By Dr Sian K Smith

Book Chapters

McCaffery KM; Sheridan S; Nutbeam D; Clayman M; Kelly-Blake K; Rovner M; Rovner D; Smith SK; Wolf M, 2012, '2012 Updated Chapter J: Addressing Health Literacy (Original Title: Using Plain Language).', in Nata RV (ed.), Progress in education, v. 18, Nova Science, New York, pp. 1 - 30, http://ipdas.ohri.ca/resources.html

Journal articles

Smith SK; O'Connell GB; Knibb R; Greenwood R; Hussain S; Shaw R; Straus J; Banks J; Hall A; Dhanda N; Noble S; Pryce H, 2024, 'Development of the First Patient-Reported Experience Measure (PREM) for Hearing Loss in Audiology Care—My Hearing PREM', Health Expectations, 27, http://dx.doi.org/10.1111/hex.70088

Smith SK; Pryce H; O'Connell GB; Hussain S; Shaw R; Straus J, 2024, '‘The burden is very much on yourself’: A qualitative study to understand the illness and treatment burden of hearing loss across the life course', Health Expectations, 27, http://dx.doi.org/10.1111/hex.14067

Pryce H; Smith S; Burns O’Connell G; Hussain S; Straus J; Shaw R, 2024, 'The lived experience of hearing loss–an individualised responsibility', International Journal of Audiology, http://dx.doi.org/10.1080/14992027.2024.2351037

Jackson C; Smith S; Aghasaryan A; Andreasyan D; Aregay AK; Habersaat KB; Hovhannisyan L; Bogdan IV; Chistyakova DP; Cilović-Lagarija Š; Colonescu S; Hajiyev J; Ilves A; Isahakyan A; Isahakyan S; Jusupov N; Kachkachishvili I; Kender E; Kjosevska E; Nielsen SM; Mazhnaia A; Oona M; Păunescu B; Šabanović H; Săndulescu AI; Vasilevska A; Warsi S; Yusifli E; Zamfirescu RG; Craig B, 2023, 'Barriers and drivers of positive COVID-19 vaccination behaviours among healthcare workers in Europe and Central Asia: a qualitative cross-country synthesis', Humanities and Social Sciences Communications, 10, http://dx.doi.org/10.1057/s41599-023-02443-x

Pryce H; Smith SK; Burns-OConnell G; Knibb R; Greenwood R; Shaw R; Hussain S; Banks J; Hall A; Straus J; Noble S, 2023, 'Protocol for the development and validation of a patient-reported experience measure (PREM) for people with hearing loss: the PREM-HeLP', BMJ Open, 13, http://dx.doi.org/10.1136/bmjopen-2023-075229

Pryce H; Smith SK; Burns-O'Connell G; Shaw R; Hussain S; Banks J; Hall A; Knibb R; Greenwood R; Straus J, 2023, 'Protocol for a qualitative study exploring the lived experience of hearing loss and patient reported experience in the UK: The HeLP study', BMJ Open, 13, http://dx.doi.org/10.1136/bmjopen-2022-069363

Smith-Lickess SK; Stefanic N; Shaw J; Shepherd H; Naehrig D; Turner RM; Cabrera-Aguas M; Meiser B; Halkett GKB; Jackson M; Saade G; Bucci J; Milross C; Dhillon HM; Smith S, 2022, 'What is the effect of a low literacy talking book on patient knowledge, anxiety and communication before radiation therapy starts? A pilot study', Journal of Medical Radiation Sciences, 69, pp. 463 - 472, http://dx.doi.org/10.1002/jmrs.606

Morton K; Kohut K; Turner L; Smith S; Crosbie EJ; Ryan N; Grimmett C; Eccles DM; Foster C, 2022, 'Person-based co-design of a decision aid template for people with a genetic predisposition to cancer', Frontiers in Digital Health, 4, http://dx.doi.org/10.3389/fdgth.2022.1039701

