Select Publications
Books
2010, Suicide risk assessment and intervention strategies: Current practices in Australian residential drug and alcohol rehabilitation services, National Drug and Alcohol Research Centre, University of New South Wales, Sydney, NSW 2052, Australia., Sydney, NSW, Australia, http://ndarc.med.unsw.edu.au/resource/suicide-risk-assessment-and-intervention-strategies-current-practices-australian
,2008, The contribution of cannabis use to psychotic symptons among methamphetamine treatment entrants., National Drug and Alcohol Research Centre, Sydney
,Book Chapters
2023, 'The Psychosocial Impact of Familial Endocrine Cancer Syndromes (FECS) on the Patient and Caregiver', in Familial Endocrine Cancer Syndromes: Navigating the Transition of Care for Pediatric and Adolescent Patients, pp. 1 - 35, http://dx.doi.org/10.1007/978-3-031-37275-9_1
,2014, 'The impact of rumination on positive autobiographical memories in depression.', in K. Kaniasty, K.A. Moore, S. Howard, & P. Buchwald (ed.), Stress and Anxiety: Applications to Social and Environmental Threats, Psychological Well-Being, Occupational Challenges, and Developmental Psychology., pp. 65 - 71
,Journal articles
2024, 'Barriers to access of precision guided therapies for children with high-risk cancer', Pediatric Blood and Cancer, 71, http://dx.doi.org/10.1002/pbc.31147
,2024, 'Abstract B066: Bridging patient reported outcomes and CTCAE to improve supportive care and trial design: The PROptimise initiative', Cancer Research, 84, pp. B066 - B066, http://dx.doi.org/10.1158/1538-7445.pediatric24-b066
,2024, 'Parents’ and patients’ perspectives, experiences, and preferences for germline genetic or genomic testing of children with cancer: A systematic review', Genetics in Medicine, 26, http://dx.doi.org/10.1016/j.gim.2024.101197
,2024, '‘High hopes for treatment’: Australian stakeholder perspectives of the clinical translation of advanced neurotherapeutics for rare neurological diseases', Health Expectations, 27, http://dx.doi.org/10.1111/hex.14063
,2024, 'The feasibility and acceptability of collecting psychosocial outcome measures embedded within a precision medicine trial for childhood cancer', Cancer Medicine, 13, http://dx.doi.org/10.1002/cam4.7339
,2024, 'It provides families with other avenues for treatment when there are no other options Surgeons' perspectives of being part of a precision medicine trial for poor prognosis paediatric cancer patients: A short report', Cancer Medicine, 13, http://dx.doi.org/10.1002/cam4.7209
,2024, 'Psychological and emotional profiles of Australian uterine transplant potential recipients: A comparison with international trials', Acta Obstetricia et Gynecologica Scandinavica, http://dx.doi.org/10.1111/aogs.14974
,2024, 'When genetics and pediatric cancer collide: Understanding and optimizing families' experiences', Neuro-Oncology Advances, 6, http://dx.doi.org/10.1093/noajnl/vdae133
,2024, 'Promise and Perils of Precision Oncology for Patients With Pediatric and Young Adult Sarcomas.', Am Soc Clin Oncol Educ Book, 44, pp. e432794, http://dx.doi.org/10.1200/EDBK_432794
,2023, 'Parents’ and adolescents’ perspectives and understanding of information about childhood cancer precision medicine', Cancer, 129, pp. 3645 - 3655, http://dx.doi.org/10.1002/cncr.34914
,2023, 'Parents’ expectations, preferences, and recall of germline findings in a childhood cancer precision medicine trial', Cancer, 129, pp. 3620 - 3632, http://dx.doi.org/10.1002/cncr.34917
,2023, 'Hopes, concerns, satisfaction and regret in a precision medicine trial for childhood cancer: a mixed-methods study of parent and patient perspectives', British Journal of Cancer, 129, pp. 1634 - 1644, http://dx.doi.org/10.1038/s41416-023-02429-1
,2023, 'Precision Medicine Is Changing the Roles of Healthcare Professionals, Scientists, and Research Staff: Learnings from a Childhood Cancer Precision Medicine Trial', Journal of Personalized Medicine, 13, http://dx.doi.org/10.3390/jpm13071033
