Select Publications

Book Chapters

Signorelli C; Fardell J; Wakefield C; Cohn R, 2016, 'The Cost of Cure: Chronic Conditions in Survivors of Child, Adolescent, and Young Adult Cancers', in Koczwara B (ed.), Cancer and Chronic Conditions: Addressing the Problem of Multimorbidity in Cancer Patients and Survivors, Springer, Singapore, pp. 371 - 420, http://dx.doi.org/10.1007/978-981-10-1844-2_13

Journal articles

Smith AB; Bamgboje-Ayodele A; Butow P; Klein B; Turner J; Sharpe L; Fardell J; Beatty L; Pearce A; Thewes B; Beith J; Girgis A, 2019, 'Development and usability evaluation of an online self-management intervention for fear of cancer recurrence (iConquerFear)', PSYCHO-ONCOLOGY, http://dx.doi.org/10.1002/pon.5218

Sharpe L; Turner J; Fardell JE; Thewes B; Smith AB; Gilchrist J; Beith J; Girgis A; Tesson S; Day S; Grunewald K; Butow P; Bell M; Beatty L; Bennett B; Brebach R; Brock C; Butler S; Byrne D; Diggens J; Fairclough A; Faulkner T; Ftanou M; Grier M; Hill G; Jones T; Kirsten L; McConaghey S; McKinnon S; Mihalopoulos C; Mireskandari S; Musiello T; Penhale J; Pollard A; Rangganadhan A; Scealy M; Scott M; Shih S; Teoh M; Tiller K; Watt P, 2019, 'Psychological intervention (ConquerFear) for treating fear of cancer recurrence: mediators and moderators of treatment efficacy', Journal of Cancer Survivorship, http://dx.doi.org/10.1007/s11764-019-00788-4

Kelada L; Wakefield CE; Heathcote LC; Jaaniste T; Signorelli C; Fardell JE; Donoghoe M; McCarthy MC; Gabriel M; Cohn RJ, 2019, 'Perceived cancer-related pain and fatigue, information needs, and fear of cancer recurrence among adult survivors of childhood cancer', Patient Education and Counseling, http://dx.doi.org/10.1016/j.pec.2019.06.022

Robertson EG; Wakefield CE; Cohn RJ; Battisti RA; Donoghoe MW; Ziegler DS; Fardell JE; Mitchell R; O'Brien TA, 2019, 'Piloting a parent and patient decision aid to support clinical trial decision making in childhood cancer', Psycho-Oncology, vol. 28, pp. 1520 - 1529, http://dx.doi.org/10.1002/pon.5109

Mizrahi D; Fardell JE; Wakefield CE; Simar D; Maguire AM; Hubbard G; Cohn RJ, 2019, 'How physically active do Australian and New Zealander childhood cancer survivors perceive themselves? A report from the ANZCHOG survivorship study', Complementary Therapies in Medicine, vol. 44, pp. 196 - 203, http://dx.doi.org/10.1016/j.ctim.2019.04.020

Costa DSJ; Fardell JE, 2019, 'Why are objective and perceived cognitive function weakly correlated in patients with cancer?', Journal of Clinical Oncology, vol. 37, pp. 1154 - 1158, http://dx.doi.org/10.1200/JCO.18.02363

Robertson EG; Wakefield CE; Shaw J; Darlington AS; McGill BC; Cohn RJ; Fardell JE, 2019, 'Decision-making in childhood cancer: parents’ and adolescents’ views and perception', Supportive Care in Cancer, http://dx.doi.org/10.1007/s00520-019-04728-x

Signorelli C; Wakefield CE; Fardell JE; Brierley ME; Darlington AS; Williamson J; Downie P; Cohn RJ, 2019, 'Perceptions of future health and cancer risk in adult survivors of childhood cancer: Implications for engagement in follow-up care', Cancer, vol. 125, pp. 1008 - 1009, http://dx.doi.org/10.1002/cncr.31934

Butow P; Williams D; Thewes B; Tesson S; Sharpe L; Smith AB; Fardell JE; Turner J; Gilchrist J; Girgis A; Beith J, 2019, 'A psychological intervention (ConquerFear) for treating fear of cancer recurrence: Views of study therapists regarding sustainability', Psycho-Oncology, vol. 28, pp. 533 - 539, http://dx.doi.org/10.1002/pon.4971

