Select Publications

Book Chapters

sansom-daly U; McGill B; kasparian N; Patterson P; Muscara F; Wakefield C, 2016, 'Navigating the impact of serious illness across the family system using evidence-based therapeutic approaches', in Menzies R; Kyrios M; Kazantzis N (ed.), Innovations and Future Directions in the Behavioural and Cognitive Therapies, Australian Academic Press, Queensland, pp. 176 - 181,

Kissane DW; Kasparian NA, 2016, 'Theoretical models guiding our understanding of sibling bereavement', in Sibling Loss Across the Lifespan: Research, Practice, and Personal Stories, pp. 1 - 13,

Kasparian NA; Shermann K, 2013, 'My Genes are my Destiny”: Psychosocial Aspects of Genetic Risk Assessment for Illness Susceptibility', in Caltabiano ML; Ricciardelli L (ed.), Applied Topics in Health Psychology, edn. Ist, Wiley-Blackwell, Sydney, pp. 171 - 184

Kasparian NA; Butow PN, 2012, 'Psychological responses and coping strategies in patients with skin cancer', in Rigel DS; Cockerell CJ; Friedman R; Lim H (ed.), Cancer of the Skin, edn. 2nd, Elsevier, London,

Journal articles

Zentner D; Celermajer DS; Gentles T; d'Udekem Y; Ayer J; Blue GM; Bridgman C; Burchill L; Cheung M; Cordina R; Culnane E; Davis A; du Plessis K; Eagleson K; Finucane K; Frank B; Greenway S; Grigg L; Hardikar W; Hornung T; Hynson J; Iyengar AJ; James P; Justo R; Kalman J; Kasparian N; Le B; Marshall K; Mathew J; McGiffin D; McGuire M; Monagle P; Moore B; Neilsen J; O'Connor B; O'Donnell C; Pflaumer A; Rice K; Sholler G; Skinner JR; Sood S; Ward J; Weintraub R; Wilson T; Wilson W; Winlaw D; Wood A, 2020, 'Management of People With a Fontan Circulation: a Cardiac Society of Australia and New Zealand Position statement', Heart Lung and Circulation, vol. 29, pp. 5 - 39,

Dieng M; Morton RL; Costa DSJ; Butow PN; Menzies SW; Lo S; Mann GJ; Cust AE; Kasparian NA, 2019, 'Benefits of a brief psychological intervention targeting fear of cancer recurrence in people at high risk of developing another melanoma: 12-month follow-up results of a randomized controlled trial', BRITISH JOURNAL OF DERMATOLOGY,

Paguinto SG; Kasparian NA; Bray P; Farrar M, 2019, 'Parents’ perceptions of power wheelchair prescription for children with a neuromuscular disorder: a scoping review', Disability and Rehabilitation, vol. 41, pp. 2750 - 2757,

Wan HWY; Carey KA; D'Silva A; Kasparian NA; Farrar MA, 2019, '"Getting ready for the adult world": How adults with spinal muscular atrophy perceive and experience healthcare, transition and well-being', Orphanet Journal of Rare Diseases, vol. 14,

Battistuzzi L; Franiuk M; Kasparian N; Rania N; Migliorini L; Varesco L, 2019, 'A qualitative study on decision-making about BRCA1/2 testing in Italian women', European Journal of Cancer Care, vol. 28, pp. e13083,

Kasparian NA, 2019, 'Heart care before birth: A psychobiological perspective on fetal cardiac diagnosis', Progress in Pediatric Cardiology, vol. 54,

Dieng M; Khanna N; Kasparian NA; Costa DSJ; Butow PN; Menzies SW; Mann GJ; Cust AE; Morton RL, 2019, 'Cost-Effectiveness of a Psycho-Educational Intervention Targeting Fear of Cancer Recurrence in People Treated for Early-Stage Melanoma', Applied Health Economics and Health Policy, vol. 17, pp. 669 - 681,

Lum A; Wakefield CE; Donnan B; Burns MA; Fardell JE; Jaffe A; Kasparian NA; Kennedy SE; Leach ST; Lemberg DA; Marshall GM, 2019, 'Facilitating engagement with school in students with chronic illness through positive education: A mixed-methods comparison study', School Psychology, vol. 34, pp. 677 - 686,

Lum A; Wakefield CE; Donnan B; Burns MA; Fardell JE; Jaffe A; Kasparian NA; Kennedy SE; Leach ST; Lemberg DA; Marshall GM, 2019, 'School students with chronic illness have unmet academic, social, and emotional school needs', School Psychology, vol. 34, pp. 627 - 636,

Marokakis S; Kasparian NA; Kennedy SE, 2019, 'Re: Caring for infants with posterior urethral valves: A qualitative study of parents' experiences', Journal of Urology, vol. 201, pp. 429,

Verrall CE; Blue GM; Loughran-Fowlds A; Kasparian N; Gecz J; Walker K; Dunwoodie SL; Cordina R; Sholler G; Badawi N; Winlaw D, 2019, ''Big issues' in neurodevelopment for children and adults with congenital heart disease', Open Heart, vol. 6,

