By Professor Claire Elizabeth Wakefield

Conference Abstracts

Sansom-Daly UM; Wakefield CE; Wiener L; Evans HE; McGill BC; Patterson P; Donovan L; Drew D; Girgis A; Sanson-Fisher R; Anazodo A; Cohn RJ, 2017, 'Doing Better at 'Difficult Discussions': Australian Oncology Professionals' Perspectives on End-of-Life Communication with Adolescents and Young Adults with Cancer', in ASIA-PACIFIC JOURNAL OF CLINICAL ONCOLOGY, WILEY, Vol. 13, pp. 95 - 96, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000413954500097&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1

Wakefield C; Doolan E; Signorelli C; Tucker K; Patenaude A; Vetsch J; Cohn R, 2017, 'Genetics-Related Beliefs, and Information and Service Needs, of Childhood Cancer Survivors and Their Parents', in PEDIATRIC BLOOD & CANCER, WILEY, Vol. 64, pp. S59 - S60, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000408978201111&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1

Signorelli C; Wakefield CE; Fardell JE; Michel G; Jones JM; Turpin KH; Emery J; McLoone JK; Cohn RJ, 2017, 'Improving the Quality of Follow-Up Care for Pediatric Cancer Survivors: A Mixed-Methods Study on Preferences for Models of Survivorship Care', in PEDIATRIC BLOOD & CANCER, WILEY, Vol. 64, pp. S379 - S380, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000408978203268&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1

Ellis S; Wakefield C; Sansom-Daly U; Juraskova I; Butow P, 2017, 'CAT NAP (Carers at night in pediatrics): Development and evaluation of an evidence-based intervention to improve sleep in parents of children with cancer', in PSYCHO-ONCOLOGY, WILEY, Vol. 26, pp. 103 - 103, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000407688900276&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1

Robertson E; Fardell J; Cohn R; Wakefield C, 2017, 'Decision making in pediatric oncology: Needs, preferences, and experiences of families', in PSYCHO-ONCOLOGY, WILEY, Vol. 26, pp. 104 - 104, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000407688900277&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1

Touyz L; Wakefield C; Cohen J; Cohn R, 2016, 'Design and Rationale for Reboot Kids: A Parent-Targeted Behavioural Intervention to Promote Healthy Eating Habits in Children Recently off Cancer Treatment', in PEDIATRIC BLOOD & CANCER, WILEY-BLACKWELL, Vol. 63, pp. S58 - S58, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000384818800562&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1

Wakefield C; Georgiou G; McGill B; Fardell J; Signorelli C; Hanlon L; Tucker K; Patenaude A; Cohn R, 2016, 'Genetic Testing for Childhood Cancer Survivors' Risk of Late Effects: Consumer Understanding, Acceptance and Willingness-To-Pay', in PEDIATRIC BLOOD & CANCER, WILEY-BLACKWELL, Vol. 63, pp. S88 - S88, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000384818800705&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1

Fardell J; Wakefield C; Signorelli C; Russo S; McLoone J; Cohn R, 2016, 'Health Behaviours in Survivors of Childhood Cancer: Modifiable Risk Factors for Developing Late Effects', in PEDIATRIC BLOOD & CANCER, WILEY-BLACKWELL, Vol. 63, pp. S61 - S61, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000384818800575&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1

Fardell J; Donovan L; Wakefield C; Russell V; Mitchell R; O'Brien T; Ziegler D; Glenn M; Cohn R, 2016, 'Outcomes of Bereaved Parents Whose Child Did or Did not Participate in An Early Phase Clinical Trial', in PEDIATRIC BLOOD & CANCER, WILEY-BLACKWELL, Vol. 63, pp. S62 - S62, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000384818800579&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1

Robertson E; Fardell J; O'Brien T; Cohn R; Mitchell R; Drew D; Ziegler D; Marshall G; Wakefield C, 2016, 'Treatment Decision Making for Young People with Cancer and Their Parents', in PEDIATRIC BLOOD & CANCER, WILEY-BLACKWELL, Vol. 63, pp. S232 - S232, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000384818801393&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1