Ellis SJ; Fardell JE; Wakefield CE; Schilstra CE; Burns MA; Donnan B; Walwyn T; Lum A; Marshall G; Carter A; Barton B; Cohn RJ, 2019, 'Are we meeting the training needs of healthcare and education professionals supporting children with cancer in their return to school?', Pediatric Blood and Cancer, vol. 66, pp. e27575, http://dx.doi.org/10.1002/pbc.27575

Collins DE; Ellis SJ; Janin MM; Wakefield CE; Bussey K; Cohn RJ; Lah S; Fardell JE, 2019, 'A Systematic Review Summarizing the State of Evidence on Bullying in Childhood Cancer Patients/Survivors', Journal of Pediatric Oncology Nursing, vol. 36, pp. 55 - 68, http://dx.doi.org/10.1177/1043454218810136

Signorelli C; Wakefield CE; Fardell JE; Foreman T; Johnston KA; Emery J; Thornton-Benko E; Girgis A; Lie HC; Cohn RJ; Alvaro F; Corbett R; Downie P; Egan K; Ellis S; Gabriel M; Graham K; Jones J; Lockwood L; Maguire A; McCarthy M; McLoone J; Mechinaud F; Molloy S; Moore L; Osborn M; Skeen J; Tapp H; Till T; Truscott J; Turpin K; Walwyn T; Yallop K, 2019, 'The Role of Primary Care Physicians in Childhood Cancer Survivorship Care: Multiperspective Interviews', Oncologist, vol. 24, pp. 710 - 719, http://dx.doi.org/10.1634/theoncologist.2018-0103

Wakefield CE; Doolan EL; Fardell JE; Signorelli C; Quinn VF; Tucker KM; Patenaude AF; Marshall GM; Lock RB; Georgiou G; Cohn RJ, 2018, 'The Avatar Acceptability Study: Survivor, Parent and Community Willingness to Use Patient-Derived Xenografts to Personalize Cancer Care', EBioMedicine, vol. 37, pp. 205 - 213, http://dx.doi.org/10.1016/j.ebiom.2018.10.060

Janin MMH; Ellis SJ; Wakefield CE; Fardell JE, 2018, 'Talking about Cancer among Adolescent and Young Adult Cancer Patients and Survivors: A Systematic Review', Journal of Adolescent and Young Adult Oncology, vol. 7, pp. 515 - 524, http://dx.doi.org/10.1089/jayao.2017.0131

Wakefield CE; Doolan EL; Fardell JE; Signorelli C; Quinn VF; Tucker KF; Patenaude AF; Marshall GM; Lock RB; Georgiou G; Cohn RJ, 2018, 'Protocol for the avatar acceptability study: A multiperspective cross-sectional study evaluating the acceptability of using patient-derived xenografts to guide personalised cancer care in Australia and New Zealand', BMJ Open, vol. 8, http://dx.doi.org/10.1136/bmjopen-2018-024064

Janin MMH; Ellis SJ; Lum A; Wakefield CE; Fardell JE, 2018, 'Parents’ Perspectives on Their Child's Social Experience in the Context of Childhood Chronic Illness: A Qualitative Study', Journal of Pediatric Nursing, vol. 42, pp. e10 - e18, http://dx.doi.org/10.1016/j.pedn.2018.06.010

Vetsch J; Wakefield CE; Warby M; Tucker K; Patterson P; McGill BC; Metcalfe A; Cohn RJ; Fardell JE, 2018, 'Cancer-Related Genetic Testing and Personalized Medicine for Adolescents: A Narrative Review of Impact and Understanding', Journal of Adolescent and Young Adult Oncology, vol. 7, pp. 259 - 262, http://dx.doi.org/10.1089/jayao.2017.0102

Smith A; Sharpe L; Thewes B; Turner J; Gilchrist J; Fardell JE; Girgis A; Tesson S; Descallar J; Bell ML; Beith J; Butow P; Beatty L; Bennett B; Brebach R; Brock C; Butler S; Byrne D; Day S; Diggens J; Fairclough A; Faulkner T; Ftanou M; Grier M; Hill G; Jones T; Kirsten L; McConaghey S; McKinnon S; Mihalopoulos C; Mireskandari S; Musiello T; Penhale J; Pollard A; Rangganadhan A; Scealy M; Scott M; Shih S; Teoh M; Tiller K; Watt P, 2018, 'Medical, demographic and psychological correlates of fear of cancer recurrence (FCR) morbidity in breast, colorectal and melanoma cancer survivors with probable clinically significant FCR seeking psychological treatment through the ConquerFear study', Supportive Care in Cancer, vol. 26, pp. 4207 - 4216, http://dx.doi.org/10.1007/s00520-018-4294-y

