By Professor Claire Elizabeth Wakefield

Book Chapters

Hetherington K; Hunter JD; Lockridge R; Warby M; Raygadam M; Wakefield CE; Wiener L, 2023, 'The Psychosocial Impact of Familial Endocrine Cancer Syndromes (FECS) on the Patient and Caregiver', in Familial Endocrine Cancer Syndromes: Navigating the Transition of Care for Pediatric and Adolescent Patients, pp. 1 - 35, http://dx.doi.org/10.1007/978-3-031-37275-9_1

Patenaude AF; Wakefield CE, 2021, 'Psychosocial aspects of childhood cancer genetics', in The Hereditary Basis of Childhood Cancer, pp. 445 - 471, http://dx.doi.org/10.1007/978-3-030-74448-9_15

Schwartz LA; Wakefield CE; McLoone JK; Werba DeRosa B; Kazak AE, 2021, 'Adult Survivors of Childhood Cancer', in Butow PN; Lam WWT (ed.), Psycho-Oncology, Oxford University Press, pp. 767 - 772, http://dx.doi.org/10.1093/med/9780190097653.003.0096

Signorelli C; Fardell J; Wakefield C; Cohn R, 2016, 'The Cost of Cure: Chronic Conditions in Survivors of Child, Adolescent, and Young Adult Cancers', in Koczwara B (ed.), Cancer and Chronic Conditions Addressing the Problem of Multimorbidity in Cancer Patients and Survivors, Springer, Singapore, pp. 371 - 420, http://dx.doi.org/10.1007/978-981-10-1844-2_13

sansom-daly U; McGill B; kasparian N; Patterson P; Muscara F; Wakefield C, 2016, 'Navigating the impact of serious illness across the family system using evidence-based therapeutic approaches', in Menzies R; Kyrios M; Kazantzis N (ed.), Innovations and Future Directions in the Behavioural and Cognitive Therapies, Australian Academic Press, Queensland, pp. 176 - 181, https://www.australianacademicpress.com.au/books/details/287/Innovations_and_Future_Directions_in_the_Behavioural_and_Cognitive_Therapies

Cohen JE; Wakefield CE; Bartle J; Cohn RJ, 2012, 'Nutritional interventions for survivors of childhood cancer', in Cochrane Database of Systematic Reviews, Wiley, http://dx.doi.org/10.1002/14651858.cd009678

Journal articles

Foster E; Chen Z; Wakefield CE; Ademi Z; Hutton E; Steiner TJ; Zagami AS, 2024, 'Australian Headache Epidemiology Data (AHEAD): a pilot study to assess sampling and engagement methodology for a nationwide population-based survey', Journal of Headache and Pain, 25, http://dx.doi.org/10.1186/s10194-024-01773-8

Signorelli C; Kelada L; Wakefield CE; Alchin JE; Adam I; Hoffmann P, 2024, 'Pilot testing “Teach Ted”: A digital application for children undergoing blood tests and their parents', PEC Innovation, 4, http://dx.doi.org/10.1016/j.pecinn.2023.100251

Mazariego C; Daly R; McGill B; Kelada L; McKay S; Hetherington K; Ziegler DS; Wakefield CE; Taylor N, 2024, 'Barriers to access of precision guided therapies for children with high-risk cancer', Pediatric Blood and Cancer, 71, http://dx.doi.org/10.1002/pbc.31147

Budden AK; Henry A; Wakefield CE; Abbott JA, 2024, 'Surgeon stress, anxiety, and workload: a descriptive study of participant reported responses to fundamentals of laparoscopic surgery exercises', Surgical Endoscopy, 38, pp. 6518 - 6526, http://dx.doi.org/10.1007/s00464-024-11238-3

Boensvang NN; Weibel M; Wakefield CE; Bidstrup PE; Olsen M; Nissen KB; Spager V; Fridh MK; Larsen HB, 2024, 'Online Ambassador Visits for Hospitalized Children With Cancer: Qualitative Evaluation of Implementation.', JMIR Pediatr Parent, 7, pp. e53309, http://dx.doi.org/10.2196/53309

