Select Publications
Book Chapters
2016, 'The Cost of Cure: Chronic Conditions in Survivors of Child, Adolescent, and Young Adult Cancers', in Koczwara B (ed.), Cancer and Chronic Conditions Addressing the Problem of Multimorbidity in Cancer Patients and Survivors, Springer, Singapore, pp. 371 - 420, http://dx.doi.org/10.1007/978-981-10-1844-2_13
,Journal articles
2024, 'Ballet after breast cancer: A qualitative evaluation of a novel 16-week ballet intervention for women after breast cancer', JSAMS Plus, 4, http://dx.doi.org/10.1016/j.jsampl.2024.100076
,2024, 'Pilot testing “Teach Ted”: A digital application for children undergoing blood tests and their parents', PEC Innovation, 4, http://dx.doi.org/10.1016/j.pecinn.2023.100251
,2024, 'Aligning the World Health Organization's (WHO) package of interventions for rehabilitation for cancer with the mission of the International Psycho-Oncology Society's: Promoting psychosocial care for all people affected by cancer', Journal of Psychosocial Oncology Research and Practice, 6, http://dx.doi.org/10.1097/OR9.0000000000000144
,2024, 'Sexual and reproductive complications and concerns of survivors of childhood, adolescent and adult cancer', Journal of Cancer Survivorship, 18, pp. 1201 - 1210, http://dx.doi.org/10.1007/s11764-023-01349-6
,2024, 'Models of care and the advanced practice nurse role in caring for children and adolescents with a cancer predisposition syndrome: A scoping review protocol', JBI Evidence Synthesis, 22, pp. 864 - 873, http://dx.doi.org/10.11124/JBIES-23-00074
,2024, '"Hearing the pupils' voices through my own struggles”: A qualitative study of return to work among school counselors who are breast cancer survivors', PLoS ONE, 19, http://dx.doi.org/10.1371/journal.pone.0300396
,2024, 'It just never ends: Childhood cancer survivors' perceived psychosocial impacts of recurrence and second cancer', Palliative and Supportive Care, 22, pp. 31 - 40, http://dx.doi.org/10.1017/S1478951522001328
,2024, 'Exploring childhood cancer survivor, parent, healthcare and community professionals’ experiences of, and priorities for, using digital health to engage in physical activity: a mixed methods study', Journal of Cancer Survivorship, http://dx.doi.org/10.1007/s11764-024-01560-z
,2024, 'International Survey of Psychosocial Care for Cancer Survivors in Low-/Middle- and High-Income Countries: Current Practices, Barriers, and Facilitators to Care', JCO Global Oncology, 10, http://dx.doi.org/10.1200/GO.23.00418
,2024, 'A Retrospective Cohort Analysis Comparing Analytic and Holistic Marking Rubrics in Medical Research Education.', J Med Educ Curric Dev, 11, pp. 23821205241277337, http://dx.doi.org/10.1177/23821205241277337
,2023, 'Relationship between survivorship care plans and unmet information needs, quality of life, satisfaction with care, and propensity to engage with, and attend, follow-up care', Cancer, 129, pp. 3820 - 3832, http://dx.doi.org/10.1002/cncr.34984
,2023, 'The psychosocial impact of childhood dementia on children and their parents: a systematic review', Orphanet Journal of Rare Diseases, 18, http://dx.doi.org/10.1186/s13023-023-02859-3
,2023, 'A Review of Creative Play Interventions to Improve Children’s Hospital Experience and Wellbeing', Hospital Pediatrics, 13, pp. E355 - E364, http://dx.doi.org/10.1542/hpeds.2022-006994
,2023, 'Psychosocial care for cancer survivors: A global review of national cancer control plans', Psycho-Oncology, 32, pp. 1684 - 1693, http://dx.doi.org/10.1002/pon.6218
,2023, 'Patterns of physical activity and sedentary behavior in child and adolescent cancer survivors assessed using wrist accelerometry: A cluster analysis approach', Health Informatics Journal, 29, http://dx.doi.org/10.1177/14604582231212525
