By Professor Jackie Leach Scully

Journal articles

Freeman L; Bristowe L; Kirk EP; Delatycki MB; Scully JL, 2024, 'Should genes for non-syndromic hearing loss be included in reproductive genetic carrier screening: Views of people with a personal or family experience of deafness', Journal of Genetic Counseling, 33, pp. 566 - 577, http://dx.doi.org/10.1002/jgc4.1757

Dunn M; Strnadová I; Scully JL; Hansen J; Loblinzk J; Sarfaraz S; Molnar C; Palmer EE, 2024, 'Equitable and accessible informed healthcare consent process for people with intellectual disability: a systematic literature review', BMJ Quality and Safety, 33, pp. 328 - 339, http://dx.doi.org/10.1136/bmjqs-2023-016113

Molnar C; Strnadová I; Dunn M; Loblinzk J; Sarfaraz S; Cathcart-King Y; Tso M; Danker J; Hayes S; Willow SA; Hansen J; Lim TQ; Boyle J; Terrill B; Scully JL; Palmer EE, 2024, 'The need for co-educators to drive a new model of inclusive, person-centred and respectful co-healthcare with people with intellectual disability', Frontiers in Psychiatry, 15, pp. 1346423, http://dx.doi.org/10.3389/fpsyt.2024.1346423

Kerridge I; Stewart C; Scully JL; Chiarella M; Hamblin J; Johnson A; Ryan C; Sheahan L; Skowronski G, 2023, 'Conscientious Objection and Institutional Objection to Voluntary Assistance in Dying: An Ethico-legal Critique', Journal of law and medicine, 30, pp. 806 - 821

Scully JL, 2023, 'COVID, Vulnerability, and the Death of Solidarity: “Who Do We Not Save?”', Journal of Bioethical Inquiry, 20, pp. 601 - 606, http://dx.doi.org/10.1007/s11673-023-10250-x

Strnadová I; Loblinzk J; Scully JL; Danker J; Tso M; Jackaman KM; Dunn M; Willow SA; Sarfaraz S; Fitzgerald V; Boyle J; Palmer EE, 2023, '“I am not a number!” Opinions and preferences of people with intellectual disability about genetic healthcare', European Journal of Human Genetics, 31, pp. 1057 - 1065, http://dx.doi.org/10.1038/s41431-023-01282-3

Freeman L; Delatycki MB; Scully JL; Briggs N; Kirk EP, 2023, 'Views of healthcare professionals on the inclusion of genes associated with non-syndromic hearing loss in reproductive genetic carrier screening', European Journal of Human Genetics, 31, pp. 548 - 554, http://dx.doi.org/10.1038/s41431-022-01239-y

Freeman L; Delatycki MB; Scully JL; Kirk EP, 2023, 'Response to Li and Sun', Genetics in Medicine, 25, pp. 157, http://dx.doi.org/10.1016/j.gim.2022.10.003

van Toorn G; Scully JL, 2023, 'Unveiling algorithmic power: exploring the impact of automated systems on disabled people’s engagement with social services', Disability and Society, 39, pp. 3004 - 3029, http://dx.doi.org/10.1080/09687599.2023.2233684

Nguyen CQ; Alba-Concepcion K; Palmer EE; Scully JL; Millis N; Farrar MA, 2022, 'The involvement of rare disease patient organisations in therapeutic innovation across rare paediatric neurological conditions: a narrative review', Orphanet Journal of Rare Diseases, 17, http://dx.doi.org/10.1186/s13023-022-02317-6

Freeman L; Delatycki MB; Leach Scully J; Kirk EP, 2022, 'Views of reproductive genetic carrier screening participants regarding screening for genes associated with non-syndromic hearing loss', Prenatal Diagnosis, 42, pp. 1658 - 1666, http://dx.doi.org/10.1002/pd.6253

Freeman L; Righetti S; Delatycki MB; Scully JL; Kirk EP, 2022, 'The views of people with a lived experience of deafness and the general public regarding genetic testing for deafness in the reproductive setting: A systematic review', Genetics in Medicine, 24, pp. 1803 - 1813, http://dx.doi.org/10.1016/j.gim.2022.05.005

Aquino YSJ; Rogers WA; Scully JL; Magrabi F; Carter SM, 2022, 'Ethical Guidance for Hard Decisions: A Critical Review of Early International COVID-19 ICU Triage Guidelines', Health Care Analysis, 30, pp. 163 - 195, http://dx.doi.org/10.1007/s10728-021-00442-0

Scully JL, 2022, 'On Being Unwilling Insiders', International Journal of Feminist Approaches to Bioethics, 15, pp. 146 - 149, http://dx.doi.org/10.3138/ijfab-15.1.22

