By Dr Joanna Elizabeth Fardell

Journal articles

Smith A; Bamgboje‐Ayodele A; Jegathees S; Butow P; Klein B; Salter M; Turner J; Fardell J; Thewes B; Sharpe L; Beatty L; Pearce A; Beith J; Costa D; Rincones O; Wu VS; Garden FL; Kiely BE; Lim K; Morstyn L; Hanley B; Hodgkin R; Beattie A; Girgis A, 2024, 'Feasibility and preliminary efficacy of iConquerFear: a self-guided digital intervention for fear of cancer recurrence', Journal of Cancer Survivorship, 18, pp. 425 - 438, http://dx.doi.org/10.1007/s11764-022-01233-9

Schilstra CE; Ellis SJ; Cohen J; Gall A; Diaz A; Clarke K; Dumlao G; Chard J; Cumming TM; Davis E; Dhillon H; Burns MA; Docking K; Koh E-S; O'Reilly J; Sansom-Daly UM; Shaw J; Speers N; Taylor N; Warne A; Fardell JE, 2024, 'Exploring Web-Based Information and Resources That Support Adolescents and Young Adults With Cancer to Resume Study and Work: Environmental Scan Study.', JMIR Cancer, 10, pp. e47944, http://dx.doi.org/10.2196/47944

Schilstra CE; Sansom-Daly UM; Ellis SJ; Trahair TN; Anazodo AC; Amiruddin A; Lindsay T; Maguire F; Wakefield CE; Lah S; Bland E; Lenthen K; Rifkin A; Awan A; Kittos T; Hanbury N; Tsalidis S; Patterson P; McDonald F; Fardell JE, 2024, 'Guidelines for Caring for the Social Well-Being of Adolescents and Young Adults with Cancer in Australia', Journal of Adolescent and Young Adult Oncology, 13, pp. 8 - 29, http://dx.doi.org/10.1089/jayao.2023.0027

Schilstra CE; Sansom-Daly UM; Ellis SJ; Anazodo AC; Trahair TN; Lindsay T; Amiruddin A; O'Dwyer C; Maguire F; Nevin S; Battisti R; Fardell JE, 2024, 'Social Anxiety Symptoms in Adolescents and Young Adults Recently Diagnosed with Cancer', Journal of Adolescent and Young Adult Oncology, http://dx.doi.org/10.1089/jayao.2023.0186

Fardell JE; Schilstra C; Hikila J; Collins D; Kelada L; Lah S; Cohn RJ; Wakefield CE; Ellis S, 2024, 'Survivors of child and adolescent cancer experiences of bullying at school or work: self-report and parent proxy report', Journal of Psychosocial Oncology Research and Practice, 6, http://dx.doi.org/10.1097/or9.0000000000000130

Hill RE; Mercieca-Bebber R; Fardell JE; Wakefield CE; Signorelli C; Webber K; Cohn RJ, 2023, 'Relationship between survivorship care plans and unmet information needs, quality of life, satisfaction with care, and propensity to engage with, and attend, follow-up care', Cancer, 129, pp. 3820 - 3832, http://dx.doi.org/10.1002/cncr.34984

Fardell JE; Tan SY; Kerin-Ayres K; Dhillon HM; Vardy JL, 2023, 'Symptom Clusters in Survivorship and Their Impact on Ability to Work among Cancer Survivors', Cancers, 15, http://dx.doi.org/10.3390/cancers15215119

Fardell JE; Hu N; Wakefield CE; Marshall G; Bell J; Lingam R; Nassar N, 2023, 'Impact of Hospitalizations due to Chronic Health Conditions on Early Child Development', Journal of Pediatric Psychology, 48, pp. 799 - 811, http://dx.doi.org/10.1093/jpepsy/jsad025

Fardell JE; Irwin CM; Vardy JL; Bell ML, 2023, 'Anxiety, depression, and concentration in cancer survivors: National Health and Nutrition Examination Survey results', Supportive Care in Cancer, 31, http://dx.doi.org/10.1007/s00520-023-07710-w

Signorelli C; Wakefield CE; McLoone JK; Johnston KA; Mertens AC; Osborn M; Cohn RJ; Alvaro F; Cohn R; Corbett R; Downie P; Egan K; Ellis S; Emery J; Fardell J; Foreman T; Gabriel M; Girgis A; Graham K; Johnston K; Jones J; Lockwood L; Maguire A; McCarthy M; Mechinaud F; Molloy S; Moore L; Signorelli C; Skeen J; Tapp H; Till T; Truscott J; Turpin K; Wakefield C; Williamson J; Walwyn T; Yallop K, 2023, 'Childhood Cancer Survivors' Reported Late Effects, Motivations for Seeking Survivorship Care, and Patterns of Attendance', Oncologist, 28, pp. E276 - E286, http://dx.doi.org/10.1093/oncolo/oyad004

