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Select Publications
Journal articles
, 2019, 'Perceived cancer-related pain and fatigue, information needs, and fear of cancer recurrence among adult survivors of childhood cancer', Patient Education and Counseling, 102, pp. 2270 - 2278, http://dx.doi.org/10.1016/j.pec.2019.06.022
, 2019, 'Grandparents of children with cancer: a controlled comparison of perceived family functioning', Supportive Care in Cancer, 27, pp. 2087 - 2094, http://dx.doi.org/10.1007/s00520-018-4468-7
, 2019, 'How Parents of Childhood Cancer Survivors Perceive Support From Their Extended Families', Journal of Child and Family Studies, 28, pp. 1537 - 1547, http://dx.doi.org/10.1007/s10826-019-01394-9
, 2018, 'Adolescent NSSI and Recovery: The Role of Family Functioning and Emotion Regulation', Youth and Society, 50, pp. 1056 - 1077, http://dx.doi.org/10.1177/0044118X16653153
, 2018, '“I Do Want to Stop, At Least I Think I Do”: An International Comparison of Recovery From Nonsuicidal Self-Injury Among Young People', Journal of Adolescent Research, 33, pp. 416 - 441, http://dx.doi.org/10.1177/0743558416684954
, 2017, 'School response to self-injury: Concerns of mental health staff and parents', School Psychology Quarterly, 32, pp. 173 - 187, http://dx.doi.org/10.1037/spq0000194
, 2016, 'Parents’ Experiences of Nonsuicidal Self-Injury Among Adolescents and Young Adults', Journal of Child and Family Studies, 25, pp. 3403 - 3416, http://dx.doi.org/10.1007/s10826-016-0496-4
, 2016, 'The Relationship Between Nonsuicidal Self-Injury and Family Functioning: Adolescent and Parent Perspectives', Journal of Marital and Family Therapy, 42, pp. 536 - 549, http://dx.doi.org/10.1111/jmft.12150
, 2014, 'Longitudinal analysis of adolescent NSSI: The role of intrapersonal and interpersonal factors', Journal of Abnormal Child Psychology, 42, pp. 885 - 896, http://dx.doi.org/10.1007/s10802-013-9837-6
Conference Papers
, 2025, 'Connect, Pause & Reflect: Multidisciplinary Clinicians' Shared Challenges and Sustaining Strategies Caring for Children with Severe Neurological Impairment', in EPILEPSIA, WILEY, PORTUGAL, Lisbon, pp. S421 - S421, presented at 36th International Epilepsy Congress, PORTUGAL, Lisbon, 30 August 2025 - 03 September 2025
, 2025, 'Connect, Pause & Reflect: Multidisciplinary Clinicians' Shared Challenges and Sustaining Strategies Caring for Children with Severe Neurological Impairment', in EPILEPSIA, WILEY, PORTUGAL, Lisbon, pp. S421 - S421, presented at 36th International Epilepsy Congress, PORTUGAL, Lisbon, 30 August 2025 - 03 September 2025
, 2025, 'Implementing and evaluating a novel model of care for patients with developmental and epileptic encephalopathies', in EPILEPSIA, WILEY, PORTUGAL, Lisbon, pp. S412 - S413, presented at 36th International Epilepsy Congress, PORTUGAL, Lisbon, 30 August 2025 - 03 September 2025
, 2025, 'Implementing and evaluating a novel model of care for patients with developmental and epileptic encephalopathies', in EPILEPSIA, WILEY, PORTUGAL, Lisbon, pp. S412 - S413, presented at 36th International Epilepsy Congress, PORTUGAL, Lisbon, 30 August 2025 - 03 September 2025
, 2025, 'Evaluating the impact of dedicated clinical nurse consultants for patients with developmental and epileptic encephalopathies', in EUROPEAN JOURNAL OF HUMAN GENETICS, SPRINGERNATURE, ITALY, Milan, pp. 487 - 487, presented at 58th Conference of the European-Society-of-Human-Genetics (ESHG), ITALY, Milan, 24 May 2025 - 27 May 2025