Smith SK; Wiltshire G; Brown FF; Dhillon H; Osborn M; Wexler S; Beresford M; Tooley MA; Turner JE, 2022, ''You're kind of left to your own devices': a qualitative focus group study of patients with breast, prostate or blood cancer at a hospital in the South West of England, exploring their engagement with exercise and physical activity during cancer treatment and in the months following standard care', BMJ open, 12, pp. e056132, http://dx.doi.org/10.1136/bmjopen-2021-056132

Kaur R; McDonald C; Meiser B; Macrae F; Smith SK; Kang YJ; Caruana M; Mitchell G, 2022, 'The Risk‐Reducing Effect of Aspirin in Lynch Syndrome Carriers: Development and Evaluation of an Educational Leaflet', Advanced Genetics, 3, pp. 2100046 - 2100046, http://dx.doi.org/10.1002/ggn2.202100046

Smith SK; Dhillon HM, 2021, 'Recovering and rebuilding after COVID-19: What are the best ways to support medical radiation science students?', Journal of Medical Radiation Sciences, 68, pp. 339 - 341, http://dx.doi.org/10.1002/jmrs.553

Yen RW; Smith J; Engel J; Muscat DM; Smith SK; Mancini J; Perestelo-Pérez L; Elwyn G; O’Malley AJ; Leyenaar JAK; Mac O; Cadet T; Giguere A; Housten AJ; Langford A; McCaffery K; Durand MA, 2021, 'A Systematic Review and Meta-Analysis of Patient Decision Aids for Socially Disadvantaged Populations: Update from the International Patient Decision Aid Standards (IDPAS)', Medical Decision Making, 41, pp. 870 - 896, http://dx.doi.org/10.1177/0272989X211020317

Muscat DM; Smith J; Mac O; Cadet T; Giguere A; Housten AJ; Langford AT; Smith SK; Durand MA; McCaffery K, 2021, 'Addressing Health Literacy in Patient Decision Aids: An Update from the International Patient Decision Aid Standards', Medical Decision Making, 41, pp. 848 - 869, http://dx.doi.org/10.1177/0272989X211011101

Shaffer VA; Brodney S; Gavaruzzi T; Zisman-Ilani Y; Munro S; Smith SK; Thomas E; Valentine KD; Bekker HL, 2021, 'Do Personal Stories Make Patient Decision Aids More Effective? An Update from the International Patient Decision Aids Standards', Medical Decision Making, 41, pp. 897 - 906, http://dx.doi.org/10.1177/0272989X211011100

Willis AM; Smith SK; Meiser B; James PA; Ballinger ML; Thomas DM; Yanes T; Young MA, 2021, 'Influence of lived experience on risk perception among women who received a breast cancer polygenic risk score: ‘Another piece of the pie’', Journal of Genetic Counseling, 30, pp. 849 - 860, http://dx.doi.org/10.1002/jgc4.1384

Halkett GKB; Merchant S; Smith SK; O’Connor M; Jefford M; Aranda S; Schofield P, 2020, 'Supporting and preparing patients for radiotherapy: Patients’ and radiation therapists’ perspectives on their one-to-one consultations', European Journal of Cancer Care, 29, http://dx.doi.org/10.1111/ecc.13284

Muscat DM; Morony S; Nutbeam D; Ayre J; Shepherd HL; Smith SK; Dhillon HM; Hayen A; Luxford K; Meshreky W; McCaffery K, 2020, 'Learners' experience and perceived impact of a health literacy program in adult basic education: A qualitative study', Public Health Research and Practice, 30, http://dx.doi.org/10.17061/phrp29231909

Smith-Lickess SK; Woodhead T; Burhouse A; Vasilakis C; Smith S, 2019, 'Study design and protocol for a comprehensive evaluation of a UK massive open online course (MOOC) on quality improvement in healthcare', BMJ Open, 9, pp. e031973, http://dx.doi.org/10.1136/bmjopen-2019-031973

