Select Publications

Journal articles

Burns MA; Fardell JE; Wakefield CE; Cohn RJ; Marshall GM; Lum A; Ellis SJ; Donnan B; Walwyn T; Carter A; Barton B; Lah S, 2021, 'School and educational support programmes for paediatric oncology patients and survivors: A systematic review of evidence and recommendations for future research and practice', Psycho-Oncology, http://dx.doi.org/10.1002/pon.5606

Bell J; Lingam R; Wakefield CE; Fardell JE; Zeltzer J; Hu N; Woolfenden S; Callander E; Marshall GM; Nassar N, 2020, 'Prevalence, hospital admissions and costs of child chronic conditions: A population-based study', Journal of Paediatrics and Child Health, vol. 56, pp. 1365 - 1370, http://dx.doi.org/10.1111/jpc.14932

Signorelli C; Wakefield CE; Johnston KA; Fardell JE; McLoone JK; Brierley MEE; Schaffer M; Thornton-Benko E; Girgis A; Hamish Wallace W; Cohn RJ, 2020, 'Re-engage: A novel nurse-led program for survivors of childhood cancer who are disengaged from cancer-related care', JNCCN Journal of the National Comprehensive Cancer Network, vol. 18, pp. 1067 - 1074, http://dx.doi.org/10.6004/jnccn.2020.7552

Mizrahi D; Fardell JE; Cohn RJ; Partin RE; Howell CR; Hudson MM; Robison LL; Ness KK; McBride J; Field P; Wakefield CE; Simar D, 2020, 'The 6-minute walk test is a good predictor of cardiorespiratory fitness in childhood cancer survivors when access to comprehensive testing is limited', International Journal of Cancer, vol. 147, pp. 847 - 855, http://dx.doi.org/10.1002/ijc.32819

Mizrahi D; Wakefield CE; Simar D; Ha L; McBride J; Field P; Cohn RJ; Fardell JE, 2020, 'Barriers and enablers to physical activity and aerobic fitness deficits among childhood cancer survivors', Pediatric Blood and Cancer, vol. 67, pp. e28339, http://dx.doi.org/10.1002/pbc.28339

Raharjo CV; Hetherington K; Donovan L; Fardell JE; Russell V; Cohn RJ; Morgan NL; Siddiqui J; Wakefield CE, 2020, 'An Evaluation of By My Side: Peer Support in Written Form is Acceptable and Useful for Parents Bereaved by Childhood Cancer', Journal of Pain and Symptom Management, vol. 59, pp. 1278 - 1286, http://dx.doi.org/10.1016/j.jpainsymman.2020.01.013

Sansom-Daly UM; Wakefield CE; Patterson P; Cohn RJ; Rosenberg AR; Wiener L; Fardell JE, 2020, 'End-of-Life Communication Needs for Adolescents and Young Adults with Cancer: Recommendations for Research and Practice', Journal of Adolescent and Young Adult Oncology, vol. 9, pp. 157 - 165, http://dx.doi.org/10.1089/jayao.2019.0084

Russo S; Wakefield CE; Fardell JE; Cohn RJ, 2020, 'Summer sun-exposure in Australian childhood cancer survivors and community reference groups', Seminars in Oncology, vol. 47, pp. 48 - 55, http://dx.doi.org/10.1053/j.seminoncol.2020.02.004

Hill RE; Wakefield CE; Cohn RJ; Fardell JE; Brierley MEE; Kothe E; Jacobsen PB; Hetherington K; Mercieca-Bebber R, 2020, 'Survivorship Care Plans in Cancer: A Meta-Analysis and Systematic Review of Care Plan Outcomes', Oncologist, vol. 25, pp. e351 - e372, http://dx.doi.org/10.1634/theoncologist.2019-0184

Smith A; Bamgboje-Ayodele A; Butow P; Klein B; Turner J; Sharpe L; Fardell J; Beatty L; Pearce A; Thewes B; Beith J; Girgis A, 2020, 'Development and usability evaluation of an online self-management intervention for fear of cancer recurrence (iConquerFear)', Psycho-Oncology, vol. 29, pp. 98 - 106, http://dx.doi.org/10.1002/pon.5218

Hill RE; Wakefield CE; Cohn RJ; Fardell JE; Brierley M-EE; Kothe E; Jacobsen PB; Hetherington K; Mercieca-Bebber R, 2020, 'Survivorship Care Plans in Cancer: A Meta-Analysis and Systematic Review of Care Plan Outcomes.', Oncologist, vol. 25, pp. e351 - e372, http://dx.doi.org/10.1634/theoncologist.2019-0184

