By Professor Claire Elizabeth Wakefield

Book Chapters

Wiener L; Wakefield CE; Maas A; Darlington A-S, 2026, 'Childhood, Adolescent, and Young Adult Cancer Survivors', in Psycho-Oncology in Cancer Survivorship and Health Promotion, Oxford University PressNew York, pp. 117 - 136, http://dx.doi.org/10.1093/med/9780197798546.003.0009

Hetherington K; Hunter JD; Lockridge R; Warby M; Raygadam M; Wakefield CE; Wiener L, 2023, 'The Psychosocial Impact of Familial Endocrine Cancer Syndromes (FECS) on the Patient and Caregiver', in Familial Endocrine Cancer Syndromes Navigating the Transition of Care for Pediatric and Adolescent Patients, pp. 1 - 35, http://dx.doi.org/10.1007/978-3-031-37275-9_1

Patenaude AF; Wakefield CE, 2021, 'Psychosocial aspects of childhood cancer genetics', in Hereditary Basis of Childhood Cancer, pp. 445 - 471, http://dx.doi.org/10.1007/978-3-030-74448-9_15

Schwartz LA; Wakefield CE; McLoone JK; Werba DeRosa B; Kazak AE, 2021, 'Adult Survivors of Childhood Cancer', in Butow PN; Lam WWT (ed.), Psycho-Oncology, Oxford University Press, pp. 767 - 772, http://dx.doi.org/10.1093/med/9780190097653.003.0096

sansom-daly U; McGill B; kasparian N; Patterson P; Muscara F; Wakefield C, 2016, 'Navigating the impact of serious illness across the family system using evidence-based therapeutic approaches', in Menzies R; Kyrios M; Kazantzis N (ed.), Innovations and Future Directions in the Behavioural and Cognitive Therapies, Australian Academic Press, Queensland, pp. 176 - 181, https://www.australianacademicpress.com.au/books/details/287/Innovations_and_Future_Directions_in_the_Behavioural_and_Cognitive_Therapies

Signorelli C; Fardell JE; Wakefield CE; Webber K; Cohn RJ, 2016, 'The cost of cure: Chronic conditions in survivors of child, adolescent, and young adult cancers', in Koczwara B (ed.), Cancer and Chronic Conditions Addressing the Problem of Multimorbidity in Cancer Patients and Survivors, pp. 371 - 420, http://dx.doi.org/10.1007/978-981-10-1844-2_13

Cohen JE; Wakefield CE; Bartle J; Cohn RJ, 2012, 'Nutritional interventions for survivors of childhood cancer', in Cochrane Database of Systematic Reviews, Wiley, http://dx.doi.org/10.1002/14651858.cd009678

Journal articles

McCloskey N; Mahon P; Rassekh SR; Hetherington K; Regier DA; Wakefield CE; Pollard S; Deyell RJ, 2026, 'Impact of precision oncology research in pediatric poor prognosis cancer: patient, parent and healthcare provider perspectives', BMC Cancer, 26, http://dx.doi.org/10.1186/s12885-026-16299-2

Smith MC; Wang Q; Pierce KE; Marsilio K; Wakefield CE; Howell KB; Palmer EE; Kelada L, 2026, 'The psychosocial supports and interventions accessed by family members of patients with developmental and epileptic encephalopathies: A systematic review', Epilepsy and Behavior, 184, http://dx.doi.org/10.1016/j.yebeh.2026.111185

Soosay Raj T; Noble C; Gray A; Moreira DC; Lowe J; Gorostegui M; Anga G; Soma A; Santos MLD; Cross S; Luttrell E; Sullivan M; Cayrol J; Challinor J; Ranasinghe N; McLoone J; Wakefield CE, 2026, 'Mapping Childhood Cancer Care Services in Oceania: Methodological Lessons From the SIOP Global Mapping Programme', Pediatric Blood and Cancer, 73, http://dx.doi.org/10.1002/1545-5017.70579

Tate T; Wakefield CE; Magnus D; Carter BS; Baker JN, 2026, 'Paediatric palliative care and paediatric euthanasia', Lancet Child and Adolescent Health, 10, pp. e26, http://dx.doi.org/10.1016/S2352-4642(26)00191-4

Budden AK; Henry A; Wakefield CE; Abbott JA, 2026, 'Surgeons’ Biological Stress Responses During Fundamentals of Laparoscopic Surgery Exercises: A Descriptive Study', Journal of Minimally Invasive Gynecology, 33, pp. 1327 - 1334, http://dx.doi.org/10.1016/j.jmig.2026.03.011

