Select Publications
Book Chapters
2019, 'Parenting in the context of chronic pain', in Wainwright E; Eccleston C (ed.), Work and pain, Oxford University Press, pp. 35 - 50, http://dx.doi.org/10.1093/med/9780198828273.003.0004
,Journal articles
2024, 'Illness-related communication between siblings and parents of children with chronic illness and life-limiting conditions: A qualitative analysis', Palliative and Supportive Care, 22, pp. 1353 - 1359, http://dx.doi.org/10.1017/S1478951524001056
,2024, 'Caregiver Burden Associated with Pediatric Chronic Pain: A Retrospective Study Using the Pediatric Electronic Persistent Pain Outcomes Collaboration Database', Clinical Journal of Pain, 40, pp. 137 - 149, http://dx.doi.org/10.1097/AJP.0000000000001189
,2024, 'Attitudes and Experiences of Community Palliative Care Nurses Regarding Pediatric Home-Based End-of-Life Care: A Statewide Survey', Journal of Palliative Care, http://dx.doi.org/10.1177/08258597241284286
,2024, 'Attrition from Face-to-Face Pediatric Outpatient Chronic Pain Interventions: A Narrative Review and Theoretical Model', Children, 11, http://dx.doi.org/10.3390/children11010126
,2024, 'Evaluation of paediatric palliative care ambulance plans: A retrospective study', Journal of Child Health Care, http://dx.doi.org/10.1177/13674935231225714
,2024, 'Parent–Child Communication Incongruence in Pediatric Healthcare', Children, 11, http://dx.doi.org/10.3390/children11010039
,2023, 'Caregiver Psychological Burden in Pediatric Chronic Pain: A Systematic Review and Meta-Analysis of Associations with Caregiver Sociodemographic and Biopsychosocial Variables', Journal of Pediatric Psychology, 48, pp. 747 - 758, http://dx.doi.org/10.1093/jpepsy/jsad041
,2023, 'Impacts of paediatric chronic pain on parents: A qualitative study', Child: Care, Health and Development, 49, pp. 645 - 656, http://dx.doi.org/10.1111/cch.13079
,2023, '0698 Contrasting Painful and Painless Restless Legs Phenotypes: An Adult Twin Family Study', SLEEP, 46, pp. A307 - A307, http://dx.doi.org/10.1093/sleep/zsad077.0698
,2023, 'Back Pain without Disease or Substantial Injury in Children and Adolescents: A Twin Family Study Investigating Genetic Influence and Associations', Children, 10, http://dx.doi.org/10.3390/children10020375
,2023, 'Predicting the Need for Transition from Pediatric to Adult Pain Services: A Retrospective, Longitudinal Study Using the Electronic Persistent Pain Outcome Collaboration (ePPOC) Databases', Children, 10, http://dx.doi.org/10.3390/children10020357
,2022, 'Primary dysmenorrhoea in adolescents and young women: A twin family study of maternal transmission, genetic influence and associations', Australian and New Zealand Journal of Obstetrics and Gynaecology, 62, pp. 725 - 731, http://dx.doi.org/10.1111/ajo.13560
,2022, 'Factors Associated With the Location of Expected Pediatric Deaths in the Palliative Care Context', Omega (United States), 85, pp. 850 - 867, http://dx.doi.org/10.1177/0030222820959941
,2022, 'Parent and Well-Sibling Communication in Families with a Child Who Has a Life-Limiting Condition: Quantitative Survey Data', Journal of Pediatric Psychology, 47, pp. 606 - 616, http://dx.doi.org/10.1093/jpepsy/jsab128
,2022, 'Parent and Well-Sibling Communication in Families With a Child Who Has a Life-Limiting Condition: Quantitative Survey Data.', J Pediatr Psychol, 47, pp. 606 - 616, http://dx.doi.org/10.1093/jpepsy/jsab128
,2022, 'Living with a child who has a life-limiting condition: The functioning of well-siblings and parents', Child: Care, Health and Development, 48, pp. 269 - 276, http://dx.doi.org/10.1111/cch.12927
,2022, 'Improved definition of growing pains: A common familial primary pain disorder of early childhood.', Paediatr Neonatal Pain, 4, pp. 78 - 86, http://dx.doi.org/10.1002/pne2.12079
,2021, 'Ability of 3- to 5-year-old children to use simplified self-report measures of pain intensity', Journal of Child Health Care, 25, pp. 442 - 456, http://dx.doi.org/10.1177/1367493520951302
,2021, 'Information provision and preparatory interventions: Shaping the lens for children’s understanding and response to painful contexts', Children, 8, http://dx.doi.org/10.3390/children8090738
,2021, 'Trajectory of Pain, Functional Limitation, and Parental Coping Resources following Pediatric Short-stay Surgery: Factors Impacting Rate of Recovery', Clinical Journal of Pain, 37, pp. 698 - 706, http://dx.doi.org/10.1097/AJP.0000000000000966
,2021, 'Multidimensional self-report assessment of children's acute pain in an inpatient setting', Clinical Journal of Pain, 37, pp. 421 - 428, http://dx.doi.org/10.1097/AJP.0000000000000938
,2021, 'Familial and genetic influences on the common pediatric primary pain disorders: A twin family study', Children, 8, http://dx.doi.org/10.3390/children8020089
,2020, 'Somatosensory testing in pediatric patients with chronic pain: An exploration of clinical utility', Children, 7, http://dx.doi.org/10.3390/children7120275
