Select Publications

Journal articles

Sansom-Daly UM; Wakefield CE; Patterson P; Cohn RJ; Rosenberg AR; Wiener L; Fardell JE, 2020, 'End-of-Life Communication Needs for Adolescents and Young Adults with Cancer: Recommendations for Research and Practice', Journal of Adolescent and Young Adult Oncology, vol. 9, pp. 157 - 165, http://dx.doi.org/10.1089/jayao.2019.0084

Daniel LC; van Litsenburg RRL; Rogers VE; Zhou ES; Ellis SJ; Wakefield CE; Stremler R; Walter L; Crabtree VML, 2020, 'A call to action for expanded sleep research in pediatric oncology: A position paper on behalf of the International Psycho-Oncology Society Pediatrics Special Interest Group', Psycho-Oncology, vol. 29, pp. 465 - 474, http://dx.doi.org/10.1002/pon.5242

Raber M; Crawford K; Baranowski T; Sharma SV; Schick V; Markham C; Roth M; Wakefield CE; Chandra J, 2020, 'Meal planning values impacted by the cancer experience in families with school-aged survivors—a qualitative exploration and recommendations for intervention development', Supportive Care in Cancer, vol. 28, pp. 1305 - 1313, http://dx.doi.org/10.1007/s00520-019-04928-5

Young AL; Butow PN; Tucker KM; Wakefield CE; Healey E; Williams R, 2020, 'When to break the news and whose responsibility is it? A cross-sectional qualitative study of health professionals' views regarding disclosure of BRCA genetic cancer risk', BMJ Open, vol. 10, pp. e033127, http://dx.doi.org/10.1136/bmjopen-2019-033127

Lin B; Gutman T; Hanson CS; Ju A; Manera K; Butow P; Cohn RJ; Dalla-Pozza L; Greenzang KA; Mack J; Wakefield CE; Craig JC; Tong A, 2020, 'Communication during childhood cancer: Systematic review of patient perspectives', Cancer, vol. 126, pp. 701 - 716, http://dx.doi.org/10.1002/cncr.32637

Kelada L; Wakefield CE; Cruz Silva MC; Signorelli C, 2020, 'Camps for Children with Cancer and Their Families: A Systematic Review of Psychosocial and Physical Impacts', Journal of developmental and behavioral pediatrics : JDBP, vol. 41, pp. 145 - 156, http://dx.doi.org/10.1097/DBP.0000000000000728

Russo S; Wakefield CE; Fardell JE; Cohn RJ, 2020, 'Summer sun-exposure in Australian childhood cancer survivors and community reference groups', Seminars in Oncology, vol. 47, pp. 48 - 55, http://dx.doi.org/10.1053/j.seminoncol.2020.02.004

Wang Y; Logan S; Stern K; Wakefield CE; Cohn RJ; Agresta F; Jayasinghe Y; Deans R; Segelov E; McLachlan RI; Gerstl B; Sullivan E; Ledger WE; Anazodo A, 2020, 'Supportive oncofertility care, psychological health and reproductive concerns: a qualitative study', Supportive Care in Cancer, vol. 28, pp. 809 - 817, http://dx.doi.org/10.1007/s00520-019-04883-1

Hill RE; Wakefield CE; Cohn RJ; Fardell JE; Brierley MEE; Kothe E; Jacobsen PB; Hetherington K; Mercieca-Bebber R, 2020, 'Survivorship Care Plans in Cancer: A Meta-Analysis and Systematic Review of Care Plan Outcomes', Oncologist, vol. 25, pp. e351 - e372, http://dx.doi.org/10.1634/theoncologist.2019-0184

Raharjo CV; Hetherington K; Donovan L; Fardell JE; Russell V; Cohn RJ; Morgan NL; Siddiqui J; Wakefield CE, 2020, 'An Evaluation of By My Side: Peer Support in Written Form is Acceptable and Useful for Parents Bereaved by Childhood Cancer', Journal of Pain and Symptom Management, http://dx.doi.org/10.1016/j.jpainsymman.2020.01.013

