Select Publications

Journal articles

Nguyen CQ; Alba-Concepcion K; Palmer EE; Scully JL; Millis N; Farrar MA, 2022, 'The involvement of rare disease patient organisations in therapeutic innovation across rare paediatric neurological conditions: a narrative review', Orphanet Journal of Rare Diseases, vol. 17, http://dx.doi.org/10.1186/s13023-022-02317-6

Aquino YSJ; Rogers WA; Scully JL; Magrabi F; Carter SM, 2022, 'Ethical Guidance for Hard Decisions: A Critical Review of Early International COVID-19 ICU Triage Guidelines', Health Care Analysis, vol. 30, pp. 163 - 195, http://dx.doi.org/10.1007/s10728-021-00442-0

Scully JL, 2022, 'On Being Unwilling Insiders', International Journal of Feminist Approaches to Bioethics, vol. 15, pp. 146 - 149, http://dx.doi.org/10.3138/ijfab-15.1.22

Scully JL, 2022, 'Response—A Commentary on Miles Little et al. 1998. Liminality: A major category of the experience of cancer illness. Social Science & Medicine 47(10): 1485-1494', Journal of Bioethical Inquiry, vol. 19, pp. 49 - 54, http://dx.doi.org/10.1007/s11673-021-10145-9

Strnadová I; Nevin SM; Scully JL; Palmer EE, 2022, 'The opinions and experiences of people with intellectual disability regarding genetic testing and genetic medicine: A systematic review', Genetics in Medicine, vol. 24, pp. 535 - 548, http://dx.doi.org/10.1016/j.gim.2021.11.013

Bluhm R; Gotlib A; Leach Scully J, 2022, 'Editors’ Note', IJFAB: International Journal of Feminist Approaches to Bioethics, vol. 15, pp. 97 - 97, http://dx.doi.org/10.3138/ijfab-15.1.05

Freeman L; Righetti S; Delatycki MB; Scully JL; Kirk EP, 2022, 'The views of people with a lived experience of deafness and the general public regarding genetic testing for deafness in the reproductive setting: A systematic review', Genetics in Medicine, http://dx.doi.org/10.1016/j.gim.2022.05.005

Wienroth M; Scully JL, 2021, 'Promissory ethical regimes: publics and public goods in genome editing for human health', SCIENCE AND PUBLIC POLICY, vol. 48, pp. 788 - 798, http://dx.doi.org/10.1093/scipol/scab052

Rogers WA; Scully JL, 2021, 'Activism and Bioethics: Taking a Stand on Things That Matter', Hastings Center Report, vol. 51, pp. 32 - 33, http://dx.doi.org/10.1002/hast.1270

Scully JL, 2021, 'A biographer and a bioethicist take on the CRISPR revolution', Nature, vol. 591, pp. 196 - 197, http://dx.doi.org/10.1038/d41586-021-00579-x

Bluhm R; Gotlib A; Scully JL; Tumilty E; Milberger K, 2021, 'From the editors', International Journal of Feminist Approaches to Bioethics, vol. 14, pp. 1 - 1, http://dx.doi.org/10.3138/IJFAB-14.1.00

Ahmad A; Chung R; Eckenwiler L; Ganguli-Mitra A; Hunt M; Richards R; Saghai Y; Schwartz L; Scully JL; Wild V, 2020, 'What does it mean to be made vulnerable in the era of COVID-19?', The Lancet, vol. 395, pp. 1481 - 1482, http://dx.doi.org/10.1016/S0140-6736(20)30979-X

Guidry-Grimes L; Savin K; Stramondo JA; Reynolds JM; Tsaplina M; Burke TB; Ballantyne A; Kittay EF; Stahl D; Scully JL; Garland-Thomson R; Tarzian A; Dorfman D; Fins JJ, 2020, 'Disability Rights as a Necessary Framework for Crisis Standards of Care and the Future of Health Care', Hastings Center Report, vol. 50, pp. 28 - 32, http://dx.doi.org/10.1002/hast.1128

Scully JL, 2020, 'Disability, Disablism, and COVID-19 Pandemic Triage', Journal of Bioethical Inquiry, http://dx.doi.org/10.1007/s11673-020-10005-y

Draper H; Moorlock G; Rogers W; Scully JL, 2019, 'Bioethics and activism', Bioethics, vol. 33, pp. 853 - 856, http://dx.doi.org/10.1111/bioe.12680

