Select Publications
Journal articles
2024, 'Pilot testing “Teach Ted”: A digital application for children undergoing blood tests and their parents', PEC Innovation, 4, http://dx.doi.org/10.1016/j.pecinn.2023.100251
,2024, 'Barriers to access of precision guided therapies for children with high-risk cancer', Pediatric Blood and Cancer, 71, http://dx.doi.org/10.1002/pbc.31147
,2024, 'In their own words: advice from parents of children with cancer', Journal of Pediatric Psychology, 49, pp. 628 - 635, http://dx.doi.org/10.1093/jpepsy/jsae048
,2024, 'What Promotes Positive Parenting During Breast Cancer? A Cross-Sectional Analysis of Social Support, Emotion Regulation, and Meaning in Life', International Journal of Behavioral Medicine, 31, pp. 595 - 604, http://dx.doi.org/10.1007/s12529-023-10196-9
,2024, '“I Don’t Get to Play With My Mum Anymore”: Experiences of Siblings Aged 8–12 of Children With Cancer: A Qualitative Study', Journal of Pediatric Hematology/Oncology Nursing, 41, pp. 265 - 275, http://dx.doi.org/10.1177/27527530241267324
,2024, 'Communicating with families of young people with hard-to-treat cancers: Healthcare professionals’ perspectives on challenges, skills, and training', Palliative and Supportive Care, 22, pp. 539 - 545, http://dx.doi.org/10.1017/S1478951523001992
,2024, 'Survivors of child and adolescent cancer experiences of bullying at school or work: self-report and parent proxy report', Journal of Psychosocial Oncology Research and Practice, 6, http://dx.doi.org/10.1097/OR9.0000000000000130
,2024, 'Grandparents’ Experiences of Childhood Cancer: A Qualitative Study', Journal of Family Nursing, 30, pp. 30 - 40, http://dx.doi.org/10.1177/10748407231213862
,2024, 'Quality of life in caregivers of a child with a developmental and epileptic encephalopathy', Developmental Medicine and Child Neurology, 66, pp. 206 - 215, http://dx.doi.org/10.1111/dmcn.15695
,2024, 'Co-design of a paediatric oncology medicines database (ProCure) to support complex care provision for children with a hard-to-treat cancer', Frontiers in Medicine, 11, pp. 1332434, http://dx.doi.org/10.3389/fmed.2024.1332434
,2024, 'Illness-related communication between siblings and parents of children with chronic illness and life-limiting conditions: A qualitative analysis', Palliative and Supportive Care, http://dx.doi.org/10.1017/S1478951524001056
,2024, 'Psychological wellbeing among parents of a child living with a serious chronic illness: A cross-sectional survey study', Journal of Child Health Care, http://dx.doi.org/10.1177/13674935241238485
,2023, 'The psychosocial impact of childhood dementia on children and their parents: a systematic review', Orphanet Journal of Rare Diseases, 18, http://dx.doi.org/10.1186/s13023-023-02859-3
,2023, '“Somewhere to turn to with my questions”: A pre-post pilot of an information linker service for caregivers who have a child with a Developmental and Epileptic Encephalopathy', European Journal of Paediatric Neurology, 47, pp. 94 - 104, http://dx.doi.org/10.1016/j.ejpn.2023.09.010
,2023, 'University students' psychological distress during the COVID-19 pandemic: A structural equation model of the role of resource loss and gain', Journal of Community Psychology, 51, pp. 3012 - 3028, http://dx.doi.org/10.1002/jcop.23076
,2023, 'Fathers’ Experiences of Childhood Cancer: A Phenomenological Qualitative Study', Journal of Family Nursing, 29, pp. 155 - 165, http://dx.doi.org/10.1177/10748407221145062
,2023, 'Psychological and somatic symptoms among breast cancer patients in four European countries: A cross-lagged panel model', Stress and Health, 39, pp. 474 - 482, http://dx.doi.org/10.1002/smi.3193
,2023, 'Trajectories of Quality of Life among an International Sample of Women during the First Year after the Diagnosis of Early Breast Cancer: A Latent Growth Curve Analysis', Cancers, 15, http://dx.doi.org/10.3390/cancers15071961
,2022, 'Siblings of young people with chronic illness: Caring responsibilities and psychosocial functioning', Journal of Child Health Care, 26, pp. 581 - 596, http://dx.doi.org/10.1177/13674935211033466
,2022, 'Indian physicians' attitudes and practice regarding menopause and its management: a focus group discussion', Menopause, 29, pp. 1323 - 1328, http://dx.doi.org/10.1097/GME.0000000000002059
,2022, 'Acceptability and feasibility of an online information linker service for caregivers who have a child with genetic epilepsy: A mixed-method pilot study protocol', BMJ Open, 12, pp. e063249, http://dx.doi.org/10.1136/bmjopen-2022-063249
,2022, '‘Torn in two’: Experiences of Mothers Who Are Pregnant when Their Child Is Diagnosed With Cancer', Qualitative Health Research, 32, pp. 1795 - 1808, http://dx.doi.org/10.1177/10497323221117924