McGill BC; Wakefield CE; Vetsch J; Barlow-Stewart K; Kasparian NA; Patenaude AF; Young MA; Cohn RJ; Tucker KM, 2019, 'Children and young people's understanding of inherited conditions and their attitudes towards genetic testing: A systematic review', Clinical Genetics, vol. 95, pp. 10 - 22,

Ayling L; Henry A; Tracy S; Donkin C; Kasparian NA; Welsh AW, 2019, 'How well do women understand and remember information in labour versus in late pregnancy? A pilot randomised study', Journal of Obstetrics and Gynaecology, vol. 39, pp. 913 - 921,

Strange G; Stewart S; Farthing M; Kasparian NA; Selbie L; O'Donnell C; Ayer J; Cordina R; Celermajer D, 2019, 'Living With, and Caring for, Congenital Heart Disease in Australia: Insights From the Congenital Heart Alliance of Australia and New Zealand Online Survey', Heart Lung and Circulation,

Kan JM; Cowan CSM; Ooi CY; Kasparian NA, 2019, 'What can the gut microbiome teach us about the connections between child physical and mental health? A systematic review', Developmental Psychobiology,

Paguinto SG; Kasparian NA; Bray P; Farrar M, 2019, '“It’s not just the wheelchair, it’s everything else”: Australian parents’ perspectives of wheelchair prescription for children with neuromuscular disorders', Disability and Rehabilitation, pp. 1 - 10,

Denniss DL; Sholler GF; Costa DSJ; Winlaw DS; Kasparian NA, 2019, 'Need for Routine Screening of Health-Related Quality of Life in Families of Young Children with Complex Congenital Heart Disease', Journal of Pediatrics, vol. 205, pp. 21 - 28.e2,

Tesson S; Butow PN; Sholler GF; Sharpe L; Kovacs AH; Kasparian NA, 2019, 'Psychological interventions for people affected by childhood-onset heart disease: A systematic review', Health Psychology, vol. 38, pp. 151 - 161,

Kasparian NA; Kan JM; Sood E; Wray J; Pincus HA; Newburger JW, 2019, 'Mental health care for parents of babies with congenital heart disease during intensive care unit admission: Systematic review and statement of best practice', Early Human Development, vol. 139,

Farrar MA; Carey KA; Paguinto SG; Chambers G; Kasparian NA, 2018, 'Financial, opportunity and psychosocial costs of spinal muscular atrophy: an exploratory qualitative analysis of Australian carer perspectives.', BMJ Opem, vol. 8, pp. e020907,

Kasparian NA; De Abreu Lourenco R; Winlaw DS; Sholler GF; Viney R; Kirk EPE, 2018, 'Tell me once, tell me soon: parents’ preferences for clinical genetics services for congenital heart disease', Genetics in Medicine, vol. 20, pp. 1387 - 1395,

Chong LSH; Fitzgerald DA; Craig JC; Manera KE; Hanson CS; Celermajer D; Ayer J; Kasparian NA; Tong A, 2018, 'Children’s experiences of congenital heart disease: a systematic review of qualitative studies', European Journal of Pediatrics, vol. 177, pp. 319 - 336,

Dieng M; Kasparian NA; Cust AE; Costa DSJ; Tran A; Butow PN; Menzies SW; Mann GJ; Morton RL, 2018, 'Sensitivity of preference-based quality-of-life measures for economic evaluations in early-stage Melanoma', JAMA Dermatology, vol. 154, pp. 52 - 59,

Liang R; Meiser B; Smith S; Kasparian NA; Lewis CR; Chin M; Long GV; Ward R; Menzies AM; Harris-Wai JN; Kaur R, 2017, 'Advanced cancer patients’ attitudes towards, and experiences with, screening for somatic mutations in tumours: a qualitative study', European Journal of Cancer Care, vol. 26,

Dieng M; Kasparian NA; Mireskandari S; Butow P; Costa D; Morton R; Mann G; Menzies S; Cust A, 2017, 'Psychoeducational intervention for people at high risk of developing another melanoma: A pilot randomised controlled trial', BMJ Open, vol. 7,

Kasparian NA; Lieu N; Winlaw DS; Cole A; Kirk E; Sholler GF, 2017, 'EHealth literacy and preferences for eHealth resources in parents of children with complex CHD', Cardiology in the Young, vol. 27, pp. 722 - 730,

Marokakis S; Kasparian NA; Kennedy SE, 2017, 'Parents’ perceptions of counselling following prenatal diagnosis of congenital anomalies of the kidney and urinary tract: a qualitative study', BJU International, vol. 119, pp. 474 - 481,

te West NID; Parkin K; Hayes W; Costa DSJ; Kasparian NA; Moore KH, 2017, 'Does motivation predict outcome of pelvic floor muscle retraining?', Neurourology and Urodynamics, vol. 36, pp. 316 - 321,

Marokakis S; Kasparian NA; Kennedy SE, 2017, 'Caring for infants with posterior urethral valves: A qualitative study of parents’ experiences', Journal of Child Health Care, vol. 21, pp. 424 - 434,