Robertson EG; Wakefield CE; Cohn RJ; O'Brien T; Ziegler DS; Fardell JE, 2018, 'The development of delta: Using agile to develop a decision aid for pediatric oncology clinical trial enrollment', Journal of Medical Internet Research, vol. 20, http://dx.doi.org/10.2196/resprot.9258

Fardell JE; Wakefield CE; Patterson P; Lum A; Cohn RJ; Pini SA; Sansom-Daly UM, 2018, 'Narrative Review of the Educational, Vocational, and Financial Needs of Adolescents and Young Adults with Cancer: Recommendations for Support and Research', Journal of Adolescent and Young Adult Oncology, vol. 7, pp. 143 - 147, http://dx.doi.org/10.1089/jayao.2017.0086

Signorelli C; Wakefield CE; Johnston KA; Fardell JE; Brierley MEE; Thornton-Benko E; Foreman T; Webber K; Wallace WH; Cohn RJ, 2018, 'Re-engage' pilot study protocol: A nurse-led eHealth intervention to re-engage, educate and empower childhood cancer survivors', BMJ Open, vol. 8, pp. e022269, http://dx.doi.org/10.1136/bmjopen-2018-022269

Nandakumar BS; Fardell JE; Wakefield CE; Signorelli C; McLoone JK; Skeen J; Maguire AM; Cohn RJ; Alvaro F; Corbett R; Downie P; Egan K; Emery J; Ellis S; Foreman T; Gabriel M; Girgis A; Graham K; Johnston K; Jones J; Lockwood L; McCarthy M; Molloy S; Osborn M; Tapp H; Till T; Truscott J; Turpin K; Walwyn T; Yallop K, 2018, 'Attitudes and experiences of childhood cancer survivors transitioning from pediatric care to adult care', Supportive Care in Cancer, vol. 26, pp. 2743 - 2750, http://dx.doi.org/10.1007/s00520-018-4077-5

Gan LL; Lum A; Wakefield CE; Donnan BM; Marshall GM; Burns MA; Jaffe A; Leach S; Lemberg DA; Fardell JE, 2018, 'The School Experiences of Siblings of Children with Chronic Illness: Australian Parents' Perceptions', Educational and Developmental Psychologist, vol. 35, pp. 36 - 50, http://dx.doi.org/10.1017/edp.2018.3

Costa DSJ; Loh V; Birney DP; Dhillon HM; Fardell JE; Gessler D; Vardy JL, 2018, 'The Structure of the FACT-Cog v3 in Cancer Patients, Students, and Older Adults', Journal of Pain and Symptom Management, vol. 55, pp. 1173 - 1178, http://dx.doi.org/10.1016/j.jpainsymman.2017.12.486

Robertson EG; Wakefield CE; Signorelli C; Cohn RJ; Patenaude A; Foster C; Pettit T; Fardell JE, 2018, 'Strategies to facilitate shared decision-making about pediatric oncology clinical trial enrollment: A systematic review', Patient Education and Counseling, vol. 101, pp. 1157 - 1174, http://dx.doi.org/10.1016/j.pec.2018.02.001

Fardell JE; Jones G; Smith AB; Lebel S; Thewes B; Costa D; Tiller K; Simard S; Feldstain A; Beattie S; McCallum M; Butow P, 2018, 'Exploring the screening capacity of the Fear of Cancer Recurrence Inventory-Short Form for clinical levels of fear of cancer recurrence', Psycho-Oncology, vol. 27, pp. 492 - 499, http://dx.doi.org/10.1002/pon.4516

Vetsch J; Wakefield CE; Robertson EG; Trahair TN; Mateos MK; Grootenhuis M; Marshall GM; Cohn RJ; Fardell JE, 2018, 'Health-related quality of life of survivors of childhood acute lymphoblastic leukemia: a systematic review', Quality of Life Research, vol. 27, pp. 1431 - 1443, http://dx.doi.org/10.1007/s11136-018-1788-5

