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Select Publications

Book Chapters

Kasparian NA; Bartula I, 2021, 'Melanoma', in Lazenby M (ed.), Psycho-Oncology, Oxford University Press, pp. 155 - 161,

Kissane DW; Kasparian NA, 2016, 'Theoretical models guiding our understanding of sibling bereavement', in Sibling Loss Across the Lifespan: Research, Practice, and Personal Stories, pp. 1 - 13,

sansom-daly U; McGill B; kasparian N; Patterson P; Muscara F; Wakefield C, 2016, 'Navigating the impact of serious illness across the family system using evidence-based therapeutic approaches', in Menzies R; Kyrios M; Kazantzis N (ed.), Innovations and Future Directions in the Behavioural and Cognitive Therapies, Australian Academic Press, Queensland, pp. 176 - 181,

Kasparian NA; Shermann K, 2013, 'My Genes are my Destiny”: Psychosocial Aspects of Genetic Risk Assessment for Illness Susceptibility', in Caltabiano ML; Ricciardelli L (ed.), Applied Topics in Health Psychology, edn. Ist, Wiley-Blackwell, Sydney, pp. 171 - 184

Kasparian NA; Butow PN, 2012, 'Psychological responses and coping strategies in patients with skin cancer', in Rigel DS; Cockerell CJ; Friedman R; Lim H (ed.), Cancer of the Skin, edn. 2nd, Elsevier, London,

Kasparian NA; Butow PN, 2011, 'Chapter 62 Psychological Responses and Coping Strategies in Skin Cancer Patients', in Cancer of the Skin, Elsevier, pp. 662 - 667,

Journal articles

Harris KW; Schweiberger K; Kavanaugh-McHugh A; Arnold RM; Merlin J; Chang JC; Kasparian NA, 2024, 'An Observational Study of Dialogue about Uncertainty in Clinician-Family Counseling Conversations Following Prenatal Diagnosis of Complex Congenital Heart Disease', PEC Innovation, 4,

Verrall CE; Tran DL; Kasparian NA; Williams T; Oxenham V; Ayer J; Celermajer DS; Cordina RL, 2024, 'Cognitive Functioning and Psychosocial Outcomes in Adults with Complex Congenital Heart Disease: A Cross-sectional Pilot Study', Pediatric Cardiology, 45, pp. 529 - 543,

Sholler GF; Selbie LA; Tallon M; Keating J; Ayer J; Burchill L; Cheung MMH; Cordina R; Culnane E; Donovan S; Eastaugh L; Elliott C; Fletcher J; Justo RN; Kasparian NA; Kelly A; Morsman D; Nicolae M; Orr Y; Pendrick E; Ramsay JM; Reményi B; Shipton S; Weintraub RG; Van Wijk E; Wheaton G; Venugopal P, 2024, 'Australian National Standards of Care for Childhood-onset Heart Disease (CoHD Standards). 1st Edition', Heart Lung and Circulation, 33, pp. 153 - 196,

Paguinto SG; Kasparian NA; Carroll K; Thomas N; Bray P; Farrar MA, 2024, 'Getting Wheels: development and evaluation of a psychoeducational resource for parents of children with a neuromuscular condition following recommendation of wheelchair equipment', Disability and Rehabilitation: Assistive Technology,

Marshall KH; Pincus HA; Tesson S; Lingam R; Woolfenden SR; Kasparian NA, 2024, 'Integrated psychological care in pediatric hospital settings for children with complex chronic illness and their families: a systematic review', Psychology and Health, 39, pp. 452 - 478,

Tesson S; Swinsburg D; Nielson-Jones C; Costa DSJ; Winlaw DS; Badawi N; Sholler GF; Butow PN; Kasparian NA, 2024, 'Mother-Infant Dyadic Synchrony and Interaction Patterns after Infant Cardiac Surgery', Journal of Pediatric Psychology, 49, pp. 13 - 26,

Phillips K; Callaghan B; Rajagopalan V; Akram F; Newburger JW; Kasparian NA, 2023, 'Neuroimaging and Neurodevelopmental Outcomes Among Individuals With Complex Congenital Heart Disease: JACC State-of-the-Art Review', Journal of the American College of Cardiology, 82, pp. 2225 - 2245,

