Select Publications

Book Chapters

Trollor J; Hwang J, 2018, 'Autism Spectrum Disorders in Later Life', in Oxford Research Encyclopedia of Psychology, http://dx.doi.org/10.1093/acrefore/9780190236557.013.422

Journal articles

Arnold SRC; Huang Y; Lawson LP; Higgins JM; Hwang YI; Richdale A; Trollor JN; Hwang J, 2024, 'Development of the Impact of Diagnosis Scale–Revised (IODS-R)', Assessment, 31, pp. 908 - 919, http://dx.doi.org/10.1177/10731911231196486

Huang Y; Arnold SRC; Foley KR; Trollor JN, 2024, 'A Qualitative Study of Adults’ and Support Persons’ Experiences of Support After Autism Diagnosis', Journal of Autism and Developmental Disorders, 54, pp. 1157 - 1170, http://dx.doi.org/10.1007/s10803-022-05828-0

Huang Y; Arnold SRC; Foley KR; Trollor JN, 2024, 'Experiences of Support Following Autism Diagnosis in Adulthood', Journal of Autism and Developmental Disorders, 54, pp. 518 - 531, http://dx.doi.org/10.1007/s10803-022-05811-9

Arnold SRC; Desai A; McVilly K; Hind T; Mason B; Walsh J; Foster G; Trollor JN, 2024, 'Towards a contribution paradigm: photovoice uncovering the contribution of people with intellectual disability', Disability and Society, http://dx.doi.org/10.1080/09687599.2024.2411529

Huang Y; Trollor JN; Foley KR; Arnold SRC, 2023, '“I've Spent My Whole Life Striving to Be Normal”: Internalized Stigma and Perceived Impact of Diagnosis in Autistic Adults', Autism in Adulthood, 5, pp. 423 - 436, http://dx.doi.org/10.1089/aut.2022.0066

Arnold SRC; Higgins JM; Weise J; Desai A; Pellicano E; Trollor JN, 2023, 'Confirming the nature of autistic burnout', Autism, 27, pp. 1906 - 1918, http://dx.doi.org/10.1177/13623613221147410

Arnold SRC; Higgins JM; Weise J; Desai A; Pellicano E; Trollor JN, 2023, 'Towards the measurement of autistic burnout', Autism, 27, pp. 1933 - 1948, http://dx.doi.org/10.1177/13623613221147401

Lilley R; Lawson W; Hall G; Mahony J; Clapham H; Heyworth M; Arnold S; Trollor J; Yudell M; Pellicano E, 2023, '“Peas in a pod”: Oral History Reflections on Autistic Identity in Family and Community by Late-Diagnosed Adults', Journal of Autism and Developmental Disorders, 53, pp. 1146 - 1161, http://dx.doi.org/10.1007/s10803-022-05667-z

Arnold SRC; Bruce G; Weise J; Mills CJ; Trollor JN; Coxon K, 2023, 'Barriers to healthcare for Australian autistic adults', Autism, 28, pp. 301 - 315, http://dx.doi.org/10.1177/13623613231168444

Muniandy M; Richdale AL; Arnold SRC; Trollor JN; Lawson LP, 2023, 'Brief Report: Longitudinal Role of Coping Strategies on Mental Health Outcomes in Autistic Youth and Adults', Journal of Autism and Developmental Disorders, http://dx.doi.org/10.1007/s10803-023-05953-4

Richdale AL; Lawson LP; Chalmers A; Uljarević M; Morris EMJ; Arnold SRC; Trollor JN, 2023, 'Pathways to Anxiety and Depression in Autistic Adolescents and Adults', Depression and Anxiety, 2023, http://dx.doi.org/10.1155/2023/5575932

Huang Y; Hwang YI; Arnold SRC; Lawson LP; Richdale AL; Trollor JN; Hwang J, 2022, 'Autistic Adults’ Experiences of Diagnosis Disclosure', Journal of Autism and Developmental Disorders, 52, pp. 5301 - 5307, http://dx.doi.org/10.1007/s10803-021-05384-z