Wakefield CE; Quinn VF; Fardell JE; Signorelli C; Tucker KM; Patenaude AF; Malkin D; Walwyn T; Alvaro F; Cohn RJ, 2018, 'Family history-taking practices and genetic confidence in primary and tertiary care providers for childhood cancer survivors', Pediatric Blood and Cancer, vol. 65, http://dx.doi.org/10.1002/pbc.26923

Fardell JE; Patterson P; Wakefield CE; Signorelli C; Cohn R; Anazodo A; Zebrack B; Sansom-Daly U, 2018, 'A Narrative Review of Models of Care for Adolescents and Young Adults with Cancer: Barriers and Recommendations.', Journal of Adolescent and Young Adult Oncology, vol. 7, pp. 148 - 152, http://dx.doi.org/10.1089/jayao.2017.0100

Signorelli C; Wakefield CE; Fardell JE; Thornton-Benko E; Emery J; McLoone JK; Cohn RJ, 2018, 'Recruiting primary care physicians to qualitative research: Experiences and recommendations from a childhood cancer survivorship study', Pediatric Blood and Cancer, vol. 65, http://dx.doi.org/10.1002/pbc.26762

Butow PN; Turner J; Gilchrist J; Sharpe L; Smith AB; Fardell JE; Tesson S; O'Connell R; Girgis A; Gebski VJ; Asher R; Mihalopoulos C; Bell ML; Zola KG; Beith J; Thewes B, 2017, 'Randomized trial of ConquerFear: A novel, theoretically based psychosocial intervention for fear of cancer recurrence', Journal of Clinical Oncology, vol. 35, pp. 4066 - 4077, http://dx.doi.org/10.1200/JCO.2017.73.1257

Sajeev M; Cohen J; Wakefield CE; Fardell JE; Cohn RJ, 2017, 'Decision Aid for Nutrition Support in Pediatric Oncology: A Pilot Study', Journal of Parenteral and Enteral Nutrition, vol. 41, pp. 1336 - 1347, http://dx.doi.org/10.1177/0148607116661840

van Breeschoten J; De Abreu Lourenco R; Signorelli C; Haas M; Cohn RJ; Wakefield CE; Fardell JE, 2017, 'Patterns and drivers of health care use in long-term childhood cancer survivors: A systematic review', Critical Reviews in Oncology/Hematology, vol. 120, pp. 60 - 76, http://dx.doi.org/10.1016/j.critrevonc.2017.10.004

Mizrahi D; Wakefield CE; Fardell JE; Quinn VF; Lim Q; Clifford BK; Simar D; Ness KK; Cohn RJ, 2017, 'Distance-delivered physical activity interventions for childhood cancer survivors: A systematic review and meta-analysis', Critical Reviews in Oncology/Hematology, vol. 118, pp. 27 - 41, http://dx.doi.org/10.1016/j.critrevonc.2017.08.008

Johnston IN; Tan M; Cao J; Matsos A; Forrest DRL; Si E; Fardell JE; Hutchinson MR, 2017, 'Ibudilast reduces oxaliplatin-induced tactile allodynia and cognitive impairments in rats', Behavioural Brain Research, vol. 334, pp. 109 - 118, http://dx.doi.org/10.1016/j.bbr.2017.07.021

Signorelli C; Wakefield CE; McLoone JK; Fardell JE; Lawrence RA; Osborn M; Truscott J; Tapp H; Cohn RJ, 2017, 'Models of childhood cancer survivorship care in Australia and New Zealand: Strengths and challenges', Asia-Pacific Journal of Clinical Oncology, vol. 13, pp. 407 - 415, http://dx.doi.org/10.1111/ajco.12700

Lum A; Donnan B; Wakefield CE; Fardell JE; Marshall GM, 2017, 'Establishing Australian school re-entry service guidelines for children diagnosed with cancer', Journal of Paediatrics and Child Health, vol. 53, pp. 529 - 533, http://dx.doi.org/10.1111/jpc.13563

Lum A; Wakefield CE; Donnan B; Burns MA; Fardell JE; Marshall GM, 2017, 'Understanding the school experiences of children and adolescents with serious chronic illness: a systematic meta-review', Child: Care, Health and Development, vol. 43, pp. 645 - 662, http://dx.doi.org/10.1111/cch.12475