Woudstra AJ; Smets EMA; Dekker E; Broens THF; Penning J; Smith S; McCaffery K; Fransen MP, 2019, 'Development and pilot-testing of a colorectal cancer screening decision aid for individuals with varying health literacy levels', Patient Education and Counseling, 102, pp. 1847 - 1858, http://dx.doi.org/10.1016/j.pec.2019.04.029

Smith SK; Cabrera-Aguas M; Shaw J; Shepherd H; Naehrig D; Meiser B; Jackson M; Saade G; Bucci J; Halkett GKB; Turner RM; Milross C; Dhillon HM, 2019, 'A low literacy targeted talking book about radiation therapy for cancer: development and acceptability', Supportive Care in Cancer, 27, pp. 2057 - 2067, http://dx.doi.org/10.1007/s00520-018-4446-0

Quinn F; Smith SK; Dhillon HM; Gillham C; Craig A, 2019, 'What do radiation therapists know about health literacy and the strategies to improve it for patients? A qualitative study', Supportive Care in Cancer, 27, pp. 649 - 657, http://dx.doi.org/10.1007/s00520-018-4353-4

Schnitzler L; Smith SK; Shepherd HL; Shaw JM; Dong S; Turner RM; Sørensen K; Dhillon HM, 2019, 'What information is communicated by radiation therapists to patients during education sessions on the first day of treatment?', European Journal of Cancer Care, 28, http://dx.doi.org/10.1111/ecc.12911

McCaffery KJ; Morony S; Muscat DM; Hayen A; Shepherd HL; Dhillon HM; Smith SK; Cvejic E; Meshreky W; Luxford K; Nutbeam D, 2019, 'Evaluation of an Australian Health Literacy Program Delivered in Adult Education Settings.', Health Lit Res Pract, 3, pp. S42 - S57, http://dx.doi.org/10.3928/24748307-20190402-01

Muscat DM; Morony S; Trevena L; Hayen A; Shepherd HL; Smith SK; Dhillon HM; Luxford K; Nutbeam D; McCaffery KJ, 2019, 'Skills for Shared Decision-Making: Evaluation of a Health Literacy Program for Consumers with Lower Literacy Levels.', Health Lit Res Pract, 3, pp. S58 - S74, http://dx.doi.org/10.3928/24748307-20190408-02

Smith SK; Cai A; Wong M; Sousa MS; Peate M; Welsh A; Bettina M; Kaur R; Halliday J; Lewis S; Trevena L; Yanes T; Barlow-Stewart K; Barclay M; Meiser B, 2018, 'Improving women’s knowledge about prenatal screening in the era of non-invasive prenatal testing for Down syndrome – development and acceptability of a low literacy decision aid', BMC Pregnancy and Childbirth, 18, pp. 499, http://dx.doi.org/10.1186/s12884-018-2135-0

Fransen MP; Hopman ME; Murugesu L; Rosman AN; Smith SK, 2018, 'Preconception counselling for low health literate women: An exploration of determinants in the Netherlands 17 Psychology and Cognitive Sciences 1701 Psychology', Reproductive Health, 15, http://dx.doi.org/10.1186/s12978-018-0617-1

Sublette VA; Smith SK; George J; McCaffery K; Douglas MW, 2018, 'Listening to both sides: A qualitative comparison between patients with hepatitis C and their healthcare professionals’ perceptions of the facilitators and barriers to hepatitis C treatment adherence and completion', Journal of Health Psychology, 23, pp. 1720 - 1731, http://dx.doi.org/10.1177/1359105316669858

Hedelund Lausen L; Smith SK; Cai A; Meiser B; Yanes T; Ahmad R; Rowlands G, 2018, 'How is health literacy addressed in primary care? Strategies that general practitioners use to support patients', Journal of Communication in Healthcare, 11, pp. 278 - 287, http://dx.doi.org/10.1080/17538068.2018.1531477

