By Professor Claire Elizabeth Wakefield

Book Chapters

Hetherington K; Hunter JD; Lockridge R; Warby M; Raygadam M; Wakefield CE; Wiener L, 2023, 'The Psychosocial Impact of Familial Endocrine Cancer Syndromes (FECS) on the Patient and Caregiver', in Familial Endocrine Cancer Syndromes Navigating the Transition of Care for Pediatric and Adolescent Patients, pp. 1 - 35, http://dx.doi.org/10.1007/978-3-031-37275-9_1

Patenaude AF; Wakefield CE, 2021, 'Psychosocial aspects of childhood cancer genetics', in Hereditary Basis of Childhood Cancer, pp. 445 - 471, http://dx.doi.org/10.1007/978-3-030-74448-9_15

Schwartz LA; Wakefield CE; McLoone JK; Werba DeRosa B; Kazak AE, 2021, 'Adult Survivors of Childhood Cancer', in Butow PN; Lam WWT (ed.), Psycho-Oncology, Oxford University Press, pp. 767 - 772, http://dx.doi.org/10.1093/med/9780190097653.003.0096

Signorelli C; Fardell J; Wakefield C; Cohn R, 2016, 'The Cost of Cure: Chronic Conditions in Survivors of Child, Adolescent, and Young Adult Cancers', in Koczwara B (ed.), Cancer and Chronic Conditions Addressing the Problem of Multimorbidity in Cancer Patients and Survivors, Springer, Singapore, pp. 371 - 420, http://dx.doi.org/10.1007/978-981-10-1844-2_13

sansom-daly U; McGill B; kasparian N; Patterson P; Muscara F; Wakefield C, 2016, 'Navigating the impact of serious illness across the family system using evidence-based therapeutic approaches', in Menzies R; Kyrios M; Kazantzis N (ed.), Innovations and Future Directions in the Behavioural and Cognitive Therapies, Australian Academic Press, Queensland, pp. 176 - 181, https://www.australianacademicpress.com.au/books/details/287/Innovations_and_Future_Directions_in_the_Behavioural_and_Cognitive_Therapies

Cohen JE; Wakefield CE; Bartle J; Cohn RJ, 2012, 'Nutritional interventions for survivors of childhood cancer', in Cochrane Database of Systematic Reviews, Wiley, http://dx.doi.org/10.1002/14651858.cd009678

Journal articles

Nevin SM; Le Marne FA; Kelada L; Wakefield CE; Beavis E; Macintosh R; Palmer EE; McLoughlin R; van Beek A; Wittekind C; Shalhoub C; Lau CYY; Elliot C; Rogers D; Wijetilaka D; Argent E; Cotterell E; Jacobson EE; McCarthy H; Sampaio H; Dalby-Payne J; Doyle K; Bhattacharya K; Lorentzos M; Slade R; Evans R; Pillai S; Mohammad S; Piper S; Sarkozy V; Stark K; Ging J; Sachdev R; Nunn K; Bye A, 2026, 'Connect, pause and reflect: Multidisciplinary clinicians’ shared challenges and sustaining strategies caring for children with Severe Neurological Impairment', European Journal of Paediatric Neurology, 60, pp. 15 - 23, http://dx.doi.org/10.1016/j.ejpn.2025.10.006

Tutika T; Chittem M; Namjoshi S; Patil VC; Kelada L; Wakefield CE, 2026, 'Unmet supportive care needs of family caregivers of children with cancer in India', Journal of Pediatric Nursing, 86, pp. 44 - 50, http://dx.doi.org/10.1016/j.pedn.2025.10.029

Gereis JM; Hetherington K; Robertson EG; Daly R; McGill BC; Ziegler DS; Wakefield CE, 2025, 'Animated videos for childhood cancer precision medicine: development and evaluation with parents and patients', Supportive Care in Cancer, 33, http://dx.doi.org/10.1007/s00520-025-10191-8

Hanania JW; Shepherd RF; Wiener L; Sharp KMH; Similuk MN; Denburg AE; Wakefield CE, 2025, 'How We Approach the Integration of Psychological Services in the Care of Children With Cancer Predisposition Syndromes', Pediatric Blood and Cancer, 72, http://dx.doi.org/10.1002/pbc.32065

