Select Publications

Books

Scully JL, 2016, Good and Evil, Routledge, http://dx.doi.org/10.4324/9781315585420

Scully JL; Dandelion P, 2013, Good and evil: Quaker perspectives

Book Chapters

Scully JL, 2022, 'Feminist bioethics and disability', in The Routledge Handbook of Feminist Bioethics, Routledge, pp. 181 - 194, http://dx.doi.org/10.4324/9781003016885-16

Rogers WA; Scully JL; Carter SM; Entwistle VA; Mills C, 2022, 'Introduction', in The Routledge Handbook of Feminist Bioethics, Routledge, pp. 1 - 11, http://dx.doi.org/10.4324/9781003016885-1

Scully JL, 2022, 'Being Disabled and Contemplating Disabled Children', in The Disability Bioethics Reader, Routledge, pp. 116 - 124, http://dx.doi.org/10.4324/9781003289487-16

Scully JL, 2021, 'The Politics of Care: From Biomedical Transformation to Narrative Vulnerability', in Vulnerability and the Politics of Care, British Academy, pp. 151 - 167, http://dx.doi.org/10.5871/bacad/9780197266830.003.0010

Scully JL, 2020, '14 Nothing Like a Gene', in Genes in Development, Duke University Press, pp. 349 - 364, http://dx.doi.org/10.1515/9780822387336-015

Scully JL, 2020, 'Epistemic Exclusion, Injustice, and Disability', in , Oxford University Press, pp. 295 - 309, http://dx.doi.org/10.1093/oxfordhb/9780190622879.013.8

Scully JL, 2019, 'Deaf identities in disability studies', in Routledge Handbook of Disability Studies, Routledge, pp. 145 - 157, http://dx.doi.org/10.4324/9780429430817-11

Scully JL, 2019, 'Choice, Chance, and Acceptance', in Human Flourishing in an Age of Gene Editing, Oxford University Press, pp. 143 - 156, http://dx.doi.org/10.1093/oso/9780190940362.003.0011

Scully JL, 2018, 'Disability and the challenge of genomics', in Routledge Handbook of Genomics, Health and Society, pp. 186 - 194, http://dx.doi.org/10.4324/9781315451695

Scully JL, 2016, 'Feminist empirical bioethics', in Empirical Bioethics: Theoretical and Practical Perspectives, pp. 195 - 221, http://dx.doi.org/10.1017/9781139939829.013

Kim J; Scully JL; Katsanis SH, 2016, 'Ethical challenges in missing persons investigations', in Handbook of Missing Persons, pp. 163 - 175, http://dx.doi.org/10.1007/978-3-319-40199-7_12

Scully JL, 2014, 'On unfamiliar moral territory: About variant embodiment, enhancement and normativity', in The Human Enhancement Debate and Disability: New Bodies for a Better Life, pp. 23 - 37, http://dx.doi.org/10.1057/9781137405531

Scully JL, 2014, 'On Unfamiliar Moral Territory: About Variant Embodiment, Enhancement and Normativity', in The Human Enhancement Debate and Disability, Palgrave Macmillan UK, pp. 23 - 37, http://dx.doi.org/10.1057/9781137405531_2

Scully JL, 2013, 'Disability and Vulnerability', in Vulnerability, Oxford University Press, pp. 204 - 221, http://dx.doi.org/10.1093/acprof:oso/9780199316649.003.0009

Scully JL, 2013, 'Deaf identities in disability studies: With us or without us?', in Routledge Handbook of Disability Studies, pp. 109 - 121, http://dx.doi.org/10.4324/9780203144114-16

Scully JL, 2013, 'The secular ethics of liberal Quakerism', in Good and Evil: Quaker Perspectives, pp. 132 - 219

Dodds S, 2013, 'Feminist Bioethics', in The International Encyclopedia of Ethics, edn. 4, Blackwell Publishing Ltd, pp. 1918 - 1925