Mizrahi D; Wakefield CE; Simar D; Ha L; McBride J; Field P; Cohn RJ; Fardell JE, 2020, 'Barriers and enablers to physical activity and aerobic fitness deficits among childhood cancer survivors', Pediatric Blood and Cancer, pp. e28339, http://dx.doi.org/10.1002/pbc.28339

Kelada L; Wakefield CE; Vetsch J; Schofield D; Sansom-Daly UM; Hetherington K; O'Brien T; Cohn RJ; Anazodo A; Viney R; Zeppel MJB, 2020, 'Financial toxicity of childhood cancer and changes to parents’ employment after treatment completion', Pediatric Blood and Cancer, pp. e28345, http://dx.doi.org/10.1002/pbc.28345

Vetsch J; Wakefield CE; Tucker KM; McCarthy M; Signorelli C; Walwyn T; Alvaro F; Cohn RJ, 2020, 'Genetics-related service and information needs of childhood cancer survivors and parents: a mixed-methods study', European Journal of Human Genetics, vol. 28, pp. 6 - 16, http://dx.doi.org/10.1038/s41431-019-0481-7

Baenziger J; Hetherington K; Wakefield CE; Carlson L; McGill BC; Cohn RJ; Michel G; Sansom-Daly UM, 2020, 'Understanding parents’ communication experiences in childhood cancer: a qualitative exploration and model for future research', Supportive Care in Cancer, http://dx.doi.org/10.1007/s00520-019-05270-6

McGill BC; Wakefield CE; Hetherington K; Munro LJ; Warby M; Lau L; Tyrrell V; Ziegler DS; O’brien TA; Marshall GM; Malkin D; Hansford JR; Tucker KM; Vetsch J, 2020, '“Balancing Expectations with Actual Realities”: Conversations with Clinicians and Scientists in the First Year of a High-Risk Childhood Cancer Precision Medicine Trial', Journal of Personalized Medicine, vol. 10, http://dx.doi.org/10.3390/jpm10010009

Hill RE; Wakefield CE; Cohn RJ; Fardell JE; Brierley M-EE; Kothe E; Jacobsen PB; Hetherington K; Mercieca-Bebber R, 2020, 'Survivorship Care Plans in Cancer: A Meta-Analysis and Systematic Review of Care Plan Outcomes.', Oncologist, vol. 25, pp. e351 - e372, http://dx.doi.org/10.1634/theoncologist.2019-0184

Young AL; Butow PN; Tucker KM; Williams R; Healey E; Wakefield CE, 2019, 'Health professional and at-risk BRCA young adult perspectives about information needs: What does Gen Y need to know?', Journal of Genetic Counseling, vol. 28, pp. 1154 - 1165, http://dx.doi.org/10.1002/jgc4.1167

Kelada L; Wakefield CE; Heathcote LC; Jaaniste T; Signorelli C; Fardell JE; Donoghoe M; McCarthy MC; Gabriel M; Cohn RJ, 2019, 'Perceived cancer-related pain and fatigue, information needs, and fear of cancer recurrence among adult survivors of childhood cancer', Patient Education and Counseling, vol. 102, pp. 2270 - 2278, http://dx.doi.org/10.1016/j.pec.2019.06.022

Young AL; Butow PN; Tucker KM; Wakefield CE; Healey E; Williams R, 2019, 'Challenges and strategies proposed by genetic health professionals to assist with family communication', European Journal of Human Genetics, vol. 27, pp. 1630 - 1638, http://dx.doi.org/10.1038/s41431-019-0447-9

Robertson EG; Wakefield CE; Shaw J; Darlington AS; McGill BC; Cohn RJ; Fardell JE, 2019, 'Decision-making in childhood cancer: parents’ and adolescents’ views and perceptions', Supportive Care in Cancer, vol. 27, pp. 4331 - 4340, http://dx.doi.org/10.1007/s00520-019-04728-x

