By Professor Claire Elizabeth Wakefield

Journal articles

Fuentes Bolanos NA; Padhye B; Daley M; Hunter J; Hetherington K; Warby M; Courtney E; Kirk J; Josephi-Taylor S; Chen Y; Alvaro F; Barlow-Stewart K; Wong-Erasmus M; Barahona P; Ajuyah P; Altekoester AK; Tyrrell VJ; Lau LMS; Wakefield C; Sylvester D; Tucker K; Pinese M; Dalla Pozza L; O'Brien TA, 2023, 'Protocol for a comprehensive prospective cohort study of trio-based whole-genome sequencing for underlying cancer predisposition in paediatric and adolescent patients newly diagnosed with cancer: The PREDICT study', BMJ Open, 13, http://dx.doi.org/10.1136/bmjopen-2022-070082

Kenny K; Williams Veazey L; Broom A; Peterie M; Page A; Prainsack B; Wakefield CE; Itchins M; Khasraw M; Lwin Z, 2023, 'Hope in the era of precision oncology: a qualitative study of informal caregivers' experiences', BMJ Open, 13, http://dx.doi.org/10.1136/bmjopen-2022-065753

Signorelli C; Wakefield CE; McLoone JK; Johnston KA; Mertens AC; Osborn M; Cohn RJ; Alvaro F; Corbett R; Downie P; Egan K; Ellis S; Emery J; Fardell J; Foreman T; Gabriel M; Girgis A; Graham K; Johnston K; Jones J; Lockwood L; Maguire A; McCarthy M; Mechinaud F; Molloy S; Moore L; Skeen J; Tapp H; Till T; Truscott J; Turpin K; Williamson J; Walwyn T; Yallop K, 2023, 'Childhood Cancer Survivors' Reported Late Effects, Motivations for Seeking Survivorship Care, and Patterns of Attendance', Oncologist, 28, pp. E276 - E286, http://dx.doi.org/10.1093/oncolo/oyad004

Signorelli C; Schneuer FJ; Wakefield CE; McLoone JK; Trahair T; Cohn RJ; Nassar N, 2023, 'Hospitalizations in Australian children with neuroblastoma: A population-based study', Cancer Medicine, 12, pp. 10939 - 10949, http://dx.doi.org/10.1002/cam4.5806

Webster SN; Spunt SL; Cunningham SJ; Wakefield CE; Smith SM; Alberts NM; Palesh O; Simons LE; Heathcote LC, 2023, 'International Survey of Pediatric Oncologists' Beliefs and Communication Practices Regarding Symptom Self-Monitoring by Childhood Cancer Survivors', JCO Oncology Practice, 19, pp. E650 - E659, http://dx.doi.org/10.1200/OP.22.00630

Sansom-Daly UM; Zhang M; Evans HE; McLoone J; Wiener L; Cohn RJ; Anazodo A; Patterson P; Wakefield CE, 2023, 'Adapting the Voicing My CHOiCES Advance Care Planning Communication Guide for Australian Adolescents and Young Adults with Cancer: Appropriateness, Acceptability, and Considerations for Clinical Practice', Cancers, 15, pp. n/a - n/a, http://dx.doi.org/10.3390/cancers15072129

Allison KR; Patterson P; McDonald FEJ; Bibby K; Ciarrochi J; Tracey D; Hayes LL; Wright A; Konings S; Davis E; Hulbert-Williams NJ; Wakefield CE; White K, 2023, 'Truce: Feasibility and acceptability of an Acceptance and Commitment Therapy-based intervention for adolescents and young adults impacted by parental cancer', Journal of Contextual Behavioral Science, 28, pp. 91 - 101, http://dx.doi.org/10.1016/j.jcbs.2023.03.014

Katz TE; Wakefield CE; Signorelli C; Day AS; Vernon-Roberts A; Ooi CY, 2023, 'Gastroenterology services for patients with Cystic Fibrosis across Australia and New Zealand: a multi-stakeholder assessment of patients' and professionals’ perspectives', Frontiers in Pediatrics, 11, http://dx.doi.org/10.3389/fped.2023.1322941

Tran A; Hou SHJ; Forbes C; Cho S; Forster VJ; Stokoe M; Wakefield CE; Wiener L; Heathcote LC; Michel G; Patterson P; Reynolds K; Schulte FSM, 2023, 'The Impact of the Early COVID-19 Global Pandemic on Children Undergoing Active Cancer Treatment and Their Parents', Current Oncology, 30, pp. 2441 - 2456, http://dx.doi.org/10.3390/curroncol30020186