,2023, 'Protocol for a comprehensive prospective cohort study of trio-based whole-genome sequencing for underlying cancer predisposition in paediatric and adolescent patients newly diagnosed with cancer: The PREDICT study', BMJ Open, 13, http://dx.doi.org/10.1136/bmjopen-2022-070082
,2022, '‘Advocacy groups are the connectors’: Experiences and contributions of rare disease patient organization leaders in advanced neurotherapeutics', Health Expectations, 25, pp. 3175 - 3191, http://dx.doi.org/10.1111/hex.13625
,2022, '‘Like ships in the night’: A qualitative investigation of the impact of childhood cancer on parents’ emotional and sexual intimacy', Pediatric Blood and Cancer, 69, http://dx.doi.org/10.1002/pbc.30015
,2022, 'Parents’ understanding of genome and exome sequencing for pediatric health conditions: a systematic review', European Journal of Human Genetics, 30, pp. 1216 - 1225, http://dx.doi.org/10.1038/s41431-022-01170-2
,2022, 'Quality of Life (QoL) of Children and Adolescents Participating in a Precision Medicine Trial for High-Risk Childhood Cancer', Cancers, 14, http://dx.doi.org/10.3390/cancers14215310
,2022, 'What’s in a Name? Parents’ and Healthcare Professionals’ Preferred Terminology for Pathogenic Variants in Childhood Cancer Predisposition Genes', Journal of Personalized Medicine, 12, pp. 1327, http://dx.doi.org/10.3390/jpm12081327
,2021, 'How Are Families Faring? Perceived Family Functioning among Adolescent and Young Adult Cancer Survivors in Comparison to Their Peers', Journal of Adolescent and Young Adult Oncology, 10, pp. 711 - 719, http://dx.doi.org/10.1089/jayao.2020.0215
,2021, 'Providing psychological support to parents of childhood cancer survivors: ‘cascade’ intervention trial results and lessons for the future', Cancers, 13, pp. 5597, http://dx.doi.org/10.3390/cancers13225597
,2021, 'Health service and medication use of parents of childhood cancer survivors: a controlled comparison study', Acta Oncologica, 60, pp. 1325 - 1334, http://dx.doi.org/10.1080/0284186X.2021.1955968
,2021, 'Variables associated with grief and personal growth following the death of a child from cancer: A mixed method analysis', Death Studies, 45, pp. 702 - 713, http://dx.doi.org/10.1080/07481187.2019.1682087
,2020, 'Understanding parents’ communication experiences in childhood cancer: a qualitative exploration and model for future research', Supportive Care in Cancer, 28, pp. 4467 - 4476, http://dx.doi.org/10.1007/s00520-019-05270-6
,2020, 'Financial toxicity of childhood cancer and changes to parents’ employment after treatment completion', Pediatric Blood and Cancer, 67, http://dx.doi.org/10.1002/pbc.28345
,2020, 'An Evaluation of By My Side: Peer Support in Written Form is Acceptable and Useful for Parents Bereaved by Childhood Cancer', Journal of Pain and Symptom Management, 59, pp. 1278 - 1286, http://dx.doi.org/10.1016/j.jpainsymman.2020.01.013
,2020, 'Families’ experiences of a precision medicine trial for childhood cancer', Oncology Central
,2020, 'Survivorship Care Plans in Cancer: A Meta-Analysis and Systematic Review of Care Plan Outcomes', Oncologist, 25, pp. e351 - e372, http://dx.doi.org/10.1634/theoncologist.2019-0184
,2020, '“Balancing Expectations with Actual Realities”: Conversations with Clinicians and Scientists in the First Year of a High-Risk Childhood Cancer Precision Medicine Trial', Journal of Personalized Medicine, 10, pp. 9, http://dx.doi.org/10.3390/jpm10010009
,2020, 'Survivorship Care Plans in Cancer: A Meta-Analysis and Systematic Review of Care Plan Outcomes.', Oncologist, 25, pp. e351 - e372, http://dx.doi.org/10.1634/theoncologist.2019-0184
,2019, 'Author reply', Internal Medicine Journal, 49, pp. 808 - 809, http://dx.doi.org/10.1111/imj.14320
