.2017.12.081
,2018, 'Educational and vocational goal disruption in adolescent and young adult cancer survivors', Psycho-Oncology, 27, pp. 532 - 538, http://dx.doi.org/10.1002/pon.4525
,2017, 'Parents’ attitudes toward genetic testing of children for health conditions: A systematic review', Clinical Genetics, 92, pp. 569 - 578, http://dx.doi.org/10.1111/cge.12989
,2017, 'Therapeutic Alliance and Group Cohesion in an Online Support Program for Adolescent and Young Adult Cancer Survivors: Lessons from "recapture Life"', Journal of Adolescent and Young Adult Oncology, 6, pp. 568 - 572, http://dx.doi.org/10.1089/jayao.2017.0001
,2017, 'Something's got to give: time–cost trade-offs in site-specific research approval can negatively impact patient recruitment in multi-institutional studies', Internal Medicine Journal, 47, pp. 1088 - 1089, http://dx.doi.org/10.1111/imj.13535
,2017, 'Adolescent and Young Adult Cancer Survivors’ Experiences of the Healthcare System: A Qualitative Study.', Journal of Adolescent and Young Adult Oncology, 7, pp. 88 - 96, http://dx.doi.org/10.1089/jayao.2017.0015
,2017, 'Health Literacy in Adolescents and Young Adults: Perspectives from Australian Cancer Survivors', Journal of Adolescent and Young Adult Oncology, 6, pp. 150 - 158, http://dx.doi.org/10.1089/jayao.2016.0024
,2016, 'Genetic testing for the risk of developing late effects among survivors of childhood cancer: Consumer understanding, acceptance, and willingness to pay', Cancer, 122, pp. 2876 - 2885, http://dx.doi.org/10.1002/cncr.30119
,2016, 'Sexual and romantic relationships: Experiences of adolescent and young adult cancer survivors', Journal of Adolescent and Young Adult Oncology, 5, pp. 286 - 291, http://dx.doi.org/10.1089/jayao.2015.0061
,2016, 'The Reality of Relapse: Impact of Cancer Relapse on Survivorship Interventions and Patient-Reported Outcomes Data', Pediatric Blood and Cancer, 63, pp. 1492 - 1493, http://dx.doi.org/10.1002/pbc.26001
,2016, 'Acceptability and feasibility of an e-mental health intervention for parents of childhood cancer survivors: “Cascade”', Supportive Care in Cancer, 24, pp. 2685 - 2694, http://dx.doi.org/10.1007/s00520-016-3077-6
,2016, 'Health Literacy in Adolescents and Young Adults: An Updated Review', Journal of Adolescent and Young Adult Oncology, 5, pp. 106 - 118, http://dx.doi.org/10.1089/jayao.2015.0059
,2016, 'Consensus among international ethical guidelines for the provision of videoconferencing-based mental health treatments', JMIR Mental Health, 3, http://dx.doi.org/10.2196/mental.5481
,2015, 'Ethical and Clinical Challenges Delivering Group-based Cognitive-Behavioural Therapy to Adolescents and Young Adults with Cancer Using Videoconferencing Technology', Australian Psychologist, 50, pp. 271 - 278, http://dx.doi.org/10.1111/ap.12112
,2015, 'Online parent-targeted cognitive-behavioural therapy intervention to improve quality of life in families of young cancer survivors: Study protocol for a randomised controlled trial', Trials, 16, pp. 153, http://dx.doi.org/10.1186/s13063-015-0681-6
,2014, 'Characteristics of autobiographical memories and prospective imagery across a spectrum of hypomanic personality traits', Memory, 22, pp. 1139 - 1148, http://dx.doi.org/10.1080/09658211.2013.873808
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