Jongenelis MI; Gill M; Lawrence N; Wakefield CE, 2024, 'Quitting intentions and behaviours among young Australian e-cigarette users', Addiction, 119, pp. 1608 - 1615, http://dx.doi.org/10.1111/add.16530

Gerstl B; Signorelli C; Wakefield CE; Deans R; Vaishnav T; Johnston K; Neville K; Cohn RJ; Anazodo A, 2024, 'Sexual and reproductive complications and concerns of survivors of childhood, adolescent and adult cancer', Journal of Cancer Survivorship, 18, pp. 1201 - 1210, http://dx.doi.org/10.1007/s11764-023-01349-6

Gonzalez T; Tucker K; Wakefield CE; Geelan-Small P; Macmillan S; Taylor N; Williams R, 2024, 'Comparing cancer genetic counselling using telegenetics with in-person and telephone appointments: Results of a partially randomised patient-preference pilot study', Journal of Telemedicine and Telecare, 30, pp. 949 - 960, http://dx.doi.org/10.1177/1357633X221112556

van Kalsbeek RJ; Hudson MM; Mulder RL; Ehrhardt M; Green DM; Mulrooney DA; Hakkert J; den Hartogh J; Nijenhuis A; van Santen HM; Schouten-van Meeteren AYN; van Tinteren H; Verbruggen LC; Conklin HM; Jacola LM; Webster RT; Partanen M; Kollen WJW; Grootenhuis MA; Pieters R; Kremer LCM; Zwiers L; Zsiros J; van Zanten J; Zaidi A; Zaletel LZ; Wyrick K; Wouterse C; Wouters K; Wlodarski M; Witt O; de Winter L; Windham J; Wilson T; Willard V; Wijnen M; Wiener L; Wichink R; Whelan J; van de Wetering M; Weiss A; van Wegen Peelen C; Warren K; Wakefield C; van Vuurden D; de Vries A; de Vos-Kerkhof E; van Vliet J; Visser S; Verwaaijen E; Versluys B; van de Ven K; Uyuk G; Uyttebroeck A; Upadhyaya S; Turner E; Top A; Tonning-Olsson I; Tissing W; Tippett R; Tinkle C; Thomassen B; Thomas S; Terwisscha S; Tersteeg C; Taylor H; Talleur A; Takemoto C; Taj M; Sweeney T; Sulkers M; Spunt S; Spraker-Perlman H; Smith D; van der Sluis I; Sluijs D; Slooff R; Skinner R; Sieswerda I; Sehested A; Schulte F; Schoot R; Schmiegelow K; Schleiermacher G; Scheinemann K; Sawyer K; Saslawsky S; Santana V; van de Sande M; Rutkowski S; Roganovic J; Roberts S; Ribeiro R; Rehorst-Kleinlugtenbelt L; Redd D; Qaddoumi I; Potter B; Portegies M; Plasschaert S; Phillips B, 2024, 'Correction to: A joint international consensus statement for measuring quality of survival for patients with childhood cancer (Nature Medicine, (2023), 29, 6, (1340-1348), 10.1038/s41591-023-02339-y)', Nature Medicine, 30, pp. 2091, http://dx.doi.org/10.1038/s41591-024-03065-9

Fredriksen T; Vatne TM; Haukeland YB; Czajkowski NO; Wakefield CE; Fjermestad KW, 2024, 'Evaluation of Siblings’ Perceived Relationship Outcomes with Their Parents in an Open Trial of the SIBS Intervention for Children with Chronic Disorders', Journal of Child and Family Studies, 33, pp. 2271 - 2285, http://dx.doi.org/10.1007/s10826-024-02824-z

Nguyen CQ; Kariyawasam DST; Ngai TSJ; Nguyen J; Alba-Concepcion K; Grattan SE; Palmer EE; Hetherington K; Wakefield CE; Dale RC; Woolfenden S; Mohammad S; Farrar MA, 2024, '‘High hopes for treatment’: Australian stakeholder perspectives of the clinical translation of advanced neurotherapeutics for rare neurological diseases', Health Expectations, 27, http://dx.doi.org/10.1111/hex.14063