Morony S; Lamph E; Muscat D; Nutbeam D; Dhillon HM; Shepherd H; Smith S; Khan A; Osborne J; Meshreky W; Luxford K; Hayen A; McCaffery KJ, 2018, 'Improving health literacy through adult basic education in Australia', Health Promotion International, 33, pp. 867 - 877, http://dx.doi.org/10.1093/heapro/dax028

Kaur R; Meiser B; Yanes T; Young M-A; Barlow-Stewart K; Roscioli T; Smith S; James PA, 2018, 'Development and pilot testing of a leaflet informing women with breast cancer about genomic testing for polygenic risk', Familial Cancer, 18, pp. 147 - 152, http://dx.doi.org/10.1007/s10689-018-0104-4

Willis AM; Smith SK; Meiser B; Ballinger ML; Thomas DM; Tattersall M; Young MA, 2018, 'Development and Pilot Testing of a Decision Aid for Genomic Research Participants Notified of Clinically Actionable Research Findings for Cancer Risk', Journal of Genetic Counseling, 27, pp. 1055 - 1066, http://dx.doi.org/10.1007/s10897-018-0223-y

Halliday JL; Muller C; Charles T; Norris F; Kennedy J; Lewis S; Meiser B; Donath S; Stark Z; McGillivray G; Menezes M; Smith SK; Forster D; Walker S; Pertile M; Amor DJ, 2018, 'Offering pregnant women different levels of genetic information from prenatal chromosome microarray: A prospective study', European Journal of Human Genetics, 26, pp. 485 - 494, http://dx.doi.org/10.1038/s41431-017-0084-0

Peate M; Smith SK; Pye V; Hucker A; Stern C; Stafford L; Oakman C; Chin-Lenn L; Shanahan K; Ratnayake Gamage N; Hickey M, 2017, 'Assessing the usefulness and acceptability of a low health literacy online decision aid about reproductive choices for younger women with breast cancer: The aLLIAnCE pilot study protocol', Pilot and Feasibility Studies, 3, http://dx.doi.org/10.1186/s40814-017-0144-9

Muscat DM; Morony S; Smith SK; Shepherd HL; Dhillon HM; Hayen A; Trevena L; Luxford K; Nutbeam D; McCaffery KJ, 2017, 'Qualitative insights into the experience of teaching shared decision making within adult education health literacy programmes for lower-literacy learners', Health Expectations, 20, pp. 1393 - 1400, http://dx.doi.org/10.1111/hex.12580

Liang R; Meiser B; Smith S; Kasparian NA; Lewis CR; Chin M; Long GV; Ward R; Menzies AM; Harris-Wai JN; Kaur R, 2017, 'Advanced cancer patients’ attitudes towards, and experiences with, screening for somatic mutations in tumours: a qualitative study', European Journal of Cancer Care, 26, http://dx.doi.org/10.1111/ecc.12600

Smith SK; Nathan D; Taylor J; Van Gelder E; Dixon A; Halkett GKB; Milross C; Dhillon HM, 2017, 'Patients' experience of decision-making and receiving information during radiation therapy: A qualitative study', European Journal of Oncology Nursing, 30, pp. 97 - 106, http://dx.doi.org/10.1016/j.ejon.2017.08.007

Sublette VA; Smith SK; George J; McCaffery K; Douglas MW, 2017, 'Listening to both sides: A qualitative comparison between patients with hepatitis C and their healthcare professionals' perceptions of the facilitators and barriers to hepatitis C treatment adherence and completion', Journal of Health Psychology, 22, pp. 1300 - 1311, http://dx.doi.org/10.1177/1359105315626786

Willis AM; Smith SK; Meiser B; Ballinger ML; Thomas DM; Young MA, 2017, 'Sociodemographic, psychosocial and clinical factors associated with uptake of genetic counselling for hereditary cancer: a systematic review', Clinical Genetics, 92, pp. 121 - 133, http://dx.doi.org/10.1111/cge.12868

