Select Publications
Book Chapters
2021, 'Melanoma', in Lazenby M (ed.), Psycho-Oncology, Oxford University Press, pp. 155 - 161, http://dx.doi.org/10.1093/med/9780190097653.003.0022
,2016, 'Theoretical models guiding our understanding of sibling bereavement', in Sibling Loss Across the Lifespan: Research, Practice, and Personal Stories, pp. 1 - 13, http://dx.doi.org/10.4324/781315672861
,2016, 'Navigating the impact of serious illness across the family system using evidence-based therapeutic approaches', in Menzies R; Kyrios M; Kazantzis N (ed.), Innovations and Future Directions in the Behavioural and Cognitive Therapies, Australian Academic Press, Queensland, pp. 176 - 181, https://www.australianacademicpress.com.au/books/details/287/Innovations_and_Future_Directions_in_the_Behavioural_and_Cognitive_Therapies
,2013, 'My Genes are my Destiny”: Psychosocial Aspects of Genetic Risk Assessment for Illness Susceptibility', in Caltabiano ML; Ricciardelli L (ed.), Applied Topics in Health Psychology, edn. Ist, Wiley-Blackwell, Sydney, pp. 171 - 184
,2012, 'Psychological responses and coping strategies in patients with skin cancer', in Rigel DS; Cockerell CJ; Friedman R; Lim H (ed.), Cancer of the Skin, edn. 2nd, Elsevier, London, http://dx.doi.org/10.1016/B978-1-4377-1788-4.00062-9
,2011, 'Chapter 62 Psychological Responses and Coping Strategies in Skin Cancer Patients', in Cancer of the Skin, Elsevier, pp. 662 - 667, http://dx.doi.org/10.1016/b978-1-4377-1788-4.00062-9
,Journal articles
2024, 'An Observational Study of Dialogue about Uncertainty in Clinician-Family Counseling Conversations Following Prenatal Diagnosis of Complex Congenital Heart Disease', PEC Innovation, 4, http://dx.doi.org/10.1016/j.pecinn.2024.100265
,2024, 'Cognitive Functioning and Psychosocial Outcomes in Adults with Complex Congenital Heart Disease: A Cross-sectional Pilot Study', Pediatric Cardiology, 45, pp. 529 - 543, http://dx.doi.org/10.1007/s00246-023-03376-7
,2024, 'Australian National Standards of Care for Childhood-onset Heart Disease (CoHD Standards). 1st Edition', Heart Lung and Circulation, 33, pp. 153 - 196, http://dx.doi.org/10.1016/j.hlc.2023.03.017
,2024, 'Getting Wheels: development and evaluation of a psychoeducational resource for parents of children with a neuromuscular condition following recommendation of wheelchair equipment', Disability and Rehabilitation: Assistive Technology, http://dx.doi.org/10.1080/17483107.2024.2310282
,2024, 'Integrated psychological care in pediatric hospital settings for children with complex chronic illness and their families: a systematic review', Psychology and Health, 39, pp. 452 - 478, http://dx.doi.org/10.1080/08870446.2022.2072843
,2024, 'Mother-Infant Dyadic Synchrony and Interaction Patterns after Infant Cardiac Surgery', Journal of Pediatric Psychology, 49, pp. 13 - 26, http://dx.doi.org/10.1093/jpepsy/jsad069
,2023, 'Neuroimaging and Neurodevelopmental Outcomes Among Individuals With Complex Congenital Heart Disease: JACC State-of-the-Art Review', Journal of the American College of Cardiology, 82, pp. 2225 - 2245, http://dx.doi.org/10.1016/j.jacc.2023.09.824
,2023, 'If Not Now, When? Taking Action to Improve Mental Health Outcomes for Families of Children With Heart Disease', Pediatric Critical Care Medicine, 24, pp. 966 - 969, http://dx.doi.org/10.1097/PCC.0000000000003319
,2023, 'Mental Health Conditions among Children and Adolescents with Congenital Heart Disease: A Danish Population-Based Cohort Study', Circulation, 148, pp. 1381 - 1394, http://dx.doi.org/10.1161/CIRCULATIONAHA.123.064705
,2023, '“I Just Want You to Hear That Term”: Characterizing Language Used in Fetal Cardiology Consultations', Journal of Cardiovascular Development and Disease, 10, http://dx.doi.org/10.3390/jcdd10090394
