By Professor Jackie Leach Scully

Journal articles

Scully JL, 2026, 'When treatments create new conditions.', Science, 393, pp. eaek8358, http://dx.doi.org/10.1126/science.aek8358

Strnadová I; Tso M; Loblinzk Refalo J; Roberts N; Danker J; Sarfaraz S; Boyle J; Terrill B; Halliburton C; Pantoja Mardones C; Hayes S; Hurd S; King C; Barlow-Stewart K; Evans E; Leonard H; Mar Fan H; Rodgers J; Vella Y; McGaughran J; Best S; Turbitt E; Scully JL; Pratt G; Palmer EE, 2026, 'Building genetic healthcare together: an Australian co-production three-phase mixed-methods research protocol with people with intellectual disability', BMJ Open, 16, http://dx.doi.org/10.1136/bmjopen-2025-110086

Harms RJ; Ankeny RA; Carter L; Mankad A; Scully JL, 2026, 'Problems with a one-size-fits-all approach: a systematic literature review on solutions to AI bias in healthcare and implications for engineering biology', AI and Ethics, 6, http://dx.doi.org/10.1007/s43681-026-01088-1

Scully JL, 2026, 'The impact of epigenetics on health and disability', Science New York N Y, 392, pp. eaeh1105, http://dx.doi.org/10.1126/science.aeh1105

Hansen J; Strnadová I; Danker J; Jackaman KM; Loblinzk Refalo OAM J; Sarfaraz S; Leach Scully J; Boyle J; Terrill B; Palmer EE, 2026, '“It was up to me to be curious”: perceptions and experiences of students with intellectual disability on genetics and health education', European Journal of Human Genetics, 34, pp. 491 - 497, http://dx.doi.org/10.1038/s41431-026-02041-w

Harms RJ; Ankeny RA; Carter L; Mankad A; Scully JL, 2026, 'Can AI developers avoid bias in public health applications?', Frontiers in Public Health, 13, pp. 1752729, http://dx.doi.org/10.3389/fpubh.2025.1752729

Harms RJ; Ankeny RA; Carter L; Mankad A; Scully JL, 2026, 'Developers Are Central for Mitigation of AI Bias', American Journal of Bioethics, 26, pp. 112 - 114, http://dx.doi.org/10.1080/15265161.2025.2608629

Scully JL; Hodgson J; McDougall R; Kint LT; Holmes I; Laginha KJ; Newson AJ, 2026, 'Information, Access, and Stress: Ethical Insights From Parents’ Views on Autonomy in Expanded Prenatal Testing', Journal of Bioethical Inquiry, http://dx.doi.org/10.1007/s11673-026-10568-2

Holmes IC; MacKay K; McDougall R; Scully JL; Newson AJ, 2026, 'Response to Open Peer Commentaries: “Reproductive Autonomy in Light of Expanded Prenatal Genomic Testing”', American Journal of Bioethics, 26, pp. W13 - W15, http://dx.doi.org/10.1080/15265161.2026.2637107

Kourounis G; Gilbert S; Knight SR; Leal A; Scully JL; Loupy A; Martin DE; Preka E; Primc N; Seoane Martinez F; Webb H; Oniscu GC; Wilson C, 2026, 'Shaping the Future of AI in Organ Transplantation: Position Paper of the European Society for Organ Transplantation', Transplant International, 39, http://dx.doi.org/10.3389/ti.2026.16316

Harms RJ; Ankeny RA; Carter L; Mankad A; Scully JL, 2026, 'Problems with a one-size-fits-all approach: a systematic literature review on solutions to AI bias in healthcare and implications for engineering biology', AI and Ethics, 6, http://dx.doi.org/10.1007/s43681-026-01088-1

Scully JL, 2025, 'Advances in reproductive technology mean rethinking the meaning of autonomy', Science New York N Y, 390, pp. eaed6474, http://dx.doi.org/10.1126/science.aed6474