,2020, 'Contrasting painless and painful phenotypes of pediatric restless legs syndrome: a twin family study', Sleep Medicine, 75, pp. 361 - 367, http://dx.doi.org/10.1016/j.sleep.2020.08.024
,2020, 'Communication between parents and well-siblings in the context of living with a child with a life-threatening or life-limiting condition', Journal of Paediatrics and Child Health, 56, pp. 1521 - 1526, http://dx.doi.org/10.1111/jpc.15138
,2019, 'Perceived cancer-related pain and fatigue, information needs, and fear of cancer recurrence among adult survivors of childhood cancer', Patient Education and Counseling, 102, pp. 2270 - 2278, http://dx.doi.org/10.1016/j.pec.2019.06.022
,2019, 'Why unidimensional pain measurement prevails in the pediatric acute pain context and what multidimensional self-report methods can offer', Children, 6, pp. 132, http://dx.doi.org/10.3390/children6120132
,2019, 'Developing the Comfort Care Case: An End-of-Life Resource for Pediatric Patients, Their Families, and Health Professionals', Journal of Palliative Care, 34, pp. 197 - 204, http://dx.doi.org/10.1177/0825859718796791
,2019, 'Chronic Widespread Pain and Fibromyalgia Syndrome: Life-Course Risk Markers in Young People', Pain Research and Management, 2019, pp. 6584753, http://dx.doi.org/10.1155/2019/6584753
,2018, 'The role of resilience in the sibling experience of pediatric palliative care: What is the theory and evidence?', Children, 5, http://dx.doi.org/10.3390/children5070097
,2017, 'Risk and resilience factors related to parental bereavement following the death of a child with a life-limiting condition', Children, 4, http://dx.doi.org/10.3390/children4110096
,2017, 'Systematic Review of Self-Report Measures of Pain Intensity in 3- and 4-Year-Old Children: Bridging a Period of Rapid Cognitive Development', Journal of Pain, 18, pp. 1017 - 1026, http://dx.doi.org/10.1016/j.jpain.2017.03.005
,2017, 'Common Pediatric Pain Disorders and Their Clinical Associations', Clinical Journal of Pain, 33, pp. 1131 - 1140, http://dx.doi.org/10.1097/AJP.0000000000000496
,2017, 'Somatosensory test responses and physical and psychological functioning of children and adolescents with chronic non-neuropathic pain: An exploratory study', Clinical Journal of Pain, 33, pp. 116 - 125, http://dx.doi.org/10.1097/AJP.0000000000000385
,2016, 'Attachment and chronic pain in children and adolescents', Children, 3, http://dx.doi.org/10.3390/children3040021
,2016, 'Young children's ability to report on past, future and hypothetical pain states: a cognitive-developmental perspective.', Pain
,2016, 'The relationship between parental attitudes and behaviours in the context of paediatric chronic pain', Child: Care, Health and Development, 42, pp. 433 - 438, http://dx.doi.org/10.1111/cch.12312
,2015, 'Posttraumatic stress disorder in children with chronic pain', Pediatric Pain Letter, 17, pp. 35 - 39, http://childpain.org/ppl/issues/v17n3_2015/v17n3_sullivan.pdf
,2014, 'In search of risk factors for chronic pain in adolescents: a case–control study of childhood and parental associations', Journal of Pain Research, pp. 175 - 175, http://dx.doi.org/10.2147/JPR.S48154
,2012, 'Pain catastrophizing influences the use and the effectiveness of distraction in schoolchildren.', European journal of pain (London, England), 16, pp. 256 - 267, http://dx.doi.org/10.1016/j.ejpain.2011.06.015
,2012, 'A Common Sleep Disorder in Pregnancy', Obstetric Anesthesia Digest, 32, pp. 145 - 145, http://dx.doi.org/10.1097/01.aoa.0000414276.42992.54
,2012, 'Growing pains: Twin family study evidence for genetic susceptibility and a genetic relationship with restless legs syndrome', European Journal of Pain, 16, pp. 1224 - 1231, http://dx.doi.org/10.1002/j.1532-2149.2012.00130.x
,2011, 'Somatosensory test responses in children with growing pains', Journal of Pain Research, 4, pp. 393 - 400, http://dx.doi.org/10.2147/JPR.S24875
,2011, 'Child and parental surveys about pre-hospitalization information provision', Child: Care, Health and Development, 37, pp. 727 - 733, http://dx.doi.org/10.1111/j.1365-2214.2010.01190.x
,2011, 'A common sleep disorder in pregnancy: Restless legs syndrome and its predictors', Australian and New Zealand Journal of Obstetrics and Gynaecology, 51, pp. 262 - 264, http://dx.doi.org/10.1111/j.1479-828X.2011.01294.x
,2009, 'Computer-animated faces pain scale: Commentary on fanciullo et al. (2007)', Pain Medicine, 10, pp. 195 - 196, http://dx.doi.org/10.1111/j.1526-4637.2008.00480.x
,2008, 'Evaluation of a brief parent intervention teaching coping-promoting behavior for the infant immunization context - A randomized controlled trial', Behavior Modification, 32, pp. 450 - 467
,2008, 'Evidence-based assessment of coping and stress in pediatric psychology', Journal of Pediatric Psychology, 33, pp. 1021 - 1045
,2007, 'Effects of preparatory information and distraction on children`s cold-pressor pain outcomes: A randomized controlled trial', Behaviour Research and Therapy, 45, pp. 2789 - 2799
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