Koczwara B; Chan A; Jefford M; Lam WWT; Taylor C; Wakefield CE; Bhoo-Pathy N; Gyawali B; Harvet G; Lou Y; Pramesh CS; Takahashi M; Ke Y; Chan RJ, 2023, 'Cancer Survivorship in the Indo-Pacific: Priorities for Progress', JCO Global Oncology, 9, http://dx.doi.org/10.1200/GO.22.00305

Tan J; McLoone JK; Wakefield CE; Nassar N; Cohn RJ; Signorelli C, 2023, 'Neuroblastoma survivors’ self-reported late effects, quality of life, health-care use, and risk perceptions', Palliative and Supportive Care, 22, pp. 296 - 305, http://dx.doi.org/10.1017/S1478951523000615

Young AL; Imran A; Spoelma MJ; Williams R; Tucker KM; Halliday J; Forrest LE; Wakefield CE; Butow PN, 2023, 'Proband-mediated interventions to increase disclosure of genetic risk in families with a BRCA or Lynch syndrome condition: a systematic review', European Journal of Human Genetics, 31, pp. 18 - 34, http://dx.doi.org/10.1038/s41431-022-01200-z

Koczwara B; Chan A; Jefford M; Lam WWT; Taylor C; Wakefield CE; Bhoo Pathy N; Gyawali B; Harvet G; Lou Y; Pramesh CS; Takahashi M; Yu K; Chan RJ, 2023, 'Reply to E.C. Dee et al', JCO Global Oncology, 9, http://dx.doi.org/10.1200/GO.23.00102

Body A; Donoghoe MW; Ahern ES; Lal L; Downie P; Leahy MF; Fuentes-Bolanos N; Anazodo A; Padhye B; Hamad N; Wakefield CE; Segelov E, 2023, '2106P Safety and patient reported outcomes of SARS-CoV-2 vaccination in patients with cancer', Annals of Oncology, 34, pp. S1104 - S1104, http://dx.doi.org/10.1016/j.annonc.2023.09.888

Katz T; Wakefield CE; Signorelli C; Day AS; Vernon-Roberts A; Ooi CY, 2023, 'P298 Gastroenterology services for patients with cystic fibrosis across Australia and New Zealand: a multi-stakeholder assessment of patients’ and professionals’ perspectives', Journal of Cystic Fibrosis, 22, pp. S156 - S156, http://dx.doi.org/10.1016/s1569-1993(23)00669-0

Nguyen CQ; Kariyawasam D; Alba-Concepcion K; Grattan S; Hetherington K; Wakefield CE; Woolfenden S; Dale RC; Palmer EE; Farrar MA; Concepcion K, 2022, '‘Advocacy groups are the connectors’: Experiences and contributions of rare disease patient organization leaders in advanced neurotherapeutics', Health Expectations, 25, pp. 3175 - 3191, http://dx.doi.org/10.1111/hex.13625

Chow WK; Hetherington K; McGill BC; Sansom-Daly UM; Daly R; Miles G; Cohn RJ; Wakefield CE, 2022, '‘Like ships in the night’: A qualitative investigation of the impact of childhood cancer on parents’ emotional and sexual intimacy', Pediatric Blood and Cancer, 69, http://dx.doi.org/10.1002/pbc.30015

Schaffer M; McLoone JK; Wakefield CE; Brierley ME; Girgis A; McCarthy MC; Thornton-Benko E; Chan RJ; Johnston KA; Cohn RJ; Signorelli C, 2022, 'eHealth tools for childhood cancer survivorship care: A qualitative analysis of survivors', parents', and general practitioners' views', PEC Innovation, 1, pp. 100010, http://dx.doi.org/10.1016/j.pecinn.2021.100010

Nevin SM; Wakefield CE; Dadich A; LeMarne F; Macintosh R; Beavis E; Sachdev R; Bye A; Nunn K; Palmer EE, 2022, 'Hearing parents' voices: A priority-setting workshop to inform a suite of psychological resources for parents of children with rare genetic epilepsies', PEC Innovation, 1, http://dx.doi.org/10.1016/j.pecinn.2021.100014