,2023, 'Addressing Adverse Childhood and Adult Experiences during Prenatal Care', Obstetrics and Gynecology, 141, pp. 1072 - 1087, http://dx.doi.org/10.1097/AOG.0000000000005199
,2023, 'Are Parent Discharge Readiness Scores Effective for Patients With Congenital Heart Disease After Cardiac Surgery?', Journal of Pediatrics, 257, http://dx.doi.org/10.1016/j.jpeds.2023.02.008
,2023, 'Systematic Review of Instruments Assessing Psychosocial Adaptation and Outcomes Among Families of Children With Congenital Heart Disease', Journal of Pediatric Psychology, 48, pp. 537 - 552, http://dx.doi.org/10.1093/jpepsy/jsad015
,2023, 'Biological and structural phenotypes associated with neurodevelopmental outcomes in congenital heart disease', Translational Pediatrics, 12, pp. 768 - 786, http://dx.doi.org/10.21037/tp-22-687
,2023, 'Telehealth services for cardiac neurodevelopmental care during the COVID-19 pandemic: A site survey from the Cardiac Neurodevelopmental Outcome Collaborative', Cardiology in the Young, 33, pp. 280 - 287, http://dx.doi.org/10.1017/S1047951122000579
,2023, 'Effects of Loss and Gain Incentives on Adherence in Pediatric Weight Management: Preliminary Studies and Economic Evaluation of a Theoretical Trial', International Journal of Environmental Research and Public Health, 20, http://dx.doi.org/10.3390/ijerph20010584
,2023, 'Evaluation of the use of visual storytelling as an educational intervention in the cardiac ICU: reaching parents before they are in crisis', Cardiology in the Young, http://dx.doi.org/10.1017/S1047951123004201
,2023, 'Multidisciplinary perspectives and practices of wheelchair prescription for children with neuromuscular conditions', Disability and Rehabilitation: Assistive Technology, 18, pp. 166 - 174, http://dx.doi.org/10.1080/17483107.2020.1839793
,2023, '"The usual challenges of work are all magnified": Australian paediatric health professionals' experiences during the COVID-19 pandemic.', Int J Cardiol Congenit Heart Dis, 11, pp. 100434, http://dx.doi.org/10.1016/j.ijcchd.2022.100434
,2023, '“I just want you to hear that term”: Characterizing language used in fetal cardiology consultations', Patient Education and Counseling, 109, pp. 107 - 107, http://dx.doi.org/10.1016/j.pec.2022.10.247
,2023, 'Introducing Uncertainty: An Observational Study of Conversations on Prenatal Diagnosis of Complex Congenital Heart Disease (Sci238)', Journal of Pain and Symptom Management, 65, pp. e660 - e661, http://dx.doi.org/10.1016/j.jpainsymman.2023.02.288
,2022, 'Abstract 10042: Mental Health Conditions In Congenital Heart Disease: A Danish Population Based Cohort Study', Circulation, 146, http://dx.doi.org/10.1161/circ.146.suppl_1.10042
,2022, 'Chronic pediatric diseases and risk for reading difficulties: a narrative review with recommendations', Pediatric Research, 92, pp. 966 - 978, http://dx.doi.org/10.1038/s41390-022-01934-y
,2022, 'The Australian and New Zealand Fontan Registry Quality of Life Study: Protocol for a population-based assessment of quality of life among people with a Fontan circulation, their parents, and siblings', BMJ Open, 12, http://dx.doi.org/10.1136/bmjopen-2022-065726
,2022, 'Psychological Outcomes and Interventions for Individuals with Congenital Heart Disease: A Scientific Statement from the American Heart Association', Circulation: Cardiovascular Quality and Outcomes, 15, pp. 672 - 688, http://dx.doi.org/10.1161/HCQ.0000000000000110
,2022, 'Integrating Telehealth Into Neurodevelopmental Assessment: A Model From the Cardiac Neurodevelopmental Outcome Collaborative', Journal of Pediatric Psychology, 47, pp. 707 - 713, http://dx.doi.org/10.1093/jpepsy/jsac003
,2022, 'Quality of Life and Other Patient-Reported Outcomes Across the Life Span Among People With Fontan Palliation', Canadian Journal of Cardiology, 38, pp. 963 - 976, http://dx.doi.org/10.1016/j.cjca.2022.04.025