Scully JL, 2019, 'The responsibilities of the engaged bioethicist: Scholar, advocate, activist', Bioethics, vol. 33, pp. 872 - 880, http://dx.doi.org/10.1111/bioe.12659

Scully JL, 2019, 'Special Section: The Donchin and Holmes Emerging Scholar Prize 2016', IJFAB: International Journal of Feminist Approaches to Bioethics, vol. 12, pp. 148 - 148, http://dx.doi.org/10.3138/ijfab.12.2.08

Eckenwiler L; Hunt M; Leach Scully J; Wild V, 2018, '4.11-P16Understanding and operationalizing vulnerability in International Humanitarian Health Organisations', European Journal of Public Health, vol. 28, http://dx.doi.org/10.1093/eurpub/cky048.181

Scully JL, 2018, 'From "she would say that, wouldn't she?" to "does she take sugar?" epistemic injustice and disability', International Journal of Feminist Approaches to Bioethics, vol. 11, pp. 106 - 124, http://dx.doi.org/10.3138/ijfab.11.1.106

Scully JL; Bluhm R; Lindemann H; Nelson JL, 2017, 'From the editors', International Journal of Feminist Approaches to Bioethics, vol. 10, pp. 1 - 3, http://dx.doi.org/10.3138/ijfab.10.2.1

Scully JL; Banks S; Song R; Haq J, 2017, 'Experiences of faith group members using new reproductive and genetic technologies: A qualitative interview study', Human Fertility, vol. 20, pp. 22 - 29, http://dx.doi.org/10.1080/14647273.2016.1243816

Scully JL, 2017, 'A mitochondrial story: Mitochondrial replacement, identity and narrative', Bioethics, vol. 31, pp. 37 - 45, http://dx.doi.org/10.1111/bioe.12310

Scully JL, 2017, 'Genetic interventions to ‘have healthier children’: a viewpoint from the United Kingdom', Bioethica Forum, http://dx.doi.org/10.24894/bf.2017.10006

Eckenwiler L; Ahmad A; Chung R; Hunt M; Leach Scully J; Schwarz L; Wild N, 2017, 'Vulnerable Populations: Investigating Ethical Implications for Policies and Practices of International Humanitarian Organizations', Prehospital and Disaster Medicine, vol. 32, pp. S49 - S50, http://dx.doi.org/10.1017/s1049023x1700142x

Verkerk MA; Lindemann H; McLaughlin J; Scully JL; Kihlbom U; Nelson J; Chin J, 2015, 'Where families and healthcare meet', Journal of Medical Ethics, vol. 41, pp. 183 - 185, http://dx.doi.org/10.1136/medethics-2013-101783

Scully JL; Williams R, 2014, 'Approaching disaster victim identification', New Genetics and Society, vol. 33, pp. 233 - 238, http://dx.doi.org/10.1080/14636778.2014.946988

Scully JL, 2014, 'Naming the dead: DNA-based identification of historical remains as an act of care', New Genetics and Society, vol. 33, pp. 313 - 332, http://dx.doi.org/10.1080/14636778.2014.946002

Scully JL, 2014, 'Untitled', INTERNATIONAL JOURNAL OF FEMINIST APPROACHES TO BIOETHICS, vol. 7, pp. 1 - 2, http://gateway.webofknowledge.com/gateway/Gateway.cgi?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000334390900001&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1

Rommetveit K; Scully JL; Porz R, 2013, 'The role of moral imagination in patients' decision-making', Journal of Medicine and Philosophy (United Kingdom), vol. 38, pp. 160 - 172, http://dx.doi.org/10.1093/jmp/jht006

Scully JLE, 2013, 'Body alienation and the moral sense of self', Narrative inquiry in bioethics, vol. 3, pp. 26 - 28, http://dx.doi.org/10.1353/nib.2013.0013

Chambers T; Ahmad A; Crow S; Davis DS; Dresser R; Harter TD; Jordan SR; Kaposy C; Lanoix M; Lee KJ; Scully JLE; Taylor KA; Watson K, 2013, 'Taking bioethics personally', Narrative inquiry in bioethics, vol. 3, pp. 1 - 3, http://dx.doi.org/10.1353/nib.2013.0001

Scully JL, 2013, 'Feminist disability studies, edited by Kim Q. Hall', IJFAB: International Journal of Feminist Approaches to Bioethics, vol. 6, pp. 166 - 172, http://dx.doi.org/10.3138/ijfab.6.1.166

Scully JL, 2013, 'Mitochondrial donation: the slippery slope to genetic engineering?', Bioethica Forum, http://dx.doi.org/10.24894/bf.2013.06028