Jackaman KM; Strnadová I; Willow SA; Loblinzk Refalo J; Scully JL; Palmer EE; Terrill B; Bromwich S, 2025, 'Developing genetic literacy in high school students with intellectual disability: Teachers’ experiences and perspectives', European Journal of Human Genetics, 33, pp. 1530 - 1538, http://dx.doi.org/10.1038/s41431-025-01865-2

Scully JL, 2025, 'UN special rapporteur’s report on surrogacy encourages us to ask difficult questions', BMJ, 391, http://dx.doi.org/10.1136/bmj.r2182

Strnadová I; Dunn M; Molnar C; Loblinzk Refalo J; Scully JL; Danker J; Tso M; Lim TQ; Cathcart-King Y; Jackaman KM; Hayes S; Willow SA; Boyle J; Hansen J; Sarfaraz S; Basckin C; Halliburton C; Ganeshan TS; Middleton EK; Terrill B; Palmer EE, 2025, 'Erratum: “All doctors should be trained in that”: The co-production and mixed-methods evaluation of an educational toolkit to enable safe, high-quality genetic health care for people with intellectual disability (Genetics in Medicine (2025) 27(4), (S1098360025000188), (10.1016/j.gim.2025.101371))', Genetics in Medicine, 27, http://dx.doi.org/10.1016/j.gim.2025.101499

Scully JL, 2025, 'Disability and AI: Much more than assistive technologies', Science New York N Y, 389, pp. eaea4918, http://dx.doi.org/10.1126/science.aea4918

Leach Scully J; van Toorn G; Gendera S; Scully JL, 2025, 'Automating Misrecognition: The Case of Disability', Journal of bioethical inquiry., 22, pp. 593 - 600, http://dx.doi.org/10.1007/s11673-025-10462-3

Strnadová I; Dunn M; Molnar C; Loblinzk Refalo J; Scully JL; Danker J; Tso M; Lim TQ; Cathcart-King Y; Jackaman KM; Hayes S; Willow SA; Boyle J; Hansen J; Sarfaraz S; Basckin C; Halliburton C; Sri Ganeshan T; Middleton EK; Terrill B; Palmer EE; Loblinzk J; Bromwich S, 2025, '“All doctors should be trained in that”: The coproduction and mixed-methods evaluation of an educational toolkit to enable safe, high-quality genetic health care for people with intellectual disability', Genetics in Medicine, 27, pp. 101371, http://dx.doi.org/10.1016/j.gim.2025.101371

van Toorn G; Scully JL; Gendera S, 2025, '“This robot is dictating her next steps in life”: disability justice and relational AI ethics', AI and Society, pp. 1 - 11, http://dx.doi.org/10.1007/s00146-025-02224-x

Holmes I; MacKay K; McDougall R; Scully JL; Newson AJ, 2025, 'Reproductive Autonomy in Light of Expanded Prenatal Genomic Testing', American Journal of Bioethics, 25, pp. 19 - 31, http://dx.doi.org/10.1080/15265161.2025.2554798

Williamson R; Roberts C; Valentine K; Leach Scully J; Mills C; Boyle J, 2025, 'Translating epigenetics into antenatal care in Australia: communicating risk and intergenerational health in practice', Health Risk and Society, 27, pp. 332 - 348, http://dx.doi.org/10.1080/13698575.2025.2551975

Freeman L; Bristowe L; Kirk EP; Delatycki MB; Scully JL, 2024, 'Should genes for non-syndromic hearing loss be included in reproductive genetic carrier screening: Views of people with a personal or family experience of deafness', Journal of Genetic Counseling, 33, pp. 566 - 577, http://dx.doi.org/10.1002/jgc4.1757

Dunn M; Strnadová I; Scully JL; Hansen J; Loblinzk J; Sarfaraz S; Molnar C; Palmer EE, 2024, 'Equitable and accessible informed healthcare consent process for people with intellectual disability: a systematic literature review', BMJ Quality and Safety, 33, pp. 328 - 339, http://dx.doi.org/10.1136/bmjqs-2023-016113