Elhoff JJ; Kasparian NA, 2023, 'If Not Now, When? Taking Action to Improve Mental Health Outcomes for Families of Children With Heart Disease', Pediatric Critical Care Medicine, 24, pp. 966 - 969,

Miles KG; Farkas DK; Laugesen K; Sørensen HT; Kasparian NA; Madsen N, 2023, 'Mental Health Conditions among Children and Adolescents with Congenital Heart Disease: A Danish Population-Based Cohort Study', Circulation, 148, pp. 1381 - 1394,

Schweiberger K; Harris KW; Kavanaugh-McHugh A; Soudi A; Arnold RM; Merlin JS; Kasparian NA; Chang JC, 2023, '“I Just Want You to Hear That Term”: Characterizing Language Used in Fetal Cardiology Consultations', Journal of Cardiovascular Development and Disease, 10,

Johnson S; Kasparian NA; Cullum AS; Flanagan T; Ponting C; Kowalewski L; Main EK, 2023, 'Addressing Adverse Childhood and Adult Experiences during Prenatal Care', Obstetrics and Gynecology, 141, pp. 1072 - 1087,

Kim ME; Kasparian NA; Zang H; Pater C; Chlebowski MM; Marcuccio E; Florez A; Morales DLS; Madsen N; Moore RA, 2023, 'Are Parent Discharge Readiness Scores Effective for Patients With Congenital Heart Disease After Cardiac Surgery?', Journal of Pediatrics, 257,

Eagleson KJ; Mccombs D; Gerlich TM; Justo RN; Kasparian NA; Bora S, 2023, 'Systematic Review of Instruments Assessing Psychosocial Adaptation and Outcomes Among Families of Children With Congenital Heart Disease', Journal of Pediatric Psychology, 48, pp. 537 - 552,

Verrall CE; Patel S; Travitz L; Tchieu J; Dale RC; Kasparian NA; Winlaw DS; Blue GM, 2023, 'Biological and structural phenotypes associated with neurodevelopmental outcomes in congenital heart disease', Translational Pediatrics, 12, pp. 768 - 786,

Kasparian NA; Sadhwani A; Sananes R; Blumenfeld E; Butcher JL; Cassidy AR; Cox SM; Kenowitz J; Miller TA; Sanz JH; Wolfe KR; Ilardi D, 2023, 'Telehealth services for cardiac neurodevelopmental care during the COVID-19 pandemic: A site survey from the Cardiac Neurodevelopmental Outcome Collaborative', Cardiology in the Young, 33, pp. 280 - 287,

Siegel R; McGrady ME; Dynan L; Kharofa R; Stackpole K; Casson P; Siegel F; Kasparian NA, 2023, 'Effects of Loss and Gain Incentives on Adherence in Pediatric Weight Management: Preliminary Studies and Economic Evaluation of a Theoretical Trial', International Journal of Environmental Research and Public Health, 20,

Chlebowski MM; Stark C; Khoury PR; Zang H; Baenziger J; Kasparian NA, 2023, 'Evaluation of the use of visual storytelling as an educational intervention in the cardiac ICU: reaching parents before they are in crisis', Cardiology in the Young,

Paguinto SG; Kasparian NA; Bray P; Farrar M, 2023, 'Multidisciplinary perspectives and practices of wheelchair prescription for children with neuromuscular conditions', Disability and Rehabilitation: Assistive Technology, 18, pp. 166 - 174,

Akram F; Pidcock M; Oake D; Sholler GF; Farrar MA; Kasparian NA, 2023, '"The usual challenges of work are all magnified": Australian paediatric health professionals' experiences during the COVID-19 pandemic.', Int J Cardiol Congenit Heart Dis, 11, pp. 100434,

Kavanaugh-McHugh A; Arnold R; Merlin J; Kasparian N; Chang J, 2023, '“I just want you to hear that term”: Characterizing language used in fetal cardiology consultations', Patient Education and Counseling, 109, pp. 107 - 107,

