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Conference Papers
, 2025, 'Connect, Pause & Reflect: Multidisciplinary Clinicians' Shared Challenges and Sustaining Strategies Caring for Children with Severe Neurological Impairment', in EPILEPSIA, WILEY, PORTUGAL, Lisbon, pp. S421 - S421, presented at 36th International Epilepsy Congress, PORTUGAL, Lisbon, 30 August 2025 - 03 September 2025
, 2025, 'Connect, Pause & Reflect: Multidisciplinary Clinicians' Shared Challenges and Sustaining Strategies Caring for Children with Severe Neurological Impairment', in EPILEPSIA, WILEY, PORTUGAL, Lisbon, pp. S421 - S421, presented at 36th International Epilepsy Congress, PORTUGAL, Lisbon, 30 August 2025 - 03 September 2025
, 2025, 'Implementing and evaluating a novel model of care for patients with developmental and epileptic encephalopathies', in EPILEPSIA, WILEY, PORTUGAL, Lisbon, pp. S412 - S413, presented at 36th International Epilepsy Congress, PORTUGAL, Lisbon, 30 August 2025 - 03 September 2025
, 2025, 'Implementing and evaluating a novel model of care for patients with developmental and epileptic encephalopathies', in EPILEPSIA, WILEY, PORTUGAL, Lisbon, pp. S412 - S413, presented at 36th International Epilepsy Congress, PORTUGAL, Lisbon, 30 August 2025 - 03 September 2025
, 2025, 'Evaluating the impact of dedicated clinical nurse consultants for patients with developmental and epileptic encephalopathies', in EUROPEAN JOURNAL OF HUMAN GENETICS, SPRINGERNATURE, ITALY, Milan, pp. 487 - 487, presented at 58th Conference of the European-Society-of-Human-Genetics (ESHG), ITALY, Milan, 24 May 2025 - 27 May 2025
, 2024, 'Childhood Dementia Insight: A mixed-methods study investigating the psychosocial, quality of life, and psychological impacts of childhood dementia on families', in EUROPEAN JOURNAL OF HUMAN GENETICS, SPRINGERNATURE, GERMANY, Berlin, pp. 1217 - 1217, presented at 57th Conference of the European-Society-of-Human-Genetics (ESHG), GERMANY, Berlin, 01 June 2024 - 04 June 2024
, 2023, 'Designing for implementation: co-design of a paediatric oncology medicines database (ProCure) to support complex care provision for children with a hard-to-treat cancer', in IMPLEMENTATION SCIENCE, BMC
, 2023, 'Development of an implementation-focused logic model framework: a practical example of use to design and support complex care provision for children with a hard-to-treat-cancer', in IMPLEMENTATION SCIENCE, BMC
, 2023, 'CHALLENGES FACED BY HEALTHCARE PROFESSIONALS WHEN COMMUNICATING WITH FAMILIES OF YOUNG PEOPLE WITH A HARD-TO-TREAT CANCER', in INTERNATIONAL JOURNAL OF BEHAVIORAL MEDICINE, SPRINGER, pp. S90 - S90
, 2023, 'INTERNATIONAL IMPLEMENTATION OF AN ONLINE MENTAL HEALTH PROGRAM FOR PARENTS OF YOUNG CANCER SURVIVORS (CASCADE): IMPLEMENTATION PROCESS AND LESSONS LEARNED', in INTERNATIONAL JOURNAL OF BEHAVIORAL MEDICINE, SPRINGER, pp. S37 - S37
, 2022, 'Too many questions, too little information: Supporting families who have a child with severe genetic epilepsy', in EUROPEAN JOURNAL OF HUMAN GENETICS, SPRINGERNATURE, AUSTRIA, Vienna, pp. 325 - 326, presented at 55th European-Society-of-Human-Genetics (ESHG) Conference, AUSTRIA, Vienna, 11 June 2022 - 14 June 2022