Schilstra CE; Ellis SJ; Sedger A; Burns MA; Miller KA; Wakefield CE; Cohn RJ; Lah S; Sansom-Daly UM; Anazodo AC; Fardell JE, 2025, 'Social Participation Among Long-Term Survivors of Childhood and Adolescent Cancer', Pediatric Blood and Cancer, 72, http://dx.doi.org/10.1002/pbc.32042

Nevin SM; Kelada L; Elvidge KL; Maack M; Hilton G; Kershaw J; Da Ros E; Briggs NE; Farrar MA; Wakefield CE, 2025, 'Navigating the complex landscape of childhood dementia: caregiver psychological well-being, grief, and health system challenges.', J Pediatr Psychol, http://dx.doi.org/10.1093/jpepsy/jsaf095

Lei Y; Hetherington K; Daly R; Rensen N; McGill BC; Ziegler DS; Lau LMS; Tyrrell V; Karpelowsky J; Cowley MJ; Tucker KM; Haber M; Barahona P; Wakefield CE, 2025, 'Data Sharing, Biopsies and Patient Confidentiality in a Precision Medicine Trial for Childhood Cancer: A Mixed Method Study of Parents, Oncologists, and Scientists' Perspectives.', J Pers Med, 15, http://dx.doi.org/10.3390/jpm15110531

Nobilo A; McLoone J; White M; Smithers-Sheedy H; Anderson J; Lingam R; Bailey C; Wakefield CE; Hancock JE; Hodgins M; Cazzolli R; Culnane E; Gialamas A; Glasson N; Ho J; Lain S; Moore C; Pierce K; Steinbeck K; Woolfenden S, 2025, 'Co-design of an intervention to enhance healthcare transition for adolescents and young adults with chronic medical conditions', npj Health Systems, 2, http://dx.doi.org/10.1038/s44401-025-00041-4

Robertson EG; Hetherington K; Prain M; Ma A; Ayton LN; Jamieson RV; Shepard E; Boyd L; Hall J; Boyd R; Karandrews S; Feller H; Simunovic MP; Grigg JR; Yamamoto K; Wakefield CE; Gonzalez-Cordero A, 2025, 'Australian research priorities for inherited retinal diseases: a James Lind Alliance priority setting partnership', BMJ Open, 15, http://dx.doi.org/10.1136/bmjopen-2025-100301

Robertson EG; Kelada L; Ilin R; Palmer EE; Bye A; Jaffe A; Kennedy SE; Ooi CY; Drew D; Wakefield CE, 2025, 'Psychological wellbeing among parents of a child living with a serious chronic illness: A cross-sectional survey study', Journal of Child Health Care, 29, pp. 626 - 641, http://dx.doi.org/10.1177/13674935241238485

Ha L; Nevin SM; Wakefield CE; Jacovou J; Mizrahi D; Signorelli C, 2025, 'Exploring childhood cancer survivor, parent, healthcare and community professionals’ experiences of, and priorities for, using digital health to engage in physical activity: a mixed methods study', Journal of Cancer Survivorship, 19, pp. 1403 - 1418, http://dx.doi.org/10.1007/s11764-024-01560-z

Sansom-Daly UM; McLoone JK; Fardell JE; Evans HE; McGill BC; Robertson EG; Signorelli C; Ellis S; Ha L; Hetherington K; Houweling RE; Nevin SM; Schilstra CE; Mitchell R; Haber M; Cohn RJ; Wakefield CE, 2025, 'Bridging the Gap: Embedding Psychosocial Oncology Research into Comprehensive Cancer Care for Children and Young People', Cancers, 17, http://dx.doi.org/10.3390/cancers17132123

Docking KM; Hodges R; Campbell L; Chami S; Knijnik SR; Campbell E; Paquier P; Dalla-Pozza L; Wakefield CE; Waugh MC; Messina M; Morgan AT, 2025, 'Clinical Practice Guideline for the Management of Communication and Swallowing in Children Diagnosed With Childhood Brain Tumor or Leukemia', Pediatric Blood and Cancer, 72, http://dx.doi.org/10.1002/pbc.31749