Scully JL, 2012, 'Disability, Human Rights and Contemporary Genetics', in , Wiley, http://dx.doi.org/10.1002/9780470015902.a0005214.pub2

Scully JL, 2012, 'Disability: Stigma and Discrimination', in , Wiley, http://dx.doi.org/10.1002/9780470015902.a0005210.pub2

Scully JL, 2012, 'Disability and the thinking body', in Embodied Selves, pp. 139 - 159, http://dx.doi.org/10.1057/9781137283696_9

Scully JL, 2011, 'Disability and the Pitfalls of Recognition', in Contesting Recognition, Palgrave Macmillan UK, pp. 36 - 52, http://dx.doi.org/10.1057/9780230348905_3

Rehmann-Sutter C; Porz R; Scully JL, 2009, 'Sourcing human embryonic tissue: The ethical issues', in Fundamentals of Tissue Engineering and Regenerative Medicine, pp. 37 - 46, http://dx.doi.org/10.1007/978-3-540-77755-7_4

Rehmann-Sutter C; Scully JL, 2009, 'Which Ethics for (of) the Nanotechnologies?', in Sociology of the Sciences Yearbook, Springer Netherlands, pp. 233 - 252, http://dx.doi.org/10.1007/978-90-481-2834-1_13

Scully JL, 2008, 'Disability and the thinking body', in Arguing about Disability: Philosophical Perspectives, pp. 57 - 73, http://dx.doi.org/10.4324/9780203891575

Scully JL, 2008, 'Moral bodies: Epistemologies of embodiment', in Naturalized Bioethics: Toward Responsible Knowing and Practice, pp. 23 - 41, http://dx.doi.org/10.1017/CBO9781139167499.003

Thompson SM, 2007, 'Introduction', in Thompson S (ed.), Planning Australia: An Overview of Urban and Regional Planning, edn. First, Cambridge University Press, Port Melbourne, pp. 1 - 8

Scully JL, 2006, 'Disability: Stigma and Discrimination', in , Wiley, http://dx.doi.org/10.1038/npg.els.0005210

Scully JL, 2006, 'Inheritable genetic modification and disability: Normality and identity', in The Ethics of Inheritable Genetic Modification: A Dividing Line?, pp. 175 - 192, http://dx.doi.org/10.1017/CBO9780511584275.011

SCULLY JL, 2006, 'DISABLED EMBODIMENT AND AN ETHIC OF CARE', in Bioethics in Cultural Contexts, Springer Netherlands, pp. 247 - 261, http://dx.doi.org/10.1007/1-4020-4241-8_18

Scully JL, 2006, 'Nothing Like a Gene', in Genes in Development, Duke University Press, pp. 349 - 364, http://dx.doi.org/10.1215/9780822387336-015

Porz R; Scully JL; Rehmann-Sutter C, 2005, 'Fragilität oder Stabilität? Die Gendiagnostik aus Patientensicht', in Technik in einer fragilen Welt, Nomos, pp. 153 - 162, http://dx.doi.org/10.5771/9783845271071-153

Otten U; Scully JL; Ehrhard PB; Gadient RA, 1994, 'Chapter 24 Neurotrophins: Signals between the nervous and immune systems', in , pp. 293 - 305, http://dx.doi.org/10.1016/S0079-6123(08)61144-9

Scully JL, 'Deaf Identities in Disability Studies', in Routledge Handbook of Disability Studies, Routledge, http://dx.doi.org/10.4324/9780203144114.ch9

Scully JL, 'Disability and the Pitfalls of Recognition', in Contesting Recognition, Palgrave Macmillan, http://dx.doi.org/10.1057/9780230348905.0006

Scully JL, 'On Unfamiliar Moral Territory', in The Human Enhancement Debate and Disability, Palgrave Macmillan, http://dx.doi.org/10.1057/9781137405531.0008

