Select Publications

Journal articles

Chauhan A; Chitkara U; Walsan R; Sansom-Daly UM; Manias E; Seah D; Dalli A; El-Kabbout N; Tieu T; Sarwar M; Faiz M; Huang N; Rocha VM; Pal A; Harrison R, 2024, 'Co-designing strategies to improve advance care planning among people from culturally and linguistically diverse backgrounds with cancer: iCanCarePlan study protocol', BMC Palliative Care, 23, http://dx.doi.org/10.1186/s12904-024-01453-z

Faris MM; Dhillon HM; Campbell R; Halkett GK; Chan RJ; Haydon HM; Sansom-Daly UM; Koh E-S; Ownsworth T; Nowak AK; Kelly B; Leonard R; Pike KE; Legge DM; Pinkham MB; Agar MR; BRAINS Program Group ; Shaw J, 2024, 'Unmet needs in people with high-grade glioma: Defining criteria for stepped care intervention.', JNCI Cancer Spectr, http://dx.doi.org/10.1093/jncics/pkae034

Schilstra CE; Sansom-Daly UM; Ellis SJ; Trahair TN; Anazodo AC; Amiruddin A; Lindsay T; Maguire F; Wakefield CE; Lah S; Bland E; Lenthen K; Rifkin A; Awan A; Kittos T; Hanbury N; Tsalidis S; Patterson P; McDonald F; Fardell JE, 2024, 'Guidelines for Caring for the Social Well-Being of Adolescents and Young Adults with Cancer in Australia', Journal of Adolescent and Young Adult Oncology, 13, pp. 8 - 29, http://dx.doi.org/10.1089/jayao.2023.0027

Schilstra CE; Ellis SJ; Cohen J; Gall A; Diaz A; Clarke K; Dumlao G; Chard J; Cumming TM; Davis E; Dhillon H; Burns MA; Docking K; Koh ES; O'Reilly J; Sansom-Daly UM; Shaw J; Speers N; Taylor N; Warne A; Fardell JE, 2024, 'Exploring Web-Based Information and Resources That Support Adolescents and Young Adults With Cancer to Resume Study and Work: Environmental Scan Study', JMIR Cancer, 10, http://dx.doi.org/10.2196/47944

Baenziger J; Roser K; Mader L; Ilic A; Sansom-Daly UM; von Bueren AO; Tinner EM; Michel G, 2024, 'Post-traumatic growth in parents of long-term childhood cancer survivors compared to the general population: A report from the Swiss childhood cancer survivor study—Parents', Psycho-Oncology, 33, http://dx.doi.org/10.1002/pon.6246

Schilstra CE; Sansom-Daly UM; Ellis SJ; Anazodo AC; Trahair TN; Lindsay T; Amiruddin A; O'Dwyer C; Maguire F; Nevin S; Battisti R; Fardell JE, 2024, 'Social Anxiety Symptoms in Adolescents and Young Adults Recently Diagnosed with Cancer', Journal of Adolescent and Young Adult Oncology, http://dx.doi.org/10.1089/jayao.2023.0186

Goodwin B; Anderson L; Collins K; Sanjida S; Riba M; Singh GK; Campbell KM; Green H; Ishaque S; Kwok A; Opozda MJ; Pearn A; Shaw J; Sansom-Daly UM; Tsirgiotis JM; Janda M; Grech L, 2023, 'Anticipatory anxiety and participation in cancer screening. A systematic review', Psycho-Oncology, 32, pp. 1773 - 1786, http://dx.doi.org/10.1002/pon.6238

Patterson P; Jacobsen RL; McDonald FEJ; Pflugeisen CM; Bibby K; Macpherson CF; Thompson K; Murnane A; Anazodo A; Sansom-Daly UM; Osborn MP; Hayward A; Kok C; Johnson RH, 2023, 'Beyond Medical Care: How Different National Models of Care Impact the Experience of Adolescent and Young Adult Cancer Patients', Journal of Adolescent and Young Adult Oncology, 12, pp. 859 - 867, http://dx.doi.org/10.1089/jayao.2022.0182

