Select Publications
Conference Papers
2011, 'HOW MUCH SLEEP ARE PARENTS GETTING ON THE PEDIATRIC ONCOLOGY WARD?', in PEDIATRIC BLOOD & CANCER, WILEY PERIODICALS, INC, pp. 852 - 853, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000295239600598&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
,2011, 'THE REMEMBERED LEGACY OF CANCER: CANCER-RELATED MEMORIES AND POST-TRAUMATIC OUTCOMES IN CHILDHOOD CANCER SURVIVORS AND THEIR FAMILIES', in PEDIATRIC BLOOD & CANCER, WILEY PERIODICALS, INC, pp. 759 - 759, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000295239600210&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
,2011, 'WHAT DO PARENTS OF CHILDHOOD CANCER PATIENTS ACTUALLY THINK ABOUT ENTERAL NUTRITION?', in PEDIATRIC BLOOD & CANCER, WILEY PERIODICALS, INC, pp. 835 - 835, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000295239600522&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
,2011, ''Cope, Adapt, Survive': Trialling an Online Psychological Intervention for Parents After Their Child's Cancer Treatment', in PSYCHO-ONCOLOGY, WILEY-BLACKWELL, pp. 100 - 100, 16 October 2011 - 20 October 2011, http://gateway.webofknowledge.com/gateway/Gateway.cgi?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=000325687200151&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
,2010, 'An online screening decision aid for men with a family history of prostate cancer: development and pilot-testing', Kingscliffe, NSW, presented at kconFab 2010, Kingscliffe, NSW, 17 August 2010 - 20 August 2010
,2010, 'Risk assessment and information needs regarding the screening options of unaffected men with a strong family history of prostate cancer', in Asia-Pacific Journal of Clinical Oncology, Blackwell Publishing Asia, Australia, pp. A52, presented at Clinical Oncological Society of Australia (COSA) Annual Scientific Meeting 2010, Victoria, Australia
,2009, 'Two-stage development and pilot-testing of an online screening decision aid for men with a family history of prostate cancer', in Asia-Pacific Journal of Clinical Oncology, Blackwell Publishing Asia, Australia, pp. A260 - A260, presented at 36th Annual Meeting of the Clinical Oncological Society of Australia, Gold Coast, Queensland, 17 November 2009 - 19 November 2009
,2008, 'Development of a tailored, online decision aid on screening options for unaffected men with a family history of prostate cancer', in Psycho-oncology, John Wiley & Sons, New York, pp. S157, presented at International Psycho-Oncology Society (IPOS) 10th World Congress of Psycho-Oncology, Madrid, Spain, 09 June 2008 - 13 June 2008
,2008, 'Development of a tailored, online decision aid on screening options for unaffected men with a family history of prostate cancer', in European Journal of Human Genetics, Nature Publishing Group, London, England, pp. 458 - 459, presented at European Meeting on Psychosocial Aspects of Genetics (EMPAG), Barcelona, Spain, 31 May 2008 - 03 June 2008
,2008, 'Development of a tailored, Online decision aid on screening options for unaffected men with a family history of prostate cancer', in Psycho - Oncology, John Wiley & Sons Ltd, Chichester, W Sussex, England, pp. S157 - S157, presented at Psycho-Oncology 2008
,2008, 'Men at increased risk of developing breast cancer: A decision aid for men considering genetic testing', in Asia-Pacific Journal of Clinical Oncology, Blackwell Publishing Asia, Australia, pp. 145 - 179, presented at 35th Clinical Oncological Society of Australia (COSA) Annual Scientific Meeting, Sydney, Australia
,2008, 'Psychosocial issues following recent childhood cancer treatment completion: A systematic literature review and guidelines for end-of-treatment support', in Asia-Pacific Journal of Clinical Oncology, Blackwell Publishing Asia, Australia, pp. 145 - 179, presented at 35th Clinical Oncological Society of Australia (COSA) Annual Scientific Meeting, Sydney, Australia
,2007, 'A randomised controlled trial of a decision aid for individuals considering genetic testing for hereditary non-polyposis colorectal cancer (HNPCC)', in Asia-Pacific Journal of Clinical Oncology, Blackwell Publishing Asia, Australia, pp. A67, presented at Clinical Oncological Society of Australia (COSA) Annual Scientific Meeting 2007, Adelaide, Australia
,2007, 'Development of an Online screening decision aid for unaffected men with a strong family history of prostate cancer', in Psycho - Oncology, John Wiley & Sons Ltd, Chichester, W Sussex, England, pp. S127 - S128, presented at Psycho-Oncology 2007