Ghows C; Schilstra CE; McCleary K; Briggs NE; Kotecha RS; Lourenco RDA; Ramachandran S; Cockcroft R; Conyers R; Cross S; Dalla-Pozza L; Downie P; Revesz T; Osborn M; Alvaro F; Wakefield CE; Marshall GM; Trahair T; Mateos MK; Fardell JE, 2026, 'Tracking Health Related Quality of Life From Diagnosis to Follow-Up Among Australian Children With Acute Lymphoblastic Leukaemia', Pediatric Blood and Cancer, 73, http://dx.doi.org/10.1002/1545-5017.70539

Mazariego C; Ramanathan M; Johnston DA; Li Z; McGill BC; Okamura M; Kelada L; Juraskova I; Wakefield CE; Taylor N, 2026, 'Optimizing Informed Consent for Australian Newborn Bloodspot Screening and Research: Consensus Workshop Insights and Recommendations', International Journal of Neonatal Screening, 12, pp. 65, http://dx.doi.org/10.3390/ijns12030065

Wakefield CE; McLoone JK; Lawrence N; Howard T; Brown Z; Fandialan J; Hegermann M; Gill M, 2026, '‘UNCLOUD’ young lives: development and evaluation of a national peer-to-peer anti-vaping campaign for young people in Australia', BMC Public Health, http://dx.doi.org/10.1186/s12889-026-28534-3

Hetherington K; Hunter JD; Donoghoe MW; McGillycuddy M; McGill BC; Robertson EG; Tyrrell V; Lau LMS; Marron JM; Tucker KM; Marshall GM; Vetsch J; Haber M; Malkin D; Mateos MK; O’Brien TA; Ziegler DS; Wakefield CE, 2026, 'Family experiences of receiving treatment recommendations in a precision medicine trial for poor-prognosis childhood cancer', npj Genomic Medicine, http://dx.doi.org/10.1038/s41525-026-00591-y

Lee J; Evans H; Wakefield CE; Anazodo A; Cohn RJ; McGill BC; Lobb EA; Wiener L; Juhrmann ML; Sansom-Daly UM, 2026, '‘They Need to Hear You Say It’: Healthcare Professionals’ Perspectives on Barriers and Enablers to End-of-Life Discussions With Adolescents and Young Adults With Cancer', Pediatric Blood and Cancer, 73, http://dx.doi.org/10.1002/1545-5017.70369

Irestorm E; Wakefield CE; Houweling R; Hetherington K; McGill BC; McDonald FEJ; Cohn RJ; Sansom-Daly UM, 2026, 'Barriers and facilitators to implementing an online psychological intervention for adolescent and young adult cancer survivors in a community setting', Supportive Care in Cancer, 34, http://dx.doi.org/10.1007/s00520-026-10867-9

Hetherington K; Hunter J; Donoghoe M; McGillycuddy M; McGill B; Robertson E; Tyrrell V; Lau L; Marron J; Tucker K; Marshall G; Vetsch J; Haber M; Malkin D; Mateos M; Brien TO; Ziegler D; Wakefield C, 2026, 'ID #107 Family experiences of precision-guided treatment recommendations for poor prognosis paediatric Central Nervous System (CNS) cancer', Neuro-Oncology Pediatrics, 2, pp. wuag026.020, http://dx.doi.org/10.1093/neuped/wuag026.020

McGill B; Hetherington K; McGillycuddy M; Daly R; Ziegler D; Mateos M; Marshall G; Wakefield C, 2026, 'ID #661 Psychological distress in parents of children with poor prognosis central nervous system (CNS) cancers participating in the PRISM precision medicine trial', Neuro-Oncology Pediatrics, 2, pp. wuag026.264, http://dx.doi.org/10.1093/neuped/wuag026.264

Soleymani S; Hetherington K; McGill B; Ziegler D; Mateos M; Wakefield C, 2026, 'ID #673 Bereaved Parents’ Reflections on PRISM Precision Medicine Trial Participation for Poor-Prognosis Paediatric CNS Cancer', Neuro-Oncology Pediatrics, 2, pp. wuag026.272, http://dx.doi.org/10.1093/neuped/wuag026.272

Rhodes M; Signorelli C; Donoghoe MW; McLoone JK; Wakefield CE; Anazodo A; Sansom-Daly UM; Darlington AS; Sodergren SC; Cohn RJ; Fardell JE, 2026, 'Factors associated with health-related quality of life in survivors of childhood-onset and adult-onset cancer compared to controls', Supportive Care in Cancer, 34, http://dx.doi.org/10.1007/s00520-026-10775-y