Lilley R; Lawson W; Hall G; Mahony J; Clapham H; Heyworth M; Arnold SRC; Trollor JN; Yudell M; Pellicano E, 2022, '‘A way to be me’: Autobiographical reflections of autistic adults diagnosed in mid-to-late adulthood', Autism, 26, pp. 1395 - 1408, http://dx.doi.org/10.1177/13623613211050694

Huang Y; Arnold SRC; Foley KR; Trollor JN, 2022, 'Choose your Own Adventure: Pathways to Adulthood Autism Diagnosis in Australia', Journal of Autism and Developmental Disorders, 52, pp. 2984 - 2996, http://dx.doi.org/10.1007/s10803-021-05169-4

Sonido MT; Hwang YI; Srasuebkul P; Trollor JN; Arnold SRC; Hwang J, 2022, 'Predictors of the Quality of Life of Informal Carers of Adults on the Autism Spectrum', Journal of Autism and Developmental Disorders, 52, pp. 2997 - 3014, http://dx.doi.org/10.1007/s10803-021-05178-3

Muniandy M; Richdale AL; Arnold SRC; Trollor JN; Lawson LP, 2022, 'Associations between coping strategies and mental health outcomes in autistic adults', Autism Research, 15, pp. 929 - 944, http://dx.doi.org/10.1002/aur.2694

Huang Y; Arnold SRC; Foley KR; Lawson LP; Richdale AL; Trollor JN, 2021, 'Factors associated with age at autism diagnosis in a community sample of Australian adults', Autism Research, 14, pp. 2677 - 2687, http://dx.doi.org/10.1002/aur.2610

Higgins JM; Arnold SRC; Weise J; Pellicano E; Trollor JN, 2021, 'Defining autistic burnout through experts by lived experience: Grounded Delphi method investigating #AutisticBurnout', Autism, 25, pp. 2356 - 2369, http://dx.doi.org/10.1177/13623613211019858

Gibbs V; Hudson J; Hwang YI; Arnold S; Trollor J; Pellicano E; Hwang J, 2021, 'Experiences of physical and sexual violence as reported by autistic adults without intellectual disability: Rate, gender patterns and clinical correlates', Research in Autism Spectrum Disorders, 89, pp. 101866, http://dx.doi.org/10.1016/j.rasd.2021.101866

Harvery M; Froude EH; Foley KR; Trollor JN; Arnold SRC, 2021, 'Employment profiles of autistic adults in Australia', Autism Research, 14, pp. 2061 - 2077, http://dx.doi.org/10.1002/aur.2588

Muniandy M; Richdale AL; Arnold SRC; Trollor JN; Lawson LP, 2021, 'Inter-relationships between trait resilience, coping strategies, and mental health outcomes in autistic adults', Autism Research, 14, pp. 2156 - 2168, http://dx.doi.org/10.1002/aur.2564

Wilson NJ; Stevens A; Srasuebkul P; Kersten M; Lin Z; Trollor JN; Arnold SRC, 2021, 'Exploring the relationship between community mobility and quality of life, employment and completing further education for autistic adults', Journal of Transport and Health, 22, http://dx.doi.org/10.1016/j.jth.2021.101117

Muniandy M; Richdale AL; Arnold SRC; Trollor JN; Lawson LP, 2021, 'Factor structure and psychometric properties of the Brief COPE in autistic older adolescents and adults', Research in Autism Spectrum Disorders, 84, http://dx.doi.org/10.1016/j.rasd.2021.101764

Huang Y; Arnold SRC; Foley KR; Trollor JN, 2020, 'Diagnosis of autism in adulthood: A scoping review', Autism, 24, pp. 1311 - 1327, http://dx.doi.org/10.1177/1362361320903128

Hwang YI; Arnold S; Trollor J; Uljarević M; Hwang J, 2020, 'Factor structure and psychometric properties of the brief Connor–Davidson Resilience Scale for adults on the autism spectrum', Autism, 24, pp. 1572 - 1577, http://dx.doi.org/10.1177/1362361320908095