Rowlands G; Shaw A; Jaswal S; Smith S; Harpham T, 2017, 'Health literacy and the social determinants of health: A qualitative model from adult learners', Health Promotion International, 32, pp. 130 - 138, http://dx.doi.org/10.1093/heapro/dav093

Rowlands G; Shaw A; Jaswal S; Smith S; Harpham T, 2017, 'Health literacy and the social determinants of health: a qualitative model from adult learners.', Health Promot Int, 32, pp. 130 - 138, http://dx.doi.org/10.1093/heapro/dav093

Schnitzler L; Smith SK; Shepherd HL; Shaw J; Dong S; Carpenter DM; Nguyen F; Dhillon HM, 2017, 'Communication during radiation therapy education sessions: The role of medical jargon and emotional support in clarifying patient confusion', Patient Education and Counseling, 100, pp. 112 - 120, http://dx.doi.org/10.1016/j.pec.2016.08.006

Muscat DM; Shepherd HL; Nutbeam D; Morony S; Smith SK; Dhillon HM; Trevenal L; Hayen A; Luxford K; McCaffery K, 2017, 'Developing Verbal Health Literacy with Adult Learners Through Training in Shared Decision-Making.', Health Lit Res Pract, 1, pp. e257 - e268, http://dx.doi.org/10.3928/24748307-20171208-02

Muscat DM; Shepherd HL; Morony S; Smith SK; Dhillon HM; Trevena L; Hayen A; Luxford K; Nutbeam D; McCaffery K, 2016, 'Can adults with low literacy understand shared decision making questions? A qualitative investigation', Patient Education and Counseling, 99, pp. 1796 - 1802, http://dx.doi.org/10.1016/j.pec.2016.05.008

Smith SK; Sousa MS; Essink-Bot ML; Halliday J; Peate M; Fransen M, 2016, 'Socioeconomic Differences in Informed Decisions About Down Syndrome Screening: A Systematic Review and Research Agenda', Journal of Health Communication, 21, pp. 868 - 907, http://dx.doi.org/10.1080/10810730.2016.1177145

Smith SK; Yan B; Milross C; Dhillon HM, 2016, 'Radiation therapy for people with cancer: what do written information materials tell them?', European journal of cancer care, 25, pp. 675 - 685, http://dx.doi.org/10.1111/ecc.12366

Muscat DM; Smith S; Dhillon HM; Morony S; Davis EL; Luxford K; Shepherd HL; Hayen A; Comings J; Nutbeam D; McCaffery K, 2016, 'Incorporating health literacy in education for socially disadvantaged adults: An Australian feasibility study', International Journal for Equity in Health, 15, http://dx.doi.org/10.1186/s12939-016-0373-1

McCaffery KJ; Morony S; Muscat DM; Smith SK; Shepherd HL; Dhillon HM; Hayen A; Luxford K; Meshreky W; Comings J; Nutbeam D, 2016, 'Evaluation of an Australian health literacy training program for socially disadvantaged adults attending basic education classes: Study protocol for a cluster randomised controlled trial', BMC Public Health, 16, http://dx.doi.org/10.1186/s12889-016-3034-9

Muscat DM; Morony S; Shepherd HL; Smith SK; Dhillon HM; Trevena L; Hayen A; Luxford K; Nutbeam D; McCaffery K, 2015, 'Development and field testing of a consumer shared decision-making training program for adults with low literacy', Patient Education and Counseling, 98, pp. 1180 - 1188, http://dx.doi.org/10.1016/j.pec.2015.07.023

Sublette VA; Smith SK; George J; McCaffery K; Douglas MW, 2015, 'The Hepatitis C treatment experience: Patients’ perceptions of the facilitators of and barriers to uptake, adherence and completion', Psychology and Health, 30, pp. 987 - 1004, http://dx.doi.org/10.1080/08870446.2015.1012195

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