Broom A; Kenny K; Williams Veazey L; Page A; Prainsack B; Wakefield CE; Khasraw M; Itchins M; Lwin Z, 2022, 'Living (well) with cancer in the precision era', SSM - Qualitative Research in Health, 2, http://dx.doi.org/10.1016/j.ssmqr.2022.100096

Schilstra CE; McCleary K; Fardell JE; Donoghoe MW; McCormack E; Kotecha RS; Lourenco RDA; Ramachandran S; Cockcroft R; Conyers R; Cross S; Dalla-Pozza L; Downie P; Revesz T; Osborn M; Alvaro F; Wakefield CE; Marshall GM; Mateos MK; Trahair TN; Gok C, 2022, 'Prospective longitudinal evaluation of treatment-related toxicity and health-related quality of life during the first year of treatment for pediatric acute lymphoblastic leukemia', BMC Cancer, 22, pp. 985, http://dx.doi.org/10.1186/s12885-022-10072-x

Kelada L; Wakefield CE; Drew D; Ooi CY; Palmer EE; Bye A; De Marchi S; Jaffe A; Kennedy S, 2022, 'Siblings of young people with chronic illness: Caring responsibilities and psychosocial functioning', Journal of Child Health Care, 26, pp. 581 - 596, http://dx.doi.org/10.1177/13674935211033466

Ha L; Wakefield CE; Fardell J; Cohn RJ; Simar D; Signorelli C; Mizrahi D, 2022, 'Parent perceptions of their child’s and their own physical activity after treatment for childhood cancer', Supportive Care in Cancer, 30, pp. 8947 - 8957, http://dx.doi.org/10.1007/s00520-022-07288-9

Gereis J; Hetherington K; Ha L; Robertson EG; Ziegler DS; Barlow-Stewart K; Tucker KM; Marron JM; Wakefield CE, 2022, 'Parents’ understanding of genome and exome sequencing for pediatric health conditions: a systematic review', European Journal of Human Genetics, 30, pp. 1216 - 1225, http://dx.doi.org/10.1038/s41431-022-01170-2

Hetherington K; Wakefield CE; Kunalan KPK; Donoghoe MW; McGill BC; Fardell JE; Daly R; Deyell RJ; Ziegler DS, 2022, 'Quality of Life (QoL) of Children and Adolescents Participating in a Precision Medicine Trial for High-Risk Childhood Cancer', Cancers, 14, http://dx.doi.org/10.3390/cancers14215310

McLoone JK; Chen W; Wakefield CE; Johnston K; Bell R; Thornton-Benko E; Cohn RJ; Signorelli C, 2022, 'Childhood cancer survivorship care: A qualitative study of healthcare providers’ professional preferences', Frontiers in Oncology, 12, http://dx.doi.org/10.3389/fonc.2022.945911

Woolfenden S; Farrar MA; Eapen V; Masi A; Wakefield CE; Badawi N; Novak I; Nassar N; Lingam R; Dale RC, 2022, 'Delivering paediatric precision medicine: Genomic and environmental considerations along the causal pathway of childhood neurodevelopmental disorders', Developmental Medicine and Child Neurology, 64, pp. 1077 - 1084, http://dx.doi.org/10.1111/dmcn.15289

McLoone J; Wakefield CE; Marshall GM; Pierce K; Jaffe A; Bye A; Kennedy SE; Drew D; Lingam R, 2022, 'It's made a really hard situation even more difficult: The impact of COVID-19 on families of children with chronic illness', PLoS ONE, 17, http://dx.doi.org/10.1371/journal.pone.0273622

Hunter JD; Robertson EG; Hetherington K; Ziegler DS; Marshall GM; Kirk J; Marron JM; Denburg AE; Barlow-Stewart K; Warby M; Tucker KM; Lee BM; O’Brien TA; Wakefield CE; O'Brien T, 2022, 'What’s in a Name? Parents’ and Healthcare Professionals’ Preferred Terminology for Pathogenic Variants in Childhood Cancer Predisposition Genes', Journal of Personalized Medicine, 12, pp. 1327, http://dx.doi.org/10.3390/jpm12081327

Darlington ASE; Wakefield CE; van Erp LME; van der Graaf WTA; Cohn RJ; Grootenhuis MA, 2022, 'Psychosocial consequences of surviving cancer diagnosed and treated in childhood versus in adolescence/young adulthood: A call for clearer delineation between groups', Cancer, 128, pp. 2690 - 2694, http://dx.doi.org/10.1002/cncr.34257