Irestorm E; Wakefield CE; Hetherington K; McGill BC; Evans HE; McDonald F; Patterson P; Beattie A; Cohn RJ; Sansom-Daly UM, 2026, 'Recapturing Life: Virtual Peer-Based Psychological Support for Adolescent and Young Adult Cancer Survivors Delivered in the Community', Journal of Adolescent and Young Adult Oncology, 15, pp. 187 - 195, http://dx.doi.org/10.1177/21565333251369689

Alqahtani QM; Mizrahi D; Ha L; Fardell JE; Wakefield CE; Simar D; Cohn RJ; Bray P; Docking K; Dylke E, 2026, 'Self-reported physical fitness domains and perceptions of exercise and fatigue among childhood cancer survivors', Jsams Plus, 7, http://dx.doi.org/10.1016/j.jsampl.2026.100140

Ambler M; Awasthi M; Gerber L; Lin B; Wakefield CE, 2026, 'Musical Rounds: A multisite, mixed-methods feasibility study of a musical legacy session in palliative care', Palliative and Supportive Care, 24, http://dx.doi.org/10.1017/S1478951526102624

Hunter JD; Hetherington K; McGillycuddy M; Wakefield CE; Tucker KM; O’Brien TA; McGill BC; Fuentes-Bolanos NA; Bhatia K; Padhye B; Grant A; Barlow-Stewart K; Warby M; Courtney EK; Peate M, 2026, '“I don’t think I even thought of myself” A mixed-methods study of family experiences of trio germline whole genome sequencing in newly diagnosed childhood cancer', British Journal of Cancer, 134, pp. 1336 - 1351, http://dx.doi.org/10.1038/s41416-026-03354-9

Ha L; Singleton D; Wakefield CE; Cohn RJ; Simar D; Signorelli C, 2026, 'Structured and Unstructured Physical Activity, Screen Time and Quality of Life in Childhood Cancer Survivors', Cancers, 18, http://dx.doi.org/10.3390/cancers18050752

Malone S; Bryan G; Carlisle E; DeCourcey DD; Montez K; Porter A; Agulnik A; Bluebond-Langer M; Kaye EC; Graetz D; Cáceres-Serrano A; Williams A; Cowfer B; Sisk BA; Wakefield CE; Bell CJ; Carlisle E; Williamson FA; Needle-Suarez J; Mack JW; Hanebrink J; Wynja K; Pimenta K; Barton KS; Counts L; Blazin LJ; Johnson LM; Salek M; Rihani R; Paul TK; Wiener L; Kirch R; Hinds P; Hankins JS; Gibson F; Ferrara G, 2026, 'Advancing child health through applied qualitative research', Eclinicalmedicine, 92, http://dx.doi.org/10.1016/j.eclinm.2025.103736

Long S; Evans HE; Wakefield CE; Kasparian NA; McGillivray G; Roscioli T; Firriolo AM; Parmar J; Kelada L, 2026, 'Australian patients' experiences of undergoing whole exome sequencing for fetal structural anomalies prior to receiving results', Journal of Genetic Counseling, 35, http://dx.doi.org/10.1002/jgc4.70158

Kaye EC; Bogetz J; Barton KS; Bell CJ; Johnston EE; Pozzar RA; Superdock A; Thorne S; Weaver MS; Wiener L; Graetz DE; Agulnik A; Ananth P; Barton K; Bell C; Bilbeisi T; Bluebond-Langner M; Bogetz J; Bryan G; Cáceres A; Carlisle E; Counts L; Ferrara G; Fuentes L; Graetz D; Hanebrink J; Herbert A; Hinds P; Hodges J; Johnson L; Johnston E; Mack JW; Malone S; Montez K; Reisinger HS; Rihani R; Salek M; Sisk BA; Thorne S; Wakefield C; Wiener L; Williams A; Williamson F; Wynja K; Zimmermann C; Weaver M; Pozzar R, 2026, 'Expert recommendations for the conduct and appraisal of qualitative research in oncology', Lancet Oncology, 27, pp. e84 - e100, http://dx.doi.org/10.1016/S1470-2045(25)00670-9

Boensvang NN; Fridh MK; Wakefield CE; Bidstrup PE; Larsen HB, 2026, 'How Classmates Experience Visiting Their Hospitalised Peer During Cancer Treatment: A RESPECT Study', Journal of Advanced Nursing, 82, pp. 1667 - 1680, http://dx.doi.org/10.1111/jan.70017