Sansom-Daly UM; Mack JW, 2023, 'Who gets to die at home? Race and disease-related cause of death impacts young adults’ place of death', Evidence-Based Nursing, 27, pp. 79, http://dx.doi.org/10.1136/ebnurs-2023-103809

Sansom-Daly UM, 2023, 'Specialty Palliative Care for Adolescents and Young Adults with Cancer - Developmental Considerations and an Agenda for Future Research', JAMA Network Open, 6, http://dx.doi.org/10.1001/jamanetworkopen.2023.38681

Evans HE; Jessop S; Bedoya SZ; Lyon ME; Wiener L; Sansom-Daly UM, 2023, 'Examining the Cultural Appropriateness of Advance Care Planning Tools for Adolescents and Young Adults With Cancer: An Example of Cross-Cultural Adaptation of the Voicing My CHOiCES Tool', Current Problems in Cancer, 47, http://dx.doi.org/10.1016/j.currproblcancer.2023.101010

Pitt E; Bradford N; Robertson E; Sansom-Daly UM; Alexander K, 2023, 'The effects of cancer clinical decision support systems on patient-reported outcomes: A systematic review', European Journal of Oncology Nursing, 66, http://dx.doi.org/10.1016/j.ejon.2023.102398

Sansom-Daly UM; Zhang M; Evans HE; McLoone J; Wiener L; Cohn RJ; Anazodo A; Patterson P; Wakefield CE, 2023, 'Adapting the Voicing My CHOiCES Advance Care Planning Communication Guide for Australian Adolescents and Young Adults with Cancer: Appropriateness, Acceptability, and Considerations for Clinical Practice', Cancers, 15, http://dx.doi.org/10.3390/cancers15072129

McLoone JK; Sansom-Daly UM; Paglia A; Chia J; Larsen HB; Fern LA; Cohn RJ; Signorelli C, 2023, 'A Scoping Review Exploring Access to Survivorship Care for Childhood, Adolescent, and Young Adult Cancer Survivors: How Can We Optimize Care Pathways?', Adolesc Health Med Ther, 14, pp. 153 - 174, http://dx.doi.org/10.2147/AHMT.S428215

Chow WK; Hetherington K; McGill BC; Sansom-Daly UM; Daly R; Miles G; Cohn RJ; Wakefield CE, 2022, '‘Like ships in the night’: A qualitative investigation of the impact of childhood cancer on parents’ emotional and sexual intimacy', Pediatric Blood and Cancer, 69, http://dx.doi.org/10.1002/pbc.30015

Bu S; Smith A; Janssen A; Donnelly C; Dadich A; Mackenzie LJ; Smith AL; Young AL; Wu VS; Smith SJ; Sansom-Daly UM, 2022, 'Optimising implementation of telehealth in oncology: A systematic review examining barriers and enablers using the RE-AIM planning and evaluation framework', Critical Reviews in Oncology/Hematology, 180, http://dx.doi.org/10.1016/j.critrevonc.2022.103869

Kapurubandara SC; Lowes B; Sansom-Daly UM; Deans R; Abbott JA, 2022, 'A systematic review of diagnostic tests to detect pelvic floor myofascial pain', International Urogynecology Journal, 33, pp. 2379 - 2389, http://dx.doi.org/10.1007/s00192-022-05258-7

Sansom-Daly UM; McLoone JK; Touyz L; Signorelli C, 2022, 'New Frontiers in Child, Adolescent and Young Adult Psycho-Oncology Survivorship Care', Cancers, 14, http://dx.doi.org/10.3390/cancers14184335

Trang J; Herbert A; Sansom-Daly UM, 2022, 'How can advance care planning tools help young people's voices be heard?', Journal of Paediatrics and Child Health, 58, pp. 1317 - 1322, http://dx.doi.org/10.1111/jpc.16095

Ownsworth T; Lion K; Sansom-Daly UM; Pike K; Koh ES; Halkett GKB; Pinkham MB; Chan RJ; Dhillon HM, 2022, 'Scoping the psychological support practices of Australian health professionals working with people with primary brain tumor and their families', Psycho-Oncology, 31, pp. 1313 - 1321, http://dx.doi.org/10.1002/pon.5929

