By Professor Claire Elizabeth Wakefield

Journal articles

Gereis JM; Hetherington K; Robertson EG; Daly R; Donoghoe MW; Ziegler DS; Marshall GM; Lau LMS; Marron JM; Wakefield CE, 2023, 'Parents’ and adolescents’ perspectives and understanding of information about childhood cancer precision medicine', Cancer, 129, pp. 3645 - 3655, http://dx.doi.org/10.1002/cncr.34914

McGill BC; Wakefield CE; Tucker KM; Daly RA; Donoghoe MW; Vetsch J; Warby M; Fuentes-Bolanos NA; Barlow-Stewart K; Kirk J; Courtney E; O’Brien TA; Marshall GM; Pinese M; Cowley MJ; Tyrrell V; Deyell RJ; Ziegler DS; Hetherington K, 2023, 'Parents’ expectations, preferences, and recall of germline findings in a childhood cancer precision medicine trial', Cancer, 129, pp. 3620 - 3632, http://dx.doi.org/10.1002/cncr.34917

Wakefield CE; Hetherington K; Robertson EG; Donoghoe MW; Hunter JD; Vetsch J; Marron JM; Tucker KM; Marshall GM; Broom A; Haber M; Tyrrell V; Malkin D; Lau L; Mateos MK; O’Brien TA; Ziegler DS, 2023, 'Hopes, concerns, satisfaction and regret in a precision medicine trial for childhood cancer: a mixed-methods study of parent and patient perspectives', British Journal of Cancer, 129, pp. 1634 - 1644, http://dx.doi.org/10.1038/s41416-023-02429-1

Budden AK; Song S; Henry A; Nesbitt-Hawes E; Wakefield CE; Abbott JA, 2023, 'Acute Biological Changes in Gynecologic Surgeons during Surgery: A Prospective Study', Journal of Minimally Invasive Gynecology, 30, pp. 841 - 849, http://dx.doi.org/10.1016/j.jmig.2023.06.014

Fardell JE; Hu N; Wakefield CE; Marshall G; Bell J; Lingam R; Nassar N, 2023, 'Impact of Hospitalizations due to Chronic Health Conditions on Early Child Development', Journal of Pediatric Psychology, 48, pp. 799 - 811, http://dx.doi.org/10.1093/jpepsy/jsad025

Ha L; Wakefield CE; Diaz C; Mizrahi D; Signorelli C; Yacef K; Simar D, 2023, 'Patterns of physical activity and sedentary behavior in child and adolescent cancer survivors assessed using wrist accelerometry: A cluster analysis approach', Health Informatics Journal, 29, http://dx.doi.org/10.1177/14604582231212525

Høeg BL; Sevillano PB; Enesco I; Wakefield CE; Larsen HB; Bidstrup PE, 2023, 'Child-centered communication interventions in pediatric oncology: A scoping review and proposed new communication model', Pediatric Blood and Cancer, 70, http://dx.doi.org/10.1002/pbc.30533

Zhang T; Wakefield CE; Ren Z; Chen W; Du X; Shi C; Lai L; Zhao C; Gao Y; Chen Z; Zhou Y; Wu T; Cai M, 2023, 'Effects of digital psychological interventions on physical symptoms in cancer patients: A systematic review and meta-analysis', General Hospital Psychiatry, 84, pp. 47 - 59, http://dx.doi.org/10.1016/j.genhosppsych.2023.05.016

Hou SHJ; Forbes C; Cho S; Tran A; Forster VJ; Wakefield CE; Heathcote LC; Wiener L; Michel G; Patterson P; Stokoe M; Reynolds K; Schulte FMS, 2023, 'Mental health and health behaviors of parents of survivors of childhood cancer in the early COVID-19 pandemic: Exploring the role of intolerance of uncertainty', Journal of Psychosocial Oncology Research and Practice, 5, http://dx.doi.org/10.1097/OR9.0000000000000107

Daly R; Hetherington K; Hazell E; Wadling BR; Tyrrell V; Tucker KM; Marshall GM; Ziegler DS; Lau LMS; Trahair TN; O’Brien TA; Collins K; Gifford AJ; Haber M; Pinese M; Malkin D; Cowley MJ; Karpelowsky J; Drew D; Jacobs C; Wakefield CE, 2023, 'Precision Medicine Is Changing the Roles of Healthcare Professionals, Scientists, and Research Staff: Learnings from a Childhood Cancer Precision Medicine Trial', Journal of Personalized Medicine, 13, http://dx.doi.org/10.3390/jpm13071033