Graetz DE; Sisk BA; Salek M; Blazin LJ; Wakefield CE; Tarbi EC; Thorne S; LeBlanc TW; Hinds PS; Traeger L; Kaye EC; Cáceres-Serrano A; Williams A; Herbert A; Agulnik A; Cowfer B; Levine D; Carlisle E; Gibson F; Bryan G; Ferrara G; Schacht Reisinger H; Bogetz J; Wynja K; Pimenta K; Montez K; Barton KS; Counts L; Sniderman L; Johnson LM; Bluebond-Langner M; Rossell N; Ananth P; Rihani R; Kirch R; Malone S; Bilbeisi T; Paul TK, 2026, 'The power of words: evaluating the role of qualitative methods in cancer research', Lancet Oncology, 27, pp. e73 - e83, http://dx.doi.org/10.1016/S1470-2045(25)00669-2

McKay S; Elias J; Mazariego C; Tyedmers E; Morrow A; Wakefield CE; Ziegler DS; Smith JD; Taylor N, 2026, 'A single logic model capturing clinical, service, and implementation interventions using a practical example in pediatric precision medicine', Jbi Evidence Implementation, http://dx.doi.org/10.1097/XEB.0000000000000600

Nevin SM; Le Marne FA; Kelada L; Wakefield CE; Beavis E; Macintosh R; Palmer EE; McLoughlin R; van Beek A; Wittekind C; Shalhoub C; Lau CYY; Elliot C; Rogers D; Wijetilaka D; Argent E; Cotterell E; Jacobson EE; McCarthy H; Sampaio H; Dalby-Payne J; Doyle K; Bhattacharya K; Lorentzos M; Slade R; Evans R; Pillai S; Mohammad S; Piper S; Sarkozy V; Stark K; Ging J; Sachdev R; Nunn K; Bye A, 2026, 'Connect, pause and reflect: Multidisciplinary clinicians’ shared challenges and sustaining strategies caring for children with Severe Neurological Impairment', European Journal of Paediatric Neurology, 60, pp. 15 - 23, http://dx.doi.org/10.1016/j.ejpn.2025.10.006

Sansom-Daly UM; Irestorm E; Houweling R; Hetherington K; McGill BC; Ellis SJ; Schilstra CE; Donoghoe MW; Bravery BD; Cohn RJ; Anazodo A; Wakefield CE, 2026, 'Do young people who have been treated for cancer identify as ‘survivors’? Adolescents and young adults’ preferences for cancer-related identities in survivorship', Journal of Cancer Survivorship, http://dx.doi.org/10.1007/s11764-026-02074-6

Evans HE; Firriolo AM; Houweling R; Kelada L; Stannard G; Frawley J; McGill BC; Ramus SJ; Lee YC; Friedlander M; Duggan J; Wakefield CE, 2026, 'Evaluating patient perspectives about the acceptability of a novel prognostic gene expression signature for high grade serous ovarian cancer: The OTTA-SPOT study', Gynecologic Oncology, 204, pp. 150 - 157, http://dx.doi.org/10.1016/j.ygyno.2025.11.023

Burns MA; Lah S; Law C; Schilstra CE; Ellis SJ; Wakefield CE; Sansom-Daly UM; Cohn RJ; Marshall GM; Lum A; Donnan B; Walwyn T; Carter A; Fielden P; De Luca CR; Barton B; Drew D; Maguire F; O’Dwyer C; Fardell JE, 2026, 'High School Cancer Experience and Age at Diagnosis: Perspectives of Adolescents, Young Adults, and Parents', Journal of Adolescent and Young Adult Oncology, http://dx.doi.org/10.1177/21565333261438095

Nevin SM; Kelada L; Elvidge KL; Maack M; Hilton G; Kershaw J; Da Ros E; Briggs NE; Farrar MA; Wakefield CE, 2026, 'Navigating the complex landscape of childhood dementia: caregiver psychological well-being, grief, and health system challenges', Journal of Pediatric Psychology, 51, pp. 60 - 72, http://dx.doi.org/10.1093/jpepsy/jsaf095

Nielsen JL; Wakefield CE; McWhirter R; Johnston C; Otlowski M; Tyrrell V; Cowley MJ; Tucker KM; Lyons R; Gill AJ, 2026, 'Regulatory Guidance for the Return of Raw Genomic Data to Research Participants: A Qualitative Interview Study', Journal of Law Medicine and Ethics, http://dx.doi.org/10.1017/jme.2026.10267

