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Journal articles
2025, 'Pregnancy care experiences for adults with congenital heart disease in the United States', American Heart Journal, 280, pp. 30 - 41, http://dx.doi.org/10.1016/j.ahj.2024.10.015
,2024, 'An Observational Study of Dialogue about Uncertainty in Clinician-Family Counseling Conversations Following Prenatal Diagnosis of Complex Congenital Heart Disease', PEC Innovation, 4, http://dx.doi.org/10.1016/j.pecinn.2024.100265
,2024, 'MELACARE Nurse-led follow-up after early-stage melanoma: protocol and feasibility.', Acta Oncol, 63, pp. 909 - 914, http://dx.doi.org/10.2340/1651-226X.2024.41037
,2024, 'Abstract 4122307: Longitudinal Changes in Parent-reported Quality of Life in Children with Single Ventricle', Circulation, 150, http://dx.doi.org/10.1161/circ.150.suppl_1.4122307
,2024, 'Mental health screening for parents following surgical neonatal intensive care unit (NICU) discharge', Early Human Development, 198, http://dx.doi.org/10.1016/j.earlhumdev.2024.106128
,2024, 'A Randomized Controlled Trial Comparing Loss versus Gain Incentives to Improve Adherence to an Obesity Treatment Intervention in Adolescents', Nutrients, 16, http://dx.doi.org/10.3390/nu16193363
,2024, 'Trisomy 21 and Congenital Heart Disease: Impact on Health and Functional Outcomes From Birth Through Adolescence: A Scientific Statement From the American Heart Association', Journal of the American Heart Association, 13, http://dx.doi.org/10.1161/JAHA.124.036214
,2024, 'Wellbeing in Children and Adolescents with Fontan Physiology', Journal of Pediatrics, 273, http://dx.doi.org/10.1016/j.jpeds.2024.114156
,2024, 'Quality of Life and Well-Being in Adults With Fontan Physiology: Findings From the Australian and New Zealand Fontan Registry Quality of Life Study', Journal of the American Heart Association, 13, http://dx.doi.org/10.1161/JAHA.123.033818
,2024, 'MEDIC: Development and validation of a new instrument to assess emotional reactivity to medical stimuli in a representative community sample of adults', Journal of Psychiatric Research, 176, pp. 265 - 275, http://dx.doi.org/10.1016/j.jpsychires.2024.06.021
,2024, 'Clinician Perceptions of Family-Centered Care in Pediatric and Congenital Heart Settings', JAMA network open, 7, pp. e2422104, http://dx.doi.org/10.1001/jamanetworkopen.2024.22104
,2024, 'Clinical Risk Assessment and Prediction in Congenital Heart Disease Across the Lifespan: JACC Scientific Statement', Journal of the American College of Cardiology, 83, pp. 2092 - 2111, http://dx.doi.org/10.1016/j.jacc.2024.02.055
,2024, 'Cognitive Functioning and Psychosocial Outcomes in Adults with Complex Congenital Heart Disease: A Cross-sectional Pilot Study', Pediatric Cardiology, 45, pp. 529 - 543, http://dx.doi.org/10.1007/s00246-023-03376-7
,2024, 'Australian National Standards of Care for Childhood-onset Heart Disease (CoHD Standards). 1st Edition', Heart Lung and Circulation, 33, pp. 153 - 196, http://dx.doi.org/10.1016/j.hlc.2023.03.017
,2024, '“It's more than just a conversation about the heart”: exploring barriers, enablers, and opportunities for improving the delivery and uptake of cardiac neurodevelopmental follow-up care', Frontiers in Pediatrics, 12, http://dx.doi.org/10.3389/fped.2024.1364190
,2024, 'Getting Wheels: development and evaluation of a psychoeducational resource for parents of children with a neuromuscular condition following recommendation of wheelchair equipment', Disability and Rehabilitation: Assistive Technology, 19, pp. 2630 - 2640, http://dx.doi.org/10.1080/17483107.2024.2310282
,2024, 'Integrated psychological care in pediatric hospital settings for children with complex chronic illness and their families: a systematic review', Psychology and Health, 39, pp. 452 - 478, http://dx.doi.org/10.1080/08870446.2022.2072843
