By Dr Joanna Elizabeth Fardell

Book Chapters

Smith AB; Fardell JE; Butow PN, 2021, 'Fear of Cancer Recurrence', in Butow PN; Lam WWT (ed.), Psycho-Oncology, Oxford University Press, pp. 755 - 759, http://dx.doi.org/10.1093/med/9780190097653.003.0094

Signorelli C; Fardell J; Wakefield C; Cohn R, 2016, 'The Cost of Cure: Chronic Conditions in Survivors of Child, Adolescent, and Young Adult Cancers', in Koczwara B (ed.), Cancer and Chronic Conditions Addressing the Problem of Multimorbidity in Cancer Patients and Survivors, Springer, Singapore, pp. 371 - 420, http://dx.doi.org/10.1007/978-981-10-1844-2_13

Butow PN; Fardell JE; Smith AB, 2015, 'Fear of Cancer Recurrence', in Psycho-Oncology, Oxford University Press, pp. 625 - 629, http://dx.doi.org/10.1093/med/9780199363315.003.0084

Journal articles

Smith A; Bamgboje‐Ayodele A; Jegathees S; Butow P; Klein B; Salter M; Turner J; Fardell J; Thewes B; Sharpe L; Beatty L; Pearce A; Beith J; Costa D; Rincones O; Wu VS; Garden FL; Kiely BE; Lim K; Morstyn L; Hanley B; Hodgkin R; Beattie A; Girgis A, 2024, 'Feasibility and preliminary efficacy of iConquerFear: a self-guided digital intervention for fear of cancer recurrence', Journal of Cancer Survivorship, 18, pp. 425 - 438, http://dx.doi.org/10.1007/s11764-022-01233-9

Schilstra CE; Ellis SJ; Cohen J; Gall A; Diaz A; Clarke K; Dumlao G; Chard J; Cumming TM; Davis E; Dhillon H; Burns MA; Docking K; Koh E-S; O'Reilly J; Sansom-Daly UM; Shaw J; Speers N; Taylor N; Warne A; Fardell JE, 2024, 'Exploring Web-Based Information and Resources That Support Adolescents and Young Adults With Cancer to Resume Study and Work: Environmental Scan Study.', JMIR Cancer, 10, pp. e47944, http://dx.doi.org/10.2196/47944

Schilstra CE; Sansom-Daly UM; Ellis SJ; Trahair TN; Anazodo AC; Amiruddin A; Lindsay T; Maguire F; Wakefield CE; Lah S; Bland E; Lenthen K; Rifkin A; Awan A; Kittos T; Hanbury N; Tsalidis S; Patterson P; McDonald F; Fardell JE, 2024, 'Guidelines for Caring for the Social Well-Being of Adolescents and Young Adults with Cancer in Australia', Journal of Adolescent and Young Adult Oncology, 13, pp. 8 - 29, http://dx.doi.org/10.1089/jayao.2023.0027

Schilstra CE; Sansom-Daly UM; Ellis SJ; Anazodo AC; Trahair TN; Lindsay T; Amiruddin A; O'Dwyer C; Maguire F; Nevin S; Battisti R; Fardell JE, 2024, 'Social Anxiety Symptoms in Adolescents and Young Adults Recently Diagnosed with Cancer', Journal of Adolescent and Young Adult Oncology, http://dx.doi.org/10.1089/jayao.2023.0186

Fardell JE; Schilstra C; Hikila J; Collins D; Kelada L; Lah S; Cohn RJ; Wakefield CE; Ellis S, 2024, 'Survivors of child and adolescent cancer experiences of bullying at school or work: self-report and parent proxy report', Journal of Psychosocial Oncology Research and Practice, 6, http://dx.doi.org/10.1097/or9.0000000000000130

Hill RE; Mercieca-Bebber R; Fardell JE; Wakefield CE; Signorelli C; Webber K; Cohn RJ, 2023, 'Relationship between survivorship care plans and unmet information needs, quality of life, satisfaction with care, and propensity to engage with, and attend, follow-up care', Cancer, 129, pp. 3820 - 3832, http://dx.doi.org/10.1002/cncr.34984

Fardell JE; Tan SY; Kerin-Ayres K; Dhillon HM; Vardy JL, 2023, 'Symptom Clusters in Survivorship and Their Impact on Ability to Work among Cancer Survivors', Cancers, 15, http://dx.doi.org/10.3390/cancers15215119