,2023, 'OUTC-09. PEDIATRIC LOW GRADE GLIOMA SURVIVORS’ NEED FOR SURVIVORSHIP CARE: ‘ENGAGE’ A MULTIDISCIPLINARY, E-HEALTH INTERVENTION', Neuro-Oncology, 25, pp. i37 - i37, http://dx.doi.org/10.1093/neuonc/noad073.146
,2023, 'Childhood Cancer Survivors' Reported Late Effects, Motivations for Seeking Survivorship Care, and Patterns of Attendance', Oncologist, 28, pp. E276 - E286, http://dx.doi.org/10.1093/oncolo/oyad004
,2023, 'Hospitalizations in Australian children with neuroblastoma: A population-based study', Cancer Medicine, 12, pp. 10939 - 10949, http://dx.doi.org/10.1002/cam4.5806
,2023, 'Clinician and healthcare managers’ perspectives on the delivery of secondary and tertiary pediatric weight management services', Journal of Child Health Care, 27, pp. 128 - 144, http://dx.doi.org/10.1177/13674935211052148
,2023, 'Gastroenterology services for patients with Cystic Fibrosis across Australia and New Zealand: a multi-stakeholder assessment of patients' and professionals’ perspectives', Frontiers in Pediatrics, 11, http://dx.doi.org/10.3389/fped.2023.1322941
,2023, 'Neuroblastoma survivors’ self-reported late effects, quality of life, health-care use, and risk perceptions', Palliative and Supportive Care, 22, pp. 296 - 305, http://dx.doi.org/10.1017/S1478951523000615
,2023, 'A Scoping Review Exploring Access to Survivorship Care for Childhood, Adolescent, and Young Adult Cancer Survivors: How Can We Optimize Care Pathways?', Adolescent Health Medicine and Therapeutics, 14, pp. 153 - 174, http://dx.doi.org/10.2147/ahmt.s428215
,2023, 'P298 Gastroenterology services for patients with cystic fibrosis across Australia and New Zealand: a multi-stakeholder assessment of patients’ and professionals’ perspectives', Journal of Cystic Fibrosis, 22, pp. S156 - S156, http://dx.doi.org/10.1016/s1569-1993(23)00669-0
,2022, 'eHealth tools for childhood cancer survivorship care: A qualitative analysis of survivors', parents', and general practitioners' views', PEC Innovation, 1, pp. 100010, http://dx.doi.org/10.1016/j.pecinn.2021.100010
,2022, 'Parent perceptions of their child’s and their own physical activity after treatment for childhood cancer', Supportive Care in Cancer, 30, pp. 8947 - 8957, http://dx.doi.org/10.1007/s00520-022-07288-9
,2022, 'Childhood cancer survivorship care: A qualitative study of healthcare providers’ professional preferences', Frontiers in Oncology, 12, http://dx.doi.org/10.3389/fonc.2022.945911
,2022, 'New Frontiers in Child, Adolescent and Young Adult Psycho-Oncology Survivorship Care', Cancers, 14, http://dx.doi.org/10.3390/cancers14184335
,2022, 'A Digital Educational Intervention With Wearable Activity Trackers to Support Health Behaviors Among Childhood Cancer Survivors: Pilot Feasibility and Acceptability Study', JMIR Cancer, 8, pp. e38367, http://dx.doi.org/10.2196/38367
,2022, 'Childhood Cancer Survivors’ Adherence to Healthcare Recommendations Made Through a Distance-Delivered Survivorship Program', Journal of Multidisciplinary Healthcare, 15, pp. 1719 - 1734, http://dx.doi.org/10.2147/JMDH.S363653
,2021, 'Long-term health-related quality of life in young childhood cancer survivors and their parents', Pediatric Blood and Cancer, 68, pp. e29398, http://dx.doi.org/10.1002/pbc.29398
,2021, 'Patterns and predictors of healthcare use among adolescent and young adult cancer survivors versus a community comparison group', Cancers, 13, pp. 5270, http://dx.doi.org/10.3390/cancers13215270
,2021, 'Interactive video games to reduce paediatric procedural pain and anxiety: a systematic review and meta-analysis', British Journal of Anaesthesia, 127, pp. 608 - 619, http://dx.doi.org/10.1016/j.bja.2021.06.039