McLoone J; Hamayun M; Nagabushan S; Signorelli C; Wakefield C; Johnston K; Bell R; Cohn R, 2023, 'OUTC-09. PEDIATRIC LOW GRADE GLIOMA SURVIVORS’ NEED FOR SURVIVORSHIP CARE: ‘ENGAGE’ A MULTIDISCIPLINARY, E-HEALTH INTERVENTION', Neuro-Oncology, 25, pp. i37 - i37, http://dx.doi.org/10.1093/neuonc/noad073.146

Budden A; Song S; Henry A; Wakefield CE; Abbott J, 2023, 'A systematic review of biological changes in surgeons’ acute stress levels during surgery', Surgery in Practice and Science, 13, pp. 100174, http://dx.doi.org/10.1016/j.sipas.2023.100174

Fuentes Bolanos NA; Padhye B; Daley M; Hunter J; Hetherington K; Warby M; Courtney E; Kirk J; Josephi-Taylor S; Chen Y; Alvaro F; Barlow-Stewart K; Wong-Erasmus M; Barahona P; Ajuyah P; Altekoester AK; Tyrrell VJ; Lau LMS; Wakefield C; Sylvester D; Tucker K; Pinese M; Dalla Pozza L; O'Brien TA, 2023, 'Protocol for a comprehensive prospective cohort study of trio-based whole-genome sequencing for underlying cancer predisposition in paediatric and adolescent patients newly diagnosed with cancer: The PREDICT study', BMJ Open, 13, http://dx.doi.org/10.1136/bmjopen-2022-070082

Kenny K; Williams Veazey L; Broom A; Peterie M; Page A; Prainsack B; Wakefield CE; Itchins M; Khasraw M; Lwin Z, 2023, 'Hope in the era of precision oncology: a qualitative study of informal caregivers' experiences', BMJ Open, 13, http://dx.doi.org/10.1136/bmjopen-2022-065753

Signorelli C; Wakefield CE; McLoone JK; Johnston KA; Mertens AC; Osborn M; Cohn RJ; Alvaro F; Corbett R; Downie P; Egan K; Ellis S; Emery J; Fardell J; Foreman T; Gabriel M; Girgis A; Graham K; Johnston K; Jones J; Lockwood L; Maguire A; McCarthy M; Mechinaud F; Molloy S; Moore L; Skeen J; Tapp H; Till T; Truscott J; Turpin K; Williamson J; Walwyn T; Yallop K, 2023, 'Childhood Cancer Survivors' Reported Late Effects, Motivations for Seeking Survivorship Care, and Patterns of Attendance', Oncologist, 28, pp. E276 - E286, http://dx.doi.org/10.1093/oncolo/oyad004

Signorelli C; Schneuer FJ; Wakefield CE; McLoone JK; Trahair T; Cohn RJ; Nassar N, 2023, 'Hospitalizations in Australian children with neuroblastoma: A population-based study', Cancer Medicine, 12, pp. 10939 - 10949, http://dx.doi.org/10.1002/cam4.5806

Webster SN; Spunt SL; Cunningham SJ; Wakefield CE; Smith SM; Alberts NM; Palesh O; Simons LE; Heathcote LC, 2023, 'International Survey of Pediatric Oncologists' Beliefs and Communication Practices Regarding Symptom Self-Monitoring by Childhood Cancer Survivors', JCO Oncology Practice, 19, pp. E650 - E659, http://dx.doi.org/10.1200/OP.22.00630

Sansom-Daly UM; Zhang M; Evans HE; McLoone J; Wiener L; Cohn RJ; Anazodo A; Patterson P; Wakefield CE, 2023, 'Adapting the Voicing My CHOiCES Advance Care Planning Communication Guide for Australian Adolescents and Young Adults with Cancer: Appropriateness, Acceptability, and Considerations for Clinical Practice', Cancers, 15, pp. n/a - n/a, http://dx.doi.org/10.3390/cancers15072129

Allison KR; Patterson P; McDonald FEJ; Bibby K; Ciarrochi J; Tracey D; Hayes LL; Wright A; Konings S; Davis E; Hulbert-Williams NJ; Wakefield CE; White K, 2023, 'Truce: Feasibility and acceptability of an Acceptance and Commitment Therapy-based intervention for adolescents and young adults impacted by parental cancer', Journal of Contextual Behavioral Science, 28, pp. 91 - 101, http://dx.doi.org/10.1016/j.jcbs.2023.03.014