Kelada L; Robertson EG; McKay S; McGill BC; Daly R; Mazariego C; Taylor N; Tyedmers E; Armitage N; Evans HE; Wakefield CE; Ziegler DS, 2024, 'Communicating with families of young people with hard-to-treat cancers: Healthcare professionals’ perspectives on challenges, skills, and training', Palliative and Supportive Care, 22, pp. 539 - 545, http://dx.doi.org/10.1017/S1478951523001992

Robertson EG; Hetherington K; Daly R; Donoghoe MW; Handelsman N; Ziegler DS; Wakefield CE, 2024, 'The feasibility and acceptability of collecting psychosocial outcome measures embedded within a precision medicine trial for childhood cancer', Cancer Medicine, 13, http://dx.doi.org/10.1002/cam4.7339

Daly R; Hetherington K; Wadling BR; Jacobs C; Karpelowsky J; Wakefield CE, 2024, 'It provides families with other avenues for treatment when there are no other options Surgeons' perspectives of being part of a precision medicine trial for poor prognosis paediatric cancer patients: A short report', Cancer Medicine, 13, http://dx.doi.org/10.1002/cam4.7209

Fardell JE; Schilstra C; Hikila J; Collins D; Kelada L; Lah S; Cohn RJ; Wakefield CE; Ellis S, 2024, 'Survivors of child and adolescent cancer experiences of bullying at school or work: self-report and parent proxy report', Journal of Psychosocial Oncology Research and Practice, 6, http://dx.doi.org/10.1097/OR9.0000000000000130

van Kalsbeek RJ; Hudson MM; Mulder RL; Ehrhardt M; Green DM; Mulrooney DA; Hakkert J; den Hartogh J; Nijenhuis A; van Santen HM; Schouten-van Meeteren AYN; van Tinteren H; Verbruggen LC; Conklin HM; Jacola LM; Webster RT; Partanen M; Kollen WJW; Grootenhuis MA; Pieters R; Kremer LCM; Zwiers L; Zsiros J; van Zanten J; Zaidi A; Zaletel LZ; Wyrick K; Wouterse C; Wouters K; Wlodarski M; Witt O; de Winter L; Windham J; Wilson T; Willard V; Wijnen M; Wiener L; Wichink R; Whelan J; van de Wetering M; Weiss A; van Wegen Peelen C; Warren K; Wakefield C; van Vuurden D; de Vries A; de Vos-Kerkhof E; van Vliet J; Visser S; Verwaaijen E; Versluys B; van de Ven K; Uyuk G; Uyttebroeck A; Upadhyaya S; Turner E; Top A; Tonning-Olsson I; Tissing W; Tippett R; Tinkle C; Thomassen B; Thomas S; Terwisscha S; Tersteeg C; Taylor H; Talleur A; Takemoto C; Taj M; Sweeney T; Sulkers M; Spunt S; Spraker-Perlman H; Smith D; van der Sluis I; Sluijs D; Slooff R; Skinner R; Sieswerda I; Sehested A; Schulte F; Schoot R; Schmiegelow K; Schleiermacher G; Scheinemann K; Sawyer K; Saslawsky S; Santana V; van de Sande M; Rutkowski S; Roganovic J; Roberts S; Rehorst-Kleinlugtenbelt L; Redd D; Qaddoumi I; Potter B; Portegies M; Plasschaert S; Phillips B; Peek A, 2024, 'Author Correction: A joint international consensus statement for measuring quality of survival for patients with childhood cancer (Nature Medicine, (2023), 29, 6, (1340-1348), 10.1038/s41591-023-02339-y)', Nature Medicine, 30, pp. 605, http://dx.doi.org/10.1038/s41591-023-02753-2