,2022, 'Family, healthcare professional, and societal preferences for the treatment of infantile spinal muscular atrophy: A discrete choice experiment', Developmental Medicine and Child Neurology, 64, pp. 753 - 761, http://dx.doi.org/10.1111/dmcn.15135
,2022, 'Opportunities to enhance parental well-being during prenatal counseling for congenital heart disease', Seminars in Perinatology, 46, http://dx.doi.org/10.1016/j.semperi.2022.151587
,2022, 'What is the prevalence of fear of cancer recurrence in cancer survivors and patients? A systematic review and individual participant data meta-analysis', Psycho-Oncology, 31, pp. 879 - 892, http://dx.doi.org/10.1002/pon.5921
,2022, 'How Mindful Awareness and Psychological Distress Influence Mother-Infant Bonding and Maternal Perceptions of Infant Temperament', Mindfulness, 13, pp. 955 - 966, http://dx.doi.org/10.1007/s12671-022-01848-0
,2022, 'Partnering With Stakeholders to Inform the Co-Design of a Psychosocial Intervention for Prenatally Diagnosed Congenital Heart Disease', Journal of Patient Experience, 9, http://dx.doi.org/10.1177/23743735221092488
,2022, 'Protocol for the implementation of a stepped-care model to address fear of cancer recurrence in patients previously diagnosed with early-stage (0-II) melanoma', BMJ open, 12, pp. e054337, http://dx.doi.org/10.1136/bmjopen-2021-054337
,2022, 'Parent-child bonding and attachment during pregnancy and early childhood following congenital heart disease diagnosis', Health Psychology Review, 16, pp. 378 - 411, http://dx.doi.org/10.1080/17437199.2021.1927136
,2022, 'The Cost of Neurodevelopmental Disability: Scoping Review of Economic Evaluation Methods', ClinicoEconomics and Outcomes Research, 14, pp. 665 - 682, http://dx.doi.org/10.2147/CEOR.S370311
,2022, '“The Usual Challenges of Work Are All Magnified”: Australian Paediatric Health Professionals’ Experiences During the COVID-19 Pandemic', Heart, Lung and Circulation, 31, pp. S278 - S278, http://dx.doi.org/10.1016/j.hlc.2022.06.468
,2022, 'Economic Justification for Neurodevelopmental Support for Children With Congenital Heart Disease: A Scoping Review of Economic-Modelling and Recommendations for Future Practice', Heart, Lung and Circulation, 31, pp. S270 - S270, http://dx.doi.org/10.1016/j.hlc.2022.06.455
,2022, 'Lucky and Valuing a “Normal” Life: A Qualitative Study of Parents and Siblings of Children With Dextro-Transposition of the Great Arteries', Heart, Lung and Circulation, 31, pp. S272 - S272, http://dx.doi.org/10.1016/j.hlc.2022.06.458
,2021, 'Parenting under pressure: A mixed-methods investigation of the impact of COVID-19 on family life', Journal of Affective Disorders Reports, 5, http://dx.doi.org/10.1016/j.jadr.2021.100161
,2021, 'Identifying the ‘Active Ingredients' of an Effective Psychological Intervention to Reduce Fear of Cancer Recurrence: A Process Evaluation', Frontiers in Psychology, 12, http://dx.doi.org/10.3389/fpsyg.2021.661190
,2021, 'Parent mental health and family functioning following diagnosis of CHD: A research agenda and recommendations from the Cardiac Neurodevelopmental Outcome Collaborative', Cardiology in the Young, 31, pp. 900 - 914, http://dx.doi.org/10.1017/S1047951121002134
,2021, 'Factors associated with psychological distress among Australian women during pregnancy', Personality and Individual Differences, 172, http://dx.doi.org/10.1016/j.paid.2020.110577
,2021, 'Maintaining Momentum in Infant Mental Health Research during COVID-19: Adapting Observational Assessments', Journal of Pediatric Psychology, 46, pp. 254 - 263, http://dx.doi.org/10.1093/jpepsy/jsab020
,2021, 'Neurocognitive Dysfunction and Smaller Brain Volumes in Adolescents and Adults with a Fontan Circulation', Circulation, 143, pp. 878 - 891, http://dx.doi.org/10.1161/CIRCULATIONAHA.120.048202
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