Select Publications
Book Chapters
2018, 'Autism Spectrum Disorders in Later Life', in Oxford Research Encyclopedia of Psychology, http://dx.doi.org/10.1093/acrefore/9780190236557.013.422
,Journal articles
2024, 'Development of the Impact of Diagnosis Scale–Revised (IODS-R)', Assessment, 31, pp. 908 - 919, http://dx.doi.org/10.1177/10731911231196486
,2024, 'A Qualitative Study of Adults’ and Support Persons’ Experiences of Support After Autism Diagnosis', Journal of Autism and Developmental Disorders, 54, pp. 1157 - 1170, http://dx.doi.org/10.1007/s10803-022-05828-0
,2024, 'Experiences of Support Following Autism Diagnosis in Adulthood', Journal of Autism and Developmental Disorders, 54, pp. 518 - 531, http://dx.doi.org/10.1007/s10803-022-05811-9
,2024, 'Towards a contribution paradigm: photovoice uncovering the contribution of people with intellectual disability', Disability and Society, http://dx.doi.org/10.1080/09687599.2024.2411529
,2023, '“I've Spent My Whole Life Striving to Be Normal”: Internalized Stigma and Perceived Impact of Diagnosis in Autistic Adults', Autism in Adulthood, 5, pp. 423 - 436, http://dx.doi.org/10.1089/aut.2022.0066
,2023, 'Confirming the nature of autistic burnout', Autism, 27, pp. 1906 - 1918, http://dx.doi.org/10.1177/13623613221147410
,2023, 'Towards the measurement of autistic burnout', Autism, 27, pp. 1933 - 1948, http://dx.doi.org/10.1177/13623613221147401
,2023, '“Peas in a pod”: Oral History Reflections on Autistic Identity in Family and Community by Late-Diagnosed Adults', Journal of Autism and Developmental Disorders, 53, pp. 1146 - 1161, http://dx.doi.org/10.1007/s10803-022-05667-z
,2023, 'Barriers to healthcare for Australian autistic adults', Autism, 28, pp. 301 - 315, http://dx.doi.org/10.1177/13623613231168444
,2023, 'Brief Report: Longitudinal Role of Coping Strategies on Mental Health Outcomes in Autistic Youth and Adults', Journal of Autism and Developmental Disorders, http://dx.doi.org/10.1007/s10803-023-05953-4
,2023, 'Pathways to Anxiety and Depression in Autistic Adolescents and Adults', Depression and Anxiety, 2023, http://dx.doi.org/10.1155/2023/5575932
,2022, 'Autistic Adults’ Experiences of Diagnosis Disclosure', Journal of Autism and Developmental Disorders, 52, pp. 5301 - 5307, http://dx.doi.org/10.1007/s10803-021-05384-z
,2022, '‘A way to be me’: Autobiographical reflections of autistic adults diagnosed in mid-to-late adulthood', Autism, 26, pp. 1395 - 1408, http://dx.doi.org/10.1177/13623613211050694
,2022, 'Choose your Own Adventure: Pathways to Adulthood Autism Diagnosis in Australia', Journal of Autism and Developmental Disorders, 52, pp. 2984 - 2996, http://dx.doi.org/10.1007/s10803-021-05169-4
,2022, 'Predictors of the Quality of Life of Informal Carers of Adults on the Autism Spectrum', Journal of Autism and Developmental Disorders, 52, pp. 2997 - 3014, http://dx.doi.org/10.1007/s10803-021-05178-3
,2022, 'Associations between coping strategies and mental health outcomes in autistic adults', Autism Research, 15, pp. 929 - 944, http://dx.doi.org/10.1002/aur.2694
,2021, 'Factors associated with age at autism diagnosis in a community sample of Australian adults', Autism Research, 14, pp. 2677 - 2687, http://dx.doi.org/10.1002/aur.2610
,2021, 'Defining autistic burnout through experts by lived experience: Grounded Delphi method investigating #AutisticBurnout', Autism, 25, pp. 2356 - 2369, http://dx.doi.org/10.1177/13623613211019858
,2021, 'Experiences of physical and sexual violence as reported by autistic adults without intellectual disability: Rate, gender patterns and clinical correlates', Research in Autism Spectrum Disorders, 89, pp. 101866, http://dx.doi.org/10.1016/j.rasd.2021.101866
,2021, 'Employment profiles of autistic adults in Australia', Autism Research, 14, pp. 2061 - 2077, http://dx.doi.org/10.1002/aur.2588
,2021, 'Inter-relationships between trait resilience, coping strategies, and mental health outcomes in autistic adults', Autism Research, 14, pp. 2156 - 2168, http://dx.doi.org/10.1002/aur.2564
,2021, 'Exploring the relationship between community mobility and quality of life, employment and completing further education for autistic adults', Journal of Transport and Health, 22, http://dx.doi.org/10.1016/j.jth.2021.101117
,2021, 'Factor structure and psychometric properties of the Brief COPE in autistic older adolescents and adults', Research in Autism Spectrum Disorders, 84, http://dx.doi.org/10.1016/j.rasd.2021.101764
,2020, 'Diagnosis of autism in adulthood: A scoping review', Autism, 24, pp. 1311 - 1327, http://dx.doi.org/10.1177/1362361320903128
,2020, 'Factor structure and psychometric properties of the brief Connor–Davidson Resilience Scale for adults on the autism spectrum', Autism, 24, pp. 1572 - 1577, http://dx.doi.org/10.1177/1362361320908095
,2020, 'Health services for Australian autistic adults: Commentary on “The experiences, views, and needs of health professionals who provide care to adults on the autism spectrum” (Urbanowicz, Parkin, van Dooren, Girdler, Ciccarelli, & Lennox, 2020)', Research and Practice in Intellectual and Developmental Disabilities, 7, pp. 193 - 198, http://dx.doi.org/10.1080/23297018.2020.1753566