Smyth R; Reid SM; Paton K; Guzys AT; Wakefield CE; Amor DJ, 2024, 'Causation in cerebral palsy: Parental beliefs and associated emotions', Developmental Medicine and Child Neurology, 66, pp. 258 - 266, http://dx.doi.org/10.1111/dmcn.15708

van Kalsbeek RJ; Hudson MM; Mulder RL; Ehrhardt M; Green DM; Mulrooney DA; Hakkert J; den Hartogh J; Nijenhuis A; van Santen HM; Schouten-van Meeteren AYN; van Tinteren H; Verbruggen LC; Conklin HM; Jacola LM; Webster RT; Partanen M; Kollen WJW; Grootenhuis MA; Pieters R; Kremer LCM; Zwiers L; Zsiros J; van Zanten J; Zaidi A; Zaletel LZ; Wyrick K; Wouterse C; Wouters K; Wlodarski M; Witt O; de Winter L; Windham J; Wilson T; Willard V; Wijnen M; Wiener L; Wichink R; Whelan J; van de Wetering M; Weiss A; van Wegen Peelen C; Warren K; Wakefield C; van Vuurden D; de Vries A; de Vos-Kerkhof E; van Vliet J; Visser S; Verwaaijen E; Versluys B; Verbruggen L; van de Ven K; Uyuk G; Uyttebroeck A; Upadhyaya S; Turner E; Top A; Tonning-Olsson I; Tissing W; Tippett R; Tinkle C; Thomassen B; Thomas S; Terwisscha S; Tersteeg C; Taylor H; Talleur A; Takemoto C; Taj M; Sweeney T; Sulkers M; Spunt S; Spraker-Perlman H; Smith D; van der Sluis I; Sluijs D; Slooff R; Skinner R; Sieswerda I; Sehested A; Schulte F; Schouten-van Meeteren A; Schoot R; Schmiegelow K; Schleiermacher G; Scheinemann K; Sawyer K; Saslawsky S; van Santen H; Santana V; van de Sande M; Rutkowski S; Roganovic J; Roberts S; Rehorst-Kleinlugtenbelt L; Redd D; Qaddoumi I; Potter B; Portegies M, 2024, 'Correction to: A joint international consensus statement for measuring quality of survival for patients with childhood cancer (Nature Medicine, (2023), 29, 6, (1340-1348), 10.1038/s41591-023-02339-y)', Nature Medicine, 30, pp. 603, http://dx.doi.org/10.1038/s41591-023-02651-7

Schilstra CE; Sansom-Daly UM; Ellis SJ; Trahair TN; Anazodo AC; Amiruddin A; Lindsay T; Maguire F; Wakefield CE; Lah S; Bland E; Lenthen K; Rifkin A; Awan A; Kittos T; Hanbury N; Tsalidis S; Patterson P; McDonald F; Fardell JE, 2024, 'Guidelines for Caring for the Social Well-Being of Adolescents and Young Adults with Cancer in Australia', Journal of Adolescent and Young Adult Oncology, 13, pp. 8 - 29, http://dx.doi.org/10.1089/jayao.2023.0027

Lee AE; McLoone JK; Touyz LM; Wakefield CE; Cohn RJ; Signorelli C, 2024, 'It just never ends: Childhood cancer survivors' perceived psychosocial impacts of recurrence and second cancer', Palliative and Supportive Care, 22, pp. 31 - 40, http://dx.doi.org/10.1017/S1478951522001328

Budden AK; Song S; Henry A; Wakefield CE; Abbott JA, 2024, 'Surgeon reported measures of stress and anxiety prior to and after elective gynecological surgery', Acta Obstetricia et Gynecologica Scandinavica, 103, pp. 360 - 367, http://dx.doi.org/10.1111/aogs.14728

Cayrol J; Wakefield CE; Ilbawi A; Donoghoe M; Hoffman R; Echodu M; Schilstra C; Ortiz R; Wiener L; Gok C, 2024, 'The lived experience of people affected by cancer: A global cross-sectional survey protocol', PLoS ONE, 19, pp. e0294492, http://dx.doi.org/10.1371/journal.pone.0294492

Finney J; Fargas V; Gonzalez T; Taylor N; Wakefield CE; Tucker K; Turbitt E; Williams R, 2024, 'Cancer genetic counseling via telegenetics and telephone: A qualitative study exploring the experience of patients and genetic counselors in an Australian cancer genetics context', Journal of Genetic Counseling, http://dx.doi.org/10.1002/jgc4.1982

Mazariego CG; McKay S; Tyedmers E; Kelada L; McGill BC; Daly R; Wakefield CE; Ziegler DS; Taylor N; Mazariego-Jones C, 2024, 'Co-design of a paediatric oncology medicines database (ProCure) to support complex care provision for children with a hard-to-treat cancer', Frontiers in Medicine, 11, pp. 1332434, http://dx.doi.org/10.3389/fmed.2024.1332434