,2021, 'Accuracy of perceived physical activity and fitness levels among childhood cancer survivors', Pediatric Blood and Cancer, 68, pp. e29134, http://dx.doi.org/10.1002/pbc.29134
,2021, 'Feasibility, acceptability and appropriateness of a reproductive patient reported outcome measure for cancer survivors', PLoS ONE, 16, pp. e0256497, http://dx.doi.org/10.1371/journal.pone.0256497
,2021, 'The lived experience of children and adolescents with cancer', Australian Journal of General Practice, 50, pp. 545 - 549, http://dx.doi.org/10.31128/AJGP-04-21-5945
,2021, 'Reproductive Care of Childhood and Adolescent Cancer Survivors: A 12-Year Evaluation', Journal of Adolescent and Young Adult Oncology, 10, pp. 131 - 141, http://dx.doi.org/10.1089/jayao.2020.0157
,2021, 'A cost-effective approach to increasing participation in patient-reported outcomes research in cancer: A randomized trial of video invitations', International Journal of Cancer, 148, pp. 971 - 980, http://dx.doi.org/10.1002/ijc.33244
,2021, 'The Use of Activity Trackers in Interventions for Childhood Cancer Patients and Survivors: A Systematic Review', Journal of Adolescent and Young Adult Oncology, 10, pp. 1 - 14, http://dx.doi.org/10.1089/jayao.2020.0099
,2020, 'Satisfaction and acceptability of paediatric weight management services amongst parents and carers: A mixed-methods study', Clinical Obesity, 10, http://dx.doi.org/10.1111/cob.12391
,2020, 'The COVID-19 pandemic: Distance-delivered care for childhood cancer survivors', Pediatric Blood and Cancer, 67, http://dx.doi.org/10.1002/pbc.28715
,2020, 'What instruments should we use to assess paediatric decision-making interventions? A narrative review', Journal of Child Health Care, 24, pp. 458 - 472, http://dx.doi.org/10.1177/1367493519869717
,2020, 'Re-engage: A novel nurse-led program for survivors of childhood cancer who are disengaged from cancer-related care', JNCCN Journal of the National Comprehensive Cancer Network, 18, pp. 1067 - 1074, http://dx.doi.org/10.6004/jnccn.2020.7552
,2020, 'Camps for Children with Cancer and Their Families: A Systematic Review of Psychosocial and Physical Impacts', Journal of Developmental and Behavioral Pediatrics, 41, pp. 145 - 156, http://dx.doi.org/10.1097/DBP.0000000000000728
,2020, 'Genetics-related service and information needs of childhood cancer survivors and parents: a mixed-methods study', European Journal of Human Genetics, 28, pp. 6 - 16, http://dx.doi.org/10.1038/s41431-019-0481-7
,2019, 'Perceived cancer-related pain and fatigue, information needs, and fear of cancer recurrence among adult survivors of childhood cancer', Patient Education and Counseling, 102, pp. 2270 - 2278, http://dx.doi.org/10.1016/j.pec.2019.06.022
,2019, 'Childhood cancer survivorship: barriers and preferences', BMJ Supportive and Palliative Care, 12, pp. E687 - E695, http://dx.doi.org/10.1136/bmjspcare-2019-002001
,2019, 'Paediatric surgery for childhood cancer: Lasting experiences and needs of children and parents', European Journal of Cancer Care, 28, pp. e13116, http://dx.doi.org/10.1111/ecc.13116
,2019, 'How physically active do Australian and New Zealander childhood cancer survivors perceive themselves? A report from the ANZCHOG survivorship study', Complementary Therapies in Medicine, 44, pp. 196 - 203, http://dx.doi.org/10.1016/j.ctim.2019.04.020
,2019, 'The Role of Primary Care Physicians in Childhood Cancer Survivorship Care: Multiperspective Interviews', Oncologist, 24, pp. 710 - 719, http://dx.doi.org/10.1634/theoncologist.2018-0103
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