Molnar C; Strnadová I; Dunn M; Loblinzk J; Sarfaraz S; Cathcart-King Y; Tso M; Danker J; Hayes S; Willow SA; Hansen J; Lim TQ; Boyle J; Terrill B; Scully JL; Palmer EE; Bromwich S, 2024, 'The need for co-educators to drive a new model of inclusive, person-centred and respectful co-healthcare with people with intellectual disability', Frontiers in Psychiatry, 15, pp. 1346423, http://dx.doi.org/10.3389/fpsyt.2024.1346423

Drysdale K; Scully JL; Kint L; Laginha KJ; Hodgson J; Holmes I; MacKay KL; Newson AJ, 2024, 'The salience of genomic information to reproductive autonomy: Australian healthcare professionals’ views on a changing prenatal testing landscape', New Genetics and Society, 43, pp. e2332310, http://dx.doi.org/10.1080/14636778.2024.2332310

Kerridge I; Stewart C; Scully JL; Chiarella M; Hamblin J; Johnson A; Ryan C; Sheahan L; Skowronski G, 2023, 'Conscientious Objection and Institutional Objection to Voluntary Assistance in Dying: An Ethico-legal Critique', Journal of Law and Medicine, 30, pp. 806 - 821

Scully JL, 2023, 'COVID, Vulnerability, and the Death of Solidarity: “Who Do We Not Save?”', Journal of Bioethical Inquiry, 20, pp. 601 - 606, http://dx.doi.org/10.1007/s11673-023-10250-x

Strnadová I; Loblinzk J; Scully JL; Danker J; Tso M; Jackaman KM; Dunn M; Willow SA; Sarfaraz S; Fitzgerald V; Boyle J; Palmer EE; Bromwich S, 2023, '“I am not a number!” Opinions and preferences of people with intellectual disability about genetic healthcare', European Journal of Human Genetics, 31, pp. 1057 - 1065, http://dx.doi.org/10.1038/s41431-023-01282-3

Freeman L; Delatycki MB; Scully JL; Briggs N; Kirk EP, 2023, 'Views of healthcare professionals on the inclusion of genes associated with non-syndromic hearing loss in reproductive genetic carrier screening', European Journal of Human Genetics, 31, pp. 548 - 554, http://dx.doi.org/10.1038/s41431-022-01239-y

Freeman L; Delatycki MB; Scully JL; Kirk EP, 2023, 'Response to Li and Sun', Genetics in Medicine, 25, pp. 157, http://dx.doi.org/10.1016/j.gim.2022.10.003

van Toorn G; Scully JL, 2023, 'Unveiling algorithmic power: exploring the impact of automated systems on disabled people’s engagement with social services', Disability and Society, 39, pp. 3004 - 3029, http://dx.doi.org/10.1080/09687599.2023.2233684

Nguyen CQ; Alba-Concepcion K; Palmer EE; Scully JL; Millis N; Farrar MA, 2022, 'The involvement of rare disease patient organisations in therapeutic innovation across rare paediatric neurological conditions: a narrative review', Orphanet Journal of Rare Diseases, 17, http://dx.doi.org/10.1186/s13023-022-02317-6

Freeman L; Delatycki MB; Leach Scully J; Kirk EP, 2022, 'Views of reproductive genetic carrier screening participants regarding screening for genes associated with non-syndromic hearing loss', Prenatal Diagnosis, 42, pp. 1658 - 1666, http://dx.doi.org/10.1002/pd.6253

Freeman L; Righetti S; Delatycki MB; Scully JL; Kirk EP, 2022, 'The views of people with a lived experience of deafness and the general public regarding genetic testing for deafness in the reproductive setting: A systematic review', Genetics in Medicine, 24, pp. 1803 - 1813, http://dx.doi.org/10.1016/j.gim.2022.05.005

Aquino YSJ; Rogers WA; Scully JL; Magrabi F; Carter SM, 2022, 'Ethical Guidance for Hard Decisions: A Critical Review of Early International COVID-19 ICU Triage Guidelines', Health Care Analysis, 30, pp. 163 - 195, http://dx.doi.org/10.1007/s10728-021-00442-0