Tutika T; Chittem M; Namjoshi S; Patil VC; Kelada L; Wakefield CE, 2026, 'Unmet supportive care needs of family caregivers of children with cancer in India', Journal of Pediatric Nursing, 86, pp. 44 - 50, http://dx.doi.org/10.1016/j.pedn.2025.10.029

Lin GL; White BD; Burk SD; Moriarty JA; Mauser DB; Wakefield CE; Wusthoff CJ; Baker JN, 2026, '“The Most Difficult Conversations We Have”: Resident Experiences With Pediatric Neuroprognostication', Annals of the Child Neurology Society, 4, pp. 227 - 238, http://dx.doi.org/10.1002/cns3.70080

Lin GL; Burk SD; White BD; Moriarty JA; Mauser DB; Wakefield CE; Wusthoff CJ; Baker JN, 2026, 'Education Research: Learning to Prognosticate', Neurology Education, 5, pp. e200306, http://dx.doi.org/10.1212/ne9.0000000000200306

Gereis JM; Hetherington K; Robertson EG; Daly R; McGill BC; Ziegler DS; Wakefield CE, 2025, 'Animated videos for childhood cancer precision medicine: development and evaluation with parents and patients', Supportive Care in Cancer, 33, http://dx.doi.org/10.1007/s00520-025-10191-8

Nobilo A; McLoone J; White M; Smithers-Sheedy H; Anderson J; Lingam R; Bailey C; Wakefield CE; Hancock JE; Hodgins M; Woolfenden S; Steinbeck K; Pierce K; Moore C; Lain S; Ho J; Glasson N; Gialamas A; Culnane E; Cazzolli R, 2025, 'Co-design of an intervention to enhance healthcare transition for adolescents and young adults with chronic medical conditions', Npj Health Systems, 2, http://dx.doi.org/10.1038/s44401-025-00041-4

Hanania JW; Shepherd RF; Wiener L; Sharp KMH; Similuk MN; Denburg AE; Wakefield CE, 2025, 'How We Approach the Integration of Psychological Services in the Care of Children With Cancer Predisposition Syndromes', Pediatric Blood and Cancer, 72, http://dx.doi.org/10.1002/pbc.32065

Schilstra CE; Ellis SJ; Sedger A; Burns MA; Miller KA; Wakefield CE; Cohn RJ; Lah S; Sansom-Daly UM; Anazodo AC; Fardell JE, 2025, 'Social Participation Among Long-Term Survivors of Childhood and Adolescent Cancer', Pediatric Blood and Cancer, 72, http://dx.doi.org/10.1002/pbc.32042

Lei Y; Hetherington K; Daly R; Rensen N; McGill BC; Ziegler DS; Lau LMS; Tyrrell V; Karpelowsky J; Cowley MJ; Tucker KM; Haber M; Barahona P; Wakefield CE, 2025, 'Data Sharing, Biopsies and Patient Confidentiality in a Precision Medicine Trial for Childhood Cancer: A Mixed Method Study of Parents, Oncologists, and Scientists’ Perspectives', Journal of Personalized Medicine, 15, http://dx.doi.org/10.3390/jpm15110531

Robertson EG; Hetherington K; Prain M; Ma A; Ayton LN; Jamieson RV; Shepard E; Boyd L; Hall J; Boyd R; Karandrews S; Feller H; Simunovic MP; Grigg JR; Yamamoto K; Wakefield CE; Gonzalez-Cordero A, 2025, 'Australian research priorities for inherited retinal diseases: a James Lind Alliance priority setting partnership', BMJ Open, 15, pp. e100301, http://dx.doi.org/10.1136/bmjopen-2025-100301

Signorelli C; McLoone J; Wakefield C; Donoghoe M; Alchin JE; Johnston K; Baldwin R; Thornton-Benko E; Webber K; Foreman T; Neville K; Cohn R, 2025, 'Engage: A Survivorship Program to Improve Childhood Cancer Survivors' Self-Efficacy and Quality of Life', JCO Oncology Practice, 21, pp. 1274 - 1286, http://dx.doi.org/10.1200/OP-24-00815

Robertson EG; Kelada L; Ilin R; Palmer EE; Bye A; Jaffe A; Kennedy SE; Ooi CY; Drew D; Wakefield CE, 2025, 'Psychological wellbeing among parents of a child living with a serious chronic illness: A cross-sectional survey study', Journal of Child Health Care, 29, pp. 626 - 641, http://dx.doi.org/10.1177/13674935241238485

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