Select Publications

Journal articles

Molnar C; Strnadová I; Dunn M; Loblinzk J; Sarfaraz S; Cathcart-King Y; Tso M; Danker J; Hayes S; Willow SA; Hansen J; Lim TQ; Boyle J; Terrill B; Scully JL; Palmer EE, 2024, 'The need for co-educators to drive a new model of inclusive, person-centred and respectful co-healthcare with people with intellectual disability', Frontiers in Psychiatry, 15, pp. 1346423,

Kerridge I; Stewart C; Scully JL; Chiarella M; Hamblin J; Johnson A; Ryan C; Sheahan L; Skowronski G, 2023, 'Conscientious Objection and Institutional Objection to Voluntary Assistance in Dying: An Ethico-legal Critique', Journal of law and medicine, 30, pp. 806 - 821

Scully JL, 2023, 'COVID, Vulnerability, and the Death of Solidarity: “Who Do We Not Save?”', Journal of Bioethical Inquiry, 20, pp. 601 - 606,

Strnadová I; Loblinzk J; Scully JL; Danker J; Tso M; Jackaman KM; Dunn M; Willow SA; Sarfaraz S; Fitzgerald V; Boyle J; Palmer EE, 2023, '“I am not a number!” Opinions and preferences of people with intellectual disability about genetic healthcare', European Journal of Human Genetics, 31, pp. 1057 - 1065,

Freeman L; Delatycki MB; Scully JL; Briggs N; Kirk EP, 2023, 'Views of healthcare professionals on the inclusion of genes associated with non-syndromic hearing loss in reproductive genetic carrier screening', European Journal of Human Genetics, 31, pp. 548 - 554,

Dunn M; Strnadová I; Scully JL; Hansen J; Loblinzk J; Sarfaraz S; Molnar C; Palmer EE, 2023, 'Equitable and accessible informed healthcare consent process for people with intellectual disability: A systematic literature review', BMJ Quality and Safety,

Freeman L; Delatycki MB; Scully JL; Kirk EP, 2023, 'Response to Li and Sun', Genetics in Medicine, 25, pp. 157,

Freeman L; Bristowe L; Kirk EP; Delatycki MB; Scully JL, 2023, 'Should genes for non-syndromic hearing loss be included in reproductive genetic carrier screening: Views of people with a personal or family experience of deafness', Journal of Genetic Counseling,

van Toorn G; Scully JL, 2023, 'Unveiling algorithmic power: exploring the impact of automated systems on disabled people’s engagement with social services', Disability and Society, ahead-of-print, pp. 1 - 26,

Nguyen CQ; Alba-Concepcion K; Palmer EE; Scully JL; Millis N; Farrar MA, 2022, 'The involvement of rare disease patient organisations in therapeutic innovation across rare paediatric neurological conditions: a narrative review', Orphanet Journal of Rare Diseases, 17,

Freeman L; Delatycki MB; Leach Scully J; Kirk EP, 2022, 'Views of reproductive genetic carrier screening participants regarding screening for genes associated with non-syndromic hearing loss', Prenatal Diagnosis, 42, pp. 1658 - 1666,

Freeman L; Righetti S; Delatycki MB; Scully JL; Kirk EP, 2022, 'The views of people with a lived experience of deafness and the general public regarding genetic testing for deafness in the reproductive setting: A systematic review', Genetics in Medicine, 24, pp. 1803 - 1813,

Aquino YSJ; Rogers WA; Scully JL; Magrabi F; Carter SM, 2022, 'Ethical Guidance for Hard Decisions: A Critical Review of Early International COVID-19 ICU Triage Guidelines', Health Care Analysis, 30, pp. 163 - 195,

Scully JL, 2022, 'On Being Unwilling Insiders', International Journal of Feminist Approaches to Bioethics, 15, pp. 146 - 149,

Scully JL, 2022, 'Response—A Commentary on Miles Little et al. 1998. Liminality: A major category of the experience of cancer illness. Social Science & Medicine 47(10): 1485-1494', Journal of Bioethical Inquiry, 19, pp. 49 - 54,

Strnadová I; Nevin SM; Scully JL; Palmer EE, 2022, 'The opinions and experiences of people with intellectual disability regarding genetic testing and genetic medicine: A systematic review', Genetics in Medicine, 24, pp. 535 - 548,

Bluhm R; Gotlib A; Scully JL, 2022, 'Editors’ Note', International Journal of Feminist Approaches to Bioethics, 15, pp. 97 - 97,

Wienroth M; Scully JL, 2021, 'Promissory ethical regimes: publics and public goods in genome editing for human health', SCIENCE AND PUBLIC POLICY, 48, pp. 788 - 798,

Rogers WA; Scully JL, 2021, 'Activism and Bioethics: Taking a Stand on Things That Matter', Hastings Center Report, 51, pp. 32 - 33,

Scully JL, 2021, 'A biographer and a bioethicist take on the CRISPR revolution', Nature, 591, pp. 196 - 197,

Bluhm R; Gotlib A; Scully JL; Tumilty E; Milberger K, 2021, 'From the editors', International Journal of Feminist Approaches to Bioethics, 14,

Scully JL, 2020, 'Disability, Disablism, and COVID-19 Pandemic Triage', Journal of Bioethical Inquiry, 17, pp. 601 - 605,