Fardell JE; Walker A; Chan RJ; Vardy JL, 2023, 'receiving endocrine therapy: what are the impacts?', JNCI Cancer Spectrum, 7, http://dx.doi.org/10.1093/jncics/pkad026

Tan J; McLoone JK; Wakefield CE; Nassar N; Cohn RJ; Signorelli C; Alvaro F; Cohn R; Corbett R; Downie P; Egan K; Ellis S; Emery J; Fardell J; Foreman T; Gabriel M; Girgis A; Graham K; Johnston K; Jones J; Lockwood L; Maguire A; McCarthy M; McLoone J; Mechinaud F; Molloy S; Moore L; Osborn M; Signorelli C; Skeen J; Tapp H; Till T; Truscott J; Turpin K; Wakefield C; Williamson J; Walwyn T; Yallop K, 2023, 'Neuroblastoma survivors' self-reported late effects, quality of life, health-care use, and risk perceptions', Palliative and Supportive Care, http://dx.doi.org/10.1017/S1478951523000615

Schilstra CE; McCleary K; Fardell JE; Donoghoe MW; McCormack E; Kotecha RS; Lourenco RDA; Ramachandran S; Cockcroft R; Conyers R; Cross S; Dalla-Pozza L; Downie P; Revesz T; Osborn M; Alvaro F; Wakefield CE; Marshall GM; Mateos MK; Trahair TN, 2022, 'Prospective longitudinal evaluation of treatment-related toxicity and health-related quality of life during the first year of treatment for pediatric acute lymphoblastic leukemia', BMC Cancer, 22, pp. 985, http://dx.doi.org/10.1186/s12885-022-10072-x

Ha L; Wakefield CE; Fardell J; Cohn RJ; Simar D; Signorelli C; Mizrahi D, 2022, 'Parent perceptions of their child’s and their own physical activity after treatment for childhood cancer', Supportive Care in Cancer, 30, pp. 8947 - 8957, http://dx.doi.org/10.1007/s00520-022-07288-9

Hetherington K; Wakefield CE; Kunalan KPK; Donoghoe MW; McGill BC; Fardell JE; Daly R; Deyell RJ; Ziegler DS, 2022, 'Quality of Life (QoL) of Children and Adolescents Participating in a Precision Medicine Trial for High-Risk Childhood Cancer', Cancers, 14, http://dx.doi.org/10.3390/cancers14215310

Fardell JE; Bray V; Bell ML; Rabe B; Dhillon H; Vardy JL, 2022, 'Screening for cognitive symptoms among cancer patients during chemotherapy: Sensitivity and specificity of a single item self-report cognitive change score', Psycho-Oncology, 31, pp. 1294 - 1301, http://dx.doi.org/10.1002/pon.5928

Schilstra CE; Sansom-Daly UM; Schaffer M; Fardell JE; Anazodo AC; McCowage G; Fletcher JI; Marshall GM; Buchhorn-White J; Evtushenko M; Trahair TN; Ellis SJ, 2022, '"we Have All This Knowledge to Give, so Use Us as a Resource": Partnering with Adolescent and Young Adult Cancer Survivors to Determine Consumer-Led Research Priorities', Journal of Adolescent and Young Adult Oncology, 11, pp. 211 - 222, http://dx.doi.org/10.1089/jayao.2021.0052

Schilstra CE; Fardell JE; Ellis SJ; Jones KM; Anazodo AC; Trahair TN; Lah S; Cohn RJ; Wakefield CE; Sansom-Daly UM, 2022, 'Social Anxiety Symptoms in Survivors of Childhood and Adolescent Cancer', Journal of Adolescent and Young Adult Oncology, 11, pp. 129 - 137, http://dx.doi.org/10.1089/jayao.2021.0050

Hu N; Fardell J; Wakefield CE; Marshall GM; Bell JC; Nassar N; Lingam R, 2022, 'School academic performance of children hospitalised with a chronic condition', Archives of Disease in Childhood, 107, pp. 289 - 296, http://dx.doi.org/10.1136/archdischild-2020-321285

Alchin JE; Signorelli C; McLoone JK; Wakefield CE; Fardell JE; Johnston K; Cohn RJ, 2022, 'Childhood Cancer Survivors’ Adherence to Healthcare Recommendations Made Through a Distance-Delivered Survivorship Program', Journal of Multidisciplinary Healthcare, 15, pp. 1719 - 1734, http://dx.doi.org/10.2147/JMDH.S363653