,2007, 'Hereditary non-polyposis colorectal cancer (HNPCC) and related matters: Counselling issues', in Asia-Pacific Journal of Clinical Oncology, Blackwell Publishing Asia, Australia, pp. A42, presented at Clinical Oncological Society of Australia (COSA) Annual Scientific Meeting 2007, Adelaide, Australia
,2007, 'Translation of research in hereditary breast/ovarian cancer to other settings: A decision aid for individuals considering genetic testing for hereditary non-polyposis colorectal cancer', in Psycho - Oncology, John Wiley & Sons Ltd, Chichester, W Sussex, England, pp. S20 - S21, presented at Psycho-Oncology 2007
,2006, ''Timing and use of a decision aid for genetic testing for hereditary breast/ovarian cancer risk'', in Psycho - Oncology, John Wiley & Sons Ltd, Chichester, W Sussex, England, pp. S109 - S109, presented at 8th World Congress of Psycho-Oncology, Ferrara-Vience, Italy, 16 October 2006 - 21 October 2006
,2006, 'What should you call a cancer-related mutation? A comparison of community, clinician and patient preferences', in Asia-Pacific Journal of Clinical Oncology, Blackwell Publishing Asia, Australia, pp. 145 - 179, presented at Clinical Oncological Society of Australia (COSA) Annual Scientific Meeting 2006, Melbourne, Australia
,2004, 'Development and pilot testing of a decision aid for genetic testing for hereditary non-polyposis colorectal cancer (HNPCC)', in PSYCHO-ONCOLOGY, JOHN WILEY & SONS LTD, pp. S82 - S83, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000223957800174&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
,2003, 'Development of two decision aids for genetic testing for hereditary cancer.', in AMERICAN JOURNAL OF HUMAN GENETICS, UNIV CHICAGO PRESS, CALIFORNIA, LOS ANGELES, pp. 360 - 360, presented at Annual Meeting of the American-Society-of-Human-Genetics, CALIFORNIA, LOS ANGELES, 04 November 2003 - 08 November 2003, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000185599701114&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
,Conference Posters
2019, 'Co-development of education and support resources for families with severe early-onset genetic epilepsy', Welcome Genome Campus, UK, presented at World Congress of Genetic Counselling, Welcome Genome Campus, UK, 02 October 2019 - 04 October 2019
,Conference Presentations
2021, 'Evaluating positive psychology resources among caregivers of a child with a genetic epilepsy', presented at The Australian and New Zealand Child Neurology Society (ANZCNZ) 9th Annual Scientific Meeting, Held virtually, 13 September 2021 - 15 September 2021
,2018, 'Oncofertility care and the impact on reproductive concerns, psychological distress and satisfaction in cancer patients at diagnosis, parents and partners', presented at 3rd Global Adolescent and Young Adult Cancer Congress, Sheraton Grand Elizabeth Street Sydney, 04 December 2018 - 06 December 2018
,2018, 'Oncofertility care and the impact on reproductive concerns, psychological distress and satisfaction in cancer patients at diagnosis, parents and partners', presented at Fertility Society of Australia, Melbourne, 10 September 2018 - 12 September 2018
,2015, 'Australasian Oncofertility Registry: Monitoring referral patterns and the uptake, quality and complications of fertility preservation strategies in Australia and New Zealand.', presented at Fertility Society of Australia Conference 2015, Canberra Australia, 13 September 2015 - 15 September 2015
,2015, 'Clinical challenges in implementing psychosocial support in the online space: experiences from the 'Recapture Life' trial', Vol. 24, pp. 14 - 14, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000358255000027&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
,2015, 'Transitional social support: a developing framework for hospital-based bereavement care following the death of a child from cancer', Vol. 24, pp. 23 - 24, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000358255000045&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
,2015, 'Translation of research to practice for grandparents of children with cancer: national dissemination and evaluation of a new resource', Vol. 24, pp. 13 - 13, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000358255000025&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
,2014, 'Empowering Childhood Cancer Survivors: What Information Do Long Term Follow-Up Clinic Attendees and Non-Attendees Need?', https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000344003700530&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
,2013, ''Give as much help as you can but tread carefully': Grandparenting across the generations when a grandchild is diagnosed with cancer.', presented at 45th Congress of the International Society of Paediatric Oncology (SIOP), Hong Kong, -
