By Associate Professor Nadine Angele Kasparian

Journal articles

Farrar MA; Carey KA; Paguinto SG; Chambers G; Kasparian NA, 2018, 'Financial, opportunity and psychosocial costs of spinal muscular atrophy: an exploratory qualitative analysis of Australian carer perspectives.', BMJ Opem, 8, pp. e020907, http://dx.doi.org/10.1136/bmjopen-2017-020907

Chong LSH; Fitzgerald DA; Craig JC; Manera KE; Hanson CS; Celermajer D; Ayer J; Kasparian NA; Tong A, 2018, 'Children’s experiences of congenital heart disease: a systematic review of qualitative studies', European Journal of Pediatrics, 177, pp. 319 - 336, http://dx.doi.org/10.1007/s00431-017-3081-y

Dieng M; Kasparian NA; Cust AE; Costa DSJ; Tran A; Butow PN; Menzies SW; Mann GJ; Morton RL, 2018, 'Sensitivity of preference-based quality-of-life measures for economic evaluations in early-stage Melanoma', JAMA Dermatology, 154, pp. 52 - 59, http://dx.doi.org/10.1001/jamadermatol.2017.4701

Marokakis S; Kasparian NA; Kennedy SE, 2017, 'Caring for infants with posterior urethral valves: A qualitative study of parents’ experiences', Journal of Child Health Care, 21, pp. 424 - 434, http://dx.doi.org/10.1177/1367493517725833

Liang R; Meiser B; Smith S; Kasparian NA; Lewis CR; Chin M; Long GV; Ward R; Menzies AM; Harris-Wai JN; Kaur R, 2017, 'Advanced cancer patients’ attitudes towards, and experiences with, screening for somatic mutations in tumours: a qualitative study', European Journal of Cancer Care, 26, http://dx.doi.org/10.1111/ecc.12600

Dieng M; Kasparian NA; Mireskandari S; Butow P; Costa D; Morton R; Mann G; Menzies S; Cust A, 2017, 'Psychoeducational intervention for people at high risk of developing another melanoma: A pilot randomised controlled trial', BMJ Open, 7, pp. e015195, http://dx.doi.org/10.1136/bmjopen-2016-015195

McKean EB; Kasparian NA; Batra S; Sholler GF; Winlaw DS; Dalby-Payne J, 2017, 'Feeding difficulties in neonates following cardiac surgery: Determinants of prolonged feeding-tube use', Cardiology in the Young, 27, pp. 1203 - 1211, http://dx.doi.org/10.1017/S1047951116002845

Kasparian NA; Lieu N; Winlaw DS; Cole A; Kirk E; Sholler GF, 2017, 'EHealth literacy and preferences for eHealth resources in parents of children with complex CHD', Cardiology in the Young, 27, pp. 722 - 730, http://dx.doi.org/10.1017/S1047951116001177

Farrar M; Carey K; Paguinto S-G; Chamber G; Kasparian N, 2017, 'Counting the uncounted costs of Spinal muscular atrophy (P4.120)', Neurology, 88, http://dx.doi.org/10.1212/wnl.88.16_supplement.p4.120

Marokakis S; Kasparian NA; Kennedy SE, 2017, 'Parents’ perceptions of counselling following prenatal diagnosis of congenital anomalies of the kidney and urinary tract: a qualitative study', BJU International, 119, pp. 474 - 481, http://dx.doi.org/10.1111/bju.13668

te West NID; Parkin K; Hayes W; Costa DSJ; Kasparian NA; Moore KH, 2017, 'Does motivation predict outcome of pelvic floor muscle retraining?', Neurourology and Urodynamics, 36, pp. 316 - 321, http://dx.doi.org/10.1002/nau.22917

Denniss D; Sholler G; Winlaw D; Kasparian N, 2017, 'Critical Appraisal of the Evidence on Quality of Life and Psychological Outcomes in Infants and Young Children with Congenital Heart Disease', Heart, Lung and Circulation, 26, pp. S322 - S322, http://dx.doi.org/10.1016/j.hlc.2017.06.650

Denniss D; Sholler G; Winlaw D; Costa D; Kasparian N, 2017, 'Health-Related Quality of Life and its Determinants in Young Children with Complex Congenital Heart Disease and Their Mothers: An Australian Perspective', Heart, Lung and Circulation, 26, pp. S324 - S324, http://dx.doi.org/10.1016/j.hlc.2017.06.654

