By Dr Holly Elaine Evans

Journal articles

Evans HE; Sansom-Daly UM; Bryant RA, 2024, 'Attachment as a mechanism influencing end-of-life communication: An analogue investigation', PLoS ONE, 19, http://dx.doi.org/10.1371/journal.pone.0303652

Kelada L; Robertson EG; McKay S; McGill BC; Daly R; Mazariego C; Taylor N; Tyedmers E; Armitage N; Evans HE; Wakefield CE; Ziegler DS, 2024, 'Communicating with families of young people with hard-to-treat cancers: Healthcare professionals’ perspectives on challenges, skills, and training', Palliative and Supportive Care, 22, pp. 539 - 545, http://dx.doi.org/10.1017/S1478951523001992

Sansom-Daly UM; Evans HE; Darlington AS; Weaver MS; Rosenberg AR; Wiener L; Anazodo A; Sue L; Cable M; Fernando RA; Herbert AR; Lindsay T; Cohn RJ; Wakefield CE, 2024, 'Alignment of Palliative Care Service Structure and Standards of Care for Adolescents and Young Adults with Cancer: An International Survey of Clinical Practice', Journal of Palliative Medicine, http://dx.doi.org/10.1089/jpm.2024.0141

Coulombe PA; Hansen D; Hickerson R; Hovnanian A; O'Toole EA; Kelsell DP; Evans H; Schwartz J; Sprecher E, 2024, 'Celebrating 20 Years of the International Pachyonychia Congenita Consortium', Journal of Investigative Dermatology, http://dx.doi.org/10.1016/j.jid.2024.07.033

Wittmer AN; Nguyen CM; O'Toole E; Schwartz J; Evans H; Hansen D, 2024, 'Non-pachyonychia congenita conditions in the International Pachyonychia Congenita Research Registry', International Journal of Dermatology, http://dx.doi.org/10.1111/ijd.17573

Evans HE; Jessop S; Bedoya SZ; Lyon ME; Wiener L; Sansom-Daly UM, 2023, 'Examining the Cultural Appropriateness of Advance Care Planning Tools for Adolescents and Young Adults With Cancer: An Example of Cross-Cultural Adaptation of the Voicing My CHOiCES Tool', Current Problems in Cancer, 47, http://dx.doi.org/10.1016/j.currproblcancer.2023.101010

Sansom-Daly UM; Zhang M; Evans HE; McLoone J; Wiener L; Cohn RJ; Anazodo A; Patterson P; Wakefield CE, 2023, 'Adapting the Voicing My CHOiCES Advance Care Planning Communication Guide for Australian Adolescents and Young Adults with Cancer: Appropriateness, Acceptability, and Considerations for Clinical Practice', Cancers, 15, pp. n/a - n/a, http://dx.doi.org/10.3390/cancers15072129

Sansom-Daly UM; Wiener L; Darlington AS; Poort H; Rosenberg AR; Weaver MS; Schulte F; Anazodo A; Phillips C; Sue L; Herbert AR; Mack JW; Lindsay T; Evans H; Wakefield CE; Girgis A; Al-Awamer A; Kirchhoff A; Cohn R; Fair D; Cable M; Wernli K; Donovan L; Mosher P; Fernando R; Trethewie S, 2022, 'Thinking globally to improve care locally: A Delphi study protocol to achieve international clinical consensus on best-practice end-of-life communication with adolescents and young adults with cancer', PLoS ONE, 17, http://dx.doi.org/10.1371/journal.pone.0270797

Kamaladasa DS; Sansom-Daly UM; Hetherington K; McGill BC; Ellis SJ; Kelada L; Donoghoe MW; Evans H; Anazodo A; Patterson P; Cohn RJ; Wakefield CE, 2021, 'How Are Families Faring? Perceived Family Functioning among Adolescent and Young Adult Cancer Survivors in Comparison to Their Peers', Journal of Adolescent and Young Adult Oncology, 10, pp. 711 - 719, http://dx.doi.org/10.1089/jayao.2020.0215