Evans HE; Ralph M; Jaaniste T; Wakefield CE; Sansom-Daly UM, 2025, 'The Rhythm of Connection: Describing the Heartbeats Intervention for Patients and Families Receiving Paediatric Palliative Care', Children, 12, http://dx.doi.org/10.3390/children12070884

Hayes TRC; Sansom-Daly UM; Kelada L; Baenziger J; Hetherington K; Cohn RJ; Holland LR; Plaster M; Houweling R; Wakefield CE, 2025, 'Exploring the impact of cancer on adolescents' and young adults' relational worlds', Journal of Psychosocial Oncology Research and Practice, 7, http://dx.doi.org/10.1097/OR9.0000000000000175

Ha L; Wakefield CE; Jacovou J; Johnston K; Drew D; Donoghoe MW; Mizrahi D; Lourenco RDA; Cohn RJ; Taylor N; Signorelli C; Roughley K; Joyner C; Wright A, 2025, '‘Making Moves’: Protocol for a hybrid effectiveness-implementation pre-post trial of a co-designed online physical activity program for childhood cancer survivors', Jsams Plus, 5, http://dx.doi.org/10.1016/j.jsampl.2025.100099

Schilstra CE; Wakefield CE; McLoone J; Wiener L; Donoghoe MW; Hoffman RI; Echodu M; Ortiz R; Ilbawi A; Cayrol J, 2025, 'Development of a World Health Organization international survey assessing the lived experience of people affected by cancer: outcomes from pilot testing, user feedback, and survey revision', Supportive Care in Cancer, 33, http://dx.doi.org/10.1007/s00520-025-09372-2

McLoone JK; Wakefield CE; Glasson N; Wiener L; Ortiz R; Ilbawi A; Schilstra CE; Hoffman R; Cayrol J, 2025, 'The Lived Experience of Childhood Cancer Survivors and Their Parents: A Multi-National Study of Access to Survivorship Care and Information and Support Needs', Pediatric Blood and Cancer, 72, http://dx.doi.org/10.1002/pbc.31593

Ha L; Signorelli C; Cohen J; Neville KA; Wakefield CE; Cohn RJ, 2025, 'Impact of a digital physical activity intervention on reducing sugar-sweetened beverage intake in young childhood cancer survivors: Epidemiology', British Journal of Cancer, 132, pp. 583 - 584, http://dx.doi.org/10.1038/s41416-025-02965-y

Finney J; Fargas V; Gonzalez T; Taylor N; Wakefield CE; Tucker K; Turbitt E; Williams R, 2025, 'Cancer genetic counseling via telegenetics and telephone: A qualitative study exploring the experience of patients and genetic counselors in an Australian cancer genetics context', Journal of Genetic Counseling, 34, http://dx.doi.org/10.1002/jgc4.1982

Parker C; Schilstra CE; McCleary K; Martin M; Trahair TN; Kotecha RS; Ramachandran S; Cockcroft R; Conyers R; Cross S; Dalla-Pozza L; Downie P; Revesz T; Osborn M; Marshall GM; Wakefield CE; Mateos MK; Fardell JE, 2025, 'Psychosocial Outcomes in Parents of Children with Acute Lymphoblastic Leukaemia in Australia and New Zealand Through and Beyond Treatment', Cancers, 17, http://dx.doi.org/10.3390/cancers17071238

Robertson EG; Hetherington K; Hunter JD; McGillycuddy M; Venkatesha V; Lau LMS; Khuong-Quang DA; Ziegler DS; Wakefield CE, 2025, 'Whatever It Takes: Parents' Perspectives of Patient-Derived Xenograft Mouse Models for Poor Prognosis Childhood Cancer', JCO Precision Oncology, 9, pp. e2400840, http://dx.doi.org/10.1200/PO-24-00840

Elias J; McLoone JK; McKay S; Signorelli C; Cohn RJ; Wakefield CE; Mazariego C; Taylor N, 2025, 'Planning for Scale-Up and Sustainability: A Multi-site Process Evaluation Protocol for a Novel Intervention for Survivors of Childhood Brain Cancer', Global Implementation Research and Applications, 5, pp. 290 - 305, http://dx.doi.org/10.1007/s43477-025-00159-5