Lum A; Wakefield CE; Donnan B; Burns MA; Fardell JE; Jaffe A; Kasparian NA; Kennedy SE; Leach ST; Lemberg DA; Marshall GM, 2019, 'Facilitating engagement with school in students with chronic illness through positive education: A mixed-methods comparison study', School Psychology, vol. 34, pp. 677 - 686, http://dx.doi.org/10.1037/spq0000315

Sinclair M; Schofield P; Turner J; Rauch P; Wakefield C; Mann GB; Newman L; Mason K; Gilham L; Cannell J; Stafford L, 2019, 'Maternal breast cancer and communicating with children: A qualitative exploration of what resources mothers want and what health professionals provide', European Journal of Cancer Care, vol. 28, pp. e13153, http://dx.doi.org/10.1111/ecc.13153

Lum A; Wakefield CE; Donnan B; Burns MA; Fardell JE; Jaffe A; Kasparian NA; Kennedy SE; Leach ST; Lemberg DA; Marshall GM, 2019, 'School students with chronic illness have unmet academic, social, and emotional school needs', School Psychology, vol. 34, pp. 627 - 636, http://dx.doi.org/10.1037/spq0000311

Gabriel MG; Wakefield CE; Vetsch J; Karpelowsky JS; Darlington ASE; Cohn RJ; Signorelli C; Alvaro F; Corbett R; Downie P; Egan K; Ellis S; Emery J; Fardell J; Foreman T; Gabriel M; Girgis A; Graham K; Johnston K; Jones J; Lockwood L; Maguire A; McCarthy M; McLoone J; Mechinaud F; Molloy S; Moore L; Osborn M; Skeen J; Tapp H; Till T; Truscott J; Turpin K; Williamson J; Walwyn T; Yallop K, 2019, 'Paediatric surgery for childhood cancer: Lasting experiences and needs of children and parents', European Journal of Cancer Care, vol. 28, http://dx.doi.org/10.1111/ecc.13116

McGill BC; Wakefield CE; Vetsch J; Lim Q; Warby M; Metcalfe A; Byrne JA; Cohn RJ; Tucker KM, 2019, '“I remember how I felt, but I don't remember the gene”: Families’ experiences of cancer-related genetic testing in childhood', Pediatric Blood and Cancer, vol. 66, pp. e27762, http://dx.doi.org/10.1002/pbc.27762

Brierley MEE; Sansom-Daly UM; Baenziger J; McGill B; Wakefield CE, 2019, 'Impact of physical appearance changes reported by adolescent and young adult cancer survivors: A qualitative analysis', European Journal of Cancer Care, vol. 28, pp. e13052, http://dx.doi.org/10.1111/ecc.13052

Robertson EG; Wakefield CE; Cohn RJ; Battisti RA; Donoghoe MW; Ziegler DS; Fardell JE; Mitchell R; O'Brien TA, 2019, 'Piloting a parent and patient decision aid to support clinical trial decision making in childhood cancer', Psycho-Oncology, vol. 28, pp. 1520 - 1529, http://dx.doi.org/10.1002/pon.5109

Sansom-Daly UM; Wakefield CE; Hetherington K; Evans HE; Ellis SJ; McGill BC; Cohn RJ, 2019, 'Author reply', Internal Medicine Journal, vol. 49, pp. 808 - 809, http://dx.doi.org/10.1111/imj.14320

Kelada L; Wakefield CE; Doolan EL; Drew D; Wiener L; Michel G; Cohn RJ, 2019, 'Grandparents of children with cancer: a controlled comparison of perceived family functioning', Supportive Care in Cancer, vol. 27, pp. 2087 - 2094, http://dx.doi.org/10.1007/s00520-018-4468-7

Vetsch J; Wakefield CE; Techakesari P; Warby M; Ziegler DS; O'Brien TA; Drinkwater C; Neeman N; Tucker K, 2019, 'Healthcare professionals’ attitudes toward cancer precision medicine: A systematic review', Seminars in Oncology, vol. 46, pp. 291 - 303, http://dx.doi.org/10.1053/j.seminoncol.2019.05.001