Journal articles

Nguyen CQ; Alba-Concepcion K; Palmer EE; Scully JL; Millis N; Farrar MA, 2022, 'The involvement of rare disease patient organisations in therapeutic innovation across rare paediatric neurological conditions: a narrative review', Orphanet Journal of Rare Diseases, vol. 17, http://dx.doi.org/10.1186/s13023-022-02317-6

Aquino YSJ; Rogers WA; Scully JL; Magrabi F; Carter SM, 2022, 'Ethical Guidance for Hard Decisions: A Critical Review of Early International COVID-19 ICU Triage Guidelines', Health Care Analysis, vol. 30, pp. 163 - 195, http://dx.doi.org/10.1007/s10728-021-00442-0

Scully JL, 2022, 'On Being Unwilling Insiders', International Journal of Feminist Approaches to Bioethics, vol. 15, pp. 146 - 149, http://dx.doi.org/10.3138/ijfab-15.1.22

Scully JL, 2022, 'Response—A Commentary on Miles Little et al. 1998. Liminality: A major category of the experience of cancer illness. Social Science & Medicine 47(10): 1485-1494', Journal of Bioethical Inquiry, vol. 19, pp. 49 - 54, http://dx.doi.org/10.1007/s11673-021-10145-9

Strnadová I; Nevin SM; Scully JL; Palmer EE, 2022, 'The opinions and experiences of people with intellectual disability regarding genetic testing and genetic medicine: A systematic review', Genetics in Medicine, vol. 24, pp. 535 - 548, http://dx.doi.org/10.1016/j.gim.2021.11.013

Bluhm R; Gotlib A; Leach Scully J, 2022, 'Editors’ Note', IJFAB: International Journal of Feminist Approaches to Bioethics, vol. 15, pp. 97 - 97, http://dx.doi.org/10.3138/ijfab-15.1.05

Freeman L; Righetti S; Delatycki MB; Scully JL; Kirk EP, 2022, 'The views of people with a lived experience of deafness and the general public regarding genetic testing for deafness in the reproductive setting: A systematic review', Genetics in Medicine, http://dx.doi.org/10.1016/j.gim.2022.05.005

Wienroth M; Scully JL, 2021, 'Promissory ethical regimes: publics and public goods in genome editing for human health', SCIENCE AND PUBLIC POLICY, vol. 48, pp. 788 - 798, http://dx.doi.org/10.1093/scipol/scab052

Rogers WA; Scully JL, 2021, 'Activism and Bioethics: Taking a Stand on Things That Matter', Hastings Center Report, vol. 51, pp. 32 - 33, http://dx.doi.org/10.1002/hast.1270

Scully JL, 2021, 'A biographer and a bioethicist take on the CRISPR revolution', Nature, vol. 591, pp. 196 - 197, http://dx.doi.org/10.1038/d41586-021-00579-x

Bluhm R; Gotlib A; Scully JL; Tumilty E; Milberger K, 2021, 'From the editors', International Journal of Feminist Approaches to Bioethics, vol. 14, pp. 1 - 1, http://dx.doi.org/10.3138/IJFAB-14.1.00

Ahmad A; Chung R; Eckenwiler L; Ganguli-Mitra A; Hunt M; Richards R; Saghai Y; Schwartz L; Scully JL; Wild V, 2020, 'What does it mean to be made vulnerable in the era of COVID-19?', The Lancet, vol. 395, pp. 1481 - 1482, http://dx.doi.org/10.1016/S0140-6736(20)30979-X

Guidry-Grimes L; Savin K; Stramondo JA; Reynolds JM; Tsaplina M; Burke TB; Ballantyne A; Kittay EF; Stahl D; Scully JL; Garland-Thomson R; Tarzian A; Dorfman D; Fins JJ, 2020, 'Disability Rights as a Necessary Framework for Crisis Standards of Care and the Future of Health Care', Hastings Center Report, vol. 50, pp. 28 - 32, http://dx.doi.org/10.1002/hast.1128


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