Hill RE; Fardell JE; Mercieca-Bebber R; Wakefield CE; Signorelli C; Webber K; Johnston KA; Cohn RJ, 2025, 'Survivorship care plan utilization in Australia and New Zealand: survivors’, parents’ and healthcare providers’ perspectives', Supportive Care in Cancer, 33, http://dx.doi.org/10.1007/s00520-025-09238-7

Budden AK; Song S; Henry A; Wakefield CE; Abbott JA, 2025, 'A scoping review of participant reported outcome measures assessed during live and simulated surgical procedures', American Journal of Surgery, 240, pp. 116131, http://dx.doi.org/10.1016/j.amjsurg.2024.116131

Zhang T; Ren Z; Wakefield CE; Hui BPH; Akechi T; Shi C; Du X; Chen W; Lai L; Zhao C; Li Y; Zhou Y, 2025, 'Are digital psychological interventions for psychological distress and quality of life in cancer patients effective? A systematic review and network meta-analysis', Clinical Psychology Review, 115, http://dx.doi.org/10.1016/j.cpr.2024.102520

Hunter JD; Hetherington K; Wakefield CE; Tucker KM; McGill BC; Grant A; Fuentes-Bolanos NA; Padhye B; Gleeson M; Bhatia K; Peate M, 2025, 'Delivering Trio Germline Whole Genome Sequencing to Patients Newly Diagnosed With Childhood Cancer: Healthcare Professionals' Perspectives of the PREDICT Study', Cancer Medicine, 14, http://dx.doi.org/10.1002/cam4.70680

Van Hoyweghen S; Claes KBM; de Putter R; Wakefield CE; Van Poucke M; Van Schoors M; Hellemans S; Verhofstadt L, 2025, 'Family-Level Impact of Germline Genetic Testing in Childhood Cancer: A Multi Family Member Interview Analysis', Cancers, 17, http://dx.doi.org/10.3390/cancers17030517

Soosay Raj TA; Harrison J; Wakefield CE; Daur B; Felmingham B; Casey M; McLoone JK; Sullivan M; Staffieri SE; Anga G, 2025, 'Building capacity to treat childhood cancer in Papua New Guinea: ‘It’s a multidisciplinary village’', Journal of Global Health, 15, http://dx.doi.org/10.7189/JOGH.15.03008

Signorelli C; Mcloone J; Wakefield C; Donoghoe M; Alchin JE; Johnston K; Baldwin R; Thornton-Benko E; Webber K; Foreman T; Neville K; Cohn R, 2025, 'Engage: A Survivorship Program to Improve Childhood Cancer Survivors' Self-Efficacy and Quality of Life', JCO Oncology Practice, http://dx.doi.org/10.1200/OP-24-00815

Boensvang NN; Fridh MK; Wakefield CE; Bidstrup PE; Larsen HB, 2025, 'How Classmates Experience Visiting Their Hospitalised Peer During Cancer Treatment: A RESPECT Study', Journal of Advanced Nursing, http://dx.doi.org/10.1111/jan.70017

Irestorm E; Wakefield CE; Hetherington K; McGill BC; Evans HE; McDonald F; Patterson P; Beattie A; Cohn RJ; Sansom-Daly UM, 2025, 'Recapturing Life: Virtual Peer-Based Psychological Support for Adolescent and Young Adult Cancer Survivors Delivered in the Community', Journal of Adolescent and Young Adult Oncology, http://dx.doi.org/10.1177/21565333251369689

Ha L; Signorelli C; McLoone JK; Wakefield CE; Alchin JE; Venkatesha V; Cohn RJ; Fardell JE, 2025, 'Risky, protective, and screening health behaviours among childhood cancer survivors: A cross-sectional survey in Australia and New Zealand', Journal of Cancer Survivorship, http://dx.doi.org/10.1007/s11764-025-01858-6