Vardy JL; Fardell J, 2022, 'Understanding Longitudinal Changes in Cognitive Function in Lymphoma Patients: Where to Next?', Journal of the National Cancer Institute, 114, pp. 3 - 4, http://dx.doi.org/10.1093/jnci/djab134

Fardell JE; Wakefield CE; De Abreu Lourenco R; Signorelli C; McCarthy M; McLoone J; Osborn M; Gabriel M; Anazodo A; Alvaro F; Lockwood L; Walwyn T; Skeen J; Tillemans R; Cohn RJ; Corbett R; Downie P; Egan K; Ellis S; Emery J; Foreman T; Girgis A; Graham K; Johnston K; Jones J; Maguire A; Mechinaud F; Molloy S; Moore L; Tapp H; Till T; Truscott J; Turpin K; Williamson J; Yallop K, 2021, 'Long-term health-related quality of life in young childhood cancer survivors and their parents', Pediatric Blood and Cancer, 68, pp. e29398, http://dx.doi.org/10.1002/pbc.29398

Bamgboje-Ayodele A; Smith AB; Short CE; Fardell JE; Shaw J; Beatty L; Higgins K; Tutelman PR; Chambers CT; Girgis A, 2021, 'Barriers and facilitators to the availability of efficacious self-directed digital health tools for adults living with cancer and their caregivers: A systematic literature review and author survey study', Patient Education and Counseling, 104, pp. 2480 - 2489, http://dx.doi.org/10.1016/j.pec.2021.03.012

Burns MA; Fardell JE; Wakefield CE; Cohn RJ; Marshall GM; Lum A; Ellis SJ; Donnan B; Walwyn T; Carter A; Barton B; Lah S, 2021, 'School and educational support programmes for paediatric oncology patients and survivors: A systematic review of evidence and recommendations for future research and practice', Psycho-Oncology, 30, pp. 431 - 443, http://dx.doi.org/10.1002/pon.5606

Signorelli C; Wakefield CE; McLoone JK; Mateos MK; Aaronson NK; Lavoipierre A; Cohn RJ; Alvaro F; Corbett R; Downie P; Egan K; Ellis S; Emery J; Fardell J; Foreman T; Gabriel M; Girgis A; Graham K; Johnston K; Jones J; Lockwood L; Maguire A; McCarthy M; Mechinaud F; Molloy S; Moore L; Osborn M; Signorelli C; Skeen J; Tapp H; Till T; Truscott J; Turpin K; Walwyn T; Williamson J; Yallop K, 2021, 'A cost-effective approach to increasing participation in patient-reported outcomes research in cancer: A randomized trial of video invitations', International Journal of Cancer, 148, pp. 971 - 980, http://dx.doi.org/10.1002/ijc.33244

Schilstra CE; Fardell JE; Burns MA; Ellis SJ; Anazodo AC; Trahair TN; Sansom-Daly UM, 2021, 'Determinants of social functioning among adolescents and young adults with cancer: A systematic review', Psycho-Oncology, 30, pp. 1626 - 1642, http://dx.doi.org/10.1002/pon.5740

Donovan LA; Wakefield CE; Russell V; Fardell J; Mallitt KA; Hetherington K; Cohn R, 2021, 'Variables associated with grief and personal growth following the death of a child from cancer: A mixed method analysis', Death Studies, 45, pp. 702 - 713, http://dx.doi.org/10.1080/07481187.2019.1682087

Bell J; Lingam R; Wakefield CE; Fardell JE; Zeltzer J; Hu N; Woolfenden S; Callander E; Marshall GM; Nassar N, 2020, 'Prevalence, hospital admissions and costs of child chronic conditions: A population-based study', Journal of Paediatrics and Child Health, 56, pp. 1365 - 1370, http://dx.doi.org/10.1111/jpc.14932

Robertson EG; Cohen J; Signorelli C; Grant DM; Fardell JE; Wakefield CE, 2020, 'What instruments should we use to assess paediatric decision-making interventions? A narrative review', Journal of Child Health Care, 24, pp. 458 - 472, http://dx.doi.org/10.1177/1367493519869717

Signorelli C; Wakefield CE; Johnston KA; Fardell JE; McLoone JK; Brierley MEE; Schaffer M; Thornton-Benko E; Girgis A; Hamish Wallace W; Cohn RJ, 2020, 'Re-engage: A novel nurse-led program for survivors of childhood cancer who are disengaged from cancer-related care', JNCCN Journal of the National Comprehensive Cancer Network, 18, pp. 1067 - 1074, http://dx.doi.org/10.6004/jnccn.2020.7552

