By Professor Claire Elizabeth Wakefield

Conference Papers

Wakefield C; Meiser B; Homewood J; Lobb E; Kirk J; Tucker K, 2003, 'Development of two decision aids for genetic testing for hereditary cancer.', in AMERICAN JOURNAL OF HUMAN GENETICS, UNIV CHICAGO PRESS, CALIFORNIA, LOS ANGELES, pp. 360 - 360, presented at Annual Meeting of the American-Society-of-Human-Genetics, CALIFORNIA, LOS ANGELES, 04 November 2003 - 08 November 2003, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000185599701114&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1

Conference Posters

Macintosh R; Nevin S; Le Marne F; McGill B; Sachdev R; Wakefield C; Bye A; Palmer E, 2019, 'Co-development of education and support resources for families with severe early-onset genetic epilepsy', Welcome Genome Campus, UK, presented at World Congress of Genetic Counselling, Welcome Genome Campus, UK, 02 October 2019 - 04 October 2019

Conference Presentations

Nevin S; Wakefield C; Le Marne F; Beavis E; Macintosh R; Sachdev R; Bye A; Palmer E; Nunn K, 2021, 'Evaluating positive psychology resources among caregivers of a child with a genetic epilepsy', presented at The Australian and New Zealand Child Neurology Society (ANZCNZ) 9th Annual Scientific Meeting, Held virtually, 13 September 2021 - 15 September 2021

Anazodo A; Logan S; Wakefield CE; Cohn R; Stern K; Agresta F; Jayasinghe Y; Deans R; Segelov E; McLachlan RI; Gerstl B; Sullian E; Ledger W, 2018, 'Oncofertility care and the impact on reproductive concerns, psychological distress and satisfaction in cancer patients at diagnosis, parents and partners', presented at 3rd Global Adolescent and Young Adult Cancer Congress, Sheraton Grand Elizabeth Street Sydney, 04 December 2018 - 06 December 2018

Logan S; Anazodo A; Wakefield C; Cohn R; Stern K; Agresta F; Jayasinghe Y; Deans R; Segelov E; Mclachlan R; Gerstl B; Sullivan E; Ledger W, 2018, 'Oncofertility care and the impact on reproductive concerns, psychological distress and satisfaction in cancer patients at diagnosis, parents and partners', presented at Fertility Society of Australia, Melbourne, 10 September 2018 - 12 September 2018

Anazodo AC; Stern C; MaLachlan R; Gerstl B; Agresta F; Cohn R; Jayasinghe Y; Wakefield CE; Daly G; Gilbert L; Orme L; Wand H; Viney R; Gillam L; Deans R; Jetti M; Chapman M; Ledger W; Sullivan E, 2015, 'Australasian Oncofertility Registry: Monitoring referral patterns and the uptake, quality and complications of fertility preservation strategies in Australia and New Zealand.', presented at Fertility Society of Australia Conference 2015, Canberra Australia, 13 September 2015 - 15 September 2015

Sansom-Daly U; Wakefield C; McGill B; Wilson H; Robertson E; Ellis S; Doolan E; Patterson P; Cohn R, 2015, 'Clinical challenges in implementing psychosocial support in the online space: experiences from the 'Recapture Life' trial', https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000358255000027&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1

Donovan L; Wakefield C; Russell V; Cohn R, 2015, 'Transitional social support: a developing framework for hospital-based bereavement care following the death of a child from cancer', https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000358255000045&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1

Wakefield C; Drew D; Doolan E; Young A; Cohn R, 2015, 'Translation of research to practice for grandparents of children with cancer: national dissemination and evaluation of a new resource', https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000358255000025&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1

McLoone JK; Wakefield CE; Cohn RJ, 2014, 'Empowering Childhood Cancer Survivors: What Information Do Long Term Follow-Up Clinic Attendees and Non-Attendees Need?', https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000344003700530&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1

Drew D; Wakefield CE; Ellis S; Doolan EJ; McLoone J; Cohn RJ, 2013, ''Give as much help as you can but tread carefully': Grandparenting across the generations when a grandchild is diagnosed with cancer.', presented at 45th Congress of the International Society of Paediatric Oncology (SIOP), Hong Kong, -

McLoone J; Wakefield CE; Cohn RJ, 2013, 'Comparing the models of care utilised by Australia and New Zealand childhood cancer long term follow-up clinics.', presented at Australia and New Zealand Children's Haematology and Oncology Group (ANZCHOG), Annual Scientific Meeting, Melbourne, Australia

McLoone J; Wakefield CE; Cohn RJ, 2013, 'Sleep needs of parents caring for children with cancer.', presented at Australian and New Zealand Children's Haematology and Oncology Group (ANZCHOG), Annual Scientific Meeting, Melbourne, Australia