Katz TE; Wakefield CE; Signorelli C; Day AS; Vernon-Roberts A; Ooi CY, 2023, 'Gastroenterology services for patients with Cystic Fibrosis across Australia and New Zealand: a multi-stakeholder assessment of patients' and professionals’ perspectives', Frontiers in Pediatrics, 11, http://dx.doi.org/10.3389/fped.2023.1322941

Tran A; Hou SHJ; Forbes C; Cho S; Forster VJ; Stokoe M; Wakefield CE; Wiener L; Heathcote LC; Michel G; Patterson P; Reynolds K; Schulte FSM, 2023, 'The Impact of the Early COVID-19 Global Pandemic on Children Undergoing Active Cancer Treatment and Their Parents', Current Oncology, 30, pp. 2441 - 2456, http://dx.doi.org/10.3390/curroncol30020186

Koczwara B; Chan A; Jefford M; Lam WWT; Taylor C; Wakefield CE; Bhoo-Pathy N; Gyawali B; Harvet G; Lou Y; Pramesh CS; Takahashi M; Ke Y; Chan RJ, 2023, 'Cancer Survivorship in the Indo-Pacific: Priorities for Progress', JCO Global Oncology, 9, http://dx.doi.org/10.1200/GO.22.00305

Tan J; McLoone JK; Wakefield CE; Nassar N; Cohn RJ; Signorelli C, 2023, 'Neuroblastoma survivors’ self-reported late effects, quality of life, health-care use, and risk perceptions', Palliative and Supportive Care, 22, pp. 296 - 305, http://dx.doi.org/10.1017/S1478951523000615

Young AL; Imran A; Spoelma MJ; Williams R; Tucker KM; Halliday J; Forrest LE; Wakefield CE; Butow PN, 2023, 'Proband-mediated interventions to increase disclosure of genetic risk in families with a BRCA or Lynch syndrome condition: a systematic review', European Journal of Human Genetics, 31, pp. 18 - 34, http://dx.doi.org/10.1038/s41431-022-01200-z

Koczwara B; Chan A; Jefford M; Lam WWT; Taylor C; Wakefield CE; Bhoo Pathy N; Gyawali B; Harvet G; Lou Y; Pramesh CS; Takahashi M; Yu K; Chan RJ, 2023, 'Reply to E.C. Dee et al', JCO Global Oncology, 9, http://dx.doi.org/10.1200/GO.23.00102

Katz T; Wakefield CE; Signorelli C; Day AS; Vernon-Roberts A; Ooi CY, 2023, 'P298 Gastroenterology services for patients with cystic fibrosis across Australia and New Zealand: a multi-stakeholder assessment of patients’ and professionals’ perspectives', Journal of Cystic Fibrosis, 22, pp. S156 - S156, http://dx.doi.org/10.1016/s1569-1993(23)00669-0

Body A; Donoghoe MW; Ahern ES; Lal L; Downie P; Leahy MF; Fuentes-Bolanos N; Anazodo A; Padhye B; Hamad N; Wakefield CE; Segelov E, 2023, 'Safety and patient reported outcomes of SARS-CoV-2 vaccination in patients with cancer', ANNALS OF ONCOLOGY, 34, pp. S1104 - S1104, http://dx.doi.org/10.1016/j.annonc.2023.09.888

Nguyen CQ; Kariyawasam D; Alba-Concepcion K; Grattan S; Hetherington K; Wakefield CE; Woolfenden S; Dale RC; Palmer EE; Farrar MA; Concepcion K, 2022, '‘Advocacy groups are the connectors’: Experiences and contributions of rare disease patient organization leaders in advanced neurotherapeutics', Health Expectations, 25, pp. 3175 - 3191, http://dx.doi.org/10.1111/hex.13625

Chow WK; Hetherington K; McGill BC; Sansom-Daly UM; Daly R; Miles G; Cohn RJ; Wakefield CE, 2022, '‘Like ships in the night’: A qualitative investigation of the impact of childhood cancer on parents’ emotional and sexual intimacy', Pediatric Blood and Cancer, 69, http://dx.doi.org/10.1002/pbc.30015

Schaffer M; McLoone JK; Wakefield CE; Brierley ME; Girgis A; McCarthy MC; Thornton-Benko E; Chan RJ; Johnston KA; Cohn RJ; Signorelli C, 2022, 'eHealth tools for childhood cancer survivorship care: A qualitative analysis of survivors', parents', and general practitioners' views', PEC Innovation, 1, pp. 100010, http://dx.doi.org/10.1016/j.pecinn.2021.100010