Evison M; Graham E; Haimes E; Leach Scully J; Ludwig A; Maguire C; Toom V; Williams R, 2012, 'A comment on the Hill-Turney exchange: From normative antagonism to interdisciplinary collaboration', New Genetics and Society, vol. 31, pp. 385 - 390, http://dx.doi.org/10.1080/14636778.2012.679395

Rehmann-Sutter C; Porz R; Scully JL, 2012, 'How to relate the empirical to the normative: Toward a phenomenologically informed hermeneutic approach to bioethics', Cambridge Quarterly of Healthcare Ethics, vol. 21, pp. 436 - 447, http://dx.doi.org/10.1017/S0963180112000217

Scully JL; Woodward R, 2012, 'Naming the unknown of Fromelles: DNA profiling, ethics and the identification of First World War bodies', Journal of War & Culture Studies, vol. 5, pp. 59 - 72, http://dx.doi.org/10.1386/jwcs.5.1.59_1

Scully JL; Haimes E; Mitzkat A; Porz R; Rehmann-Sutter C, 2012, 'Donating Embryos to Stem Cell Research: The "Problem" of Gratitude', Journal of Bioethical Inquiry, vol. 9, pp. 19 - 28, http://dx.doi.org/10.1007/s11673-011-9352-9

Scully JL, 2011, ''Choosing disability', symbolic law, and the media', Medical Law International, vol. 11, pp. 197 - 211, http://dx.doi.org/10.1177/096853321101100304

Bruscato U, 2011, 'Introduction', ARQUITETURA REVISTA, vol. 7, pp. 1 - 1, http://gateway.webofknowledge.com/gateway/Gateway.cgi?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000297931000001&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1

Scully JL, 2010, 'Hidden labor: Disabled/Nondisabled encounters, agency, and autonomy', IJFAB: International Journal of Feminist Approaches to Bioethics, vol. 3, pp. 25 - 42, http://dx.doi.org/10.3138/ijfab.3.2.25

Scully JL, 2009, 'Virtuous Friends: Morality and Quaker Identity', Quaker Studies, vol. 14, pp. 108 - 122, http://dx.doi.org/10.3828/quaker.14.1.108

Scully JL, 2008, 'Disability and genetics in the era of genomic medicine', Nature Reviews Genetics, vol. 9, pp. 797 - 802, http://dx.doi.org/10.1038/nrg2453

Porz R; Bürkli P; Barazzetti G; Scully JL; Rehmann-Sutter C, 2008, 'A challenged choice: Donating spare embryos to stem cell research in Switzerland', Swiss Medical Weekly, vol. 138, pp. 551 - 556

Haimes E; Porz R; Scully J; Rehmann-Sutter C, 2008, '"So, what is an embryo?" A comparative study of the views of those asked to donate embryos for hESC research in the UK and Switzerland', New Genetics and Society, vol. 27, pp. 113 - 126, http://dx.doi.org/10.1080/14636770802077041

Mackenzie C; Scully JL, 2007, 'Moral imagination, disability and embodiment', Journal of Applied Philosophy, vol. 24, pp. 335 - 351, http://dx.doi.org/10.1111/j.1468-5930.2007.00388.x

Scully JL, 2007, 'The Troubled Dream of Genetic Medicine: Ethnicity and Innovation in Tay-Sachs, Cystic Fibrosis, and Sickle Cell Disease', Social History of Medicine, vol. 20, pp. 402 - 403, http://dx.doi.org/10.1093/shm/hkm050

Scully JL; Porz R; Rehmann-Sutter C, 2007, ''You don't make genetic test decisions from one day to the next' - Using time to preserve moral space', Bioethics, vol. 21, pp. 208 - 217, http://dx.doi.org/10.1111/j.1467-8519.2007.00546.x

Scully JL, 2007, 'Moral understandings: A feminist study in ethics', BioSocieties, vol. 2, pp. 277 - 278, http://dx.doi.org/10.1017/s1745855207225542

Banks S; Scully JL; Shakespeare T, 2006, 'Ordinary ethics: Lay people's deliberations on social sex selection', New Genetics and Society, vol. 25, pp. 289 - 303, http://dx.doi.org/10.1080/14636770601032890

Scully JL; Shakespeare T; Banks S, 2006, 'Gift not commodity? Lay people deliberating social sex selection', Sociology of Health and Illness, vol. 28, pp. 749 - 767, http://dx.doi.org/10.1111/j.1467-9566.2006.00540.x


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