Sansom-Daly UM; Wiener L; Darlington AS; Poort H; Rosenberg AR; Weaver MS; Schulte F; Anazodo A; Phillips C; Sue L; Herbert AR; Mack JW; Lindsay T; Evans H; Wakefield CE; Girgis A; Al-Awamer A; Kirchhoff A; Cohn R; Fair D; Cable M; Wernli K; Donovan L; Mosher P; Fernando R; Trethewie S, 2022, 'Thinking globally to improve care locally: A Delphi study protocol to achieve international clinical consensus on best-practice end-of-life communication with adolescents and young adults with cancer', PLoS ONE, 17, http://dx.doi.org/10.1371/journal.pone.0270797

Patterson P; McDonald FEJ; Allison KR; Bibby H; Osborn M; Matthews K; Sansom-Daly UM; Thompson K; Plaster M; Anazodo A, 2022, 'The Clinical Utility of the Adolescent and Young Adult Psycho-Oncology Screening Tool (AYA-POST): Perspectives of AYA Cancer Patients and Healthcare Professionals', Frontiers in Psychology, 13, http://dx.doi.org/10.3389/fpsyg.2022.872830

Schilstra CE; Sansom-Daly UM; Schaffer M; Fardell JE; Anazodo AC; McCowage G; Fletcher JI; Marshall GM; Buchhorn-White J; Evtushenko M; Trahair TN; Ellis SJ, 2022, '"we Have All This Knowledge to Give, so Use Us as a Resource": Partnering with Adolescent and Young Adult Cancer Survivors to Determine Consumer-Led Research Priorities', Journal of Adolescent and Young Adult Oncology, 11, pp. 211 - 222, http://dx.doi.org/10.1089/jayao.2021.0052

Schilstra CE; Fardell JE; Ellis SJ; Jones KM; Anazodo AC; Trahair TN; Lah S; Cohn RJ; Wakefield CE; Sansom-Daly UM, 2022, 'Social Anxiety Symptoms in Survivors of Childhood and Adolescent Cancer', Journal of Adolescent and Young Adult Oncology, 11, pp. 129 - 137, http://dx.doi.org/10.1089/jayao.2021.0050

Espinoza-Salgado FS; García RR; E.wakefield C; Kelada L; Sansom-Daly UM; McGill BC; Tusie AZ; García FLJ; Cardos RDSC; Zapata-Tarrés M, 2022, 'Mexican cultural adaptation of the CASCAdE intervention program for parents of childhood cancer survivors', Psicooncologia, 19, pp. 63 - 80, http://dx.doi.org/10.5209/psic.80798

Bulsara SM; Sansom-Daly UM; Begley K; Forsythe L; Livermore N; Riashi M, 2022, 'Navigating the scientist-practitioner continuum: strategies to enhance Australian psychologists’ capacity to be research leaders', Australian Psychologist, 57, pp. 1 - 7, http://dx.doi.org/10.1080/00050067.2021.1981743

Sariman JA; Harris NM; Harvey D; Sansom-Daly UM, 2022, 'The Experiences of Young People Living With Cancer in Regional and Remote Australia: A Qualitative Study', Australian Social Work, 75, pp. 205 - 218, http://dx.doi.org/10.1080/0312407X.2021.1977355

Kamaladasa DS; Sansom-Daly UM; Hetherington K; McGill BC; Ellis SJ; Kelada L; Donoghoe MW; Evans H; Anazodo A; Patterson P; Cohn RJ; Wakefield CE, 2021, 'How Are Families Faring? Perceived Family Functioning among Adolescent and Young Adult Cancer Survivors in Comparison to Their Peers', Journal of Adolescent and Young Adult Oncology, 10, pp. 711 - 719, http://dx.doi.org/10.1089/jayao.2020.0215

Harrison R; Raman M; Walpola RL; Chauhan A; Sansom-Daly UM, 2021, 'Preparing for partnerships in cancer care: an explorative analysis of the role of family-based caregivers', BMC Health Services Research, 21, http://dx.doi.org/10.1186/s12913-021-06611-0