McLoone J; Wakefield CE; Evans N; Cohn RJ, 2013, 'When the 'all clear' is not so clear: Families' coping with fear of childhood cancer recurrence.', presented at Inaugural Survivorship Conference, Flinders Centre for Cancer Innovation, Adelaide, Australia

Wakefield CE; Evans N; McLoone J; Cohn RJ, 2012, 'The psychological impact of receiving a cancer diagnosis in childhood: Parental experiences and implications for ICU practice.', presented at Australian College of Critical Care Nurses Education Evening, Sydney Children's Hospital, 12 September 2012

McLoone J; Wakefield CE; Cohn RJ, 2012, 'Development of a best practice model of care for suvivours of paediatric cancer.', presented at Australian & New Zealand Children's Oncology group annual scientific meeting, Surfers Paradise, QLD, Australia, 23 August 2012

Wakefield CE; Drew D; Doolan EJ; McLoone J; Cohn RJ; Ellis S, 2012, 'Grandparents of children with cancer need better support: A controlled prevalence study of distress in grandparents of children with, and without, cancer.', presented at 14th Annual World Congress of Psycho-Oncology, Brisbane, Australia, -

Wakefield CE; McLoone J; Fleming C; Butow PN; Daniel G; Cohn RJ, 2011, 'Perceptions of support received and needed by families of childhood cancer survivors recently off treatment.', presented at World Cancer Congress, Dalian, China, 24 May 2011 -

McLoone J; Wakefield CE; Yoong SL; Cohn RJ, 2011, 'Parental Sleep Experiences on the Paediatric Oncology Ward.', presented at 13th Annual World Congress of Psycho-Oncology, Antalya, Turkey

Wakefield CE; McLoone J; Cohn RJ, 2011, 'School (re)entry after childhood cancer treatment.', presented at Inaugural Australasian H.E.L.P (Health, Educators, Learners and Practitioners) Conference, Coogee Beach, Sydney, Australia

Wakefield CE; McLoone J; Sansom-Daly U; Fleming C; Lenthen K; Butow PN; Cohn RJ, 2010, 'Decision-making during and after cancer treatment: A qualitative study of adolescent and family experiences.', presented at Australian and New Zealand Children's Haematology and Oncology Group (ANZCHOG) Annual Scientific Meeting, Sydney, Australia, 03 September 2010 - 05 September 2010

Lenthen K; Wakefield CE; McLoone J; Cohn RJ, 2010, 'The psychological impact of completing childhood cancer treatment on adolescent patients and their families.', presented at American Paediatric Oncology Social Workers Conference, Anaheim, California, USA, 28 April 2010

Wakefield CE; McLoone J; Fleming C; Butow PN; Cohn RJ, 2010, ''Suddenly he's dropped from an 'A' student to a 'C'": A qualitative investigation of the educational experiences and concerns of young cancer survivors and their families.', presented at OZPOS/PoCoG Psycho-Oncology Professional Day: 'Optimising psychosocial care through clinical and research excellence', 37th Clinical Oncological Society of Australia (COSA) Annual Scientific Meeting, Melbourne, Australia, -

Wakefield CE; McLoone J; Butow PN; Lenthen K; Cohn RJ, 2010, 'Perceptions of support received and needed by young people who have recently completed cancer treatment and their families.', presented at Sydney Cancer Conference, Sydney, Australia

Wakefield CE; McLoone J; Goodenough BJ; Lenthen K; Cairns DR; Cohn RJ, 2009, 'Finishing Cancer Treatment: The positives and negatives for adolescents and their families.', presented at Leukaemia Foundation of Australia annual training conference, Adelaide, Australia, 15 October 2009

Wakefield CE; McLoone J; Goodenough BJ; Lenthen K; Cairns DR; Cohn RJ, 2009, 'The CCC&BD's Behavioural Sciences Unit: Current and future projects.', presented at Kid's Cancer Update, Sydney Children's Hospital, 30 August 2009

Wakefield CE; McLoone J; Goodenough BJ; Lenthen K; Cairns DR; Cohn RJ, 2009, 'The psychosocial impact of completing cancer treatment on children and their familes.', presented at Journal Club, Cenre for Children's Cancer and Blood Disorders, 09 March 2009

Lenthen K; Wakefield CE; McLoone J; Goodenough BJ; Cohn RJ, 2009, 'Completing childhood cancer treatment and the psychological impact: a milestone or millstone with families?', presented at Australian New Zealand Children's Haematology and Oncology (ANZCHOG) Annual Scientific Meeting, Adelaide, Australia

McLoone J; Wakefield CE; Goodenough BJ; Cairns DR; Lenthen K; Butow PN; Cohn RJ, 2009, 'Finishing cancer treatment: the positives and negatives for adolescents and their families.', presented at 36th Clinical Oncological Society of Australia (COSA) Annual Scientific Meeting, Gold Coast, QLD, Australia