,2013, 'Comparing the models of care utilised by Australia and New Zealand childhood cancer long term follow-up clinics.', presented at Australia and New Zealand Children's Haematology and Oncology Group (ANZCHOG), Annual Scientific Meeting, Melbourne, Australia
,2013, 'Sleep needs of parents caring for children with cancer.', presented at Australian and New Zealand Children's Haematology and Oncology Group (ANZCHOG), Annual Scientific Meeting, Melbourne, Australia
,2013, 'When the 'all clear' is not so clear: Families' coping with fear of childhood cancer recurrence.', presented at Inaugural Survivorship Conference, Flinders Centre for Cancer Innovation, Adelaide, Australia
,2012, 'The psychological impact of receiving a cancer diagnosis in childhood: Parental experiences and implications for ICU practice.', presented at Australian College of Critical Care Nurses Education Evening, Sydney Children's Hospital, 12 September 2012
,2012, 'Development of a best practice model of care for suvivours of paediatric cancer.', presented at Australian & New Zealand Children's Oncology group annual scientific meeting, Surfers Paradise, QLD, Australia, 23 August 2012
,2012, 'Grandparents of children with cancer need better support: A controlled prevalence study of distress in grandparents of children with, and without, cancer.', presented at 14th Annual World Congress of Psycho-Oncology, Brisbane, Australia, -
,2011, 'Perceptions of support received and needed by families of childhood cancer survivors recently off treatment.', presented at World Cancer Congress, Dalian, China, 24 May 2011 -
,2011, 'Parental Sleep Experiences on the Paediatric Oncology Ward.', presented at 13th Annual World Congress of Psycho-Oncology, Antalya, Turkey
,2011, 'School (re)entry after childhood cancer treatment.', presented at Inaugural Australasian H.E.L.P (Health, Educators, Learners and Practitioners) Conference, Coogee Beach, Sydney, Australia
,2010, 'Decision-making during and after cancer treatment: A qualitative study of adolescent and family experiences.', presented at Australian and New Zealand Children's Haematology and Oncology Group (ANZCHOG) Annual Scientific Meeting, Sydney, Australia, 03 September 2010 - 05 September 2010
,2010, 'The psychological impact of completing childhood cancer treatment on adolescent patients and their families.', presented at American Paediatric Oncology Social Workers Conference, Anaheim, California, USA, 28 April 2010
,2010, ''Suddenly he's dropped from an 'A' student to a 'C'": A qualitative investigation of the educational experiences and concerns of young cancer survivors and their families.', presented at OZPOS/PoCoG Psycho-Oncology Professional Day: 'Optimising psychosocial care through clinical and research excellence', 37th Clinical Oncological Society of Australia (COSA) Annual Scientific Meeting, Melbourne, Australia, -
,2010, 'Perceptions of support received and needed by young people who have recently completed cancer treatment and their families.', presented at Sydney Cancer Conference, Sydney, Australia
,2009, 'Finishing Cancer Treatment: The positives and negatives for adolescents and their families.', presented at Leukaemia Foundation of Australia annual training conference, Adelaide, Australia, 15 October 2009
,2009, 'The CCC&BD's Behavioural Sciences Unit: Current and future projects.', presented at Kid's Cancer Update, Sydney Children's Hospital, 30 August 2009
,2009, 'The psychosocial impact of completing cancer treatment on children and their familes.', presented at Journal Club, Cenre for Children's Cancer and Blood Disorders, 09 March 2009
,2009, 'Completing childhood cancer treatment and the psychological impact: a milestone or millstone with families?', presented at Australian New Zealand Children's Haematology and Oncology (ANZCHOG) Annual Scientific Meeting, Adelaide, Australia
,2009, 'Finishing cancer treatment: the positives and negatives for adolescents and their families.', presented at 36th Clinical Oncological Society of Australia (COSA) Annual Scientific Meeting, Gold Coast, QLD, Australia
,2006, 'Communication aids versus take-home tools: Comparing the results of 2 randomised controlled trials', presented at Meeting of the SESIAHS Hereditary Cancer Clinics, Prince of Wales hospital, Sydney
,2006, 'Decision aid implementation issues: Two decision aids for genetic testing for cancer risk', presented at Meeting of Research in Oncology, Medical Psychology (ROMP) oral presentation series, Royal Prince Alfred Hospital, Sydney
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