Fardell JE; Hu N; Wakefield CE; Marshall G; Bell J; Lingam R; Nassar N, 2023, 'Impact of Hospitalizations due to Chronic Health Conditions on Early Child Development', Journal of Pediatric Psychology, 48, pp. 799 - 811, http://dx.doi.org/10.1093/jpepsy/jsad025

Fardell JE; Irwin CM; Vardy JL; Bell ML, 2023, 'Anxiety, depression, and concentration in cancer survivors: National Health and Nutrition Examination Survey results', Supportive Care in Cancer, 31, http://dx.doi.org/10.1007/s00520-023-07710-w

Signorelli C; Wakefield CE; McLoone JK; Johnston KA; Mertens AC; Osborn M; Cohn RJ; Alvaro F; Cohn R; Corbett R; Downie P; Egan K; Ellis S; Emery J; Fardell J; Foreman T; Gabriel M; Girgis A; Graham K; Johnston K; Jones J; Lockwood L; Maguire A; McCarthy M; Mechinaud F; Molloy S; Moore L; Signorelli C; Skeen J; Tapp H; Till T; Truscott J; Turpin K; Wakefield C; Williamson J; Walwyn T; Yallop K, 2023, 'Childhood Cancer Survivors' Reported Late Effects, Motivations for Seeking Survivorship Care, and Patterns of Attendance', Oncologist, 28, pp. E276 - E286, http://dx.doi.org/10.1093/oncolo/oyad004

Fardell JE; Walker A; Chan RJ; Vardy JL, 2023, 'receiving endocrine therapy: what are the impacts?', JNCI Cancer Spectrum, 7, http://dx.doi.org/10.1093/jncics/pkad026

Tan J; McLoone JK; Wakefield CE; Nassar N; Cohn RJ; Signorelli C; Alvaro F; Cohn R; Corbett R; Downie P; Egan K; Ellis S; Emery J; Fardell J; Foreman T; Gabriel M; Girgis A; Graham K; Johnston K; Jones J; Lockwood L; Maguire A; McCarthy M; McLoone J; Mechinaud F; Molloy S; Moore L; Osborn M; Signorelli C; Skeen J; Tapp H; Till T; Truscott J; Turpin K; Wakefield C; Williamson J; Walwyn T; Yallop K, 2023, 'Neuroblastoma survivors' self-reported late effects, quality of life, health-care use, and risk perceptions', Palliative and Supportive Care, http://dx.doi.org/10.1017/S1478951523000615

Schilstra CE; McCleary K; Fardell JE; Donoghoe MW; McCormack E; Kotecha RS; Lourenco RDA; Ramachandran S; Cockcroft R; Conyers R; Cross S; Dalla-Pozza L; Downie P; Revesz T; Osborn M; Alvaro F; Wakefield CE; Marshall GM; Mateos MK; Trahair TN, 2022, 'Prospective longitudinal evaluation of treatment-related toxicity and health-related quality of life during the first year of treatment for pediatric acute lymphoblastic leukemia', BMC Cancer, 22, pp. 985, http://dx.doi.org/10.1186/s12885-022-10072-x

Ha L; Wakefield CE; Fardell J; Cohn RJ; Simar D; Signorelli C; Mizrahi D, 2022, 'Parent perceptions of their child’s and their own physical activity after treatment for childhood cancer', Supportive Care in Cancer, 30, pp. 8947 - 8957, http://dx.doi.org/10.1007/s00520-022-07288-9

Hetherington K; Wakefield CE; Kunalan KPK; Donoghoe MW; McGill BC; Fardell JE; Daly R; Deyell RJ; Ziegler DS, 2022, 'Quality of Life (QoL) of Children and Adolescents Participating in a Precision Medicine Trial for High-Risk Childhood Cancer', Cancers, 14, http://dx.doi.org/10.3390/cancers14215310

Fardell JE; Bray V; Bell ML; Rabe B; Dhillon H; Vardy JL, 2022, 'Screening for cognitive symptoms among cancer patients during chemotherapy: Sensitivity and specificity of a single item self-report cognitive change score', Psycho-Oncology, 31, pp. 1294 - 1301, http://dx.doi.org/10.1002/pon.5928

Schilstra CE; Sansom-Daly UM; Schaffer M; Fardell JE; Anazodo AC; McCowage G; Fletcher JI; Marshall GM; Buchhorn-White J; Evtushenko M; Trahair TN; Ellis SJ, 2022, '"we Have All This Knowledge to Give, so Use Us as a Resource": Partnering with Adolescent and Young Adult Cancer Survivors to Determine Consumer-Led Research Priorities', Journal of Adolescent and Young Adult Oncology, 11, pp. 211 - 222, http://dx.doi.org/10.1089/jayao.2021.0052