Dieng M; Butow PN; Costa DSJ; Morton RL; Menzies SW; Mireskandari S; Tesson S; Mann GJ; Cust AE; Kasparian NA, 2016, 'Psychoeducational intervention to reduce fear of cancer recurrence in people at high risk of developing another primarymelanoma: results of a randomized controlled trial', Journal of Clinical Oncology, 34, pp. 4405 - 4414, http://dx.doi.org/10.1200/JCO.2016.68.2278

Kasparian NA; Mireskandari S; Butow PN; Dieng M; Cust AE; Meiser B; Barlow-Stewart K; Menzies S; Mann GJ, 2016, '“Melanoma: Questions and Answers.” Development and evaluation of a psycho-educational resource for people with a history of melanoma', Supportive Care in Cancer, 24, pp. 4849 - 4859, http://dx.doi.org/10.1007/s00520-016-3339-3

Dieng M; Cust AE; Kasparian NA; Mann GJ; Morton RL, 2016, 'Economic evaluations of psychosocial interventions in cancer: a systematic review', Psycho-Oncology, 25, pp. 1380 - 1392, http://dx.doi.org/10.1002/pon.4075

Caleshu C; Kasparian NA; Edwards KS; Yeates L; Semsarian C; Perez M; Ashley E; Turner CJ; Knowles JW; Ingles J, 2016, 'Interdisciplinary psychosocial care for families with inherited cardiovascular diseases', Trends in Cardiovascular Medicine, 26, pp. 647 - 653, http://dx.doi.org/10.1016/j.tcm.2016.04.010

Kasparian NA; Winlaw DS; Sholler GF, 2016, '“Congenital heart health”: How psychological care can make a difference', Medical Journal of Australia, 205, pp. 104 - 106.e1, http://dx.doi.org/10.5694/mja16.00392

Celermajer D; Strange G; Cordina R; Selbie L; Sholler G; Winlaw D; Alphonso N; Justo R; Nicholae M; Kasparian N; Weintraub RG; Cheung M; Grigg LE; Brizard CP; Wheaton G; Disney P; Stewart S; Bullock A; Ramsay J; Gentles T; d'Udekem Y, 2016, 'Congenital Heart Disease Requires a Lifetime Continuum of Care: A Call for a Regional Registry', Heart Lung and Circulation, 25, pp. 750 - 754, http://dx.doi.org/10.1016/j.hlc.2016.03.018

McDonald HM; Sherman KA; Petocz P; Kangas M; Grant KA; Kasparian NA, 2016, 'Mindfulness and the Experience of Psychological Distress: the Mediating Effects of Emotion Regulation and Attachment Anxiety', Mindfulness, 7, pp. 799 - 808, http://dx.doi.org/10.1007/s12671-016-0517-9

Marokakis S; Kasparian NA; Kennedy SE, 2016, 'Prenatal counselling for congenital anomalies: a systematic review', Prenatal Diagnosis, 36, pp. 662 - 671, http://dx.doi.org/10.1002/pd.4836

Costa DSJ; Dieng M; Cust AE; Butow PN; Kasparian NA, 2016, 'Psychometric properties of the Fear of Cancer Recurrence Inventory: an item response theory approach', Psycho-Oncology, 25, pp. 832 - 838, http://dx.doi.org/10.1002/pon.4018

Ingles J; Spinks C; Yeates L; McGeechan K; Kasparian N; Semsarian C, 2016, 'Posttraumatic stressand prolonged grief after the sudden cardiac death of a young relative', JAMA Internal Medicine, 176, pp. 402 - 405, http://dx.doi.org/10.1001/jamainternmed.2015.7808

Dieng M; Cust AE; Kasparian NA; Butow P; Costa DSJ; Menzies SW; Mann GJ; Morton RL, 2016, 'Protocol for a within-trial economic evaluation of a psychoeducational intervention tailored to people at high risk of developing a second or subsequent melanoma', BMJ Open, 6, http://dx.doi.org/10.1136/BMJOPEN-2016-012153

Rogers Z; Elliott F; Kasparian NA; Bishop DT; Barrett JH; Newton-Bishop J, 2016, 'Psychosocial, clinical and demographic features related to worry in patients with melanoma', Melanoma Research, 26, pp. 497 - 504, http://dx.doi.org/10.1097/CMR.0000000000000266