,2024, 'Mobile teledermoscopy for patients at high risk of cutaneous melanoma: A single-arm, feasibility study of a clinical intervention at two tertiary centres (MOBILEMEL)', Journal of the European Academy of Dermatology and Venereology, http://dx.doi.org/10.1111/jdv.20300
,2024, 'Mother-Infant Dyadic Synchrony and Interaction Patterns after Infant Cardiac Surgery', Journal of Pediatric Psychology, 49, pp. 13 - 26, http://dx.doi.org/10.1093/jpepsy/jsad069
,2024, 'Neurodevelopmental follow-up care pathways and processes for children with congenital heart disease in Australia', Pediatric Research, http://dx.doi.org/10.1038/s41390-024-03722-2
,2024, 'Correlates of Resilience in Families of Children With Dextro-Transposition of the Great Arteries', Heart, Lung and Circulation, 33, pp. S490 - S490, http://dx.doi.org/10.1016/j.hlc.2024.06.795
,2024, 'The Power of Words: Preferred Medical Terminology of People Affected by Congenital Heart Conditions', Heart, Lung and Circulation, 33, pp. S501 - S501, http://dx.doi.org/10.1016/j.hlc.2024.06.819
,2023, 'Neuroimaging and Neurodevelopmental Outcomes Among Individuals With Complex Congenital Heart Disease: JACC State-of-the-Art Review', Journal of the American College of Cardiology, 82, pp. 2225 - 2245, http://dx.doi.org/10.1016/j.jacc.2023.09.824
,2023, 'If Not Now, When? Taking Action to Improve Mental Health Outcomes for Families of Children With Heart Disease', Pediatric Critical Care Medicine, 24, pp. 966 - 969, http://dx.doi.org/10.1097/PCC.0000000000003319
,2023, 'Mental Health Conditions among Children and Adolescents with Congenital Heart Disease: A Danish Population-Based Cohort Study', Circulation, 148, pp. 1381 - 1394, http://dx.doi.org/10.1161/CIRCULATIONAHA.123.064705
,2023, '“I Just Want You to Hear That Term”: Characterizing Language Used in Fetal Cardiology Consultations', Journal of Cardiovascular Development and Disease, 10, http://dx.doi.org/10.3390/jcdd10090394
,2023, 'Addressing Adverse Childhood and Adult Experiences during Prenatal Care', Obstetrics and Gynecology, 141, pp. 1072 - 1087, http://dx.doi.org/10.1097/AOG.0000000000005199
,2023, 'Are Parent Discharge Readiness Scores Effective for Patients With Congenital Heart Disease After Cardiac Surgery?', Journal of Pediatrics, 257, http://dx.doi.org/10.1016/j.jpeds.2023.02.008
,2023, 'Systematic Review of Instruments Assessing Psychosocial Adaptation and Outcomes Among Families of Children With Congenital Heart Disease', Journal of Pediatric Psychology, 48, pp. 537 - 552, http://dx.doi.org/10.1093/jpepsy/jsad015
,2023, 'Biological and structural phenotypes associated with neurodevelopmental outcomes in congenital heart disease', Translational Pediatrics, 12, pp. 768 - 786, http://dx.doi.org/10.21037/tp-22-687
,2023, '“The usual challenges of work are all magnified”: Australian paediatric health professionals’ experiences during the COVID-19 pandemic', International Journal of Cardiology Congenital Heart Disease, 11, http://dx.doi.org/10.1016/j.ijcchd.2022.100434
,2023, 'Telehealth services for cardiac neurodevelopmental care during the COVID-19 pandemic: A site survey from the Cardiac Neurodevelopmental Outcome Collaborative', Cardiology in the Young, 33, pp. 280 - 287, http://dx.doi.org/10.1017/S1047951122000579
,2023, 'Effects of Loss and Gain Incentives on Adherence in Pediatric Weight Management: Preliminary Studies and Economic Evaluation of a Theoretical Trial', International Journal of Environmental Research and Public Health, 20, http://dx.doi.org/10.3390/ijerph20010584
,2023, 'Evaluation of the use of visual storytelling as an educational intervention in the cardiac ICU: reaching parents before they are in crisis', Cardiology in the Young, http://dx.doi.org/10.1017/S1047951123004201
