By Professor Claire Elizabeth Wakefield

Journal articles

McCloskey N; Mahon P; Rassekh SR; Hetherington K; Regier DA; Wakefield CE; Pollard S; Deyell RJ, 2026, 'Impact of precision oncology research in pediatric poor prognosis cancer: patient, parent and healthcare provider perspectives', BMC Cancer, 26, http://dx.doi.org/10.1186/s12885-026-16299-2

Smith MC; Wang Q; Pierce KE; Marsilio K; Wakefield CE; Howell KB; Palmer EE; Kelada L, 2026, 'The psychosocial supports and interventions accessed by family members of patients with developmental and epileptic encephalopathies: A systematic review', Epilepsy and Behavior, 184, http://dx.doi.org/10.1016/j.yebeh.2026.111185

Soosay Raj T; Noble C; Gray A; Moreira DC; Lowe J; Gorostegui M; Anga G; Soma A; Santos MLD; Cross S; Luttrell E; Sullivan M; Cayrol J; Challinor J; Ranasinghe N; McLoone J; Wakefield CE, 2026, 'Mapping Childhood Cancer Care Services in Oceania: Methodological Lessons From the SIOP Global Mapping Programme', Pediatric Blood and Cancer, 73, http://dx.doi.org/10.1002/1545-5017.70579

Tate T; Wakefield CE; Magnus D; Carter BS; Baker JN, 2026, 'Paediatric palliative care and paediatric euthanasia', Lancet Child and Adolescent Health, 10, pp. e26, http://dx.doi.org/10.1016/S2352-4642(26)00191-4

Budden AK; Henry A; Wakefield CE; Abbott JA, 2026, 'Surgeons’ Biological Stress Responses During Fundamentals of Laparoscopic Surgery Exercises: A Descriptive Study', Journal of Minimally Invasive Gynecology, 33, pp. 1327 - 1334, http://dx.doi.org/10.1016/j.jmig.2026.03.011

Ghows C; Schilstra CE; McCleary K; Briggs NE; Kotecha RS; Lourenco RDA; Ramachandran S; Cockcroft R; Conyers R; Cross S; Dalla-Pozza L; Downie P; Revesz T; Osborn M; Alvaro F; Wakefield CE; Marshall GM; Trahair T; Mateos MK; Fardell JE, 2026, 'Tracking Health Related Quality of Life From Diagnosis to Follow-Up Among Australian Children With Acute Lymphoblastic Leukaemia', Pediatric Blood and Cancer, 73, http://dx.doi.org/10.1002/1545-5017.70539

Mazariego C; Ramanathan M; Johnston DA; Li Z; McGill BC; Okamura M; Kelada L; Juraskova I; Wakefield CE; Taylor N, 2026, 'Optimizing Informed Consent for Australian Newborn Bloodspot Screening and Research: Consensus Workshop Insights and Recommendations', International Journal of Neonatal Screening, 12, pp. 65, http://dx.doi.org/10.3390/ijns12030065

Wakefield CE; McLoone JK; Lawrence N; Howard T; Brown Z; Fandialan J; Hegermann M; Gill M, 2026, '‘UNCLOUD’ young lives: development and evaluation of a national peer-to-peer anti-vaping campaign for young people in Australia', BMC Public Health, http://dx.doi.org/10.1186/s12889-026-28534-3

Hetherington K; Hunter JD; Donoghoe MW; McGillycuddy M; McGill BC; Robertson EG; Tyrrell V; Lau LMS; Marron JM; Tucker KM; Marshall GM; Vetsch J; Haber M; Malkin D; Mateos MK; O’Brien TA; Ziegler DS; Wakefield CE, 2026, 'Family experiences of receiving treatment recommendations in a precision medicine trial for poor-prognosis childhood cancer', npj Genomic Medicine, http://dx.doi.org/10.1038/s41525-026-00591-y

Lee J; Evans H; Wakefield CE; Anazodo A; Cohn RJ; McGill BC; Lobb EA; Wiener L; Juhrmann ML; Sansom-Daly UM, 2026, '‘They Need to Hear You Say It’: Healthcare Professionals’ Perspectives on Barriers and Enablers to End-of-Life Discussions With Adolescents and Young Adults With Cancer', Pediatric Blood and Cancer, 73, http://dx.doi.org/10.1002/1545-5017.70369

Irestorm E; Wakefield CE; Houweling R; Hetherington K; McGill BC; McDonald FEJ; Cohn RJ; Sansom-Daly UM, 2026, 'Barriers and facilitators to implementing an online psychological intervention for adolescent and young adult cancer survivors in a community setting', Supportive Care in Cancer, 34, http://dx.doi.org/10.1007/s00520-026-10867-9