Kelada L; Wakefield CE; Heathcote LC; Jaaniste T; Signorelli C; Fardell JE; Donoghoe M; McCarthy MC; Gabriel M; Cohn RJ, 2019, 'Perceived cancer-related pain and fatigue, information needs, and fear of cancer recurrence among adult survivors of childhood cancer', Patient Education and Counseling, vol. 102, pp. 2270 - 2278, http://dx.doi.org/10.1016/j.pec.2019.06.022

Robertson EG; Wakefield CE; Shaw J; Darlington AS; McGill BC; Cohn RJ; Fardell JE, 2019, 'Decision-making in childhood cancer: parents’ and adolescents’ views and perceptions', Supportive Care in Cancer, vol. 27, pp. 4331 - 4340, http://dx.doi.org/10.1007/s00520-019-04728-x

Lum A; Wakefield CE; Donnan B; Burns MA; Fardell JE; Jaffe A; Kasparian NA; Kennedy SE; Leach ST; Lemberg DA; Marshall GM, 2019, 'Facilitating engagement with school in students with chronic illness through positive education: A mixed-methods comparison study', School Psychology, vol. 34, pp. 677 - 686, http://dx.doi.org/10.1037/spq0000315

Lum A; Wakefield CE; Donnan B; Burns MA; Fardell JE; Jaffe A; Kasparian NA; Kennedy SE; Leach ST; Lemberg DA; Marshall GM, 2019, 'School students with chronic illness have unmet academic, social, and emotional school needs', School Psychology, vol. 34, pp. 627 - 636, http://dx.doi.org/10.1037/spq0000311

Sharpe L; Turner J; Fardell JE; Thewes B; Smith AB; Gilchrist J; Beith J; Girgis A; Tesson S; Day S; Grunewald K; Butow P; Bell M; Beatty L; Bennett B; Brebach R; Brock C; Butler S; Byrne D; Diggens J; Fairclough A; Faulkner T; Ftanou M; Grier M; Hill G; Jones T; Kirsten L; McConaghey S; McKinnon S; Mihalopoulos C; Mireskandari S; Musiello T; Penhale J; Pollard A; Rangganadhan A; Scealy M; Scott M; Shih S; Teoh M; Tiller K; Watt P, 2019, 'Psychological intervention (ConquerFear) for treating fear of cancer recurrence: mediators and moderators of treatment efficacy', Journal of Cancer Survivorship, vol. 13, pp. 695 - 702, http://dx.doi.org/10.1007/s11764-019-00788-4

Gabriel MG; Wakefield CE; Vetsch J; Karpelowsky JS; Darlington ASE; Cohn RJ; Signorelli C; Alvaro F; Corbett R; Downie P; Egan K; Ellis S; Emery J; Fardell J; Foreman T; Gabriel M; Girgis A; Graham K; Johnston K; Jones J; Lockwood L; Maguire A; McCarthy M; McLoone J; Mechinaud F; Molloy S; Moore L; Osborn M; Skeen J; Tapp H; Till T; Truscott J; Turpin K; Williamson J; Walwyn T; Yallop K, 2019, 'Paediatric surgery for childhood cancer: Lasting experiences and needs of children and parents', European Journal of Cancer Care, vol. 28, http://dx.doi.org/10.1111/ecc.13116

Robertson EG; Wakefield CE; Cohn RJ; Battisti RA; Donoghoe MW; Ziegler DS; Fardell JE; Mitchell R; O'Brien TA, 2019, 'Piloting a parent and patient decision aid to support clinical trial decision making in childhood cancer', Psycho-Oncology, vol. 28, pp. 1520 - 1529, http://dx.doi.org/10.1002/pon.5109

Mizrahi D; Fardell JE; Wakefield CE; Simar D; Maguire AM; Hubbard G; Cohn RJ, 2019, 'How physically active do Australian and New Zealander childhood cancer survivors perceive themselves? A report from the ANZCHOG survivorship study', Complementary Therapies in Medicine, vol. 44, pp. 196 - 203, http://dx.doi.org/10.1016/j.ctim.2019.04.020