Wakefield C; Sansom-Daly U; Brittany MG; Robertson E; Ellis S; Marshall K; Hetherington K; Doolan E; Cohn R, 2016, ''Cascade': A randomized trial of online support for parents after their child's cancer treatment', in PSYCHO-ONCOLOGY, WILEY-BLACKWELL, Dublin, Ireland, Vol. 25, pp. 106 - 107, presented at World Congress of Psycho-oncology, Dublin, Ireland, 17 October 2016 - 21 October 2016, http://dx.doi.org/10.1002/pon.v25.S3/issuetoc

Wakefield C; Georgiou G; McGill B; Fardell J; Signorelli C; Hanlon L; Tucker K; Patenaude A; Cohn R, 2016, 'Genetic testing for childhood cancer survivors' risk of late effects: Consumer understanding, acceptance and willingness-to-pay', in PSYCHO-ONCOLOGY, WILEY-BLACKWELL, Vol. 25, pp. 107 - 108, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000385942700235&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1

Tillemans R; Lourenco RDA; Fardell JE; Wakefield C; Signorelli C; Jordana M; Cohn R, 2016, 'What influences quality of life in paediatric cancer survivors?', in QUALITY OF LIFE RESEARCH, SPRINGER, Vol. 25, pp. 162 - 163, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000398451600397&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1

Donovan L; Wakefield C; Cohn R; Russell V, 2015, 'Recreating life after death-the place of professional and social support in the lives of parents following the death of a child from cancer', in PSYCHO-ONCOLOGY, WILEY-BLACKWELL, Vol. 24, pp. 13 - 14, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000358255000026&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1

McLoone JK; Wakefield CE; Lawrence R; Cohn RJ, 2013, 'WHERE TO CARE FOR CHILDHOOD CANCER SURVIVORS? SURVIVOR AND ONCOLOGY SERVICE PROVIDER PERSPECTIVES', in ASIA-PACIFIC JOURNAL OF CLINICAL ONCOLOGY, WILEY-BLACKWELL, Vol. 9, pp. 124 - 124, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000325868800204&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1

Wakefield C; Drew D; Ellis S; Cohn RJ, 2011, 'MEETING THE INFORMATION NEEDS OF GRANDPARENTS OF CHILDREN WITH CANCER', in PEDIATRIC BLOOD & CANCER, WILEY PERIODICALS, INC, Vol. 57, pp. 853 - 853, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000295239600599&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1

Drew D; Punch D; Ellis S; Wakefield CE, 2011, 'KEEPING children connected - bringing the classroom into the bone marrow transplant room', in BONE MARROW TRANSPLANTATION, NATURE PUBLISHING GROUP, FRANCE, Paris, Vol. 46, pp. S401 - S401, presented at 37th European Group for Bone and Marrow Transplantation/27th Meeting of the EBMT Nurses Group/10th Meeting of the EBMT Management Group, FRANCE, Paris, 03 April 2011 - 06 April 2011, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000289195403027&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1

Preprints

Body A; Donoghoe M; Lal L; Wakefield C; Ahern ES; Anazodo A; Fuentes Bolanos NA; Padhye B; Downie P; Opat S; Hamad N; Leahy MF; Milch V; Segelov E, 2024, Vaccine beliefs, adverse effects, and quality of life in patients with cancer undergoing routine COVID-19 vaccination, http://dx.doi.org/10.1101/2024.06.02.24308345

Boensvang NN; Weibel M; Wakefield CE; Bidstrup PE; Olsen M; Nissen KB; Spager V; Fridh MK; Larsen HB, 2023, Online Ambassador Visits for Hospitalized Children With Cancer: Qualitative Evaluation of Implementation (Preprint), http://dx.doi.org/10.2196/preprints.53309