,2019, 'How Parents of Childhood Cancer Survivors Perceive Support From Their Extended Families', Journal of Child and Family Studies, 28, pp. 1537 - 1547, http://dx.doi.org/10.1007/s10826-019-01394-9
,2019, 'Brief report: Bereaved parents informing research design: The place of a pilot study', Death Studies, 43, pp. 62 - 69, http://dx.doi.org/10.1080/07481187.2018.1436616
,2018, 'Comorbidity of distress experienced by parents of childhood cancer survivors points to the importance of understanding transdiagnostic cognitive-affective mechanisms.', Acta Oncologica, 58, pp. 1 - 2, http://dx.doi.org/10.1080/0284186X.2018.1512157
,2017, 'Something's got to give: time–cost trade-offs in site-specific research approval can negatively impact patient recruitment in multi-institutional studies', Internal Medicine Journal, 47, pp. 1088 - 1089, http://dx.doi.org/10.1111/imj.13535
,2015, 'Abstract recall of a happy memory to repair sad mood in dysphoria: A possible link to negative cognition', Memory, 23, pp. 817 - 828, http://dx.doi.org/10.1080/09658211.2014.929149
,2013, 'Does mode of processing during a positive experience have consequences for affect', Journal of Behavior Therapy and Experimental Psychiatry, 44, pp. 165 - 171, http://dx.doi.org/10.1016/j.jbtep.2012.10.002
,2007, 'The efficacy of diversion and aftercare strategies for adult drug-involved offenders: a summary and methodological review of the outcome literature', Drug and Alcohol Review, 26, pp. 379 - 387
,2004, 'Non-injecting routes of administration among entrants to three treatment modalities for heroin dependence', Drug and Alcohol Review, 23, pp. 177 - 183
,Conference Papers
2020, 'Parents' Expectations and Experiences of a Precision Medicine Trial for High-Risk Paediatric Cancer', in PEDIATRIC BLOOD & CANCER, WILEY, pp. S47 - S47, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000581769200091&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
,Conference Abstracts
2022, 'PARENTS' AND PATIENTS' UNDERSTANDING OF A PRECISION MEDICINE TRIAL FOR HIGH-RISK CHILDHOOD CANCER', in PEDIATRIC BLOOD & CANCER, WILEY, Vol. 69, pp. S399 - S399, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000859203901450&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
,2019, 'Feasibility, Acceptability and Safety of a Novel Online Group-Based Psychological Support Program for Parents After Their Child's Cancer Treatment: A Three-Armed Randomized Trial of 'Cascade'', in PEDIATRIC BLOOD & CANCER, WILEY, Vol. 66, pp. S12 - S12, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000488458000019&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
,2018, 'The effect of survivorship care plans on cancer survivors' patient-reported outcomes: A meta-analysis and systematic review', in PSYCHO-ONCOLOGY, WILEY, Vol. 27, pp. 189 - 189, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000448188000504&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
,2016, ''Cascade': A randomized trial of online support for parents after their child's cancer treatment', in PSYCHO-ONCOLOGY, WILEY-BLACKWELL, Dublin, Ireland, Vol. 25, pp. 106 - 107, presented at World Congress of Psycho-oncology, Dublin, Ireland, 17 October 2016 - 21 October 2016, http://dx.doi.org/10.1002/pon.v25.S3/issuetoc
,Reports
2010, Suicide risk assesment and intervention strategies: Current practices in Australian residential drug and alcohol rehabiliation services, National Drug and Alcohol Research Centre, Sydney, https://ndarc.med.unsw.edu.au/resource/suicide-risk-assessment-and-intervention-strategies-current-practices-australian
,2008, The contribution of cannabis use to psychotic symptoms among methamphetamine treatment entrants, National Drug and Alcohol Research Centre, Sydney, https://ndarc.med.unsw.edu.au/resource/contribution-cannabis-use-psychotic-symptoms-among-methamphetamine-treatment-entrants
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