Signorelli C; Wakefield CE; Fardell JE; Foreman T; Johnston KA; Emery J; Thornton-Benko E; Girgis A; Lie HC; Cohn RJ; Alvaro F; Corbett R; Downie P; Egan K; Ellis S; Gabriel M; Graham K; Jones J; Lockwood L; Maguire A; McCarthy M; McLoone J; Mechinaud F; Molloy S; Moore L; Osborn M; Skeen J; Tapp H; Till T; Truscott J; Turpin K; Walwyn T; Yallop K, 2019, 'The Role of Primary Care Physicians in Childhood Cancer Survivorship Care: Multiperspective Interviews', Oncologist, vol. 24, pp. 710 - 719, http://dx.doi.org/10.1634/theoncologist.2018-0103

Ellis SJ; Fardell JE; Wakefield CE; Schilstra CE; Burns MA; Donnan B; Walwyn T; Lum A; Marshall G; Carter A; Barton B; Cohn RJ, 2019, 'Are we meeting the training needs of healthcare and education professionals supporting children with cancer in their return to school?', Pediatric Blood and Cancer, vol. 66, pp. e27575, http://dx.doi.org/10.1002/pbc.27575

Signorelli C; Wakefield CE; Fardell JE; Brierley ME; Darlington AS; Williamson J; Downie P; Cohn RJ, 2019, 'Perceptions of future health and cancer risk in adult survivors of childhood cancer: Implications for engagement in follow-up care', Cancer, vol. 125, pp. 1008 - 1009, http://dx.doi.org/10.1002/cncr.31934

Butow P; Williams D; Thewes B; Tesson S; Sharpe L; Smith AB; Fardell JE; Turner J; Gilchrist J; Girgis A; Beith J, 2019, 'A psychological intervention (ConquerFear) for treating fear of cancer recurrence: Views of study therapists regarding sustainability', Psycho-Oncology, vol. 28, pp. 533 - 539, http://dx.doi.org/10.1002/pon.4971

Collins DE; Ellis SJ; Janin MM; Wakefield CE; Bussey K; Cohn RJ; Lah S; Fardell JE, 2019, 'A Systematic Review Summarizing the State of Evidence on Bullying in Childhood Cancer Patients/Survivors', Journal of Pediatric Oncology Nursing, vol. 36, pp. 55 - 68, http://dx.doi.org/10.1177/1043454218810136

Signorelli C; Wakefield C; McLoone JK; Fardell J; Jones JM; Turpin KH; Emery J; Michel G; Downie P; Skeen JE; Cohn R, 2019, 'Childhood cancer survivorship: Barriers and preferences', BMJ Supportive and Palliative Care, http://dx.doi.org/10.1136/bmjspcare-2019-002001

Donovan LA; Wakefield CE; Russell V; Fardell J; Mallitt KA; Hetherington K; Cohn R, 2019, 'Variables associated with grief and personal growth following the death of a child from cancer: A mixed method analysis', Death Studies, pp. 1 - 12, http://dx.doi.org/10.1080/07481187.2019.1682087

Robertson EG; Cohen J; Signorelli C; Grant DM; Fardell JE; Wakefield CE, 2019, 'What instruments should we use to assess paediatric decision-making interventions? A narrative review', Journal of Child Health Care, pp. 1367493519869717, http://dx.doi.org/10.1177/1367493519869717

Costa DSJ; Fardell JE, 2019, 'Why are objective and perceived cognitive function weakly correlated in patients with cancer?', Journal of Clinical Oncology, vol. 37, pp. 1154 - 1158, http://dx.doi.org/10.1200/JCO.18.02363

Smith A; Sharpe L; Thewes B; Turner J; Gilchrist J; Fardell JE; Girgis A; Tesson S; Descallar J; Bell ML; Beith J; Butow P; Beatty L; Bennett B; Brebach R; Brock C; Butler S; Byrne D; Day S; Diggens J; Fairclough A; Faulkner T; Ftanou M; Grier M; Hill G; Jones T; Kirsten L; McConaghey S; McKinnon S; Mihalopoulos C; Mireskandari S; Musiello T; Penhale J; Pollard A; Rangganadhan A; Scealy M; Scott M; Shih S; Teoh M; Tiller K; Watt P, 2018, 'Medical, demographic and psychological correlates of fear of cancer recurrence (FCR) morbidity in breast, colorectal and melanoma cancer survivors with probable clinically significant FCR seeking psychological treatment through the ConquerFear study', Supportive Care in Cancer, vol. 26, pp. 4207 - 4216, http://dx.doi.org/10.1007/s00520-018-4294-y