Ha L; Nevin SM; Wakefield CE; Jacovou J; Mizrahi D; Signorelli C, 2024, 'Exploring childhood cancer survivor, parent, healthcare and community professionals’ experiences of, and priorities for, using digital health to engage in physical activity: a mixed methods study', Journal of Cancer Survivorship, http://dx.doi.org/10.1007/s11764-024-01560-z

Kelada L; Jaaniste T; Cuganesan A; Chin WLA; Tan SC; Wu J; Ilin R; Robertson E; Drew D; Wakefield CE, 2024, 'Illness-related communication between siblings and parents of children with chronic illness and life-limiting conditions: A qualitative analysis', Palliative and Supportive Care, http://dx.doi.org/10.1017/S1478951524001056

Robertson EG; Kelada L; Ilin R; Palmer EE; Bye A; Jaffe A; Kennedy SE; Ooi CY; Drew D; Wakefield CE, 2024, 'Psychological wellbeing among parents of a child living with a serious chronic illness: A cross-sectional survey study', Journal of Child Health Care, http://dx.doi.org/10.1177/13674935241238485

Van Hoyweghen S; BM Claes K; de Putter R; Wakefield C; Van Schoors M; Hellemans S; Verhofstadt L, 2024, 'The psychological impact of genetic testing in childhood cancer: A systematic review', Psycho-Oncology, 33, http://dx.doi.org/10.1002/pon.6279

Hetherington K; Wakefield CE; McGill BC; Tucker KM; Donoghoe MW; Daly R; Hunter JD; Ballinger M; Fuentes-Bolanos NA; Ziegler DS, 2024, 'When genetics and pediatric cancer collide: Understanding and optimizing families' experiences', Neuro-Oncology Advances, 6, http://dx.doi.org/10.1093/noajnl/vdae133

Church AJ; Wakefield CE; Hetherington K; Shern JF, 2024, 'Promise and Perils of Precision Oncology for Patients With Pediatric and Young Adult Sarcomas.', Am Soc Clin Oncol Educ Book, 44, pp. e432794, http://dx.doi.org/10.1200/EDBK_432794

Hill RE; Mercieca-Bebber R; Fardell JE; Wakefield CE; Signorelli C; Webber K; Cohn RJ, 2023, 'Relationship between survivorship care plans and unmet information needs, quality of life, satisfaction with care, and propensity to engage with, and attend, follow-up care', Cancer, 129, pp. 3820 - 3832, http://dx.doi.org/10.1002/cncr.34984

Nevin SM; McGill BC; Kelada L; Hilton G; Maack M; Elvidge KL; Farrar MA; Baynam G; Katz NT; Donovan L; Grattan S; Signorelli C; Bhattacharya K; Nunn K; Wakefield CE, 2023, 'The psychosocial impact of childhood dementia on children and their parents: a systematic review', Orphanet Journal of Rare Diseases, 18, http://dx.doi.org/10.1186/s13023-023-02859-3

Gereis JM; Hetherington K; Robertson EG; Daly R; Donoghoe MW; Ziegler DS; Marshall GM; Lau LMS; Marron JM; Wakefield CE, 2023, 'Parents’ and adolescents’ perspectives and understanding of information about childhood cancer precision medicine', Cancer, 129, pp. 3645 - 3655, http://dx.doi.org/10.1002/cncr.34914

McGill BC; Wakefield CE; Tucker KM; Daly RA; Donoghoe MW; Vetsch J; Warby M; Fuentes-Bolanos NA; Barlow-Stewart K; Kirk J; Courtney E; O’Brien TA; Marshall GM; Pinese M; Cowley MJ; Tyrrell V; Deyell RJ; Ziegler DS; Hetherington K, 2023, 'Parents’ expectations, preferences, and recall of germline findings in a childhood cancer precision medicine trial', Cancer, 129, pp. 3620 - 3632, http://dx.doi.org/10.1002/cncr.34917