Arnold SRC; Higgins JM; Trollor JN, 2020, 'Health services for Australian autistic adults: Commentary on “The experiences, views, and needs of health professionals who provide care to adults on the autism spectrum” (Urbanowicz, Parkin, van Dooren, Girdler, Ciccarelli, & Lennox, 2020)', Research and Practice in Intellectual and Developmental Disabilities, 7, pp. 193 - 198, http://dx.doi.org/10.1080/23297018.2020.1753566

Sonido M; Arnold S; Higgins J; Hwang YIJ; Hwang J, 2020, 'Autism in Later Life: What Is Known and What Is Needed?', Current Developmental Disorders Reports, 7, pp. 69 - 77, http://dx.doi.org/10.1007/s40474-020-00192-z

Arnold SRC; Uljarević M; Hwang YI; Richdale AL; Trollor JN; Lawson LP, 2020, 'Brief Report: Psychometric Properties of the Patient Health Questionaire-9 (PHQ-9) in Autistic Adults', Journal of Autism and Developmental Disorders, 50, pp. 2217 - 2225, http://dx.doi.org/10.1007/s10803-019-03947-9

Jovevska S; Richdale AL; Lawson LP; Uljarević M; Arnold SRC; Trollor JN, 2020, 'Sleep Quality in Autism from Adolescence to Old Age', Autism in Adulthood, 2, pp. 152 - 162, http://dx.doi.org/10.1089/aut.2019.0034

Pellicano E; Lawson W; Hall G; Mahony J; Lilley R; Davis C; Arnold S; Trollor J; Yudell M, 2020, 'Documenting the untold histories of late-diagnosed autistic adults: a qualitative study protocol using oral history methodology', BMJ open, 10, pp. e037968, http://dx.doi.org/10.1136/bmjopen-2020-037968

Lawson LP; Richdale AL; Haschek A; Flower RL; Vartuli J; Arnold SRC; Trollor JN, 2020, 'Cross-sectional and longitudinal predictors of quality of life in autistic individuals from adolescence to adulthood: The role of mental health and sleep quality', Autism, 24, pp. 954 - 967, http://dx.doi.org/10.1177/1362361320908107

Arnold SRC; Huang Y; Hwang YI; Richdale AL; Trollor JN; Lawson LP; Hwang J, 2020, '“The Single Most Important Thing That Has Happened to Me in My Life”: Development of the Impact of Diagnosis Scale—Preliminary Revision', Autism in Adulthood, 2, pp. 34 - 41, http://dx.doi.org/10.1089/aut.2019.0059

Sonido MT; Hwang YI; Trollor JN; Arnold SRC, 2020, 'The Mental Well-Being of Informal Carers of Adults on the Autism Spectrum: a Systematic Review', Review Journal of Autism and Developmental Disorders, 7, pp. 63 - 77, http://dx.doi.org/10.1007/s40489-019-00177-8

Hwang YI; Arnold S; Srasuebkul P; Trollor J; Hwang J, 2020, 'Understanding anxiety in adults on the autism spectrum: An investigation of its relationship with intolerance of uncertainty, sensory sensitivities and repetitive behaviours', Autism, 24, pp. 411 - 422, http://dx.doi.org/10.1177/1362361319868907

Arnold S; Foley KR; Hwang YI; Richdale AL; Uljarevic M; Lawson LP; Cai RY; Falkmer T; Falkmer M; Lennox NG; Urbanowicz A; Trollor J; Hwang J, 2019, 'Cohort profile: The Australian Longitudinal Study of Adults with Autism (ALSAA)', BMJ Open, 9, pp. e030798, http://dx.doi.org/10.1136/bmjopen-2019-030798

Ee D; Hwang YI; Reppermund S; Srasuebkul P; Trollor JN; Foley K-R; Arnold SRC; Hwang J, 2019, 'Loneliness in Adults on the Autism Spectrum', Autism in Adulthood, 1, pp. 182 - 193, http://dx.doi.org/10.1089/aut.2018.0038