,2023, 'Multidisciplinary perspectives and practices of wheelchair prescription for children with neuromuscular conditions', Disability and Rehabilitation: Assistive Technology, 18, pp. 166 - 174, http://dx.doi.org/10.1080/17483107.2020.1839793
,2023, '“I just want you to hear that term”: Characterizing language used in fetal cardiology consultations', Patient Education and Counseling, 109, pp. 107 - 107, http://dx.doi.org/10.1016/j.pec.2022.10.247
,2023, 'Introducing Uncertainty: An Observational Study of Conversations on Prenatal Diagnosis of Complex Congenital Heart Disease (Sci238)', Journal of Pain and Symptom Management, 65, pp. e660 - e661, http://dx.doi.org/10.1016/j.jpainsymman.2023.02.288
,2022, 'Abstract 10042: Mental Health Conditions In Congenital Heart Disease: A Danish Population Based Cohort Study', Circulation, 146, http://dx.doi.org/10.1161/circ.146.suppl_1.10042
,2022, 'Chronic pediatric diseases and risk for reading difficulties: a narrative review with recommendations', Pediatric Research, 92, pp. 966 - 978, http://dx.doi.org/10.1038/s41390-022-01934-y
,2022, 'The Australian and New Zealand Fontan Registry Quality of Life Study: Protocol for a population-based assessment of quality of life among people with a Fontan circulation, their parents, and siblings', BMJ Open, 12, http://dx.doi.org/10.1136/bmjopen-2022-065726
,2022, 'Psychological Outcomes and Interventions for Individuals with Congenital Heart Disease: A Scientific Statement from the American Heart Association', Circulation: Cardiovascular Quality and Outcomes, 15, pp. 672 - 688, http://dx.doi.org/10.1161/HCQ.0000000000000110
,2022, 'Integrating Telehealth Into Neurodevelopmental Assessment: A Model From the Cardiac Neurodevelopmental Outcome Collaborative', Journal of Pediatric Psychology, 47, pp. 707 - 713, http://dx.doi.org/10.1093/jpepsy/jsac003
,2022, 'Quality of Life and Other Patient-Reported Outcomes Across the Life Span Among People With Fontan Palliation', Canadian Journal of Cardiology, 38, pp. 963 - 976, http://dx.doi.org/10.1016/j.cjca.2022.04.025
,2022, 'Family, healthcare professional, and societal preferences for the treatment of infantile spinal muscular atrophy: A discrete choice experiment', Developmental Medicine and Child Neurology, 64, pp. 753 - 761, http://dx.doi.org/10.1111/dmcn.15135
,2022, 'Opportunities to enhance parental well-being during prenatal counseling for congenital heart disease', Seminars in Perinatology, 46, http://dx.doi.org/10.1016/j.semperi.2022.151587
,2022, 'What is the prevalence of fear of cancer recurrence in cancer survivors and patients? A systematic review and individual participant data meta-analysis', Psycho-Oncology, 31, pp. 879 - 892, http://dx.doi.org/10.1002/pon.5921
,2022, 'How Mindful Awareness and Psychological Distress Influence Mother-Infant Bonding and Maternal Perceptions of Infant Temperament', Mindfulness, 13, pp. 955 - 966, http://dx.doi.org/10.1007/s12671-022-01848-0
,2022, 'Partnering With Stakeholders to Inform the Co-Design of a Psychosocial Intervention for Prenatally Diagnosed Congenital Heart Disease', Journal of Patient Experience, 9, http://dx.doi.org/10.1177/23743735221092488
,2022, 'Protocol for the implementation of a stepped-care model to address fear of cancer recurrence in patients previously diagnosed with early-stage (0-II) melanoma', BMJ open, 12, pp. e054337, http://dx.doi.org/10.1136/bmjopen-2021-054337
,2022, 'Parent-child bonding and attachment during pregnancy and early childhood following congenital heart disease diagnosis', Health Psychology Review, 16, pp. 378 - 411, http://dx.doi.org/10.1080/17437199.2021.1927136
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