Kelada L; Robertson E; McKay S; McGill B; Daly R; Mazariego C; Taylor N; Tyedmers E; Evans HE; Wakefield C; Ziegler D, 2023, Communicating with families of young people with hard-to-treat cancers: Healthcare professionals’ perspectives on challenges, skills, and training, http://dx.doi.org/10.22541/au.168438965.52340962/v1

Nevin S; McGill B; Kelada L; Hilton G; Donnell M; Elvidge K; Farrar M; Baynam G; Katz N; Donovan L; Grattan S; Signorelli C; Bhattacharya K; Nunn K; Wakefield C, 2023, ‘The psychosocial impact of childhood dementia on children and their parents: A systematic review’, http://dx.doi.org/10.21203/rs.3.rs-2282768/v1

E TK; Wakefield C; Signorelli C; Day A; Vernon-Roberts A; Ooi C, 2023, Gastroenterology services for patients with Cystic Fibrosis across Australia and New Zealand: A multi-stakeholder assessment of patients’ and professionals’ perspectives, http://dx.doi.org/10.22541/au.168271385.50624670/v1

Donoghue M; Body A; Wakefield C; Ahern E; Segelov E, 2023, SARS-CoV-2 post-vaccine surveillance studies in Australian children and adults with cancer: SerOzNET Quality of Life, Toxicity and Vaccine Beliefs Substudy Statistical Analysis Plan, http://dx.doi.org/10.1101/2023.02.28.23286595

Fleming C; Murphy-Alford A; Cohen J; Fleming M; Wakefield C; Naumann F, 2021, Poor diet quality and adverse eating behaviours in young survivors of childhood cancer, http://dx.doi.org/10.22541/au.161107475.55687074/v1

Schaffer M; McLoone J; Wakefield C; Brierley M-E; Girgis A; McCarthy M; Thornton-Benko E; Chan R; Johnston K; Cohn R; Signorelli C, 2021, eHealth tools for childhood cancer survivorship care: A qualitative analysis of survivors’, parents’, and general practitioners’ views., http://dx.doi.org/10.22541/au.161893480.05196827/v1

Anazodo A; Choi S; Signorelli C; Ellis S; Johnston K; Wakefield C; Deans R; Neville K; Cohn RJ, 2020, Reproductive Care of Childhood and Adolescent Cancer Survivors: A Twelve-Year Evaluation, http://dx.doi.org/10.22541/au.159160329.93924889

Kariyawasam DST; D'Silva AM; Vetsch J; Wakefield C; Wiley V; Farrar MA, <i>'We Needed This'</i>: Perspectives of Parents and Healthcare Professionals Involved in a Pilot Newborn Screening Program for Spinal Muscular Atrophy, http://dx.doi.org/10.2139/ssrn.3682109

Webster SN; Spunt SL; Cunningham SJ; Wakefield C; Smith SM; Alberts NM; Palesh O; Simons L; Heathcote LC, International Survey of Pediatric Oncologists’ Beliefs and Communication Practices Regarding Symptom Self-Monitoring by Childhood Cancer Survivors, http://dx.doi.org/10.2139/ssrn.4188800

Darlington A-S; Long-Sutehall T; Randall D; Wakefield C; Robinson V; Brierley J, Parents' Experiences of Requests for Organ and Tissue Donation: The Value of Asking, http://dx.doi.org/10.2139/ssrn.3234866

Wakefield C; Doolan EL; Fardell JE; Signorelli C; Veronica QF; Tucker KM; Patenaude AF; Marshall GM; Lock RB; Georgiou G; Cohn RJ, The Avatar Acceptability Study: Survivor, Parent and Community Willingness to Use Patient-Derived Xenografts to Personalize Cancer Care, http://dx.doi.org/10.2139/ssrn.3260779

Other

Touyz L; Cohen J; Wakefield C; Grech A; Garnett S; Gohil P; Cohn R, 2017, Design and rationale for Reboot: A behavioural medicine pilot intervention to increase fruit and vegetable intake in young childhood cancer survivors, http://dx.doi.org/10.2196/preprints.9252.a

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