Hetherington K; Hunter J; Donoghoe M; McGillycuddy M; McGill B; Robertson E; Tyrrell V; Lau L; Marron J; Tucker K; Marshall G; Vetsch J; Haber M; Malkin D; Mateos M; Brien TO; Ziegler D; Wakefield C, 2026, 'ID #107 Family experiences of precision-guided treatment recommendations for poor prognosis paediatric Central Nervous System (CNS) cancer', Neuro-Oncology Pediatrics, 2, pp. wuag026.020, http://dx.doi.org/10.1093/neuped/wuag026.020

McGill B; Hetherington K; McGillycuddy M; Daly R; Ziegler D; Mateos M; Marshall G; Wakefield C, 2026, 'ID #661 Psychological distress in parents of children with poor prognosis central nervous system (CNS) cancers participating in the PRISM precision medicine trial', Neuro-Oncology Pediatrics, 2, pp. wuag026.264, http://dx.doi.org/10.1093/neuped/wuag026.264

Soleymani S; Hetherington K; McGill B; Ziegler D; Mateos M; Wakefield C, 2026, 'ID #673 Bereaved Parents’ Reflections on PRISM Precision Medicine Trial Participation for Poor-Prognosis Paediatric CNS Cancer', Neuro-Oncology Pediatrics, 2, pp. wuag026.272, http://dx.doi.org/10.1093/neuped/wuag026.272

Rhodes M; Signorelli C; Donoghoe MW; McLoone JK; Wakefield CE; Anazodo A; Sansom-Daly UM; Darlington AS; Sodergren SC; Cohn RJ; Fardell JE, 2026, 'Factors associated with health-related quality of life in survivors of childhood-onset and adult-onset cancer compared to controls', Supportive Care in Cancer, 34, http://dx.doi.org/10.1007/s00520-026-10775-y

Irestorm E; Wakefield CE; Hetherington K; McGill BC; Evans HE; McDonald F; Patterson P; Beattie A; Cohn RJ; Sansom-Daly UM, 2026, 'Recapturing Life: Virtual Peer-Based Psychological Support for Adolescent and Young Adult Cancer Survivors Delivered in the Community', Journal of Adolescent and Young Adult Oncology, 15, pp. 187 - 195, http://dx.doi.org/10.1177/21565333251369689

Alqahtani QM; Mizrahi D; Ha L; Fardell JE; Wakefield CE; Simar D; Cohn RJ; Bray P; Docking K; Dylke E, 2026, 'Self-reported physical fitness domains and perceptions of exercise and fatigue among childhood cancer survivors', Jsams Plus, 7, http://dx.doi.org/10.1016/j.jsampl.2026.100140

Ambler M; Awasthi M; Gerber L; Lin B; Wakefield CE, 2026, 'Musical Rounds: A multisite, mixed-methods feasibility study of a musical legacy session in palliative care', Palliative and Supportive Care, 24, http://dx.doi.org/10.1017/S1478951526102624

Hunter JD; Hetherington K; McGillycuddy M; Wakefield CE; Tucker KM; O’Brien TA; McGill BC; Fuentes-Bolanos NA; Bhatia K; Padhye B; Grant A; Barlow-Stewart K; Warby M; Courtney EK; Peate M, 2026, '“I don’t think I even thought of myself” A mixed-methods study of family experiences of trio germline whole genome sequencing in newly diagnosed childhood cancer', British Journal of Cancer, 134, pp. 1336 - 1351, http://dx.doi.org/10.1038/s41416-026-03354-9

Ha L; Singleton D; Wakefield CE; Cohn RJ; Simar D; Signorelli C, 2026, 'Structured and Unstructured Physical Activity, Screen Time and Quality of Life in Childhood Cancer Survivors', Cancers, 18, http://dx.doi.org/10.3390/cancers18050752

Malone S; Bryan G; Carlisle E; DeCourcey DD; Montez K; Porter A; Agulnik A; Bluebond-Langer M; Kaye EC; Graetz D; Cáceres-Serrano A; Williams A; Cowfer B; Sisk BA; Wakefield CE; Bell CJ; Carlisle E; Williamson FA; Needle-Suarez J; Mack JW; Hanebrink J; Wynja K; Pimenta K; Barton KS; Counts L; Blazin LJ; Johnson LM; Salek M; Rihani R; Paul TK; Wiener L; Kirch R; Hinds P; Hankins JS; Gibson F; Ferrara G, 2026, 'Advancing child health through applied qualitative research', Eclinicalmedicine, 92, http://dx.doi.org/10.1016/j.eclinm.2025.103736