Wakefield CE; Hetherington K; Robertson EG; Donoghoe MW; Hunter JD; Vetsch J; Marron JM; Tucker KM; Marshall GM; Broom A; Haber M; Tyrrell V; Malkin D; Lau L; Mateos MK; O’Brien TA; Ziegler DS, 2023, 'Hopes, concerns, satisfaction and regret in a precision medicine trial for childhood cancer: a mixed-methods study of parent and patient perspectives', British Journal of Cancer, 129, pp. 1634 - 1644, http://dx.doi.org/10.1038/s41416-023-02429-1

Budden AK; Song S; Henry A; Nesbitt-Hawes E; Wakefield CE; Abbott JA, 2023, 'Acute Biological Changes in Gynecologic Surgeons during Surgery: A Prospective Study', Journal of Minimally Invasive Gynecology, 30, pp. 841 - 849, http://dx.doi.org/10.1016/j.jmig.2023.06.014

Fardell JE; Hu N; Wakefield CE; Marshall G; Bell J; Lingam R; Nassar N, 2023, 'Impact of Hospitalizations due to Chronic Health Conditions on Early Child Development', Journal of Pediatric Psychology, 48, pp. 799 - 811, http://dx.doi.org/10.1093/jpepsy/jsad025

Ha L; Wakefield CE; Diaz C; Mizrahi D; Signorelli C; Yacef K; Simar D, 2023, 'Patterns of physical activity and sedentary behavior in child and adolescent cancer survivors assessed using wrist accelerometry: A cluster analysis approach', Health Informatics Journal, 29, http://dx.doi.org/10.1177/14604582231212525

Høeg BL; Sevillano PB; Enesco I; Wakefield CE; Larsen HB; Bidstrup PE, 2023, 'Child-centered communication interventions in pediatric oncology: A scoping review and proposed new communication model', Pediatric Blood and Cancer, 70, http://dx.doi.org/10.1002/pbc.30533

Zhang T; Wakefield CE; Ren Z; Chen W; Du X; Shi C; Lai L; Zhao C; Gao Y; Chen Z; Zhou Y; Wu T; Cai M, 2023, 'Effects of digital psychological interventions on physical symptoms in cancer patients: A systematic review and meta-analysis', General Hospital Psychiatry, 84, pp. 47 - 59, http://dx.doi.org/10.1016/j.genhosppsych.2023.05.016

Hou SHJ; Forbes C; Cho S; Tran A; Forster VJ; Wakefield CE; Heathcote LC; Wiener L; Michel G; Patterson P; Stokoe M; Reynolds K; Schulte FMS, 2023, 'Mental health and health behaviors of parents of survivors of childhood cancer in the early COVID-19 pandemic: Exploring the role of intolerance of uncertainty', Journal of Psychosocial Oncology Research and Practice, 5, http://dx.doi.org/10.1097/OR9.0000000000000107

Daly R; Hetherington K; Hazell E; Wadling BR; Tyrrell V; Tucker KM; Marshall GM; Ziegler DS; Lau LMS; Trahair TN; O’Brien TA; Collins K; Gifford AJ; Haber M; Pinese M; Malkin D; Cowley MJ; Karpelowsky J; Drew D; Jacobs C; Wakefield CE, 2023, 'Precision Medicine Is Changing the Roles of Healthcare Professionals, Scientists, and Research Staff: Learnings from a Childhood Cancer Precision Medicine Trial', Journal of Personalized Medicine, 13, http://dx.doi.org/10.3390/jpm13071033

McLoone J; Hamayun M; Nagabushan S; Signorelli C; Wakefield C; Johnston K; Bell R; Cohn R, 2023, 'OUTC-09. PEDIATRIC LOW GRADE GLIOMA SURVIVORS’ NEED FOR SURVIVORSHIP CARE: ‘ENGAGE’ A MULTIDISCIPLINARY, E-HEALTH INTERVENTION', Neuro-Oncology, 25, pp. i37 - i37, http://dx.doi.org/10.1093/neuonc/noad073.146

Budden A; Song S; Henry A; Wakefield CE; Abbott J, 2023, 'A systematic review of biological changes in surgeons’ acute stress levels during surgery', Surgery in Practice and Science, 13, pp. 100174, http://dx.doi.org/10.1016/j.sipas.2023.100174

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