Kasparian NA; Rutstein A; Sansom-Daly UM; Mireskandari S; Tyler J; Duffy J; Tucker KM, 2015, 'Through the looking glass: An exploratory study of the lived experiences and unmet needs of families affected by Von Hippel-Lindau disease', European Journal of Human Genetics, 23, pp. 34 - 40, http://dx.doi.org/10.1038/ejhg.2014.44

Blue GM; Kasparian NA; Sholler GF; Kirk EP; Winlaw DS, 2015, 'Genetic counselling in parents of children with congenital heart disease significantly improves knowledge about causation and enhances psychosocial functioning', International Journal of Cardiology, 178, pp. 124 - 130, http://dx.doi.org/10.1016/j.ijcard.2014.10.119

Dieng M; Kasparian NA; Morton RL; Mann GJ; Butow P; Menzies S; Costa DSJ; Cust AE, 2015, 'The Melanoma care study: Protocol of a randomised controlled trial of a psychoeducational intervention for melanoma survivors at high risk of developing new primary disease', BMC Psychology, 3, pp. 23, http://dx.doi.org/10.1186/S40359-015-0074-3

Ingles J; Spinks C; Yeates L; Kasparian N; Semsarian C, 2015, 'Sudden cardiac death from genetic heart disease: psychological impact to the surviving at-risk family members', Heart, Lung and Circulation, 24, pp. S406 - S406, http://dx.doi.org/10.1016/j.hlc.2015.06.682

Kasparian NA; McLoone JK; Meiser B; Karatas J; Chau J; Zilliacus E; De Souza E Sousa M, 2014, 'Perceptions of melanoma risk among Australian adolescents: Barriers to sun protection and recommendations for improvement', Australian & New Zealand Journal of Public Health, 38, pp. 321 - 325, http://dx.doi.org/10.1111/1753-6405.12209

Dieng M; Watts CG; Cust AE; Kasparian NA; Morton RL; Mann GJ, 2014, 'Improving subjective perception of personal cancer risk: Systematic review and meta-analysis of educational interventions for people with cancer or at high risk of cancer', Psycho-Oncology, 23, pp. 613 - 625, http://dx.doi.org/10.1002/pon.3476

Kasparian NA; Fidock B; Sholler GF; Camphausen C; Murphy DN; Cooper SG; Kaul R; Jones O; Winlaw DS; Kirk EPE, 2013, 'Parents’ perceptions of genetics services for congenital heart disease: the role of demographic, clinical, and psychological factors in determining service attendance', Genetics in Medicine, http://dx.doi.org/10.1038/gim.2013.169

Dieng M; Watts CG; Kasparian NA; Morton RL; Mann GJ; Cust AE, 2013, 'Improving Subjective Perception of Personal Cancer Risk: Systematic Review and Meta-Analysis of Educational Interventions for People With Cancer or at High Risk of Cancer', PSYCHO-ONCOLOGY, 22, pp. 60 - 60, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000325687200090&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1

Gleeson MA; Meiser B; Barlow-Stewart K; Trainer A; Tucker K; Watts KJ; Friedlander M; Kasparian NA, 2013, 'Communication and information needs of women diagnosed with ovarian cancer regarding treatment-focused genetic testing', Oncology Nursing Forum, 40, pp. 275 - 283, http://dx.doi.org/10.1188/13.ONF.40-03AP

Bui T; Wakefield CE; Kasparian NA; Tyler J; Abbott J; Tucker K, 2013, 'Knowledge and beliefs about the risks and benefits of oral contraceptives in women at increased risk of breast/ovarian cancer.', Psycho-oncology

McLoone J; Watts KJ; Menzies S; Barlow-Stewart K; Mann GJ; Kasparian NA, 2013, 'Melanoma survivors at high risk of developing new primary disease: a qualitative examination of the factors that contribute to patient satisfaction with clinical care', Psycho-oncology, http://dx.doi.org/10.1002/pon.3243

Bui T; Wakefield CE; Kasparian NA; Tyler J; Abbott J; Tucker K, 2013, 'Oral contraceptive use in women at increased risk of breast/ovarian cancer: Knowledge and attitudes', Psycho-oncology, 22, pp. 228 - 232, http://dx.doi.org/10.1002/pon.2049