Long S; Evans HE; Wakefield CE; Kasparian NA; McGillivray G; Roscioli T; Firriolo AM; Parmar J; Kelada L, 2026, 'Australian patients' experiences of undergoing whole exome sequencing for fetal structural anomalies prior to receiving results', Journal of Genetic Counseling, 35, http://dx.doi.org/10.1002/jgc4.70158

Kaye EC; Bogetz J; Barton KS; Bell CJ; Johnston EE; Pozzar RA; Superdock A; Thorne S; Weaver MS; Wiener L; Graetz DE; Agulnik A; Ananth P; Barton K; Bell C; Bilbeisi T; Bluebond-Langner M; Bogetz J; Bryan G; Cáceres A; Carlisle E; Counts L; Ferrara G; Fuentes L; Graetz D; Hanebrink J; Herbert A; Hinds P; Hodges J; Johnson L; Johnston E; Mack JW; Malone S; Montez K; Reisinger HS; Rihani R; Salek M; Sisk BA; Thorne S; Wakefield C; Wiener L; Williams A; Williamson F; Wynja K; Zimmermann C; Weaver M; Pozzar R, 2026, 'Expert recommendations for the conduct and appraisal of qualitative research in oncology', Lancet Oncology, 27, pp. e84 - e100, http://dx.doi.org/10.1016/S1470-2045(25)00670-9

Boensvang NN; Fridh MK; Wakefield CE; Bidstrup PE; Larsen HB, 2026, 'How Classmates Experience Visiting Their Hospitalised Peer During Cancer Treatment: A RESPECT Study', Journal of Advanced Nursing, 82, pp. 1667 - 1680, http://dx.doi.org/10.1111/jan.70017

Graetz DE; Sisk BA; Salek M; Blazin LJ; Wakefield CE; Tarbi EC; Thorne S; LeBlanc TW; Hinds PS; Traeger L; Kaye EC; Cáceres-Serrano A; Williams A; Herbert A; Agulnik A; Cowfer B; Levine D; Carlisle E; Gibson F; Bryan G; Ferrara G; Schacht Reisinger H; Bogetz J; Wynja K; Pimenta K; Montez K; Barton KS; Counts L; Sniderman L; Johnson LM; Bluebond-Langner M; Rossell N; Ananth P; Rihani R; Kirch R; Malone S; Bilbeisi T; Paul TK, 2026, 'The power of words: evaluating the role of qualitative methods in cancer research', Lancet Oncology, 27, pp. e73 - e83, http://dx.doi.org/10.1016/S1470-2045(25)00669-2

McKay S; Elias J; Mazariego C; Tyedmers E; Morrow A; Wakefield CE; Ziegler DS; Smith JD; Taylor N, 2026, 'A single logic model capturing clinical, service, and implementation interventions using a practical example in pediatric precision medicine', Jbi Evidence Implementation, http://dx.doi.org/10.1097/XEB.0000000000000600

Nevin SM; Le Marne FA; Kelada L; Wakefield CE; Beavis E; Macintosh R; Palmer EE; McLoughlin R; van Beek A; Wittekind C; Shalhoub C; Lau CYY; Elliot C; Rogers D; Wijetilaka D; Argent E; Cotterell E; Jacobson EE; McCarthy H; Sampaio H; Dalby-Payne J; Doyle K; Bhattacharya K; Lorentzos M; Slade R; Evans R; Pillai S; Mohammad S; Piper S; Sarkozy V; Stark K; Ging J; Sachdev R; Nunn K; Bye A, 2026, 'Connect, pause and reflect: Multidisciplinary clinicians’ shared challenges and sustaining strategies caring for children with Severe Neurological Impairment', European Journal of Paediatric Neurology, 60, pp. 15 - 23, http://dx.doi.org/10.1016/j.ejpn.2025.10.006

Sansom-Daly UM; Irestorm E; Houweling R; Hetherington K; McGill BC; Ellis SJ; Schilstra CE; Donoghoe MW; Bravery BD; Cohn RJ; Anazodo A; Wakefield CE, 2026, 'Do young people who have been treated for cancer identify as ‘survivors’? Adolescents and young adults’ preferences for cancer-related identities in survivorship', Journal of Cancer Survivorship, http://dx.doi.org/10.1007/s11764-026-02074-6

Evans HE; Firriolo AM; Houweling R; Kelada L; Stannard G; Frawley J; McGill BC; Ramus SJ; Lee YC; Friedlander M; Duggan J; Wakefield CE, 2026, 'Evaluating patient perspectives about the acceptability of a novel prognostic gene expression signature for high grade serous ovarian cancer: The OTTA-SPOT study', Gynecologic Oncology, 204, pp. 150 - 157, http://dx.doi.org/10.1016/j.ygyno.2025.11.023