Nevin SM; Wakefield CE; Dadich A; LeMarne F; Macintosh R; Beavis E; Sachdev R; Bye A; Nunn K; Palmer EE, 2022, 'Hearing parents' voices: A priority-setting workshop to inform a suite of psychological resources for parents of children with rare genetic epilepsies', PEC Innovation, 1, http://dx.doi.org/10.1016/j.pecinn.2021.100014

Broom A; Kenny K; Williams Veazey L; Page A; Prainsack B; Wakefield CE; Khasraw M; Itchins M; Lwin Z, 2022, 'Living (well) with cancer in the precision era', SSM - Qualitative Research in Health, 2, http://dx.doi.org/10.1016/j.ssmqr.2022.100096

Schilstra CE; McCleary K; Fardell JE; Donoghoe MW; McCormack E; Kotecha RS; Lourenco RDA; Ramachandran S; Cockcroft R; Conyers R; Cross S; Dalla-Pozza L; Downie P; Revesz T; Osborn M; Alvaro F; Wakefield CE; Marshall GM; Mateos MK; Trahair TN; Gok C, 2022, 'Prospective longitudinal evaluation of treatment-related toxicity and health-related quality of life during the first year of treatment for pediatric acute lymphoblastic leukemia', BMC Cancer, 22, pp. 985, http://dx.doi.org/10.1186/s12885-022-10072-x

Kelada L; Wakefield CE; Drew D; Ooi CY; Palmer EE; Bye A; De Marchi S; Jaffe A; Kennedy S, 2022, 'Siblings of young people with chronic illness: Caring responsibilities and psychosocial functioning', Journal of Child Health Care, 26, pp. 581 - 596, http://dx.doi.org/10.1177/13674935211033466

Ha L; Wakefield CE; Fardell J; Cohn RJ; Simar D; Signorelli C; Mizrahi D, 2022, 'Parent perceptions of their child’s and their own physical activity after treatment for childhood cancer', Supportive Care in Cancer, 30, pp. 8947 - 8957, http://dx.doi.org/10.1007/s00520-022-07288-9

Gereis J; Hetherington K; Ha L; Robertson EG; Ziegler DS; Barlow-Stewart K; Tucker KM; Marron JM; Wakefield CE, 2022, 'Parents’ understanding of genome and exome sequencing for pediatric health conditions: a systematic review', European Journal of Human Genetics, 30, pp. 1216 - 1225, http://dx.doi.org/10.1038/s41431-022-01170-2

Hetherington K; Wakefield CE; Kunalan KPK; Donoghoe MW; McGill BC; Fardell JE; Daly R; Deyell RJ; Ziegler DS, 2022, 'Quality of Life (QoL) of Children and Adolescents Participating in a Precision Medicine Trial for High-Risk Childhood Cancer', Cancers, 14, http://dx.doi.org/10.3390/cancers14215310

McLoone JK; Chen W; Wakefield CE; Johnston K; Bell R; Thornton-Benko E; Cohn RJ; Signorelli C, 2022, 'Childhood cancer survivorship care: A qualitative study of healthcare providers’ professional preferences', Frontiers in Oncology, 12, http://dx.doi.org/10.3389/fonc.2022.945911

Woolfenden S; Farrar MA; Eapen V; Masi A; Wakefield CE; Badawi N; Novak I; Nassar N; Lingam R; Dale RC, 2022, 'Delivering paediatric precision medicine: Genomic and environmental considerations along the causal pathway of childhood neurodevelopmental disorders', Developmental Medicine and Child Neurology, 64, pp. 1077 - 1084, http://dx.doi.org/10.1111/dmcn.15289

McLoone J; Wakefield CE; Marshall GM; Pierce K; Jaffe A; Bye A; Kennedy SE; Drew D; Lingam R, 2022, 'It's made a really hard situation even more difficult: The impact of COVID-19 on families of children with chronic illness', PLoS ONE, 17, http://dx.doi.org/10.1371/journal.pone.0273622

Hunter JD; Robertson EG; Hetherington K; Ziegler DS; Marshall GM; Kirk J; Marron JM; Denburg AE; Barlow-Stewart K; Warby M; Tucker KM; Lee BM; O’Brien TA; Wakefield CE; O'Brien T, 2022, 'What’s in a Name? Parents’ and Healthcare Professionals’ Preferred Terminology for Pathogenic Variants in Childhood Cancer Predisposition Genes', Journal of Personalized Medicine, 12, pp. 1327, http://dx.doi.org/10.3390/jpm12081327