Schilstra CE; Fardell JE; Ellis SJ; Jones KM; Anazodo AC; Trahair TN; Lah S; Cohn RJ; Wakefield CE; Sansom-Daly UM, 2022, 'Social Anxiety Symptoms in Survivors of Childhood and Adolescent Cancer', Journal of Adolescent and Young Adult Oncology, 11, pp. 129 - 137, http://dx.doi.org/10.1089/jayao.2021.0050

Hu N; Fardell J; Wakefield CE; Marshall GM; Bell JC; Nassar N; Lingam R, 2022, 'School academic performance of children hospitalised with a chronic condition', Archives of Disease in Childhood, 107, pp. 289 - 296, http://dx.doi.org/10.1136/archdischild-2020-321285

Alchin JE; Signorelli C; McLoone JK; Wakefield CE; Fardell JE; Johnston K; Cohn RJ, 2022, 'Childhood Cancer Survivors’ Adherence to Healthcare Recommendations Made Through a Distance-Delivered Survivorship Program', Journal of Multidisciplinary Healthcare, 15, pp. 1719 - 1734, http://dx.doi.org/10.2147/JMDH.S363653

Vardy JL; Fardell J, 2022, 'Understanding Longitudinal Changes in Cognitive Function in Lymphoma Patients: Where to Next?', Journal of the National Cancer Institute, 114, pp. 3 - 4, http://dx.doi.org/10.1093/jnci/djab134

Fardell JE; Wakefield CE; De Abreu Lourenco R; Signorelli C; McCarthy M; McLoone J; Osborn M; Gabriel M; Anazodo A; Alvaro F; Lockwood L; Walwyn T; Skeen J; Tillemans R; Cohn RJ; Corbett R; Downie P; Egan K; Ellis S; Emery J; Foreman T; Girgis A; Graham K; Johnston K; Jones J; Maguire A; Mechinaud F; Molloy S; Moore L; Tapp H; Till T; Truscott J; Turpin K; Williamson J; Yallop K, 2021, 'Long-term health-related quality of life in young childhood cancer survivors and their parents', Pediatric Blood and Cancer, 68, pp. e29398, http://dx.doi.org/10.1002/pbc.29398

Bamgboje-Ayodele A; Smith AB; Short CE; Fardell JE; Shaw J; Beatty L; Higgins K; Tutelman PR; Chambers CT; Girgis A, 2021, 'Barriers and facilitators to the availability of efficacious self-directed digital health tools for adults living with cancer and their caregivers: A systematic literature review and author survey study', Patient Education and Counseling, 104, pp. 2480 - 2489, http://dx.doi.org/10.1016/j.pec.2021.03.012

Burns MA; Fardell JE; Wakefield CE; Cohn RJ; Marshall GM; Lum A; Ellis SJ; Donnan B; Walwyn T; Carter A; Barton B; Lah S, 2021, 'School and educational support programmes for paediatric oncology patients and survivors: A systematic review of evidence and recommendations for future research and practice', Psycho-Oncology, 30, pp. 431 - 443, http://dx.doi.org/10.1002/pon.5606

Signorelli C; Wakefield CE; McLoone JK; Mateos MK; Aaronson NK; Lavoipierre A; Cohn RJ; Alvaro F; Corbett R; Downie P; Egan K; Ellis S; Emery J; Fardell J; Foreman T; Gabriel M; Girgis A; Graham K; Johnston K; Jones J; Lockwood L; Maguire A; McCarthy M; Mechinaud F; Molloy S; Moore L; Osborn M; Signorelli C; Skeen J; Tapp H; Till T; Truscott J; Turpin K; Walwyn T; Williamson J; Yallop K, 2021, 'A cost-effective approach to increasing participation in patient-reported outcomes research in cancer: A randomized trial of video invitations', International Journal of Cancer, 148, pp. 971 - 980, http://dx.doi.org/10.1002/ijc.33244

Schilstra CE; Fardell JE; Burns MA; Ellis SJ; Anazodo AC; Trahair TN; Sansom-Daly UM, 2021, 'Determinants of social functioning among adolescents and young adults with cancer: A systematic review', Psycho-Oncology, 30, pp. 1626 - 1642, http://dx.doi.org/10.1002/pon.5740