Scully JL, 2022, 'On Being Unwilling Insiders', International Journal of Feminist Approaches to Bioethics, 15, pp. 146 - 149, http://dx.doi.org/10.3138/ijfab-15.1.22

Scully JL, 2022, 'Response—A Commentary on Miles Little et al. 1998. Liminality: A major category of the experience of cancer illness. Social Science & Medicine 47(10): 1485-1494', Journal of Bioethical Inquiry, 19, pp. 49 - 54, http://dx.doi.org/10.1007/s11673-021-10145-9

Strnadová I; Nevin SM; Scully JL; Palmer EE, 2022, 'The opinions and experiences of people with intellectual disability regarding genetic testing and genetic medicine: A systematic review', Genetics in Medicine, 24, pp. 535 - 548, http://dx.doi.org/10.1016/j.gim.2021.11.013

Bluhm R; Gotlib A; Scully JL, 2022, 'Editors’ Note', International Journal of Feminist Approaches to Bioethics, 15, pp. 97 - 97, http://dx.doi.org/10.3138/ijfab-15.1.05

Wienroth M; Scully JL, 2021, 'Promissory ethical regimes: publics and public goods in genome editing for human health', SCIENCE AND PUBLIC POLICY, 48, pp. 788 - 798, http://dx.doi.org/10.1093/scipol/scab052

Rogers WA; Scully JL, 2021, 'Activism and Bioethics: Taking a Stand on Things That Matter', Hastings Center Report, 51, pp. 32 - 33, http://dx.doi.org/10.1002/hast.1270

Scully JL, 2021, 'A biographer and a bioethicist take on the CRISPR revolution', Nature, 591, pp. 196 - 197, http://dx.doi.org/10.1038/d41586-021-00579-x

Bluhm R; Gotlib A; Scully JL; Tumilty E; Milberger K, 2021, 'From the editors', International Journal of Feminist Approaches to Bioethics, 14, http://dx.doi.org/10.3138/IJFAB-14.1.00

Scully JL, 2020, 'Disability, Disablism, and COVID-19 Pandemic Triage', Journal of Bioethical Inquiry, 17, pp. 601 - 605, http://dx.doi.org/10.1007/s11673-020-10005-y

Ahmad A; Chung R; Eckenwiler L; Ganguli-Mitra A; Hunt M; Richards R; Saghai Y; Schwartz L; Scully JL; Wild V, 2020, 'What does it mean to be made vulnerable in the era of COVID-19?', Lancet, 395, pp. 1481 - 1482, http://dx.doi.org/10.1016/S0140-6736(20)30979-X

Guidry-Grimes L; Savin K; Stramondo JA; Reynolds JM; Tsaplina M; Burke TB; Ballantyne A; Kittay EF; Stahl D; Scully JL; Garland-Thomson R; Tarzian A; Dorfman D; Fins JJ, 2020, 'Disability Rights as a Necessary Framework for Crisis Standards of Care and the Future of Health Care', Hastings Center Report, 50, pp. 28 - 32, http://dx.doi.org/10.1002/hast.1128

Draper H; Moorlock G; Rogers W; Scully JL, 2019, 'Bioethics and activism', Bioethics, 33, pp. 853 - 856, http://dx.doi.org/10.1111/bioe.12680

Scully JL, 2019, 'The responsibilities of the engaged bioethicist: Scholar, advocate, activist', Bioethics, 33, pp. 872 - 880, http://dx.doi.org/10.1111/bioe.12659

Scully JL, 2019, 'Special Section: The Donchin and Holmes Emerging Scholar Prize 2016', International Journal of Feminist Approaches to Bioethics, 12, pp. 148 - 148, http://dx.doi.org/10.3138/ijfab.12.2.08

Eckenwiler L; Hunt M; Leach Scully J; Wild V, 2018, '4.11-P16Understanding and operationalizing vulnerability in International Humanitarian Health Organisations', European Journal of Public Health, 28, http://dx.doi.org/10.1093/eurpub/cky048.181

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