Wakefield CE, 2006, 'Communication aids versus take-home tools: Comparing the results of 2 randomised controlled trials', presented at Meeting of the SESIAHS Hereditary Cancer Clinics, Prince of Wales hospital, Sydney

Wakefield CE, 2006, 'Decision aid implementation issues: Two decision aids for genetic testing for cancer risk', presented at Meeting of Research in Oncology, Medical Psychology (ROMP) oral presentation series, Royal Prince Alfred Hospital, Sydney

Wakefield CE, 2003, 'Development of two decision aids for individuals considering genetic testing of breast and ovarian cancer and HNPCC risk', presented at Clinical Epidemiology Program -Seminar Series, Ottawa Health Research Institute, Canada

Conference Abstracts

Sansom-Daly U; Evans H; Juhrmann M; Wiener L; Rosenberg AR; Weaver M; Darlington A-S; Mack JW; Schulte F; Trethewie S; Fernando RA; Lindsay T; Herbert A; Cable M; Briggs N; Cohn RJ; Anazodo A; Wakefield CE; Group GAAYACAE-O-LS, 2026, 'Defining when and how to support palliative care communication: International consensus on timing and clinician training priorities for adolescents and young adults with cancer.', in Journal of Clinical Oncology, American Society of Clinical Oncology (ASCO), Vol. 44, pp. 12103 - 12103, http://dx.doi.org/10.1200/jco.2026.44.16_suppl.12103

Signorelli C; McLoone J; Sansom-Daly U; Wakefield CE; Alchin J; Soleymani S; Thornton-Benko E; Johnston K; Baldwin R; Nelson A; Govender D; Neville K; Cohn RJ, 2026, 'The Engage program for childhood cancer survivors: Results from a multidisciplinary, distance-delivered intervention.', in Journal of Clinical Oncology, American Society of Clinical Oncology (ASCO), Vol. 44, pp. 1670 - 1670, http://dx.doi.org/10.1200/jco.2026.44.16_suppl.1670

Signorelli C; McLoone J; Sansom-Daly U; Wakefield CE; Alchin J; Soleymani S; Thornton-Benko E; Johnston K; Baldwin R; Nelson A; Govender D; Neville K; Cohn RJ, 2026, 'The Engage program for childhood cancer survivors: Results from a multidisciplinary, distance-delivered intervention.', in JOURNAL OF CLINICAL ONCOLOGY, LIPPINCOTT WILLIAMS & WILKINS, IL, Chicago, Vol. 44, presented at Annual Meeting of the American-Society-of-Clinical-Oncology (ASCO), IL, Chicago, 29 May 2026 - 02 June 2026, http://dx.doi.org/10.1200/JCO.2026.44.16_suppl.1670

Wakefield CE; Schilstra CE; Bedia GE; Wiener L; Ilbawi A; Palacios-Derflingher L; Dovers E; Cayrol J, 2026, 'Enduring grief after cancer: Global findings from bereaved families in the WHO Lived Experience of Cancer study', in Journal of Pain and Symptom Management, Elsevier, Vol. 71, pp. e838 - e839, http://dx.doi.org/10.1016/j.jpainsymman.2026.04.103

McKay S; Mazariego C; Elias J; McLoone J; Signorelli C; Wakefield C; Cohn R; Ayliff N, 2023, 'Using process mapping to capture variability within paediatric cancer survivorship services: understanding factors influencing implementation of the Engage program', in Proceedings of the 2nd Implementation Science Health Conference Australia: Sydney, NSW, Australia, 23-24 March 2023, Implementation Science, Sydney, Australia, Vol. 18, pp. 38 - 38, presented at Implementation Science Health Conference Australia, Sydney, Australia, 23 March 2023 - 24 March 2023, http://dx.doi.org/10.1186/s13012-023-01292-1

Gereis J; Hetherington K; Robertson E; Ziegler D; Wakefield C, 2022, 'PARENTS' AND PATIENTS' UNDERSTANDING OF A PRECISION MEDICINE TRIAL FOR HIGH-RISK CHILDHOOD CANCER', in PEDIATRIC BLOOD & CANCER, WILEY, Vol. 69, pp. S399 - S399, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000859203901450&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1

Body A; Wakefield C; Luong VTT; Donoghoe M; Bolanos NAF; Anazodo A; Ho C; Grech L; Ahern ES; Segelov E, 2022, 'Patient-reported toxicity and quality of life following Sars-CoV-2 vaccination in adults and children with cancer.', in Journal of Clinical Oncology, American Society of Clinical Oncology (ASCO), Vol. 40, pp. lba12068 - lba12068, http://dx.doi.org/10.1200/jco.2022.40.17_suppl.lba12068