,2020, 'Autism in Later Life: What Is Known and What Is Needed?', Current Developmental Disorders Reports, 7, pp. 69 - 77, http://dx.doi.org/10.1007/s40474-020-00192-z
,2020, 'Brief Report: Psychometric Properties of the Patient Health Questionaire-9 (PHQ-9) in Autistic Adults', Journal of Autism and Developmental Disorders, 50, pp. 2217 - 2225, http://dx.doi.org/10.1007/s10803-019-03947-9
,2020, 'Sleep Quality in Autism from Adolescence to Old Age', Autism in Adulthood, 2, pp. 152 - 162, http://dx.doi.org/10.1089/aut.2019.0034
,2020, 'Documenting the untold histories of late-diagnosed autistic adults: a qualitative study protocol using oral history methodology', BMJ open, 10, pp. e037968, http://dx.doi.org/10.1136/bmjopen-2020-037968
,2020, 'Cross-sectional and longitudinal predictors of quality of life in autistic individuals from adolescence to adulthood: The role of mental health and sleep quality', Autism, 24, pp. 954 - 967, http://dx.doi.org/10.1177/1362361320908107
,2020, '“The Single Most Important Thing That Has Happened to Me in My Life”: Development of the Impact of Diagnosis Scale—Preliminary Revision', Autism in Adulthood, 2, pp. 34 - 41, http://dx.doi.org/10.1089/aut.2019.0059
,2020, 'The Mental Well-Being of Informal Carers of Adults on the Autism Spectrum: a Systematic Review', Review Journal of Autism and Developmental Disorders, 7, pp. 63 - 77, http://dx.doi.org/10.1007/s40489-019-00177-8
,2020, 'Understanding anxiety in adults on the autism spectrum: An investigation of its relationship with intolerance of uncertainty, sensory sensitivities and repetitive behaviours', Autism, 24, pp. 411 - 422, http://dx.doi.org/10.1177/1362361319868907
,2019, 'Cohort profile: The Australian Longitudinal Study of Adults with Autism (ALSAA)', BMJ Open, 9, pp. e030798, http://dx.doi.org/10.1136/bmjopen-2019-030798
,2019, 'Loneliness in Adults on the Autism Spectrum', Autism in Adulthood, 1, pp. 182 - 193, http://dx.doi.org/10.1089/aut.2018.0038
,2019, 'Mortality and cause of death of Australians on the autism spectrum', Autism Research, 12, pp. 806 - 815, http://dx.doi.org/10.1002/aur.2086
,2018, 'Neuropsychiatric profile and psychotropic medication use in adults with autism spectrum disorder: results from the Australian Longitudinal Study of Adults with Autism', BJPsych Open, 4, pp. 461–466 - 461–466, http://dx.doi.org/10.1192/bjo.2018.64
,2015, 'Does a Measure of Support Needs Predict Funding Need Better Than a Measure of Adaptive and Maladaptive Behavior?', American journal on intellectual and developmental disabilities, 120, pp. 375 - 394, http://dx.doi.org/10.1352/1944-7558-120.5.375
,2014, 'I-CAN: The classification and prediction of support needs', Journal of Applied Research in Intellectual Disabilities, 27, pp. 97 - 111, http://dx.doi.org/10.1111/jar.12055
,2012, 'Is it time to drop the term ‘challenging behaviour’?', Learning Disability Practice, 15, pp. 36 - 38, http://dx.doi.org/10.7748/ldp2012.06.15.5.36.c9131
,2011, 'Intelligence is as intelligence does: Can additional support needs replace disability?', Journal of Intellectual and Developmental Disability, 36, pp. 258 - 262, http://dx.doi.org/10.3109/13668250.2011.617732
,2009, 'The I-CAN: Using e-Health to get people the support they need', Electronic Journal of Health Informatics, 4
,Conference Papers
2016, 'Advocating for needed supports using a standardised assessment of support needs', in JOURNAL OF INTELLECTUAL DISABILITY RESEARCH, WILEY-BLACKWELL, pp. 630 - 630, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000383462000041&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
,2016, 'Health-related quality of life and health status of people with intellectual disabilities attending a specialised health service', in JOURNAL OF INTELLECTUAL DISABILITY RESEARCH, WILEY-BLACKWELL, pp. 660 - 660, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000383462000188&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
,2014, 'Support needs predict funding need better than adaptive behaviour', in JOURNAL OF APPLIED RESEARCH IN INTELLECTUAL DISABILITIES, WILEY-BLACKWELL, pp. 352 - 352, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000338992800378&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
,2014, 'Using conversations to bring about change within the service system: a blueprint for redesign and transformation', in JOURNAL OF APPLIED RESEARCH IN INTELLECTUAL DISABILITIES, WILEY-BLACKWELL, pp. 350 - 350, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000338992800364&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
,2013, 'Can person-centredness bring about an organisational cultural shift?', in JOURNAL OF POLICY AND PRACTICE IN INTELLECTUAL DISABILITIES, WILEY-BLACKWELL, pp. 137 - 137, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000320645500117&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
,2013, 'On being person-centered', in JOURNAL OF POLICY AND PRACTICE IN INTELLECTUAL DISABILITIES, WILEY-BLACKWELL, pp. 157 - 158, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000320645500181&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
,