Wakefield CE; Doolan EL; Fardell JE; Signorelli C; Quinn VF; Tucker KM; Patenaude AF; Marshall GM; Lock RB; Georgiou G; Cohn RJ, 2018, 'The Avatar Acceptability Study: Survivor, Parent and Community Willingness to Use Patient-Derived Xenografts to Personalize Cancer Care', EBioMedicine, vol. 37, pp. 205 - 213, http://dx.doi.org/10.1016/j.ebiom.2018.10.060

Janin MMH; Ellis SJ; Wakefield CE; Fardell JE, 2018, 'Talking about Cancer among Adolescent and Young Adult Cancer Patients and Survivors: A Systematic Review', Journal of Adolescent and Young Adult Oncology, vol. 7, pp. 515 - 524, http://dx.doi.org/10.1089/jayao.2017.0131

Janin MMH; Ellis SJ; Lum A; Wakefield CE; Fardell JE, 2018, 'Parents’ Perspectives on Their Child's Social Experience in the Context of Childhood Chronic Illness: A Qualitative Study', Journal of Pediatric Nursing, vol. 42, pp. e10 - e18, http://dx.doi.org/10.1016/j.pedn.2018.06.010

Nandakumar BS; Fardell JE; Wakefield CE; Signorelli C; McLoone JK; Skeen J; Maguire AM; Cohn RJ; Alvaro F; Corbett R; Downie P; Egan K; Emery J; Ellis S; Foreman T; Gabriel M; Girgis A; Graham K; Johnston K; Jones J; Lockwood L; McCarthy M; Molloy S; Osborn M; Tapp H; Till T; Truscott J; Turpin K; Walwyn T; Yallop K, 2018, 'Attitudes and experiences of childhood cancer survivors transitioning from pediatric care to adult care', Supportive Care in Cancer, vol. 26, pp. 2743 - 2750, http://dx.doi.org/10.1007/s00520-018-4077-5

Wakefield CE; Doolan EL; Fardell JE; Signorelli C; Quinn VF; Tucker KF; Patenaude AF; Marshall GM; Lock RB; Georgiou G; Cohn RJ, 2018, 'Protocol for the avatar acceptability study: A multiperspective cross-sectional study evaluating the acceptability of using patient-derived xenografts to guide personalised cancer care in Australia and New Zealand', BMJ Open, vol. 8, http://dx.doi.org/10.1136/bmjopen-2018-024064

Robertson EG; Wakefield CE; Signorelli C; Cohn RJ; Patenaude A; Foster C; Pettit T; Fardell JE, 2018, 'Strategies to facilitate shared decision-making about pediatric oncology clinical trial enrollment: A systematic review', Patient Education and Counseling, vol. 101, pp. 1157 - 1174, http://dx.doi.org/10.1016/j.pec.2018.02.001

Gan LL; Lum A; Wakefield CE; Donnan BM; Marshall GM; Burns MA; Jaffe A; Leach S; Lemberg DA; Fardell JE, 2018, 'The School Experiences of Siblings of Children with Chronic Illness: Australian Parents' Perceptions', Educational and Developmental Psychologist, vol. 35, pp. 36 - 50, http://dx.doi.org/10.1017/edp.2018.3

Vetsch J; Wakefield CE; Warby M; Tucker K; Patterson P; McGill BC; Metcalfe A; Cohn RJ; Fardell JE, 2018, 'Cancer-Related Genetic Testing and Personalized Medicine for Adolescents: A Narrative Review of Impact and Understanding', Journal of Adolescent and Young Adult Oncology, vol. 7, pp. 259 - 262, http://dx.doi.org/10.1089/jayao.2017.0102

Vetsch J; Wakefield CE; Robertson EG; Trahair TN; Mateos MK; Grootenhuis M; Marshall GM; Cohn RJ; Fardell JE, 2018, 'Health-related quality of life of survivors of childhood acute lymphoblastic leukemia: a systematic review', Quality of Life Research, vol. 27, pp. 1431 - 1443, http://dx.doi.org/10.1007/s11136-018-1788-5

Robertson EG; Wakefield CE; Cohn RJ; O'Brien T; Ziegler DS; Fardell JE, 2018, 'The development of delta: Using agile to develop a decision aid for pediatric oncology clinical trial enrollment', Journal of Medical Internet Research, vol. 20, http://dx.doi.org/10.2196/resprot.9258