Scully JL, 2022, 'Response—A Commentary on Miles Little et al. 1998. Liminality: A major category of the experience of cancer illness. Social Science & Medicine 47(10): 1485-1494', Journal of Bioethical Inquiry, 19, pp. 49 - 54, http://dx.doi.org/10.1007/s11673-021-10145-9

Strnadová I; Nevin SM; Scully JL; Palmer EE, 2022, 'The opinions and experiences of people with intellectual disability regarding genetic testing and genetic medicine: A systematic review', Genetics in Medicine, 24, pp. 535 - 548, http://dx.doi.org/10.1016/j.gim.2021.11.013

Bluhm R; Gotlib A; Scully JL, 2022, 'Editors’ Note', International Journal of Feminist Approaches to Bioethics, 15, pp. 97 - 97, http://dx.doi.org/10.3138/ijfab-15.1.05

Wienroth M; Scully JL, 2021, 'Promissory ethical regimes: publics and public goods in genome editing for human health', SCIENCE AND PUBLIC POLICY, 48, pp. 788 - 798, http://dx.doi.org/10.1093/scipol/scab052

Rogers WA; Scully JL, 2021, 'Activism and Bioethics: Taking a Stand on Things That Matter', Hastings Center Report, 51, pp. 32 - 33, http://dx.doi.org/10.1002/hast.1270

Scully JL, 2021, 'A biographer and a bioethicist take on the CRISPR revolution', Nature, 591, pp. 196 - 197, http://dx.doi.org/10.1038/d41586-021-00579-x

Bluhm R; Gotlib A; Scully JL; Tumilty E; Milberger K, 2021, 'From the editors', International Journal of Feminist Approaches to Bioethics, 14, http://dx.doi.org/10.3138/IJFAB-14.1.00

Scully JL, 2020, 'Disability, Disablism, and COVID-19 Pandemic Triage', Journal of Bioethical Inquiry, 17, pp. 601 - 605, http://dx.doi.org/10.1007/s11673-020-10005-y

Ahmad A; Chung R; Eckenwiler L; Ganguli-Mitra A; Hunt M; Richards R; Saghai Y; Schwartz L; Scully JL; Wild V, 2020, 'What does it mean to be made vulnerable in the era of COVID-19?', The Lancet, 395, pp. 1481 - 1482, http://dx.doi.org/10.1016/S0140-6736(20)30979-X

Guidry-Grimes L; Savin K; Stramondo JA; Reynolds JM; Tsaplina M; Burke TB; Ballantyne A; Kittay EF; Stahl D; Scully JL; Garland-Thomson R; Tarzian A; Dorfman D; Fins JJ, 2020, 'Disability Rights as a Necessary Framework for Crisis Standards of Care and the Future of Health Care', Hastings Center Report, 50, pp. 28 - 32, http://dx.doi.org/10.1002/hast.1128

Draper H; Moorlock G; Rogers W; Scully JL, 2019, 'Bioethics and activism', Bioethics, 33, pp. 853 - 856, http://dx.doi.org/10.1111/bioe.12680

Scully JL, 2019, 'The responsibilities of the engaged bioethicist: Scholar, advocate, activist', Bioethics, 33, pp. 872 - 880, http://dx.doi.org/10.1111/bioe.12659

Scully JL, 2019, 'Special Section: The Donchin and Holmes Emerging Scholar Prize 2016', IJFAB: International Journal of Feminist Approaches to Bioethics, 12, pp. 148 - 148, http://dx.doi.org/10.3138/ijfab.12.2.08

Eckenwiler L; Hunt M; Leach Scully J; Wild V, 2018, '4.11-P16Understanding and operationalizing vulnerability in International Humanitarian Health Organisations', European Journal of Public Health, 28, http://dx.doi.org/10.1093/eurpub/cky048.181

Scully JL, 2018, 'From "she would say that, wouldn't she?" to "does she take sugar?" epistemic injustice and disability', International Journal of Feminist Approaches to Bioethics, 11, pp. 106 - 124, http://dx.doi.org/10.3138/ijfab.11.1.106

Scully JL; Bluhm R; Lindemann H; Nelson JL, 2017, 'From the editors', International Journal of Feminist Approaches to Bioethics, 10, pp. 1 - 3, http://dx.doi.org/10.3138/ijfab.10.2.1

Scully JL; Banks S; Song R; Haq J, 2017, 'Experiences of faith group members using new reproductive and genetic technologies: A qualitative interview study', Human Fertility, 20, pp. 22 - 29, http://dx.doi.org/10.1080/14647273.2016.1243816