Kelada L; Wakefield CE; Carlson L; Hetherington K; McGill BC; McCarthy MC; Miles G; Cohn RJ; Sansom-Daly UM, 2019, 'How Parents of Childhood Cancer Survivors Perceive Support From Their Extended Families', Journal of Child and Family Studies, vol. 28, pp. 1537 - 1547, http://dx.doi.org/10.1007/s10826-019-01394-9

Mizrahi D; Fardell JE; Wakefield CE; Simar D; Maguire AM; Hubbard G; Cohn RJ, 2019, 'How physically active do Australian and New Zealander childhood cancer survivors perceive themselves? A report from the ANZCHOG survivorship study', Complementary Therapies in Medicine, vol. 44, pp. 196 - 203, http://dx.doi.org/10.1016/j.ctim.2019.04.020

Young AL; Butow PN; Rhodes P; Tucker KM; Williams R; Healey E; Wakefield CE, 2019, 'Talking across generations: Family communication about BRCA1 and BRCA2 genetic cancer risk', Journal of Genetic Counseling, vol. 28, pp. 516 - 532, http://dx.doi.org/10.1002/jgc4.1055

Goddard E; Cohen J; Bramley L; Wakefield CE; Beck EJ, 2019, 'Dietary intake and diet quality in children receiving treatment for cancer', Nutrition Reviews, vol. 77, pp. 267 - 277, http://dx.doi.org/10.1093/nutrit/nuy069

Signorelli C; Wakefield CE; Fardell JE; Foreman T; Johnston KA; Emery J; Thornton-Benko E; Girgis A; Lie HC; Cohn RJ; Alvaro F; Corbett R; Downie P; Egan K; Ellis S; Gabriel M; Graham K; Jones J; Lockwood L; Maguire A; McCarthy M; McLoone J; Mechinaud F; Molloy S; Moore L; Osborn M; Skeen J; Tapp H; Till T; Truscott J; Turpin K; Walwyn T; Yallop K, 2019, 'The Role of Primary Care Physicians in Childhood Cancer Survivorship Care: Multiperspective Interviews', Oncologist, vol. 24, pp. 710 - 719, http://dx.doi.org/10.1634/theoncologist.2018-0103

Ellis SJ; Fardell JE; Wakefield CE; Schilstra CE; Burns MA; Donnan B; Walwyn T; Lum A; Marshall G; Carter A; Barton B; Cohn RJ, 2019, 'Are we meeting the training needs of healthcare and education professionals supporting children with cancer in their return to school?', Pediatric Blood and Cancer, vol. 66, pp. e27575, http://dx.doi.org/10.1002/pbc.27575

Signorelli C; Wakefield CE; Fardell JE; Brierley ME; Darlington AS; Williamson J; Downie P; Cohn RJ, 2019, 'Perceptions of future health and cancer risk in adult survivors of childhood cancer: Implications for engagement in follow-up care', Cancer, vol. 125, pp. 1008 - 1009, http://dx.doi.org/10.1002/cncr.31934

Vetsch J; Wakefield CE; Doolan EL; Signorelli C; McGill BM; Moore L; Techakesari P; Pieters R; Patenaude AF; McCarthy M; Cohn RJ, 2019, '‘Why us?’ Causal attributions of childhood cancer survivors, survivors’ parents and community comparisons - a mixed methods analysis', Acta Oncologica, vol. 58, pp. 209 - 217, http://dx.doi.org/10.1080/0284186X.2018.1532600

Donovan LA; Wakefield CE; Russell V; Hetherington K; Cohn RJ, 2019, 'Brief report: Bereaved parents informing research design: The place of a pilot study', Death Studies, vol. 43, pp. 62 - 69, http://dx.doi.org/10.1080/07481187.2018.1436616