Mazariego CG; Dobson M; McKay S; McGill B; Daly R; Wakefield C; Ziegler D; Taylor N, 2022, 'Designing for implementation: co-design of a paediatric oncology medicines database (ProCure) to support complex care provision for children with a hard-to-treat cancer', in ASIA-PACIFIC JOURNAL OF CLINICAL ONCOLOGY, WILEY, Vol. 18, pp. 229 - 229

Elias J; McLoone JK; Signorelli C; Mazariego C; McKay S; Wakefield CE; Cohn RJ; Taylor NJ, 2022, 'Developing an intervention logic model for 'Engage': A novel, multi-disciplinary program for survivors of childhood cancer', in ASIA-PACIFIC JOURNAL OF CLINICAL ONCOLOGY, WILEY, Vol. 18, pp. 232 - 232

Sansom-Daly UM; Wiener L; Rosenberg A; Weaver M; Poort H; Darlington A-S; Schulte F; Herbert A; Sue L; Anazodo A; Trethewie S; Fernando RA; Cohn RJ; Lindsay T; Donovan L; Mack J; Evans HE; Cable M; Girgis A; Wakefield CE, 2022, 'Improving capacity for equitable end-of-life communication for adolescents and young adults with cancer: What training do health-professionals need to facilitate best-practice?', in ASIA-PACIFIC JOURNAL OF CLINICAL ONCOLOGY, WILEY, Vol. 18, pp. 62 - 63

Sansom-Daly UM; Evans HE; Wiener L; Patterson P; Anazodo A; Girgis A; Cohn RJ; Wakefield CE, 2022, 'Improving end-of-life communication for all adolescents and young adults with cancer: A multi-perspective, mixed-methods evaluation of the voicing my CHOiCES™ tool', in ASIA-PACIFIC JOURNAL OF CLINICAL ONCOLOGY, WILEY, Vol. 18, pp. 97 - 98

McLoone J; Signorelli C; Wakefield CE; Donoghoe M; Johnston K; Bell R; Cohn RJ, 2022, 'The 'ENGAGE' program: Effective childhood cancer survivorship care', in ASIA-PACIFIC JOURNAL OF CLINICAL ONCOLOGY, WILEY, Vol. 18, pp. 80 - 80

Ha L; Mizrahi D; Johnston K; Drew D; Diaz C; Cohn RJ; Yacef K; Signorelli C; Wakefield CE; Simar D, 2021, 'Improving physical activity levels among childhood cancer survivors: A digital educational program', in ASIA-PACIFIC JOURNAL OF CLINICAL ONCOLOGY, WILEY, Vol. 17, pp. 13 - 13, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000693805000015&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1

Robertson E; Wakefield C; Cohn R; Robert B; Donoghoe M; Ziegler D; Fardell J; Mitchell R; O'Brien T, 2019, 'Delta: A Parent and Patient Decision Aid to Support Clinical Trial Decision-Making in Childhood Cancer', in PEDIATRIC BLOOD & CANCER, WILEY, Vol. 66, pp. S118 - S118, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000488458001090&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1

Fardell J; Wakefield C; Burns M; Marshall G; Donnan B; Walwyn T; Barton B; Lum A; Cohn R, 2019, 'Development of a School Support Website for Children and Adolescents with Cancer (for Educational Day Series: Gaps and Models of Care for Schooling After Cancer)', in PEDIATRIC BLOOD & CANCER, WILEY, Vol. 66, pp. S409 - S409, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000488458004182&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1

Wakefield CE; Sansom-Daly U; Hetherington K; Ellis S; Girgis A; McCarthy M; Miles G; Patterson P; Awford K; Cohn R, 2019, 'Feasibility, Acceptability and Safety of a Novel Online Group-Based Psychological Support Program for Parents After Their Child's Cancer Treatment: A Three-Armed Randomized Trial of 'Cascade'', in PEDIATRIC BLOOD & CANCER, WILEY, Vol. 66, pp. S12 - S12, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000488458000019&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1

Mcgill B; Wakefield C; Vetsch J; Duve E; Warby M; Cohn R; Tucker K, 2019, 'Parents' and Young Adults' Perspectives on Undertaking Cancer-Related Genetic Testing in Childhood: A Mixed-Methods Study', in PEDIATRIC BLOOD & CANCER, WILEY, Vol. 66, pp. S117 - S118, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000488458001089&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1

Lum A; Fardell J; Wakefield C; Schilstra C; Burns M; Ellis S; Marshall G; Donnan B; Walwyn T; Barton B; Cohn R, 2019, 'Processes of Support in Australia for Students with Cancer: Current Strengths and Weaknesses (For Educational Day: Gaps and Models of Care for Schooling After Cancer)', in PEDIATRIC BLOOD & CANCER, WILEY, Vol. 66, pp. S120 - S121, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000488458001094&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1

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