, 2024, 'Childhood Dementia Insight: A mixed-methods study investigating the psychosocial, quality of life, and psychological impacts of childhood dementia on families', in EUROPEAN JOURNAL OF HUMAN GENETICS, SPRINGERNATURE, GERMANY, Berlin, pp. 1217 - 1217, presented at 57th Conference of the European-Society-of-Human-Genetics (ESHG), GERMANY, Berlin, 01 June 2024 - 04 June 2024
, 2023, 'Designing for implementation: co-design of a paediatric oncology medicines database (ProCure) to support complex care provision for children with a hard-to-treat cancer', in IMPLEMENTATION SCIENCE, BMC
, 2023, 'Development of an implementation-focused logic model framework: a practical example of use to design and support complex care provision for children with a hard-to-treat-cancer', in IMPLEMENTATION SCIENCE, BMC
, 2023, 'CHALLENGES FACED BY HEALTHCARE PROFESSIONALS WHEN COMMUNICATING WITH FAMILIES OF YOUNG PEOPLE WITH A HARD-TO-TREAT CANCER', in INTERNATIONAL JOURNAL OF BEHAVIORAL MEDICINE, SPRINGER, pp. S90 - S90
, 2023, 'INTERNATIONAL IMPLEMENTATION OF AN ONLINE MENTAL HEALTH PROGRAM FOR PARENTS OF YOUNG CANCER SURVIVORS (CASCADE): IMPLEMENTATION PROCESS AND LESSONS LEARNED', in INTERNATIONAL JOURNAL OF BEHAVIORAL MEDICINE, SPRINGER, pp. S37 - S37
, 2022, 'Too many questions, too little information: Supporting families who have a child with severe genetic epilepsy', in EUROPEAN JOURNAL OF HUMAN GENETICS, SPRINGERNATURE, AUSTRIA, Vienna, pp. 325 - 326, presented at 55th European-Society-of-Human-Genetics (ESHG) Conference, AUSTRIA, Vienna, 11 June 2022 - 14 June 2022
Conference Abstracts
, 2026, 'Facilitating access to precision-guided treatments: insights from beta testing an online paediatric oncology medicines database in preparation for a hybrid type 3 implementation trial', in IMPLEMENTATION SCIENCE, BMC, Vol. 21
, 2026, 'Implementing an online psychological support program for parents of young cancer survivors (Cascade) in community organizations: Results of an international hybrid effectiveness-implementation trial', in JOURNAL OF PEDIATRIC PSYCHOLOGY, OXFORD UNIV PRESS INC, Vol. 51, pp. 120 - 121
Reports
, 2026, Rare Passport: Co-designed National Templates and Guides, http://dx.doi.org/10.26190/unsworks/32597
, 2015, Families and schools: a collaborative approach to adolescent health and well-being, Victorian Department of Education and Training
Preprints
, 2026, Streamlining Medicines Access in Paediatric Precision Oncology: Beta Testing and Implementation Planning for a Novel Digital Medicines Access Tool (ProCure), http://dx.doi.org/10.2139/ssrn.7519005
, 2025, Evaluating Patient Perspectives about the Acceptability of a Novel Prognostic Gene Expression Signature for High Grade Serous Ovarian Cancer The OTTA-SPOT study, http://dx.doi.org/10.2139/ssrn.5605974
, 2025, Neurodevelopmental Screening in Children with Early Onset Spinal Muscular Atrophy in the Treatment Era: A Strengths-Based Cohort Study, http://dx.doi.org/10.2139/ssrn.5112747
, ‘The psychosocial impact of childhood dementia on children and their parents: A systematic review’, http://dx.doi.org/10.21203/rs.3.rs-2282768/v1
, Communicating with families of young people with hard-to-treat cancers: Healthcare professionals’ perspectives on challenges, skills, and training, http://dx.doi.org/10.22541/au.168438965.52340962/v1