Collins DE; Ellis SJ; Janin MM; Wakefield CE; Bussey K; Cohn RJ; Lah S; Fardell JE, 2019, 'A Systematic Review Summarizing the State of Evidence on Bullying in Childhood Cancer Patients/Survivors', Journal of Pediatric Oncology Nursing, vol. 36, pp. 55 - 68, http://dx.doi.org/10.1177/1043454218810136

Touyz LM; Cohen J; Cohn RJ; Garnett SP; Anazodo A; Gohil P; Grech AM; Ng A; Wakefield CE, 2019, 'Childhood cancer survivors report preferring lifestyle interventions delivered in person rather than online: An adolescent and parent perspective', Pediatric Blood and Cancer, vol. 66, pp. e27922, http://dx.doi.org/10.1002/pbc.27922

Signorelli C; Wakefield C; McLoone JK; Fardell J; Jones JM; Turpin KH; Emery J; Michel G; Downie P; Skeen JE; Cohn R, 2019, 'Childhood cancer survivorship: Barriers and preferences', BMJ Supportive and Palliative Care, http://dx.doi.org/10.1136/bmjspcare-2019-002001

McGill BC; Wakefield CE; Vetsch J; Barlow-Stewart K; Kasparian NA; Patenaude AF; Young MA; Cohn RJ; Tucker KM, 2019, 'Children and young people's understanding of inherited conditions and their attitudes towards genetic testing: A systematic review', Clinical Genetics, vol. 95, pp. 10 - 22, http://dx.doi.org/10.1111/cge.13253

Grimmett C; Brooks C; Recio-Saucedo A; Armstrong A; Cutress RI; Gareth Evans D; Copson E; Turner L; Meiser B; Wakefield CE; Eccles D; Foster C, 2019, 'Development of Breast Cancer Choices: a decision support tool for young women with breast cancer deciding whether to have genetic testing for BRCA1/2 mutations', Supportive Care in Cancer, vol. 27, pp. 297 - 309, http://dx.doi.org/10.1007/s00520-018-4307-x

Warby M; Wakefield CE; Vetsch J; Tucker KM, 2019, 'Families’ and health care professionals’ attitudes towards Li-Fraumeni syndrome testing in children: A systematic review', Clinical Genetics, vol. 95, pp. 140 - 150, http://dx.doi.org/10.1111/cge.13442

Darlington AS; Long-Sutehall T; Randall D; Wakefield C; Robinson V; Brierley J, 2019, 'Parents' experiences of requests for organ and tissue donation: The value of asking', Archives of Disease in Childhood, http://dx.doi.org/10.1136/archdischild-2018-316382

Mizrahi D; Fardell JE; Cohn RJ; Partin RE; Howell CR; Hudson MM; Robison LL; Ness KK; McBride J; Field P; Wakefield CE; Simar D, 2019, 'The 6-minute walk test is a good predictor of cardiorespiratory fitness in childhood cancer survivors when access to comprehensive testing is limited', International Journal of Cancer, http://dx.doi.org/10.1002/ijc.32819

Donovan LA; Wakefield CE; Russell V; Fardell J; Mallitt KA; Hetherington K; Cohn R, 2019, 'Variables associated with grief and personal growth following the death of a child from cancer: A mixed method analysis', Death Studies, pp. 1 - 12, http://dx.doi.org/10.1080/07481187.2019.1682087

Robertson EG; Cohen J; Signorelli C; Grant DM; Fardell JE; Wakefield CE, 2019, 'What instruments should we use to assess paediatric decision-making interventions? A narrative review', Journal of Child Health Care, pp. 1367493519869717, http://dx.doi.org/10.1177/1367493519869717

Sansom-Daly UM; Wakefield CE; Robertson EG; McGill BC; Wilson HL; Bryant RA, 2018, 'Adolescent and young adult cancer survivors' memory and future thinking processes place them at risk for poor mental health', Psycho-Oncology, vol. 27, pp. 2709 - 2716, http://dx.doi.org/10.1002/pon.4856


Back to profile page