,2022, 'Mexican cultural adaptation of the CASCAdE intervention program for parents of childhood cancer survivors', Psicooncologia, 19, pp. 63 - 80, http://dx.doi.org/10.5209/psic.80798
,2022, 'Parents' Experiences of Childhood Cancer during the COVID-19 Pandemic: An Australian Perspective', Journal of Pediatric Psychology, 47, pp. 148 - 157, http://dx.doi.org/10.1093/jpepsy/jsab125
,2022, 'Unmet and under-met needs among Indian parents of children with neurological disorders', Journal of Pediatric Nursing, 63, pp. e1 - e9, http://dx.doi.org/10.1016/j.pedn.2021.11.015
,2022, 'Genomic testing for children with interstitial and diffuse lung disease (chILD): Parent satisfaction, understanding and health-related quality of life', BMJ Open Respiratory Research, 9, http://dx.doi.org/10.1136/bmjresp-2021-001139
,2021, 'Child and caregiver experiences and perceptions of asthma self-management', npj Primary Care Respiratory Medicine, 31, http://dx.doi.org/10.1038/s41533-021-00253-9
,2021, 'How Are Families Faring? Perceived Family Functioning among Adolescent and Young Adult Cancer Survivors in Comparison to Their Peers', Journal of Adolescent and Young Adult Oncology, 10, pp. 711 - 719, http://dx.doi.org/10.1089/jayao.2020.0215
,2021, 'Evaluation of an in-hospital recreation room for hospitalised children and their families', Journal of Pediatric Nursing, 61, pp. 191 - 198, http://dx.doi.org/10.1016/j.pedn.2021.05.017
,2021, 'Providing psychological support to parents of childhood cancer survivors: ‘cascade’ intervention trial results and lessons for the future', Cancers, 13, pp. 5597, http://dx.doi.org/10.3390/cancers13225597
,2021, 'Interactive video games to reduce paediatric procedural pain and anxiety: a systematic review and meta-analysis', British Journal of Anaesthesia, 127, pp. 608 - 619, http://dx.doi.org/10.1016/j.bja.2021.06.039
,2021, 'Psychological outcomes, coping and illness perceptions among parents of children with neurological disorders', Psychology and Health, 36, pp. 1480 - 1496, http://dx.doi.org/10.1080/08870446.2020.1859113
,2020, 'Financial toxicity of childhood cancer and changes to parents’ employment after treatment completion', Pediatric Blood and Cancer, 67, http://dx.doi.org/10.1002/pbc.28345
,2020, 'Camps for Children with Cancer and Their Families: A Systematic Review of Psychosocial and Physical Impacts', Journal of Developmental and Behavioral Pediatrics, 41, pp. 145 - 156, http://dx.doi.org/10.1097/DBP.0000000000000728
,2019, 'Perceived cancer-related pain and fatigue, information needs, and fear of cancer recurrence among adult survivors of childhood cancer', Patient Education and Counseling, 102, pp. 2270 - 2278, http://dx.doi.org/10.1016/j.pec.2019.06.022
,2019, 'Grandparents of children with cancer: a controlled comparison of perceived family functioning', Supportive Care in Cancer, 27, pp. 2087 - 2094, http://dx.doi.org/10.1007/s00520-018-4468-7
,2019, 'How Parents of Childhood Cancer Survivors Perceive Support From Their Extended Families', Journal of Child and Family Studies, 28, pp. 1537 - 1547, http://dx.doi.org/10.1007/s10826-019-01394-9
,2018, 'Adolescent NSSI and Recovery: The Role of Family Functioning and Emotion Regulation', Youth & Society, 50, pp. 1056 - 1077, http://dx.doi.org/10.1177/0044118X16653153
,2017, 'School response to self-injury: Concerns of mental health staff and parents', School Psychology Quarterly, 32, pp. 173 - 187, http://dx.doi.org/10.1037/spq0000194
,2016, '“I Do Want to Stop, At Least I Think I Do” An International Comparison of Recovery From Nonsuicidal Self-Injury Among Young People', Journal of Adolescent Research, http://dx.doi.org/10.1177/0743558416684954
,2016, 'Parents’ Experiences of Nonsuicidal Self-Injury Among Adolescents and Young Adults', Journal of Child and Family Studies, 25, pp. 3403 - 3416, http://dx.doi.org/10.1007/s10826-016-0496-4
,2016, 'The Relationship Between Nonsuicidal Self-Injury and Family Functioning: Adolescent and Parent Perspectives', Journal of marital and family therapy, 42, pp. 536 - 549, http://dx.doi.org/10.1111/jmft.12150
,2014, 'Longitudinal analysis of adolescent NSSI: The role of intrapersonal and interpersonal factors', Journal of Abnormal Child Psychology, 42, pp. 885 - 896, http://dx.doi.org/10.1007/s10802-013-9837-6
,Reports
2015, Families and schools: a collaborative approach to adolescent health and well-being, Victorian Department of Education and Training
,Preprints
2023, Communicating with families of young people with hard-to-treat cancers: Healthcare professionals’ perspectives on challenges, skills, and training, http://dx.doi.org/10.22541/au.168438965.52340962/v1
,2023, ‘The psychosocial impact of childhood dementia on children and their parents: A systematic review’, http://dx.doi.org/10.21203/rs.3.rs-2282768/v1
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