Signorelli C; Wakefield CE; Fardell JE; Wallace WHB; Robertson EG; McLoone JK; Cohn RJ, 2017, 'The impact of long-term follow-up care for childhood cancer survivors: A systematic review', Critical Reviews in Oncology/Hematology, vol. 114, pp. 131 - 138, http://dx.doi.org/10.1016/j.critrevonc.2017.04.007

Fardell JE; Vetsch J; Trahair T; Mateos MK; Grootenhuis MA; Touyz LM; Marshall GM; Wakefield CE, 2017, 'Health-related quality of life of children on treatment for acute lymphoblastic leukemia: A systematic review', Pediatric Blood and Cancer, vol. 64, http://dx.doi.org/10.1002/pbc.26489

Wakefield CE; Fardell JE; Doolan EL; Aaronson NK; Jacobsen PB; Cohn RJ; King M, 2017, 'Participation in psychosocial oncology and quality-of-life research: a systematic review', The Lancet Oncology, vol. 18, pp. e153 - e165, http://dx.doi.org/10.1016/S1470-2045(17)30100-6

Gan LL; Lum A; Wakefield CE; Nandakumar B; Fardell JE, 2017, 'School Experiences of Siblings of Children with Chronic Illness: A Systematic Literature Review', Journal of Pediatric Nursing, vol. 33, pp. 23 - 32, http://dx.doi.org/10.1016/j.pedn.2016.11.007

Vetsch J; Fardell JE; Wakefield CE; Signorelli C; Michel G; McLoone JK; Walwyn T; Tapp H; Truscott J; Cohn RJ, 2017, '“Forewarned and forearmed”: Long-term childhood cancer survivors’ and parents’ information needs and implications for survivorship models of care', Patient Education and Counseling, vol. 100, pp. 355 - 363, http://dx.doi.org/10.1016/j.pec.2016.09.013

Fardell JE; Wakefield CE; Signorelli C; Hill R; Skeen J; Maguire AM; McLoone JK; Cohn RJ; Alvaro F; Corbett R; Downie P; Egan K; Ellis S; Foreman T; Gabriel M; Girgis A; Graham K; Johnston K; Jones J; Lockwood L; McCarthy M; Molloy S; Osborn M; Tapp H; Till T; Truscott J; Turpin K; Walwyn T; Yallop K, 2017, 'Transition of childhood cancer survivors to adult care: The survivor perspective', Pediatric Blood and Cancer, vol. 64, http://dx.doi.org/10.1002/pbc.26354

Wakefield CE; Fardell JE; Doolan EL; Drew D; De Abreu Lourenco R; Young AL; Cohn RJ, 2017, 'Grandparents of children with cancer: Quality of life, medication and hospitalizations', Pediatric Blood and Cancer, vol. 64, pp. 163 - 171, http://dx.doi.org/10.1002/pbc.26153

Wakefield C; Lin S; Drew D; McLoone J; Doolan E; Young A; Fardell J; Cohn R, 2016, 'Development and Evaluation of an Information Booklet for Grandparents of Children With Cancer', Journal of Pediatric Oncology Nursing, vol. 33, pp. 361 - 369, http://dx.doi.org/10.1177/1043454215602689

Georgiou G; Wakefield CE; McGill BC; Fardell JE; Signorelli C; Hanlon L; Tucker K; Patenaude AF; Cohn RJ, 2016, 'Genetic testing for the risk of developing late effects among survivors of childhood cancer: Consumer understanding, acceptance, and willingness to pay', Cancer, vol. 122, pp. 2876 - 2885, http://dx.doi.org/10.1002/cncr.30119

Russo S; Fardell JE; Signorelli C; Wakefield CE; Mcloone JK; Cohn RJ, 2016, 'Sleep Disturbances in Childhood Cancer Survivors', Pediatric Blood and Cancer, vol. 63, pp. 759 - 760, http://dx.doi.org/10.1002/pbc.25858

Fardell JE; Thewes B; Turner J; Gilchrist J; Sharpe L; Smith AB; Girgis A; Butow P, 2016, 'Fear of cancer recurrence: a theoretical review and novel cognitive processing formulation', Journal of Cancer Survivorship, vol. 10, pp. 663 - 673, http://dx.doi.org/10.1007/s11764-015-0512-5


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