Donovan LA; Wakefield CE; Russell V; Fardell J; Mallitt KA; Hetherington K; Cohn R, 2021, 'Variables associated with grief and personal growth following the death of a child from cancer: A mixed method analysis', Death Studies, 45, pp. 702 - 713, http://dx.doi.org/10.1080/07481187.2019.1682087

Bell J; Lingam R; Wakefield CE; Fardell JE; Zeltzer J; Hu N; Woolfenden S; Callander E; Marshall GM; Nassar N, 2020, 'Prevalence, hospital admissions and costs of child chronic conditions: A population-based study', Journal of Paediatrics and Child Health, 56, pp. 1365 - 1370, http://dx.doi.org/10.1111/jpc.14932

Robertson EG; Cohen J; Signorelli C; Grant DM; Fardell JE; Wakefield CE, 2020, 'What instruments should we use to assess paediatric decision-making interventions? A narrative review', Journal of Child Health Care, 24, pp. 458 - 472, http://dx.doi.org/10.1177/1367493519869717

Signorelli C; Wakefield CE; Johnston KA; Fardell JE; McLoone JK; Brierley MEE; Schaffer M; Thornton-Benko E; Girgis A; Hamish Wallace W; Cohn RJ, 2020, 'Re-engage: A novel nurse-led program for survivors of childhood cancer who are disengaged from cancer-related care', JNCCN Journal of the National Comprehensive Cancer Network, 18, pp. 1067 - 1074, http://dx.doi.org/10.6004/jnccn.2020.7552

Mizrahi D; Fardell JE; Cohn RJ; Partin RE; Howell CR; Hudson MM; Robison LL; Ness KK; McBride J; Field P; Wakefield CE; Simar D, 2020, 'The 6-minute walk test is a good predictor of cardiorespiratory fitness in childhood cancer survivors when access to comprehensive testing is limited', International Journal of Cancer, 147, pp. 847 - 855, http://dx.doi.org/10.1002/ijc.32819

Mizrahi D; Wakefield CE; Simar D; Ha L; McBride J; Field P; Cohn RJ; Fardell JE, 2020, 'Barriers and enablers to physical activity and aerobic fitness deficits among childhood cancer survivors', Pediatric Blood and Cancer, 67, pp. e28339, http://dx.doi.org/10.1002/pbc.28339

Raharjo CV; Hetherington K; Donovan L; Fardell JE; Russell V; Cohn RJ; Morgan NL; Siddiqui J; Wakefield CE, 2020, 'An Evaluation of By My Side: Peer Support in Written Form is Acceptable and Useful for Parents Bereaved by Childhood Cancer', Journal of Pain and Symptom Management, 59, pp. 1278 - 1286, http://dx.doi.org/10.1016/j.jpainsymman.2020.01.013

Sansom-Daly UM; Wakefield CE; Patterson P; Cohn RJ; Rosenberg AR; Wiener L; Fardell JE, 2020, 'End-of-Life Communication Needs for Adolescents and Young Adults with Cancer: Recommendations for Research and Practice', Journal of Adolescent and Young Adult Oncology, 9, pp. 157 - 165, http://dx.doi.org/10.1089/jayao.2019.0084

Russo S; Wakefield CE; Fardell JE; Cohn RJ, 2020, 'Summer sun-exposure in Australian childhood cancer survivors and community reference groups', Seminars in Oncology, 47, pp. 48 - 55, http://dx.doi.org/10.1053/j.seminoncol.2020.02.004

Hill RE; Wakefield CE; Cohn RJ; Fardell JE; Brierley MEE; Kothe E; Jacobsen PB; Hetherington K; Mercieca-Bebber R, 2020, 'Survivorship Care Plans in Cancer: A Meta-Analysis and Systematic Review of Care Plan Outcomes', Oncologist, 25, pp. e351 - e372, http://dx.doi.org/10.1634/theoncologist.2019-0184

Smith A; Bamgboje-Ayodele A; Butow P; Klein B; Turner J; Sharpe L; Fardell J; Beatty L; Pearce A; Thewes B; Beith J; Girgis A, 2020, 'Development and usability evaluation of an online self-management intervention for fear of cancer recurrence (iConquerFear)', Psycho-Oncology, 29, pp. 98 - 106, http://dx.doi.org/10.1002/pon.5218

Vetsch J; Wakefield CE; Tucker KM; McCarthy M; Signorelli C; Walwyn T; Alvaro F; Cohn RJ, 2020, 'Genetics-related service and information needs of childhood cancer survivors and parents: a mixed-methods study', European Journal of Human Genetics, 28, pp. 6 - 16, http://dx.doi.org/10.1038/s41431-019-0481-7