Sansom-Daly UM; Lobb EA; Evans HE; Breen LJ; Ugalde A; Best M; Zomerdijk N; Beasley EA; Taylor KL; Clayton J; Sharpe L; Bartula I; Olver I, 2021, 'To be mortal is human: Professional consensus around the need for more psychology in palliative care', BMJ Supportive and Palliative Care, 11, pp. 401 - 403, http://dx.doi.org/10.1136/bmjspcare-2021-002884

Sansom‐daly UM; Wakefield CE; Signorelli C; Donoghoe MW; Anazodo A; Sawyer SM; Osborn M; Viney R; Daniell N; Faasse K; Cohn RJ; Sansom-Daly U, 2021, 'Patterns and predictors of healthcare use among adolescent and young adult cancer survivors versus a community comparison group', Cancers, 13, pp. 5270, http://dx.doi.org/10.3390/cancers13215270

Wakefield CE; Sansom‐daly UM; McGill BC; Hetherington K; Ellis SJ; Robertson EG; Donoghoe MW; McCarthy M; Kelada L; Girgis A; King M; Grootenhuis M; Anazodo A; Patterson P; Lowe C; Dalla‐pozza L; Miles G; Cohn RJ; Sansom-Daly U, 2021, 'Providing psychological support to parents of childhood cancer survivors: ‘cascade’ intervention trial results and lessons for the future', Cancers, 13, pp. 5597, http://dx.doi.org/10.3390/cancers13225597

Davies JP; Mcgill BC; Sansom-Daly UM; Wakefield CE; Kelly DM, 2021, '"This Is the First Time I've Talked about This": Considerations When Conducting Qualitative Research Interviews with Adolescents and Young Adults with Cancer', Journal of Adolescent and Young Adult Oncology, 10, pp. 540 - 548, http://dx.doi.org/10.1089/jayao.2020.0122

Ugalde A; Winter N; Sansom-Daly UM; Rhee J; Jongebloed H; Bergin RJ; Livingston PM, 2021, 'Effective integration of caregivers and families as part of the care team for people with cancer', Australian journal of general practice, 50, pp. 527 - 531, http://dx.doi.org/10.31128/AJGP-03-21-5897

McLoone J; Wakefield CE; Sansom-Daly UM; Thornton-Benko E; Govender D; Gabriel M; Walwyn T; Signorelli C; Johnston K; Cohn RJ, 2021, 'The lived experience of children and adolescents with cancer', Australian Journal of General Practice, 50, pp. 545 - 549, http://dx.doi.org/10.31128/AJGP-04-21-5945

Sansom‐daly UM; Wakefield CE; Ellis SJ; McGill BC; Donoghoe MW; Butow P; Bryant RA; Sawyer SM; Patterson P; Anazodo A; Plaster M; Thompson K; Holland L; Osborn M; Maguire F; O’dwyer C; Lourenco RDA; Cohn RJ; Sansom-Daly U, 2021, 'Online, group‐based psychological support for adolescent and young adult cancer survivors: Results from the recapture life randomized trial', Cancers, 13, pp. 2460, http://dx.doi.org/10.3390/cancers13102460

Clarke K; Patterson P; McDonald FEJ; Wakefield CE; Sansom-Daly U; Zebrack B, 2021, 'The Development and Process Evaluation of a 3-Day Acceptance and Commitment Therapy Group Program for Adolescent Cancer Survivors', Child and Youth Care Forum, 50, pp. 229 - 246, http://dx.doi.org/10.1007/s10566-020-09571-4

Schilstra CE; Fardell JE; Burns MA; Ellis SJ; Anazodo AC; Trahair TN; Sansom-Daly UM; Gok C, 2021, 'Determinants of social functioning among adolescents and young adults with cancer: A systematic review', Psycho-Oncology, 30, pp. 1626 - 1642, http://dx.doi.org/10.1002/pon.5740

Hsu J; Sansom-Daly UM; Hetherington K; Ellis SJ; Donoghoe MW; Cohn RJ; Zentella-Tusie A; Wakefield CE, 2021, 'Health service and medication use of parents of childhood cancer survivors: a controlled comparison study', Acta Oncologica, 60, pp. 1325 - 1334, http://dx.doi.org/10.1080/0284186X.2021.1955968