McKean EB; Kasparian NA; Batra S; Sholler GF; Winlaw DS; Dalby-Payne J, 2017, 'Feeding difficulties in neonates following cardiac surgery: Determinants of prolonged feeding-tube use', Cardiology in the Young, vol. 27, pp. 1203 - 1211,

Dieng M; Butow PN; Costa DSJ; Morton RL; Menzies SW; Mireskandari S; Tesson S; Mann GJ; Cust AE; Kasparian NA, 2016, 'Psychoeducational intervention to reduce fear of cancer recurrence in people at high risk of developing another primarymelanoma: results of a randomized controlled trial', Journal of Clinical Oncology, vol. 34, pp. 4405 - 4414,

Dieng M; Cust AE; Kasparian NA; Butow P; Costa DSJ; Menzies SW; Mann GJ; Morton RL, 2016, 'Protocol for a within-trial economic evaluation of a psychoeducational intervention tailored to people at high risk of developing a second or subsequent melanoma', BMJ open, vol. 6, pp. e012153,

Caleshu C; Kasparian NA; Edwards KS; Yeates L; Semsarian C; Perez M; Ashley E; Turner CJ; Knowles JW; Ingles J, 2016, 'Interdisciplinary psychosocial care for families with inherited cardiovascular diseases', Trends in Cardiovascular Medicine, vol. 26, pp. 647 - 653,

Ingles J; Spinks C; Yeates L; McGeechan K; Kasparian N; Semsarian C, 2016, 'Posttraumatic stressand prolonged grief after the sudden cardiac death of a young relative', JAMA Internal Medicine, vol. 176, pp. 402 - 405,

Marokakis S; Kasparian NA; Kennedy SE, 2016, 'Prenatal counselling for congenital anomalies: a systematic review', Prenatal Diagnosis, vol. 36, pp. 662 - 671,

Costa DSJ; Dieng M; Cust AE; Butow PN; Kasparian NA, 2016, 'Psychometric properties of the Fear of Cancer Recurrence Inventory: an item response theory approach', Psycho-Oncology, pp. 832 - 838,

Rogers Z; Elliott F; Kasparian NA; Bishop DT; Barrett JH; Newton-Bishop J, 2016, 'Psychosocial, clinical and demographic features related to worry in patients with melanoma', Melanoma Research, vol. 26, pp. 497 - 504,

Dieng M; Cust AE; Kasparian NA; Mann GJ; Morton RL, 2016, 'Economic evaluations of psychosocial interventions in cancer: a systematic review', Psycho-Oncology, vol. 25, pp. 1380 - 1392,

Kasparian NA; Mireskandari S; Butow PN; Dieng M; Cust AE; Meiser B; Barlow-Stewart K; Menzies S; Mann GJ, 2016, '“Melanoma: Questions and Answers.” Development and evaluation of a psycho-educational resource for people with a history of melanoma', Supportive Care in Cancer, vol. 24, pp. 4849 - 4859,

Celermajer D; Strange G; Cordina R; Selbie L; Sholler G; Winlaw D; Alphonso N; Justo R; Nicholae M; Kasparian N; Weintraub RG; Cheung M; Grigg LE; Brizard CP; Wheaton G; Disney P; Stewart S; Bullock A; Ramsay J; Gentles T; d'Udekem Y, 2016, 'Congenital Heart Disease Requires a Lifetime Continuum of Care: A Call for a Regional Registry', Heart Lung and Circulation, vol. 25, pp. 750 - 754,

McDonald HM; Sherman KA; Petocz P; Kangas M; Grant KA; Kasparian NA, 2016, 'Mindfulness and the Experience of Psychological Distress: the Mediating Effects of Emotion Regulation and Attachment Anxiety', Mindfulness, vol. 7, pp. 799 - 808,

Kasparian NA; Winlaw DS; Sholler GF, 2016, '“Congenital heart health”: How psychological care can make a difference', Medical Journal of Australia, vol. 205, pp. 104 - 106.e1,

Kasparian NA; Rutstein A; Sansom-Daly UM; Mireskandari S; Tyler J; Duffy J; Tucker KM, 2015, 'Through the looking glass: An exploratory study of the lived experiences and unmet needs of families affected by Von Hippel-Lindau disease', European Journal of Human Genetics, vol. 23, pp. 34 - 40,

Blue GM; Kasparian NA; Sholler GF; Kirk EP; Winlaw DS, 2015, 'Genetic counselling in parents of children with congenital heart disease significantly improves knowledge about causation and enhances psychosocial functioning', International Journal of Cardiology, vol. 178, pp. 124 - 130,

Dieng M; Kasparian NA; Morton RL; Mann GJ; Butow P; Menzies S; Costa DSJ; Cust AE, 2015, 'The Melanoma care study: Protocol of a randomised controlled trial of a psychoeducational intervention for melanoma survivors at high risk of developing new primary disease', BMC Psychology, vol. 3,

Kasparian NA; McLoone JK; Meiser B; Karatas J; Chau J; Zilliacus E, 2014, 'Perceptions of melanoma risk among Australian adolescents: Barriers to sun protection and recommendations for improvement', Australian & New Zealand Journal of Public Health, vol. 38, pp. 321 - 325,

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