Mizrahi D; Fardell JE; Cohn RJ; Partin RE; Howell CR; Hudson MM; Robison LL; Ness KK; McBride J; Field P; Wakefield CE; Simar D, 2020, 'The 6-minute walk test is a good predictor of cardiorespiratory fitness in childhood cancer survivors when access to comprehensive testing is limited', International Journal of Cancer, 147, pp. 847 - 855, http://dx.doi.org/10.1002/ijc.32819

Mizrahi D; Wakefield CE; Simar D; Ha L; McBride J; Field P; Cohn RJ; Fardell JE, 2020, 'Barriers and enablers to physical activity and aerobic fitness deficits among childhood cancer survivors', Pediatric Blood and Cancer, 67, pp. e28339, http://dx.doi.org/10.1002/pbc.28339

Raharjo CV; Hetherington K; Donovan L; Fardell JE; Russell V; Cohn RJ; Morgan NL; Siddiqui J; Wakefield CE, 2020, 'An Evaluation of By My Side: Peer Support in Written Form is Acceptable and Useful for Parents Bereaved by Childhood Cancer', Journal of Pain and Symptom Management, 59, pp. 1278 - 1286, http://dx.doi.org/10.1016/j.jpainsymman.2020.01.013

Sansom-Daly UM; Wakefield CE; Patterson P; Cohn RJ; Rosenberg AR; Wiener L; Fardell JE, 2020, 'End-of-Life Communication Needs for Adolescents and Young Adults with Cancer: Recommendations for Research and Practice', Journal of Adolescent and Young Adult Oncology, 9, pp. 157 - 165, http://dx.doi.org/10.1089/jayao.2019.0084

Russo S; Wakefield CE; Fardell JE; Cohn RJ, 2020, 'Summer sun-exposure in Australian childhood cancer survivors and community reference groups', Seminars in Oncology, 47, pp. 48 - 55, http://dx.doi.org/10.1053/j.seminoncol.2020.02.004

Hill RE; Wakefield CE; Cohn RJ; Fardell JE; Brierley MEE; Kothe E; Jacobsen PB; Hetherington K; Mercieca-Bebber R, 2020, 'Survivorship Care Plans in Cancer: A Meta-Analysis and Systematic Review of Care Plan Outcomes', Oncologist, 25, pp. e351 - e372, http://dx.doi.org/10.1634/theoncologist.2019-0184

Smith A; Bamgboje-Ayodele A; Butow P; Klein B; Turner J; Sharpe L; Fardell J; Beatty L; Pearce A; Thewes B; Beith J; Girgis A, 2020, 'Development and usability evaluation of an online self-management intervention for fear of cancer recurrence (iConquerFear)', Psycho-Oncology, 29, pp. 98 - 106, http://dx.doi.org/10.1002/pon.5218

Vetsch J; Wakefield CE; Tucker KM; McCarthy M; Signorelli C; Walwyn T; Alvaro F; Cohn RJ, 2020, 'Genetics-related service and information needs of childhood cancer survivors and parents: a mixed-methods study', European Journal of Human Genetics, 28, pp. 6 - 16, http://dx.doi.org/10.1038/s41431-019-0481-7

Hill RE; Wakefield CE; Cohn RJ; Fardell JE; Brierley M-EE; Kothe E; Jacobsen PB; Hetherington K; Mercieca-Bebber R, 2020, 'Survivorship Care Plans in Cancer: A Meta-Analysis and Systematic Review of Care Plan Outcomes.', Oncologist, 25, pp. e351 - e372, http://dx.doi.org/10.1634/theoncologist.2019-0184

Kelada L; Wakefield CE; Heathcote LC; Jaaniste T; Signorelli C; Fardell JE; Donoghoe M; McCarthy MC; Gabriel M; Cohn RJ, 2019, 'Perceived cancer-related pain and fatigue, information needs, and fear of cancer recurrence among adult survivors of childhood cancer', Patient Education and Counseling, 102, pp. 2270 - 2278, http://dx.doi.org/10.1016/j.pec.2019.06.022

Signorelli C; Wakefield C; McLoone JK; Fardell J; Jones JM; Turpin KH; Emery J; Michel G; Downie P; Skeen JE; Cohn R, 2019, 'Childhood cancer survivorship: barriers and preferences', BMJ Supportive and Palliative Care, 12, pp. E687 - E695, http://dx.doi.org/10.1136/bmjspcare-2019-002001

Robertson EG; Wakefield CE; Shaw J; Darlington AS; McGill BC; Cohn RJ; Fardell JE, 2019, 'Decision-making in childhood cancer: parents’ and adolescents’ views and perceptions', Supportive Care in Cancer, 27, pp. 4331 - 4340, http://dx.doi.org/10.1007/s00520-019-04728-x