Sansom-Daly UM; Kirton C; Lim CYS; Wakefield CE; Hetherington K; McGill BC; Evans HE; Patterson P; Ellis SJ, 2025, 'Support through the screen: therapeutic alliance and group cohesion processes in group videoconferencing-based psychological programs for young cancer survivors', Australian Psychologist, 60, pp. 125 - 138, http://dx.doi.org/10.1080/00050067.2024.2436922

Long S; Schofield D; Kraindler J; Vink R; Ross K; Hart N; Evans H; Wilson A; Hyett J; Wakefield CE; Kelada L; Scott H; Lunke S; Wall M; Buckley MF; Fernihough G; McGillivray G; Roscioli T, 2025, 'The PreGen Research Program: Implementing Prenatal Genomic Testing in Australia—A Commentary', Australian and New Zealand Journal of Obstetrics and Gynaecology, http://dx.doi.org/10.1111/ajo.13936

Sansom-Daly UM; Evans HE; Darlington AS; Weaver MS; Rosenberg AR; Wiener L; Anazodo A; Sue L; Cable M; Fernando RA; Herbert AR; Lindsay T; Cohn RJ; Wakefield CE, 2024, 'Alignment of Palliative Care Service Structure and Standards of Care for Adolescents and Young Adults with Cancer: An International Survey of Clinical Practice', Journal of Palliative Medicine, 27, pp. 1606 - 1617, http://dx.doi.org/10.1089/jpm.2024.0141

Foster E; Chen Z; Wakefield CE; Ademi Z; Hutton E; Steiner TJ; Zagami AS, 2024, 'Australian Headache Epidemiology Data (AHEAD): a pilot study to assess sampling and engagement methodology for a nationwide population-based survey', Journal of Headache and Pain, 25, http://dx.doi.org/10.1186/s10194-024-01773-8

Signorelli C; Kelada L; Wakefield CE; Alchin JE; Adam I; Hoffmann P, 2024, 'Pilot testing “Teach Ted”: A digital application for children undergoing blood tests and their parents', Pec Innovation, 4, http://dx.doi.org/10.1016/j.pecinn.2023.100251

Mazariego C; Daly R; McGill B; Kelada L; McKay S; Hetherington K; Ziegler DS; Wakefield CE; Taylor N, 2024, 'Barriers to access of precision guided therapies for children with high-risk cancer', Pediatric Blood and Cancer, 71, http://dx.doi.org/10.1002/pbc.31147

Budden AK; Henry A; Wakefield CE; Abbott JA, 2024, 'Surgeon stress, anxiety, and workload: a descriptive study of participant reported responses to fundamentals of laparoscopic surgery exercises', Surgical Endoscopy, 38, pp. 6518 - 6526, http://dx.doi.org/10.1007/s00464-024-11238-3

Kelada L; Jaaniste T; Cuganesan A; Chin WL; Tan SC; Wu J; Ilin R; Robertson E; Drew D; Wakefield CE, 2024, 'Illness-related communication between siblings and parents of children with chronic illness and life-limiting conditions: A qualitative analysis', Palliative and Supportive Care, 22, pp. 1353 - 1359, http://dx.doi.org/10.1017/S1478951524001056

Jongenelis MI; Gill M; Lawrence N; Wakefield CE, 2024, 'Quitting intentions and behaviours among young Australian e-cigarette users', Addiction, 119, pp. 1608 - 1615, http://dx.doi.org/10.1111/add.16530

Gerstl B; Signorelli C; Wakefield CE; Deans R; Vaishnav T; Johnston K; Neville K; Cohn RJ; Anazodo A, 2024, 'Sexual and reproductive complications and concerns of survivors of childhood, adolescent and adult cancer', Journal of Cancer Survivorship, 18, pp. 1201 - 1210, http://dx.doi.org/10.1007/s11764-023-01349-6

Gonzalez T; Tucker K; Wakefield CE; Geelan-Small P; Macmillan S; Taylor N; Williams R, 2024, 'Comparing cancer genetic counselling using telegenetics with in-person and telephone appointments: Results of a partially randomised patient-preference pilot study', Journal of Telemedicine and Telecare, 30, pp. 949 - 960, http://dx.doi.org/10.1177/1357633X221112556

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