Sansom-Daly UM; Lobb EA; Evans HE; Breen LJ; Ugalde A; Best M; Zomerdijk N; Beasley EA; Taylor KL; Clayton J; Sharpe L; Bartula I; Olver I, 2021, 'To be mortal is human: Professional consensus around the need for more psychology in palliative care', BMJ Supportive and Palliative Care, 11, pp. 401 - 403, http://dx.doi.org/10.1136/bmjspcare-2021-002884

Evans HE; Sansom-Daly UM; Bryant R, 2020, 'Paediatric advance care plans: a cross-sectional survey of healthy young adults', BMJ Supportive and Palliative Care, 12, pp. E654 - E655, http://dx.doi.org/10.1136/bmjspcare-2019-001963

Sansom-Daly UM; Wakefield CE; Hetherington K; Evans HE; Ellis SJ; McGill BC; Cohn RJ, 2019, 'Author reply', Internal Medicine Journal, 49, pp. 808 - 809, http://dx.doi.org/10.1111/imj.14320

Sansom-Daly UM; Wakefield CE; Bryant RA; Patterson P; Anazodo A; Butow P; Sawyer SM; McGill BC; Evans HE; Cohn RJ; Robertson E, 2018, 'Feasibility, acceptability, and safety of the Recapture Life videoconferencing intervention for adolescent and young adult cancer survivors', Psycho-Oncology, 28, pp. 284 - 292, http://dx.doi.org/10.1002/pon.4938

Sansom-Daly UM; Evans HE; Ellis SJ; McGill BC; Hetherington K; Wakefield CE, 2017, 'Something's got to give: time–cost trade-offs in site-specific research approval can negatively impact patient recruitment in multi-institutional studies', Internal Medicine Journal, 47, pp. 1088 - 1089, http://dx.doi.org/10.1111/imj.13535

Conference Abstracts

Sansom-Daly UM; Wiener L; Rosenberg A; Weaver M; Poort H; Darlington A-S; Schulte F; Herbert A; Sue L; Anazodo A; Trethewie S; Fernando RA; Cohn RJ; Lindsay T; Donovan L; Mack J; Evans HE; Cable M; Girgis A; Wakefield CE, 2022, 'Improving capacity for equitable end-of-life communication for adolescents and young adults with cancer: What training do health-professionals need to facilitate best-practice?', in ASIA-PACIFIC JOURNAL OF CLINICAL ONCOLOGY, WILEY, Vol. 18, pp. 62 - 63, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000871956500038&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1

Sansom-Daly UM; Evans HE; Wiener L; Patterson P; Anazodo A; Girgis A; Cohn RJ; Wakefield CE, 2022, 'Improving end-of-life communication for all adolescents and young adults with cancer: A multi-perspective, mixed-methods evaluation of the voicing my CHOiCES (TM) tool', in ASIA-PACIFIC JOURNAL OF CLINICAL ONCOLOGY, WILEY, Vol. 18, pp. 97 - 98, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000871956500119&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1

Sansom-Daly UM; Wakefield CE; Wiener L; Evans HE; McGill BC; Patterson P; Donovan L; Drew D; Girgis A; Sanson-Fisher R; Anazodo A; Cohn RJ, 2017, 'Doing Better at 'Difficult Discussions': Australian Oncology Professionals' Perspectives on End-of-Life Communication with Adolescents and Young Adults with Cancer', in ASIA-PACIFIC JOURNAL OF CLINICAL ONCOLOGY, WILEY, Vol. 13, pp. 95 - 96, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000413954500097&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1

Preprints

Kelada L; Robertson E; McKay S; McGill B; Daly R; Mazariego C; Taylor N; Tyedmers E; Evans HE; Wakefield C; Ziegler D, 2023, Communicating with families of young people with hard-to-treat cancers: Healthcare professionals’ perspectives on challenges, skills, and training, http://dx.doi.org/10.22541/au.168438965.52340962/v1

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