Lum A; Wakefield CE; Donnan B; Burns MA; Fardell JE; Jaffe A; Kasparian NA; Kennedy SE; Leach ST; Lemberg DA; Marshall GM, 2019, 'Facilitating engagement with school in students with chronic illness through positive education: A mixed-methods comparison study', School Psychology, 34, pp. 677 - 686, http://dx.doi.org/10.1037/spq0000315

Lum A; Wakefield CE; Donnan B; Burns MA; Fardell JE; Jaffe A; Kasparian NA; Kennedy SE; Leach ST; Lemberg DA; Marshall GM, 2019, 'School students with chronic illness have unmet academic, social, and emotional school needs', School Psychology, 34, pp. 627 - 636, http://dx.doi.org/10.1037/spq0000311

Sharpe L; Turner J; Fardell JE; Thewes B; Smith AB; Gilchrist J; Beith J; Girgis A; Tesson S; Day S; Grunewald K; Butow P; Bell M; Beatty L; Bennett B; Brebach R; Brock C; Butler S; Byrne D; Diggens J; Fairclough A; Faulkner T; Ftanou M; Grier M; Hill G; Jones T; Kirsten L; McConaghey S; McKinnon S; Mihalopoulos C; Mireskandari S; Musiello T; Penhale J; Pollard A; Rangganadhan A; Scealy M; Scott M; Shih S; Teoh M; Tiller K; Watt P, 2019, 'Psychological intervention (ConquerFear) for treating fear of cancer recurrence: mediators and moderators of treatment efficacy', Journal of Cancer Survivorship, 13, pp. 695 - 702, http://dx.doi.org/10.1007/s11764-019-00788-4

Gabriel MG; Wakefield CE; Vetsch J; Karpelowsky JS; Darlington ASE; Cohn RJ; Signorelli C; Alvaro F; Corbett R; Downie P; Egan K; Ellis S; Emery J; Fardell J; Foreman T; Gabriel M; Girgis A; Graham K; Johnston K; Jones J; Lockwood L; Maguire A; McCarthy M; McLoone J; Mechinaud F; Molloy S; Moore L; Osborn M; Skeen J; Tapp H; Till T; Truscott J; Turpin K; Williamson J; Walwyn T; Yallop K, 2019, 'Paediatric surgery for childhood cancer: Lasting experiences and needs of children and parents', European Journal of Cancer Care, 28, pp. e13116, http://dx.doi.org/10.1111/ecc.13116

Robertson EG; Wakefield CE; Cohn RJ; Battisti RA; Donoghoe MW; Ziegler DS; Fardell JE; Mitchell R; O'Brien TA, 2019, 'Piloting a parent and patient decision aid to support clinical trial decision making in childhood cancer', Psycho-Oncology, 28, pp. 1520 - 1529, http://dx.doi.org/10.1002/pon.5109

Mizrahi D; Fardell JE; Wakefield CE; Simar D; Maguire AM; Hubbard G; Cohn RJ; Fardell J; Foreman T; Girgis A; Signorelli C; Ellis S, 2019, 'How physically active do Australian and New Zealander childhood cancer survivors perceive themselves? A report from the ANZCHOG survivorship study', Complementary Therapies in Medicine, 44, pp. 196 - 203, http://dx.doi.org/10.1016/j.ctim.2019.04.020

Signorelli C; Wakefield CE; Fardell JE; Foreman T; Johnston KA; Emery J; Thornton-Benko E; Girgis A; Lie HC; Cohn RJ; Alvaro F; Corbett R; Downie P; Egan K; Ellis S; Gabriel M; Graham K; Jones J; Lockwood L; Maguire A; McCarthy M; McLoone J; Mechinaud F; Molloy S; Moore L; Osborn M; Skeen J; Tapp H; Till T; Truscott J; Turpin K; Walwyn T; Yallop K, 2019, 'The Role of Primary Care Physicians in Childhood Cancer Survivorship Care: Multiperspective Interviews', Oncologist, 24, pp. 710 - 719, http://dx.doi.org/10.1634/theoncologist.2018-0103

Ellis SJ; Fardell JE; Wakefield CE; Schilstra CE; Burns MA; Donnan B; Walwyn T; Lum A; Marshall G; Carter A; Barton B; Cohn RJ, 2019, 'Are we meeting the training needs of healthcare and education professionals supporting children with cancer in their return to school?', Pediatric Blood and Cancer, 66, pp. e27575, http://dx.doi.org/10.1002/pbc.27575

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