Select Publications
Journal articles
2019, 'Perceptions of future health and cancer risk in adult survivors of childhood cancer: Implications for engagement in follow-up care', Cancer, 125, pp. 1008 - 1009, http://dx.doi.org/10.1002/cncr.31934
,2019, '‘Why us?’ Causal attributions of childhood cancer survivors, survivors’ parents and community comparisons - a mixed methods analysis', Acta Oncologica, 58, pp. 209 - 217, http://dx.doi.org/10.1080/0284186X.2018.1532600
,2018, 'The Avatar Acceptability Study: Survivor, Parent and Community Willingness to Use Patient-Derived Xenografts to Personalize Cancer Care', EBioMedicine, 37, pp. 205 - 213, http://dx.doi.org/10.1016/j.ebiom.2018.10.060
,2018, 'Attitudes and experiences of childhood cancer survivors transitioning from pediatric care to adult care', Supportive Care in Cancer, 26, pp. 2743 - 2750, http://dx.doi.org/10.1007/s00520-018-4077-5
,2018, 'Protocol for the avatar acceptability study: A multiperspective cross-sectional study evaluating the acceptability of using patient-derived xenografts to guide personalised cancer care in Australia and New Zealand', BMJ Open, 8, pp. e024064, http://dx.doi.org/10.1136/bmjopen-2018-024064
,2018, 'Strategies to facilitate shared decision-making about pediatric oncology clinical trial enrollment: A systematic review', Patient Education and Counseling, 101, pp. 1157 - 1174, http://dx.doi.org/10.1016/j.pec.2018.02.001
,2018, 'Family history-taking practices and genetic confidence in primary and tertiary care providers for childhood cancer survivors', Pediatric Blood and Cancer, 65, http://dx.doi.org/10.1002/pbc.26923
,2018, 'Re-engage' pilot study protocol: A nurse-led eHealth intervention to re-engage, educate and empower childhood cancer survivors', BMJ Open, 8, pp. e022269, http://dx.doi.org/10.1136/bmjopen-2018-022269
,2018, 'The Psychosocial Experiences and Needs of Children Undergoing Surgery and Their Parents: A Systematic Review', Journal of Pediatric Health Care, 32, pp. 133 - 149, http://dx.doi.org/10.1016/j.pedhc.2017.08.003
,2018, 'A Narrative Review of Models of Care for Adolescents and Young Adults with Cancer: Barriers and Recommendations.', Journal of Adolescent and Young Adult Oncology, 7, pp. 148 - 152, http://dx.doi.org/10.1089/jayao.2017.0100
,2018, 'Recruiting primary care physicians to qualitative research: Experiences and recommendations from a childhood cancer survivorship study', Pediatric Blood and Cancer, 65, http://dx.doi.org/10.1002/pbc.26762
,2017, 'Models of childhood cancer survivorship care in Australia and New Zealand: Strengths and challenges', Asia-Pacific Journal of Clinical Oncology, 13, pp. 407 - 415, http://dx.doi.org/10.1111/ajco.12700
,2017, 'Patterns and drivers of health care use in long-term childhood cancer survivors: A systematic review', Critical Reviews in Oncology/Hematology, 120, pp. 60 - 76, http://dx.doi.org/10.1016/j.critrevonc.2017.10.004
,2017, 'The impact of long-term follow-up care for childhood cancer survivors: A systematic review', Critical Reviews in Oncology/Hematology, 114, pp. 131 - 138, http://dx.doi.org/10.1016/j.critrevonc.2017.04.007
,2017, 'Transition of childhood cancer survivors to adult care: The survivor perspective', Pediatric Blood and Cancer, 64, http://dx.doi.org/10.1002/pbc.26354
,2017, '“Forewarned and forearmed”: Long-term childhood cancer survivors’ and parents’ information needs and implications for survivorship models of care', Patient Education and Counseling, 100, pp. 355 - 363, http://dx.doi.org/10.1016/j.pec.2016.09.013
,2016, 'Genetic testing for the risk of developing late effects among survivors of childhood cancer: Consumer understanding, acceptance, and willingness to pay', Cancer, 122, pp. 2876 - 2885, http://dx.doi.org/10.1002/cncr.30119
,2016, 'The psychological impact of genetic information on children: A systematic review', Genetics in Medicine, 18, pp. 755 - 762, http://dx.doi.org/10.1038/gim.2015.181
,2016, 'Sleep Disturbances in Childhood Cancer Survivors', Pediatric Blood and Cancer, 63, pp. 759 - 760, http://dx.doi.org/10.1002/pbc.25858
,2015, 'Dental hygiene in childhood cancer survivors: The importance of tertiary long term follow-up care', Pediatric Blood and Cancer, 62, pp. 921, http://dx.doi.org/10.1002/pbc.25421
,2014, 'CHILDHOOD CANCER SURVIVORS: WHAT ARE THEIR MOTIVATORS AND BARRIERS TO PARTICIPATING IN LONG TERM FOLLOW-UP CARE?', ASIA-PACIFIC JOURNAL OF CLINICAL ONCOLOGY, 10, pp. 88 - 88, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000345350900041&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
,Conference Papers
2017, 'The use of Murine Models of Chemosensitivity to Anticancer Agents in Childhood Cancer Clinical Care: Survivor, Parent and Community Acceptability and Willingness-to-Pay', in PEDIATRIC BLOOD & CANCER, WILEY, pp. S60 - S61, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000408978201113&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
,Conference Abstracts
2023, 'Using process mapping to capture variability within paediatric cancer survivorship services: understanding factors influencing implementation of the Engage program', in Proceedings of the 2nd Implementation Science Health Conference Australia: Sydney, NSW, Australia, 23-24 March 2023, Implementation Science, Sydney, Australia, Vol. 18, pp. 38 - 38, presented at Implementation Science Health Conference Australia, Sydney, Australia, 23 March 2023 - 24 March 2023, http://dx.doi.org/10.1186/s13012-023-01292-1