Hill RE; Wakefield CE; Cohn RJ; Fardell JE; Brierley M-EE; Kothe E; Jacobsen PB; Hetherington K; Mercieca-Bebber R, 2020, 'Survivorship Care Plans in Cancer: A Meta-Analysis and Systematic Review of Care Plan Outcomes.', Oncologist, 25, pp. e351 - e372, http://dx.doi.org/10.1634/theoncologist.2019-0184

Kelada L; Wakefield CE; Heathcote LC; Jaaniste T; Signorelli C; Fardell JE; Donoghoe M; McCarthy MC; Gabriel M; Cohn RJ, 2019, 'Perceived cancer-related pain and fatigue, information needs, and fear of cancer recurrence among adult survivors of childhood cancer', Patient Education and Counseling, 102, pp. 2270 - 2278, http://dx.doi.org/10.1016/j.pec.2019.06.022

Signorelli C; Wakefield C; McLoone JK; Fardell J; Jones JM; Turpin KH; Emery J; Michel G; Downie P; Skeen JE; Cohn R, 2019, 'Childhood cancer survivorship: barriers and preferences', BMJ Supportive and Palliative Care, 12, pp. E687 - E695, http://dx.doi.org/10.1136/bmjspcare-2019-002001

Robertson EG; Wakefield CE; Shaw J; Darlington AS; McGill BC; Cohn RJ; Fardell JE, 2019, 'Decision-making in childhood cancer: parents’ and adolescents’ views and perceptions', Supportive Care in Cancer, 27, pp. 4331 - 4340, http://dx.doi.org/10.1007/s00520-019-04728-x

Lum A; Wakefield CE; Donnan B; Burns MA; Fardell JE; Jaffe A; Kasparian NA; Kennedy SE; Leach ST; Lemberg DA; Marshall GM, 2019, 'Facilitating engagement with school in students with chronic illness through positive education: A mixed-methods comparison study', School Psychology, 34, pp. 677 - 686, http://dx.doi.org/10.1037/spq0000315

Lum A; Wakefield CE; Donnan B; Burns MA; Fardell JE; Jaffe A; Kasparian NA; Kennedy SE; Leach ST; Lemberg DA; Marshall GM, 2019, 'School students with chronic illness have unmet academic, social, and emotional school needs', School Psychology, 34, pp. 627 - 636, http://dx.doi.org/10.1037/spq0000311

Sharpe L; Turner J; Fardell JE; Thewes B; Smith AB; Gilchrist J; Beith J; Girgis A; Tesson S; Day S; Grunewald K; Butow P; Bell M; Beatty L; Bennett B; Brebach R; Brock C; Butler S; Byrne D; Diggens J; Fairclough A; Faulkner T; Ftanou M; Grier M; Hill G; Jones T; Kirsten L; McConaghey S; McKinnon S; Mihalopoulos C; Mireskandari S; Musiello T; Penhale J; Pollard A; Rangganadhan A; Scealy M; Scott M; Shih S; Teoh M; Tiller K; Watt P, 2019, 'Psychological intervention (ConquerFear) for treating fear of cancer recurrence: mediators and moderators of treatment efficacy', Journal of Cancer Survivorship, 13, pp. 695 - 702, http://dx.doi.org/10.1007/s11764-019-00788-4

Gabriel MG; Wakefield CE; Vetsch J; Karpelowsky JS; Darlington ASE; Cohn RJ; Signorelli C; Alvaro F; Corbett R; Downie P; Egan K; Ellis S; Emery J; Fardell J; Foreman T; Gabriel M; Girgis A; Graham K; Johnston K; Jones J; Lockwood L; Maguire A; McCarthy M; McLoone J; Mechinaud F; Molloy S; Moore L; Osborn M; Skeen J; Tapp H; Till T; Truscott J; Turpin K; Williamson J; Walwyn T; Yallop K, 2019, 'Paediatric surgery for childhood cancer: Lasting experiences and needs of children and parents', European Journal of Cancer Care, 28, pp. e13116, http://dx.doi.org/10.1111/ecc.13116

Robertson EG; Wakefield CE; Cohn RJ; Battisti RA; Donoghoe MW; Ziegler DS; Fardell JE; Mitchell R; O'Brien TA, 2019, 'Piloting a parent and patient decision aid to support clinical trial decision making in childhood cancer', Psycho-Oncology, 28, pp. 1520 - 1529, http://dx.doi.org/10.1002/pon.5109

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