Harris KW; Schweiberger K; Kavanaugh-McHugh A; Arnold RM; Merlin J; Kasparian NA; Chang JC, 2023, 'Introducing Uncertainty: An Observational Study of Conversations on Prenatal Diagnosis of Complex Congenital Heart Disease (Sci238)', Journal of Pain and Symptom Management, 65, pp. e660 - e661,

Miles K; Kasparian NA; Farkas D; Laugesen K; Sorensen HT; Madsen N, 2022, 'Abstract 10042: Mental Health Conditions In Congenital Heart Disease: A Danish Population Based Cohort Study', Circulation, 146,

Perazzo D; Moore R; Kasparian NA; Rodts M; Horowitz-Kraus T; Crosby L; Turpin B; Beck AF; Hutton J, 2022, 'Chronic pediatric diseases and risk for reading difficulties: a narrative review with recommendations', Pediatric Research, 92, pp. 966 - 978,

Marshall KH; D'udekem Y; Winlaw DS; Dalziel K; Woolfenden SR; Zannino D; Costa DSJ; Bishop R; Celermajer DS; Sholler GF; Kasparian NA, 2022, 'The Australian and New Zealand Fontan Registry Quality of Life Study: Protocol for a population-based assessment of quality of life among people with a Fontan circulation, their parents, and siblings', BMJ Open, 12,

Kovacs AH; Brouillette J; Ibeziako P; Jackson JL; Kasparian NA; Kim YY; Livecchi T; Sillman C; Kochilas LK, 2022, 'Psychological Outcomes and Interventions for Individuals with Congenital Heart Disease: A Scientific Statement from the American Heart Association', Circulation: Cardiovascular Quality and Outcomes, 15, pp. 672 - 688,

Cox SM; Butcher JL; Sadhwani A; Sananes R; Sanz JH; Blumenfeld E; Cassidy AR; Cowin JC; Ilardi D; Kasparian NA; Kenowitz J; Kroll K; Miller TA; Wolfe KR, 2022, 'Integrating Telehealth Into Neurodevelopmental Assessment: A Model From the Cardiac Neurodevelopmental Outcome Collaborative', Journal of Pediatric Psychology, 47, pp. 707 - 713,

Kasparian NA; Kovacs AH, 2022, 'Quality of Life and Other Patient-Reported Outcomes Across the Life Span Among People With Fontan Palliation', Canadian Journal of Cardiology, 38, pp. 963 - 976,

Carey KA; Farrar MA; Kasparian NA; Street DJ; De Abreu Lourenco R, 2022, 'Family, healthcare professional, and societal preferences for the treatment of infantile spinal muscular atrophy: A discrete choice experiment', Developmental Medicine and Child Neurology, 64, pp. 753 - 761,

Tacy TA; Kasparian NA; Karnik R; Geiger M; Sood E, 2022, 'Opportunities to enhance parental well-being during prenatal counseling for congenital heart disease', Seminars in Perinatology, 46,

Luigjes-Huizer YL; Tauber NM; Humphris G; Kasparian NA; Lam WWT; Lebel S; Simard S; Smith AB; Zachariae R; Afiyanti Y; Bell KJL; Custers JAE; de Wit NJ; Fisher PL; Galica J; Garland SN; Helsper CW; Jeppesen MM; Liu J; Mititelu R; Monninkhof EM; Russell L; Savard J; Speckens AEM; van Helmondt SJ; Vatandoust S; Zdenkowski N; van der Lee ML, 2022, 'What is the prevalence of fear of cancer recurrence in cancer survivors and patients? A systematic review and individual participant data meta-analysis', Psycho-Oncology, 31, pp. 879 - 892,

McDonald HM; Sherman KA; Kasparian NA, 2022, 'How Mindful Awareness and Psychological Distress Influence Mother-Infant Bonding and Maternal Perceptions of Infant Temperament', Mindfulness, 13, pp. 955 - 966,

Sood E; Gramszlo C; Perez Ramirez A; Braley K; Butler SC; Davis JA; Divanovic AA; Edwards LA; Kasparian N; Kelly SL; Neely T; Ortinau CM; Riegel E; Shillingford AJ; Kazak AE, 2022, 'Partnering With Stakeholders to Inform the Co-Design of a Psychosocial Intervention for Prenatally Diagnosed Congenital Heart Disease', Journal of Patient Experience, 9,