Hwang YI; Srasuebkul P; Foley KR; Arnold S; Trollor JN; Hwang J, 2019, 'Mortality and cause of death of Australians on the autism spectrum', Autism Research, 12, pp. 806 - 815, http://dx.doi.org/10.1002/aur.2086

Cvejic RC; Arnold SRC; Foley K-R; Trollor JN, 2018, 'Neuropsychiatric profile and psychotropic medication use in adults with autism spectrum disorder: results from the Australian Longitudinal Study of Adults with Autism', BJPsych Open, 4, pp. 461–466 - 461–466, http://dx.doi.org/10.1192/bjo.2018.64

Arnold SRC; Riches VC; Stancliffe RJ, 2015, 'Does a Measure of Support Needs Predict Funding Need Better Than a Measure of Adaptive and Maladaptive Behavior?', American journal on intellectual and developmental disabilities, 120, pp. 375 - 394, http://dx.doi.org/10.1352/1944-7558-120.5.375

Arnold SRC; Riches VC; Stancliffe RJ, 2014, 'I-CAN: The classification and prediction of support needs', Journal of Applied Research in Intellectual Disabilities, 27, pp. 97 - 111, http://dx.doi.org/10.1111/jar.12055

Chan J; Arnold S; Webber L; Riches V; Parmenter T; Stancliffe R, 2012, 'Is it time to drop the term ‘challenging behaviour’?', Learning Disability Practice, 15, pp. 36 - 38, http://dx.doi.org/10.7748/ldp2012.06.15.5.36.c9131

Arnold SRC; Riches VC; Stancliffe RJ, 2011, 'Intelligence is as intelligence does: Can additional support needs replace disability?', Journal of Intellectual and Developmental Disability, 36, pp. 258 - 262, http://dx.doi.org/10.3109/13668250.2011.617732

Arnold SRC; Riches VC; Parmenter TR; Stancliffe RJ, 2009, 'The I-CAN: Using e-Health to get people the support they need', Electronic Journal of Health Informatics, 4

Conference Papers

Arnold S; Riches V; Stancliffe R, 2016, 'Advocating for needed supports using a standardised assessment of support needs', in JOURNAL OF INTELLECTUAL DISABILITY RESEARCH, WILEY-BLACKWELL, pp. 630 - 630, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000383462000041&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1

Durvasula S; Arnold S, 2016, 'Health-related quality of life and health status of people with intellectual disabilities attending a specialised health service', in JOURNAL OF INTELLECTUAL DISABILITY RESEARCH, WILEY-BLACKWELL, pp. 660 - 660, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000383462000188&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1

Arnold SRC; Riches VC; Stancliffe RJ, 2014, 'Support needs predict funding need better than adaptive behaviour', in JOURNAL OF APPLIED RESEARCH IN INTELLECTUAL DISABILITIES, WILEY-BLACKWELL, pp. 352 - 352, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000338992800378&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1

O'Brien PM; Arnold SRC; Espiner D; McCredie J; Robinson A; Doukakis EL; Gore CL, 2014, 'Using conversations to bring about change within the service system: a blueprint for redesign and transformation', in JOURNAL OF APPLIED RESEARCH IN INTELLECTUAL DISABILITIES, WILEY-BLACKWELL, pp. 350 - 350, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000338992800364&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1

Knox M; Gadow F; O'Brien P; Riches V; Arnold S; Maher P, 2013, 'Can person-centredness bring about an organisational cultural shift?', in JOURNAL OF POLICY AND PRACTICE IN INTELLECTUAL DISABILITIES, WILEY-BLACKWELL, pp. 137 - 137, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000320645500117&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1

O'Brien P; Riches V; Doukakis E; Murray R; Gore C; Arnold S; Knox M; Gadow F, 2013, 'On being person-centered', in JOURNAL OF POLICY AND PRACTICE IN INTELLECTUAL DISABILITIES, WILEY-BLACKWELL, pp. 157 - 158, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000320645500181&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1


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