Darlington ASE; Wakefield CE; van Erp LME; van der Graaf WTA; Cohn RJ; Grootenhuis MA, 2022, 'Psychosocial consequences of surviving cancer diagnosed and treated in childhood versus in adolescence/young adulthood: A call for clearer delineation between groups', Cancer, 128, pp. 2690 - 2694, http://dx.doi.org/10.1002/cncr.34257

Ha L; Wakefield CE; Mizrahi D; Diaz C; Cohn RJ; Signorelli C; Yacef K; Simar D, 2022, 'A Digital Educational Intervention With Wearable Activity Trackers to Support Health Behaviors Among Childhood Cancer Survivors: Pilot Feasibility and Acceptability Study', JMIR Cancer, 8, pp. e38367, http://dx.doi.org/10.2196/38367

Kirchhofer SM; Orm S; Haukeland YB; Fredriksen T; Wakefield CE; Fjermestad KW, 2022, 'A systematic review of social support for siblings of children with neurodevelopmental disorders', Research in Developmental Disabilities, 126, http://dx.doi.org/10.1016/j.ridd.2022.104234

Sansom-Daly UM; Wiener L; Darlington AS; Poort H; Rosenberg AR; Weaver MS; Schulte F; Anazodo A; Phillips C; Sue L; Herbert AR; Mack JW; Lindsay T; Evans H; Wakefield CE; Girgis A; Al-Awamer A; Kirchhoff A; Cohn R; Fair D; Cable M; Wernli K; Donovan L; Mosher P; Fernando R; Trethewie S, 2022, 'Thinking globally to improve care locally: A Delphi study protocol to achieve international clinical consensus on best-practice end-of-life communication with adolescents and young adults with cancer', PLoS ONE, 17, http://dx.doi.org/10.1371/journal.pone.0270797

Hou SHJ; Tran A; Cho S; Forbes C; Forster VJ; Stokoe M; Allapitan E; Wakefield CE; Wiener L; Heathcote LC; Michel G; Patterson P; Reynolds K; Schulte FSM, 2022, 'The Perceived Impact of COVID-19 on the Mental Health Status of Adolescent and Young Adult Survivors of Childhood Cancer and the Development of a Knowledge Translation Tool to Support Their Information Needs', Frontiers in Psychology, 13, http://dx.doi.org/10.3389/fpsyg.2022.867151

Tonorezos ES; Cohn RJ; Glaser AW; Lewin J; Poon E; Wakefield CE; Oeffinger KC, 2022, 'Long-term care for people treated for cancer during childhood and adolescence', The Lancet, 399, pp. 1561 - 1572, http://dx.doi.org/10.1016/S0140-6736(22)00460-3

Marchak JG; Christen S; Mulder RL; Baust K; Blom JMC; Brinkman TM; Elens I; Harju E; Kadan-Lottick NS; Khor JWT; Lemiere J; Recklitis CJ; Wakefield CE; Wiener L; Constine LS; Hudson MM; Kremer LCM; Skinner R; Vetsch J; Lee JL; Michel G, 2022, 'Recommendations for the surveillance of mental health problems in childhood, adolescent, and young adult cancer survivors: a report from the International Late Effects of Childhood Cancer Guideline Harmonization Group', The Lancet Oncology, 23, pp. e184 - e196, http://dx.doi.org/10.1016/S1470-2045(21)00750-6

Schilstra CE; Fardell JE; Ellis SJ; Jones KM; Anazodo AC; Trahair TN; Lah S; Cohn RJ; Wakefield CE; Sansom-Daly UM, 2022, 'Social Anxiety Symptoms in Survivors of Childhood and Adolescent Cancer', Journal of Adolescent and Young Adult Oncology, 11, pp. 129 - 137, http://dx.doi.org/10.1089/jayao.2021.0050

Espinoza-Salgado FS; García RR; E.wakefield C; Kelada L; Sansom-Daly UM; McGill BC; Tusie AZ; García FLJ; Cardos RDSC; Zapata-Tarrés M, 2022, 'Mexican cultural adaptation of the CASCAdE intervention program for parents of childhood cancer survivors', Psicooncologia, 19, pp. 63 - 80, http://dx.doi.org/10.5209/psic.80798

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