,2022, 'Ballet after breast cancer: Investigating the feasibility, acceptability, and participant experiences of a novel 16-week classical ballet intervention for breast cancer survivors', in ASIA-PACIFIC JOURNAL OF CLINICAL ONCOLOGY, WILEY, Vol. 18, pp. 216 - 217, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000871956500368&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
,2022, 'Developing an intervention logic model for 'Engage': A novel, multi-disciplinary program for survivors of childhood cancer', in ASIA-PACIFIC JOURNAL OF CLINICAL ONCOLOGY, WILEY, Vol. 18, pp. 232 - 232, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000871956500401&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
,2022, 'The 'ENGAGE' program: Effective childhood cancer survivorship care', in ASIA-PACIFIC JOURNAL OF CLINICAL ONCOLOGY, WILEY, Vol. 18, pp. 80 - 80, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000871956500081&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
,2021, 'Improving physical activity levels among childhood cancer survivors: A digital educational program', in ASIA-PACIFIC JOURNAL OF CLINICAL ONCOLOGY, WILEY, Vol. 17, pp. 13 - 13, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000693805000015&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
,2018, 'How Does Surgery Impact Childhood Cancer Patients? The Lasting Experiences and Needs of Survivors and Their Parents', in PEDIATRIC BLOOD & CANCER, WILEY, Vol. 65, pp. S490 - S490, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000445195004114&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
,2018, 'Re-engage: A Nurse-led eHealth Intervention to Promote Engagement and Empower Childhood Cancer Survivors', in PEDIATRIC BLOOD & CANCER, WILEY, Vol. 65, pp. S698 - S699, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000445195005338&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
,2018, '"Re-engage": Promoting engagement and empowering childhood cancer survivors through a new nurse-led ehealth intervention', in PSYCHO-ONCOLOGY, WILEY, Vol. 27, pp. 194 - 195, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000448188000519&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
,2018, 'The Lasting Impact of Surgery for Childhood Cancer: Survivors' and Parents' Experiences and Needs', in PSYCHO-ONCOLOGY, WILEY, Vol. 27, pp. 141 - 142, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000448188000374&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
,2017, 'Genetics-Related Beliefs, and Information and Service Needs, of Childhood Cancer Survivors and Their Parents', in PEDIATRIC BLOOD & CANCER, WILEY, Vol. 64, pp. S59 - S60, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000408978201111&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
,2017, 'Improving the Quality of Follow-Up Care for Pediatric Cancer Survivors: A Mixed-Methods Study on Preferences for Models of Survivorship Care', in PEDIATRIC BLOOD & CANCER, WILEY, Vol. 64, pp. S379 - S380, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000408978203268&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
,2016, 'Genetic Testing for Childhood Cancer Survivors' Risk of Late Effects: Consumer Understanding, Acceptance and Willingness-To-Pay', in PEDIATRIC BLOOD & CANCER, WILEY-BLACKWELL, Vol. 63, pp. S88 - S88, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000384818800705&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
,2016, 'Health Behaviours in Survivors of Childhood Cancer: Modifiable Risk Factors for Developing Late Effects', in PEDIATRIC BLOOD & CANCER, WILEY-BLACKWELL, Vol. 63, pp. S61 - S61, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000384818800575&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
,2016, 'Genetic testing for childhood cancer survivors' risk of late effects: Consumer understanding, acceptance and willingness-to-pay', in PSYCHO-ONCOLOGY, WILEY-BLACKWELL, Vol. 25, pp. 107 - 108, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000385942700235&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
,2016, 'What influences quality of life in paediatric cancer survivors?', in QUALITY OF LIFE RESEARCH, SPRINGER, Vol. 25, pp. 162 - 163, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000398451600397&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
,Preprints
2023, ‘The psychosocial impact of childhood dementia on children and their parents: A systematic review’, http://dx.doi.org/10.21203/rs.3.rs-2282768/v1
,2023, Gastroenterology services for patients with Cystic Fibrosis across Australia and New Zealand: A multi-stakeholder assessment of patients’ and professionals’ perspectives, http://dx.doi.org/10.22541/au.168271385.50624670/v1
,2021, eHealth tools for childhood cancer survivorship care: A qualitative analysis of survivors’, parents’, and general practitioners’ views., http://dx.doi.org/10.22541/au.161893480.05196827/v1
,2020, Reproductive Care of Childhood and Adolescent Cancer Survivors: A Twelve-Year Evaluation, http://dx.doi.org/10.22541/au.159160329.93924889
,2019, Clinician perspectives on models of care for pediatric weight management services in Australia: A mixed-methods study, http://dx.doi.org/10.21203/rs.2.15271/v1
,Redefining Models of Childhood Cancer Survivorship Care: A Mixed-Methods Evaluation of Patient-Reported Barriers to, and Preferences for, Care, http://dx.doi.org/10.2139/ssrn.3314450
,The Avatar Acceptability Study: Survivor, Parent and Community Willingness to Use Patient-Derived Xenografts to Personalize Cancer Care, http://dx.doi.org/10.2139/ssrn.3260779
,