Thompson JR; Smith AL; Lo SN; Kasparian NA; Saw RP; Dieng M; Seaman L; Martin LK; Guitera P; Milne D; Schmid H; Cust AE; Bartula I, 2022, 'Protocol for the implementation of a stepped-care model to address fear of cancer recurrence in patients previously diagnosed with early-stage (0-II) melanoma', BMJ open, 12, pp. e054337,

Tesson S; Butow PN; Marshall K; Fonagy P; Kasparian NA, 2022, 'Parent-child bonding and attachment during pregnancy and early childhood following congenital heart disease diagnosis', Health Psychology Review, 16, pp. 378 - 411,

Kularatna S; Jadambaa A; Senanayake S; Brain D; Hawker N; Kasparian NA; Abell B; Auld B; Eagleson K; Justo R; McPhail SM, 2022, 'The Cost of Neurodevelopmental Disability: Scoping Review of Economic Evaluation Methods', ClinicoEconomics and Outcomes Research, 14, pp. 665 - 682,

Akram F; Pidcock M; Oake D; Sholler G; Farrar M; Kasparian N, 2022, '“The Usual Challenges of Work Are All Magnified”: Australian Paediatric Health Professionals’ Experiences During the COVID-19 Pandemic', Heart, Lung and Circulation, 31, pp. S278 - S278,

Kularatna S; Jadambaa A; Sennanayake S; Brain D; Hawker N; Kasparian N; Abell B; Auld B; Eagleson K; Justo R; McPhail S, 2022, 'Economic Justification for Neurodevelopmental Support for Children With Congenital Heart Disease: A Scoping Review of Economic-Modelling and Recommendations for Future Practice', Heart, Lung and Circulation, 31, pp. S270 - S270,

Eagleson K; Chin T; Justo R; Kasparian N; Bora S, 2022, 'Lucky and Valuing a “Normal” Life: A Qualitative Study of Parents and Siblings of Children With Dextro-Transposition of the Great Arteries', Heart, Lung and Circulation, 31, pp. S272 - S272,

Chu KA; Schwartz C; Towner E; Kasparian NA; Callaghan B, 2021, 'Parenting under pressure: A mixed-methods investigation of the impact of COVID-19 on family life', Journal of Affective Disorders Reports, 5,

Kan JM; Dieng M; Butow PN; Mireskandari S; Tesson S; Menzies SW; Costa DSJ; Morton RL; Mann GJ; Cust AE; Kasparian NA, 2021, 'Identifying the ‘Active Ingredients' of an Effective Psychological Intervention to Reduce Fear of Cancer Recurrence: A Process Evaluation', Frontiers in Psychology, 12,

Sood E; Lisanti AJ; Woolf-King SE; Wray J; Kasparian N; Jackson E; Gregory MR; Lopez KN; Marino BS; Neely T; Randall A; Zyblewski SC; Brosig CL, 2021, 'Parent mental health and family functioning following diagnosis of CHD: A research agenda and recommendations from the Cardiac Neurodevelopmental Outcome Collaborative', Cardiology in the Young, 31, pp. 900 - 914,

McDonald HM; Sherman KA; Kasparian NA, 2021, 'Factors associated with psychological distress among Australian women during pregnancy', Personality and Individual Differences, 172,

Tesson S; Swinsburg D; Kasparian NA, 2021, 'Maintaining Momentum in Infant Mental Health Research during COVID-19: Adapting Observational Assessments', Journal of Pediatric Psychology, 46, pp. 254 - 263,

Verrall CE; Yang JYM; Chen J; Schembri A; D'Udekem Y; Zannino D; Kasparian NA; Du Plessis K; Grieve SM; Welton T; Barton B; Gentles TL; Celermajer DS; Attard C; Rice K; Ayer J; Mandelstam S; Winlaw DS; Mackay MT; Cordina R, 2021, 'Neurocognitive Dysfunction and Smaller Brain Volumes in Adolescents and Adults with a Fontan Circulation', Circulation, 143, pp. 878 - 891,

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