Ahmad A; Chung R; Eckenwiler L; Ganguli-Mitra A; Hunt M; Richards R; Saghai Y; Schwartz L; Scully JL; Wild V, 2020, 'What does it mean to be made vulnerable in the era of COVID-19?', The Lancet, 395, pp. 1481 - 1482,

Guidry-Grimes L; Savin K; Stramondo JA; Reynolds JM; Tsaplina M; Burke TB; Ballantyne A; Kittay EF; Stahl D; Scully JL; Garland-Thomson R; Tarzian A; Dorfman D; Fins JJ, 2020, 'Disability Rights as a Necessary Framework for Crisis Standards of Care and the Future of Health Care', Hastings Center Report, 50, pp. 28 - 32,

Draper H; Moorlock G; Rogers W; Scully JL, 2019, 'Bioethics and activism', Bioethics, 33, pp. 853 - 856,

Scully JL, 2019, 'The responsibilities of the engaged bioethicist: Scholar, advocate, activist', Bioethics, 33, pp. 872 - 880,

Scully JL, 2019, 'Special Section: The Donchin and Holmes Emerging Scholar Prize 2016', IJFAB: International Journal of Feminist Approaches to Bioethics, 12, pp. 148 - 148,

Eckenwiler L; Hunt M; Leach Scully J; Wild V, 2018, '4.11-P16Understanding and operationalizing vulnerability in International Humanitarian Health Organisations', European Journal of Public Health, 28,

Scully JL, 2018, 'From "she would say that, wouldn't she?" to "does she take sugar?" epistemic injustice and disability', International Journal of Feminist Approaches to Bioethics, 11, pp. 106 - 124,

Scully JL; Bluhm R; Lindemann H; Nelson JL, 2017, 'From the editors', International Journal of Feminist Approaches to Bioethics, 10, pp. 1 - 3,

Scully JL; Banks S; Song R; Haq J, 2017, 'Experiences of faith group members using new reproductive and genetic technologies: A qualitative interview study', Human Fertility, 20, pp. 22 - 29,

Scully JL, 2017, 'A mitochondrial story: Mitochondrial replacement, identity and narrative', Bioethics, 31, pp. 37 - 45,

Scully JL, 2017, 'Genetic interventions to ‘have healthier children’: a viewpoint from the United Kingdom', Bioethica Forum,

Eckenwiler L; Ahmad A; Chung R; Hunt M; Leach Scully J; Schwarz L; Wild N, 2017, 'Vulnerable Populations: Investigating Ethical Implications for Policies and Practices of International Humanitarian Organizations', Prehospital and Disaster Medicine, 32, pp. S49 - S50,

Verkerk MA; Lindemann H; McLaughlin J; Scully JL; Kihlbom U; Nelson J; Chin J, 2015, 'Where families and healthcare meet', Journal of Medical Ethics, 41, pp. 183 - 185,

Scully JL; Williams R, 2014, 'Approaching disaster victim identification', New Genetics and Society, 33, pp. 233 - 238,

Scully JL, 2014, 'Naming the dead: DNA-based identification of historical remains as an act of care', New Genetics and Society, 33, pp. 313 - 332,


Rommetveit K; Scully JL; Porz R, 2013, 'The role of moral imagination in patients' decision-making', Journal of Medicine and Philosophy (United Kingdom), 38, pp. 160 - 172,

Scully JLE, 2013, 'Body alienation and the moral sense of self', Narrative inquiry in bioethics, 3, pp. 26 - 28,

Chambers T; Ahmad A; Crow S; Davis DS; Dresser R; Harter TD; Jordan SR; Kaposy C; Lanoix M; Lee KJ; Scully JLE; Taylor KA; Watson K, 2013, 'Taking bioethics personally', Narrative inquiry in bioethics, 3, pp. 1 - 3,

Scully JL, 2013, 'Feminist disability studies, edited by Kim Q. Hall', IJFAB: International Journal of Feminist Approaches to Bioethics, 6, pp. 166 - 172,

Scully JL, 2013, 'Mitochondrial donation: the slippery slope to genetic engineering?', Bioethica Forum,

Evison M; Graham E; Haimes E; Leach Scully J; Ludwig A; Maguire C; Toom V; Williams R, 2012, 'A comment on the Hill-Turney exchange: From normative antagonism to interdisciplinary collaboration', New Genetics and Society, 31, pp. 385 - 390,

Rehmann-Sutter C; Porz R; Scully JL, 2012, 'How to relate the empirical to the normative: Toward a phenomenologically informed hermeneutic approach to bioethics', Cambridge Quarterly of Healthcare Ethics, 21, pp. 436 - 447,

Scully JL; Woodward R, 2012, 'Naming the unknown of Fromelles: DNA profiling, ethics and the identification of First World War bodies', Journal of War & Culture Studies, 5, pp. 59 - 72,

Scully JL; Haimes E; Mitzkat A; Porz R; Rehmann-Sutter C, 2012, 'Donating Embryos to Stem Cell Research: The "Problem" of Gratitude', Journal of Bioethical Inquiry, 9, pp. 19 - 28,

Scully JL, 2011, ''Choosing disability', symbolic law, and the media', Medical Law International, 11, pp. 197 - 211,

Bruscato U, 2011, 'Introduction', ARQUITETURA REVISTA, 7, pp. 1 - 1,

Scully JL, 2010, 'Hidden labor: Disabled/Nondisabled encounters, agency, and autonomy', IJFAB: International Journal of Feminist Approaches to Bioethics, 3, pp. 25 - 42,

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