Burns MA; Lah S; Law C; Schilstra CE; Ellis SJ; Wakefield CE; Sansom-Daly UM; Cohn RJ; Marshall GM; Lum A; Donnan B; Walwyn T; Carter A; Fielden P; De Luca CR; Barton B; Drew D; Maguire F; O’Dwyer C; Fardell JE, 2026, 'High School Cancer Experience and Age at Diagnosis: Perspectives of Adolescents, Young Adults, and Parents', Journal of Adolescent and Young Adult Oncology, http://dx.doi.org/10.1177/21565333261438095

Nevin SM; Kelada L; Elvidge KL; Maack M; Hilton G; Kershaw J; Da Ros E; Briggs NE; Farrar MA; Wakefield CE, 2026, 'Navigating the complex landscape of childhood dementia: caregiver psychological well-being, grief, and health system challenges', Journal of Pediatric Psychology, 51, pp. 60 - 72, http://dx.doi.org/10.1093/jpepsy/jsaf095

Nielsen JL; Wakefield CE; McWhirter R; Johnston C; Otlowski M; Tyrrell V; Cowley MJ; Tucker KM; Lyons R; Gill AJ, 2026, 'Regulatory Guidance for the Return of Raw Genomic Data to Research Participants: A Qualitative Interview Study', Journal of Law Medicine and Ethics, http://dx.doi.org/10.1017/jme.2026.10267

Tutika T; Chittem M; Namjoshi S; Patil VC; Kelada L; Wakefield CE, 2026, 'Unmet supportive care needs of family caregivers of children with cancer in India', Journal of Pediatric Nursing, 86, pp. 44 - 50, http://dx.doi.org/10.1016/j.pedn.2025.10.029

Lin GL; White BD; Burk SD; Moriarty JA; Mauser DB; Wakefield CE; Wusthoff CJ; Baker JN, 2026, '“The Most Difficult Conversations We Have”: Resident Experiences With Pediatric Neuroprognostication', Annals of the Child Neurology Society, 4, pp. 227 - 238, http://dx.doi.org/10.1002/cns3.70080

Lin GL; Burk SD; White BD; Moriarty JA; Mauser DB; Wakefield CE; Wusthoff CJ; Baker JN, 2026, 'Education Research: Learning to Prognosticate', Neurology Education, 5, pp. e200306, http://dx.doi.org/10.1212/ne9.0000000000200306

Gereis JM; Hetherington K; Robertson EG; Daly R; McGill BC; Ziegler DS; Wakefield CE, 2025, 'Animated videos for childhood cancer precision medicine: development and evaluation with parents and patients', Supportive Care in Cancer, 33, http://dx.doi.org/10.1007/s00520-025-10191-8

Nobilo A; McLoone J; White M; Smithers-Sheedy H; Anderson J; Lingam R; Bailey C; Wakefield CE; Hancock JE; Hodgins M; Woolfenden S; Steinbeck K; Pierce K; Moore C; Lain S; Ho J; Glasson N; Gialamas A; Culnane E; Cazzolli R, 2025, 'Co-design of an intervention to enhance healthcare transition for adolescents and young adults with chronic medical conditions', Npj Health Systems, 2, http://dx.doi.org/10.1038/s44401-025-00041-4

Hanania JW; Shepherd RF; Wiener L; Sharp KMH; Similuk MN; Denburg AE; Wakefield CE, 2025, 'How We Approach the Integration of Psychological Services in the Care of Children With Cancer Predisposition Syndromes', Pediatric Blood and Cancer, 72, http://dx.doi.org/10.1002/pbc.32065

Schilstra CE; Ellis SJ; Sedger A; Burns MA; Miller KA; Wakefield CE; Cohn RJ; Lah S; Sansom-Daly UM; Anazodo AC; Fardell JE, 2025, 'Social Participation Among Long-Term Survivors of Childhood and Adolescent Cancer', Pediatric Blood and Cancer, 72, http://dx.doi.org/10.1002/pbc.32042

Lei Y; Hetherington K; Daly R; Rensen N; McGill BC; Ziegler DS; Lau LMS; Tyrrell V; Karpelowsky J; Cowley MJ; Tucker KM; Haber M; Barahona P; Wakefield CE, 2025, 'Data Sharing, Biopsies and Patient Confidentiality in a Precision Medicine Trial for Childhood Cancer: A Mixed Method Study of Parents, Oncologists, and Scientists’ Perspectives', Journal of Personalized Medicine, 15, http://dx.doi.org/10.3390/jpm15110531