Sansom-Daly UM; Hetherington K; Hetherington K; McGill BC; McGill BC; Kelada L; Kelada L; McLoone J; McLoone J; Signorelli C; Signorelli C; Winkler L; Winkler L; Robertson EG; Robertson EG; Wakefield CE; Wakefield CE; Ellis SJ; Ellis SJ, 2021, 'Promise, pitfalls and progress of on-line cognitive behavioural therapy: Lessons learned from a paediatric oncology unit', QUADERNI DI PSICOTERAPIA COGNITIVA, pp. 85 - 100, http://dx.doi.org/10.3280/qpc47-2020oa11207

McLoone J; Wakefield CE; Taylor N; Johnston K; Sansom-Daly UM; Cohen J; O'Brien TA; Cohn RJ; Signorelli C, 2020, 'The COVID-19 pandemic: Distance-delivered care for childhood cancer survivors', Pediatric Blood and Cancer, 67, http://dx.doi.org/10.1002/pbc.28715

Lorimer SB; Sansom-Daly UM; Stech EP; Newby JM, 2020, 'Predictors of health anxiety in cancer patients' loved ones: A controlled comparison', Psycho-Oncology, 29, pp. 1874 - 1882, http://dx.doi.org/10.1002/pon.5517

Sansom-Daly UM; Bradford N, 2020, 'Grappling with the “human” problem hiding behind the technology: Telehealth during and beyond COVID-19', Psycho-Oncology, 29, pp. 1404 - 1408, http://dx.doi.org/10.1002/pon.5462

Baenziger J; Hetherington K; Wakefield CE; Carlson L; McGill BC; Cohn RJ; Michel G; Sansom-Daly UM, 2020, 'Understanding parents’ communication experiences in childhood cancer: a qualitative exploration and model for future research', Supportive Care in Cancer, 28, pp. 4467 - 4476, http://dx.doi.org/10.1007/s00520-019-05270-6

Kelada L; Wakefield CE; Vetsch J; Schofield D; Sansom-Daly UM; Hetherington K; O'Brien T; Cohn RJ; Anazodo A; Viney R; Zeppel MJB, 2020, 'Financial toxicity of childhood cancer and changes to parents’ employment after treatment completion', Pediatric Blood and Cancer, 67, http://dx.doi.org/10.1002/pbc.28345

Husson O; Poort H; Sansom-Daly UM; Netea-Maier R; Links T; Mols F, 2020, 'Psychological Distress and Illness Perceptions in Thyroid Cancer Survivors: Does Age Matter?', Journal of Adolescent and Young Adult Oncology, 9, pp. 375 - 383, http://dx.doi.org/10.1089/jayao.2019.0153

Sansom-Daly UM; Wakefield CE; Patterson P; Cohn RJ; Rosenberg AR; Wiener L; Fardell JE, 2020, 'End-of-Life Communication Needs for Adolescents and Young Adults with Cancer: Recommendations for Research and Practice', Journal of Adolescent and Young Adult Oncology, 9, pp. 157 - 165, http://dx.doi.org/10.1089/jayao.2019.0084

Sariman JA; Harris NM; Harvey D; Sansom-Daly UM, 2020, 'Experiences of Young People Living with Cancer in Nonmetropolitan Areas: A Review of the Literature', Journal of Adolescent and Young Adult Oncology, 9, pp. 133 - 144, http://dx.doi.org/10.1089/jayao.2019.0053

Evans HE; Sansom-Daly UM; Bryant R, 2020, 'Paediatric advance care plans: a cross-sectional survey of healthy young adults', BMJ Supportive and Palliative Care, 12, pp. E654 - E655, http://dx.doi.org/10.1136/bmjspcare-2019-001963

Radomski AD; Bagnell A; Curtis S; Hartling L; Newton AS, 2020, 'Examining the Usage, User Experience, and Perceived Impact of an Internet-Based Cognitive Behavioral Therapy Program for Adolescents With Anxiety: Randomized Controlled Trial.', JMIR Ment Health, 7, pp. e15795, http://dx.doi.org/10.2196/15795


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