Ha L; Wakefield CE; Mizrahi D; Diaz C; Cohn RJ; Signorelli C; Yacef K; Simar D, 2022, 'A Digital Educational Intervention With Wearable Activity Trackers to Support Health Behaviors Among Childhood Cancer Survivors: Pilot Feasibility and Acceptability Study', JMIR Cancer, 8, pp. e38367, http://dx.doi.org/10.2196/38367

Kirchhofer SM; Orm S; Haukeland YB; Fredriksen T; Wakefield CE; Fjermestad KW, 2022, 'A systematic review of social support for siblings of children with neurodevelopmental disorders', Research in Developmental Disabilities, 126, http://dx.doi.org/10.1016/j.ridd.2022.104234

Sansom-Daly UM; Wiener L; Darlington AS; Poort H; Rosenberg AR; Weaver MS; Schulte F; Anazodo A; Phillips C; Sue L; Herbert AR; Mack JW; Lindsay T; Evans H; Wakefield CE; Girgis A; Al-Awamer A; Kirchhoff A; Cohn R; Fair D; Cable M; Wernli K; Donovan L; Mosher P; Fernando R; Trethewie S, 2022, 'Thinking globally to improve care locally: A Delphi study protocol to achieve international clinical consensus on best-practice end-of-life communication with adolescents and young adults with cancer', PLoS ONE, 17, http://dx.doi.org/10.1371/journal.pone.0270797

Hou SHJ; Tran A; Cho S; Forbes C; Forster VJ; Stokoe M; Allapitan E; Wakefield CE; Wiener L; Heathcote LC; Michel G; Patterson P; Reynolds K; Schulte FSM, 2022, 'The Perceived Impact of COVID-19 on the Mental Health Status of Adolescent and Young Adult Survivors of Childhood Cancer and the Development of a Knowledge Translation Tool to Support Their Information Needs', Frontiers in Psychology, 13, http://dx.doi.org/10.3389/fpsyg.2022.867151

Tonorezos ES; Cohn RJ; Glaser AW; Lewin J; Poon E; Wakefield CE; Oeffinger KC, 2022, 'Long-term care for people treated for cancer during childhood and adolescence', The Lancet, 399, pp. 1561 - 1572, http://dx.doi.org/10.1016/S0140-6736(22)00460-3

Marchak JG; Christen S; Mulder RL; Baust K; Blom JMC; Brinkman TM; Elens I; Harju E; Kadan-Lottick NS; Khor JWT; Lemiere J; Recklitis CJ; Wakefield CE; Wiener L; Constine LS; Hudson MM; Kremer LCM; Skinner R; Vetsch J; Lee JL; Michel G, 2022, 'Recommendations for the surveillance of mental health problems in childhood, adolescent, and young adult cancer survivors: a report from the International Late Effects of Childhood Cancer Guideline Harmonization Group', The Lancet Oncology, 23, pp. e184 - e196, http://dx.doi.org/10.1016/S1470-2045(21)00750-6

Schilstra CE; Fardell JE; Ellis SJ; Jones KM; Anazodo AC; Trahair TN; Lah S; Cohn RJ; Wakefield CE; Sansom-Daly UM, 2022, 'Social Anxiety Symptoms in Survivors of Childhood and Adolescent Cancer', Journal of Adolescent and Young Adult Oncology, 11, pp. 129 - 137, http://dx.doi.org/10.1089/jayao.2021.0050

Espinoza-Salgado FS; García RR; E.wakefield C; Kelada L; Sansom-Daly UM; McGill BC; Tusie AZ; García FLJ; Cardos RDSC; Zapata-Tarrés M, 2022, 'Mexican cultural adaptation of the CASCAdE intervention program for parents of childhood cancer survivors', Psicooncologia, 19, pp. 63 - 80, http://dx.doi.org/10.5209/psic.80798

Nevin SM; Wakefield CE; Le Marne F; Beavis E; Macintosh R; Sachdev R; Bye A; Palmer EE; Nunn K, 2022, 'Piloting positive psychology resources for caregivers of a child with a genetic developmental and epileptic encephalopathy', European Journal of Paediatric Neurology, 37, pp. 129 - 138, http://dx.doi.org/10.1016/j.ejpn.2022.01.022

Hu N; Fardell J; Wakefield CE; Marshall GM; Bell JC; Nassar N; Lingam R, 2022, 'School academic performance of children hospitalised with a chronic condition', Archives of Disease in Childhood, 107, pp. 289 - 296, http://dx.doi.org/10.1136/archdischild-2020-321285