Wakefield CE; Quinn VF; Fardell JE; Signorelli C; Tucker KM; Patenaude AF; Malkin D; Walwyn T; Alvaro F; Cohn RJ, 2018, 'Family history-taking practices and genetic confidence in primary and tertiary care providers for childhood cancer survivors', Pediatric Blood and Cancer, vol. 65, http://dx.doi.org/10.1002/pbc.26923

Fardell JE; Wakefield CE; Patterson P; Lum A; Cohn RJ; Pini SA; Sansom-Daly UM, 2018, 'Narrative Review of the Educational, Vocational, and Financial Needs of Adolescents and Young Adults with Cancer: Recommendations for Support and Research', Journal of Adolescent and Young Adult Oncology, vol. 7, pp. 143 - 147, http://dx.doi.org/10.1089/jayao.2017.0086

Signorelli C; Wakefield CE; Johnston KA; Fardell JE; Brierley MEE; Thornton-Benko E; Foreman T; Webber K; Wallace WH; Cohn RJ, 2018, 'Re-engage' pilot study protocol: A nurse-led eHealth intervention to re-engage, educate and empower childhood cancer survivors', BMJ Open, vol. 8, pp. e022269, http://dx.doi.org/10.1136/bmjopen-2018-022269

Costa DSJ; Loh V; Birney DP; Dhillon HM; Fardell JE; Gessler D; Vardy JL, 2018, 'The Structure of the FACT-Cog v3 in Cancer Patients, Students, and Older Adults', Journal of Pain and Symptom Management, vol. 55, pp. 1173 - 1178, http://dx.doi.org/10.1016/j.jpainsymman.2017.12.486

Fardell JE; Jones G; Smith AB; Lebel S; Thewes B; Costa D; Tiller K; Simard S; Feldstain A; Beattie S; McCallum M; Butow P, 2018, 'Exploring the screening capacity of the Fear of Cancer Recurrence Inventory-Short Form for clinical levels of fear of cancer recurrence', Psycho-Oncology, vol. 27, pp. 492 - 499, http://dx.doi.org/10.1002/pon.4516

Fardell JE; Patterson P; Wakefield CE; Signorelli C; Cohn R; Anazodo A; Zebrack B; Sansom-Daly U, 2018, 'A Narrative Review of Models of Care for Adolescents and Young Adults with Cancer: Barriers and Recommendations.', Journal of Adolescent and Young Adult Oncology, vol. 7, pp. 148 - 152, http://dx.doi.org/10.1089/jayao.2017.0100

Signorelli C; Wakefield CE; Fardell JE; Thornton-Benko E; Emery J; McLoone JK; Cohn RJ, 2018, 'Recruiting primary care physicians to qualitative research: Experiences and recommendations from a childhood cancer survivorship study', Pediatric Blood and Cancer, vol. 65, http://dx.doi.org/10.1002/pbc.26762

Butow PN; Turner J; Gilchrist J; Sharpe L; Smith AB; Fardell JE; Tesson S; O'Connell R; Girgis A; Gebski VJ; Asher R; Mihalopoulos C; Bell ML; Zola KG; Beith J; Thewes B, 2017, 'Randomized trial of ConquerFear: A novel, theoretically based psychosocial intervention for fear of cancer recurrence', Journal of Clinical Oncology, vol. 35, pp. 4066 - 4077, http://dx.doi.org/10.1200/JCO.2017.73.1257

Signorelli C; Wakefield CE; McLoone JK; Fardell JE; Lawrence RA; Osborn M; Truscott J; Tapp H; Cohn RJ, 2017, 'Models of childhood cancer survivorship care in Australia and New Zealand: Strengths and challenges', Asia-Pacific Journal of Clinical Oncology, vol. 13, pp. 407 - 415, http://dx.doi.org/10.1111/ajco.12700

van Breeschoten J; De Abreu Lourenco R; Signorelli C; Haas M; Cohn RJ; Wakefield CE; Fardell JE, 2017, 'Patterns and drivers of health care use in long-term childhood cancer survivors: A systematic review', Critical Reviews in Oncology/Hematology, vol. 120, pp. 60 - 76, http://dx.doi.org/10.1016/j.critrevonc.2017.10.004

Sajeev M; Cohen J; Wakefield CE; Fardell JE; Cohn RJ, 2017, 'Decision Aid for Nutrition Support in Pediatric Oncology: A Pilot Study', Journal of Parenteral and Enteral Nutrition, vol. 41, pp. 1336 - 1347, http://dx.doi.org/10.1177/0148607116661840


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