Scully JL, 2017, 'A mitochondrial story: Mitochondrial replacement, identity and narrative', Bioethics, 31, pp. 37 - 45, http://dx.doi.org/10.1111/bioe.12310

Scully JL, 2017, 'Genetic interventions to ‘have healthier children’: a viewpoint from the United Kingdom', Bioethica Forum, http://dx.doi.org/10.24894/bf.2017.10006

Eckenwiler L; Ahmad A; Chung R; Hunt M; Leach Scully J; Schwarz L; Wild N, 2017, 'Vulnerable Populations: Investigating Ethical Implications for Policies and Practices of International Humanitarian Organizations', Prehospital and Disaster Medicine, 32, pp. S49 - S50, http://dx.doi.org/10.1017/s1049023x1700142x

Verkerk MA; Lindemann H; McLaughlin J; Scully JL; Kihlbom U; Nelson J; Chin J, 2015, 'Where families and healthcare meet', Journal of Medical Ethics, 41, pp. 183 - 185, http://dx.doi.org/10.1136/medethics-2013-101783

Scully JL; Williams R, 2014, 'Approaching disaster victim identification', New Genetics and Society, 33, pp. 233 - 238, http://dx.doi.org/10.1080/14636778.2014.946988

Scully JL, 2014, 'Naming the dead: DNA-based identification of historical remains as an act of care', New Genetics and Society, 33, pp. 313 - 332, http://dx.doi.org/10.1080/14636778.2014.946002

Scully JL, 2014, 'Untitled', INTERNATIONAL JOURNAL OF FEMINIST APPROACHES TO BIOETHICS, 7, pp. 1 - 2, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000334390900001&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1

Rommetveit K; Scully JL; Porz R, 2013, 'The role of moral imagination in patients' decision-making', Journal of Medicine and Philosophy (United Kingdom), 38, pp. 160 - 172, http://dx.doi.org/10.1093/jmp/jht006

Scully JLE, 2013, 'Body alienation and the moral sense of self', Narrative inquiry in bioethics, 3, pp. 26 - 28, http://dx.doi.org/10.1353/nib.2013.0013

Chambers T; Ahmad A; Crow S; Davis DS; Dresser R; Harter TD; Jordan SR; Kaposy C; Lanoix M; Lee KJ; Scully JLE; Taylor KA; Watson K, 2013, 'Taking bioethics personally', Narrative inquiry in bioethics, 3, pp. 1 - 3, http://dx.doi.org/10.1353/nib.2013.0001

Scully JL, 2013, 'Feminist disability studies, edited by Kim Q. Hall', IJFAB: International Journal of Feminist Approaches to Bioethics, 6, pp. 166 - 172, http://dx.doi.org/10.3138/ijfab.6.1.166

Scully JL, 2013, 'Mitochondrial donation: the slippery slope to genetic engineering?', Bioethica Forum, http://dx.doi.org/10.24894/bf.2013.06028

Evison M; Graham E; Haimes E; Leach Scully J; Ludwig A; Maguire C; Toom V; Williams R, 2012, 'A comment on the Hill-Turney exchange: From normative antagonism to interdisciplinary collaboration', New Genetics and Society, 31, pp. 385 - 390, http://dx.doi.org/10.1080/14636778.2012.679395

Rehmann-Sutter C; Porz R; Scully JL, 2012, 'How to relate the empirical to the normative: Toward a phenomenologically informed hermeneutic approach to bioethics', Cambridge Quarterly of Healthcare Ethics, 21, pp. 436 - 447, http://dx.doi.org/10.1017/S0963180112000217

Scully JL; Woodward R, 2012, 'Naming the unknown of Fromelles: DNA profiling, ethics and the identification of First World War bodies', Journal of War & Culture Studies, 5, pp. 59 - 72, http://dx.doi.org/10.1386/jwcs.5.1.59_1

Scully JL; Haimes E; Mitzkat A; Porz R; Rehmann-Sutter C, 2012, 'Donating Embryos to Stem Cell Research: The "Problem" of Gratitude', Journal of Bioethical Inquiry, 9, pp. 19 - 28, http://dx.doi.org/10.1007/s11673-011-9352-9

Scully JL, 2011, ''Choosing disability', symbolic law, and the media', Medical Law International, 11, pp. 197 - 211, http://dx.doi.org/10.1177/096853321101100304

Bruscato U, 2011, 'Introduction', ARQUITETURA REVISTA, 7, pp. 1 - 1, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000297931000001&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1

Scully JL, 2010, 'Hidden labor: Disabled/Nondisabled encounters, agency, and autonomy', IJFAB: International Journal of Feminist Approaches to Bioethics, 3, pp. 25 - 42, http://dx.doi.org/10.3138/ijfab.3.2.25

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