Chittem M; Kelada L; Muppavaram N; Lingappa L; Wakefield CE, 2022, 'Unmet and under-met needs among Indian parents of children with neurological disorders', Journal of Pediatric Nursing, 63, pp. e1 - e9, http://dx.doi.org/10.1016/j.pedn.2021.11.015

Kelada L; Wakefield C; Vidic N; Armstrong DS; Bennetts B; Boggs K; Christodoulou J; Harrison J; Ho G; Kapur N; Lindsey-Temple S; McDonald T; Mowat D; Schultz A; Selvadurai H; Tai A; Jaffe A, 2022, 'Genomic testing for children with interstitial and diffuse lung disease (chILD): Parent satisfaction, understanding and health-related quality of life', BMJ Open Respiratory Research, 9, http://dx.doi.org/10.1136/bmjresp-2021-001139

Page A; Broom A; Kenny K; Lwin Z; Wakefield CE; Itchins M; Khasraw M, 2022, 'Experiencing the SARS-CoV-2 Pandemic Whilst Living With Cancer', Qualitative Health Research, 32, pp. 426 - 439, http://dx.doi.org/10.1177/10497323211057082

Alchin JE; Signorelli C; McLoone JK; Wakefield CE; Fardell JE; Johnston K; Cohn RJ, 2022, 'Childhood Cancer Survivors’ Adherence to Healthcare Recommendations Made Through a Distance-Delivered Survivorship Program', Journal of Multidisciplinary Healthcare, 15, pp. 1719 - 1734, http://dx.doi.org/10.2147/JMDH.S363653

Callander EJ; Bull C; Lain S; Wakefield CE; Lingam R; Marshall GM; Wake M; Nassar N, 2022, 'Inequality in early childhood chronic health conditions requiring hospitalisation: A data linkage study of health service utilisation and costs', Paediatric and Perinatal Epidemiology, 36, pp. 156 - 166, http://dx.doi.org/10.1111/ppe.12818

Fleming CAK; Murphy-Alford AJ; Cohen J; Fleming MR; Wakefield CE; Naumann F, 2022, 'Poor diet quality and adverse eating behaviors in young survivors of childhood cancer', Pediatric Blood and Cancer, 69, http://dx.doi.org/10.1002/pbc.29408

Nevin SM; Wakefield CE; Barlow-Stewart K; McGill BC; Bye A; Palmer EE; Dale RC; Gill D; Kothur K; Boggs K; Le Marne F; Beavis E; Macintosh R; Sachdev R, 2022, 'Psychosocial impact of genetic testing on parents of children with developmental and epileptic encephalopathy', Developmental Medicine and Child Neurology, 64, pp. 95 - 104, http://dx.doi.org/10.1111/dmcn.14971

Bryan G; Kelly P; Chesters H; Franklin J; Griffiths H; Langton L; Langton L; Wakefield CE; Gibson F, 2021, 'Access to and experience of education for children and adolescents with cancer: a scoping review protocol', Systematic Reviews, 10, pp. 167, http://dx.doi.org/10.1186/s13643-021-01723-4

Kamaladasa DS; Sansom-Daly UM; Hetherington K; McGill BC; Ellis SJ; Kelada L; Donoghoe MW; Evans H; Anazodo A; Patterson P; Cohn RJ; Wakefield CE, 2021, 'How Are Families Faring? Perceived Family Functioning among Adolescent and Young Adult Cancer Survivors in Comparison to Their Peers', Journal of Adolescent and Young Adult Oncology, 10, pp. 711 - 719, http://dx.doi.org/10.1089/jayao.2020.0215

Fardell JE; Wakefield CE; De Abreu Lourenco R; Signorelli C; McCarthy M; McLoone J; Osborn M; Gabriel M; Anazodo A; Alvaro F; Lockwood L; Walwyn T; Skeen J; Tillemans R; Cohn RJ; Corbett R; Downie P; Egan K; Ellis S; Emery J; Foreman T; Girgis A; Graham K; Johnston K; Jones J; Maguire A; Mechinaud F; Molloy S; Moore L; Tapp H; Till T; Truscott J; Turpin K; Williamson J; Yallop K, 2021, 'Long-term health-related quality of life in young childhood cancer survivors and their parents', Pediatric Blood and Cancer, 68, pp. e29398, http://dx.doi.org/10.1002/pbc.29398

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