Robertson EG; Hetherington K; Prain M; Ma A; Ayton LN; Jamieson RV; Shepard E; Boyd L; Hall J; Boyd R; Karandrews S; Feller H; Simunovic MP; Grigg JR; Yamamoto K; Wakefield CE; Gonzalez-Cordero A, 2025, 'Australian research priorities for inherited retinal diseases: a James Lind Alliance priority setting partnership', BMJ Open, 15, pp. e100301, http://dx.doi.org/10.1136/bmjopen-2025-100301

Signorelli C; McLoone J; Wakefield C; Donoghoe M; Alchin JE; Johnston K; Baldwin R; Thornton-Benko E; Webber K; Foreman T; Neville K; Cohn R, 2025, 'Engage: A Survivorship Program to Improve Childhood Cancer Survivors' Self-Efficacy and Quality of Life', JCO Oncology Practice, 21, pp. 1274 - 1286, http://dx.doi.org/10.1200/OP-24-00815

Robertson EG; Kelada L; Ilin R; Palmer EE; Bye A; Jaffe A; Kennedy SE; Ooi CY; Drew D; Wakefield CE, 2025, 'Psychological wellbeing among parents of a child living with a serious chronic illness: A cross-sectional survey study', Journal of Child Health Care, 29, pp. 626 - 641, http://dx.doi.org/10.1177/13674935241238485

Long S; Schofield D; Kraindler J; Vink R; Ross K; Hart N; Evans H; Wilson A; Hyett J; Wakefield CE; Kelada L; Scott H; Lunke S; Wall M; Buckley MF; Fernihough G; McGillivray G; Roscioli T, 2025, 'The PreGen Research Program: Implementing Prenatal Genomic Testing in Australia—A Commentary', Australian and New Zealand Journal of Obstetrics and Gynaecology, 65, pp. 543 - 547, http://dx.doi.org/10.1111/ajo.13936

Docking KM; Hodges R; Campbell L; Chami S; Knijnik SR; Campbell E; Paquier P; Dalla-Pozza L; Wakefield CE; Waugh MC; Messina M; Morgan AT, 2025, 'Clinical Practice Guideline for the Management of Communication and Swallowing in Children Diagnosed With Childhood Brain Tumor or Leukemia', Pediatric Blood and Cancer, 72, http://dx.doi.org/10.1002/pbc.31749

Evans HE; Ralph M; Jaaniste T; Wakefield CE; Sansom-Daly UM, 2025, 'The Rhythm of Connection: Describing the Heartbeats Intervention for Patients and Families Receiving Paediatric Palliative Care', Children, 12, http://dx.doi.org/10.3390/children12070884

Hayes TRC; Sansom-Daly UM; Kelada L; Baenziger J; Hetherington K; Cohn RJ; Holland LR; Plaster M; Houweling R; Wakefield CE, 2025, 'Exploring the impact of cancer on adolescents' and young adults' relational worlds', Journal of Psychosocial Oncology Research and Practice, 7, http://dx.doi.org/10.1097/OR9.0000000000000175

Sansom-Daly UM; McLoone JK; Fardell JE; Evans HE; McGill BC; Robertson EG; Signorelli C; Ellis S; Ha L; Hetherington K; Houweling RE; Nevin SM; Schilstra CE; Mitchell R; Haber M; Cohn RJ; Wakefield CE, 2025, 'Bridging the Gap: Embedding Psychosocial Oncology Research into Comprehensive Cancer Care for Children and Young People', Cancers, 17, pp. 2123 - 2123, http://dx.doi.org/10.3390/cancers17132123

Ha L; Wakefield CE; Jacovou J; Johnston K; Drew D; Donoghoe MW; Mizrahi D; Lourenco RDA; Cohn RJ; Taylor N; Signorelli C; Roughley K; Joyner C; Wright A, 2025, '‘Making Moves’: Protocol for a hybrid effectiveness-implementation pre-post trial of a co-designed online physical activity program for childhood cancer survivors', Jsams Plus, 5, http://dx.doi.org/10.1016/j.jsampl.2025.100099

Schilstra CE; Wakefield CE; McLoone J; Wiener L; Donoghoe MW; Hoffman RI; Echodu M; Ortiz R; Ilbawi A; Cayrol J, 2025, 'Development of a World Health Organization international survey assessing the lived experience of people affected by cancer: outcomes from pilot testing, user feedback, and survey revision', Supportive Care in Cancer, 33, http://dx.doi.org/10.1007/s00520-025-09372-2

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