McLoone J; Menzies S; Meiser B; Mann GJ; Kasparian NA, 2013, 'Psycho-educational interventions for melanoma survivors: A systematic review', Psycho - Oncology, 22, pp. 1444 - 1456, http://dx.doi.org/10.1002/pon.3165

Kasparian NA, 2013, 'Psychological aspects of familial melanoma', Familial Cancer, pp. S1 - 22

Kasparian NA, 2013, 'Psychological Care for People with Melanoma: What, When, Why and How?', Seminars in Oncology Nursing, 29, pp. 214 - 222, http://dx.doi.org/10.1016/j.soncn.2013.06.007

Kasparian N, 2013, 'Psychological stress and melanoma: Are we meeting our patients' pscyhological needs?', Clinics in Dermatology, pp. 41 - 46, http://dx.doi.org/10.1016/j.clindermatol.2011.11.005

Ingles J; Sarina T; Kasparian N; Semsarian C, 2013, 'Psychological wellbeing and posttraumatic stress associated with implantable cardioverter defibrillator therapy in young adults with genetic heart disease', International Journal of Cardiology, 168, pp. 3779 - 3784, http://dx.doi.org/10.1016/j.ijcard.2013.06.006

Ingles J; Sarina T; Kasparian N; Semsarian C, 2013, 'Psychological Wellbeing and Posttraumatic Stress Associated with Implantable Cardioverter Defibrillator Therapy in Young Adults with Genetic Heart Disease', Heart, Lung and Circulation, 22, pp. S232 - S232, http://dx.doi.org/10.1016/j.hlc.2013.05.551

Dieng M; Watts C; Kasparian NA; Morton R; Mann G; Cust A, 2012, 'Improving cancer risk understanding: A systematic review of educational interventions for people with, or at high risk of, cancer', Asia-Pacific Journal of Clinical Oncology, pp. 343 - 343

Branstrom R; Kasparian NA; Affleck P; Tibben A; Chang Y-M; Baron-Epel O; Bergman W; Chan M; Davies J; Ingvar C; Kanetsky PA; Leeuwen EV; Olsson H; Gruis NA; Brandberg Y; Newton-Bishop J, 2012, 'Perceptions of genetic research and testing among members of families with an increased risk of malignant melanoma', European Journal of Cancer, 48, pp. 3052 - 3062, http://dx.doi.org/10.1016/j.ejca.2012.05.017

Kasparian NA; Branstrom R; Chang Y-M; Affleck PJ; Aspinwall LG; Tibben A; Baron-Epel O; Battistuzzi L; Bruno WJ; Chan M; Cuellar FA; Debniak T; Pjanova D; Ertmanski S; Figl A; Gonzalez MA; Hayward NK; Hocevar M; Kanetsky PA; Leachmann SA; Bergman WW; Heisele O; Palmer JM; Peric B; Puig S; Schadendorf D; Gruis NA; Newton-Bishop JA; Brandberg Y, 2012, 'Skin examination behavior: The role of melanoma history, skin type, psychosocial factors, and region of residence in determining clinical and self-conducted skin examination', Archives of Dermatology, 148, pp. 1142 - 1151, http://dx.doi.org/10.1001/archdermatol.2012.1817

Kasparian NA; Sansom-Daly U; Mcdonald RP; Meiser B; Butow PN; Mann GJ, 2012, 'The nature and structure of psychological distress in people at high risk for melanoma: A factor analytic study', Psycho-oncology, 21, pp. 845 - 856, http://dx.doi.org/10.1002/pon.1976

Meiser B; Gleeson M; Kasparian NA; Barlow-Stewart K; Ryan M; Watts KJ; Menon D; Mitchell G; Tucker K, 2012, 'There is no decision to make: Experiences and attitudes toward treatment-focused genetic testing among women diagnosed with ovarian cancer', Gynecologic Oncology, 124, pp. 153 - 157, http://dx.doi.org/10.1016/j.ygyno.2011.09.040

McLoone J; Watts KJ; Menzies S; Meiser B; Butow PN; Kasparian NA, 2012, 'When the risks are high: Psychological adjustment among melanoma survivors at high risk of developing new primary disease', Qualitative Health Research, 22, pp. 1102 - 1113, http://dx.doi.org/10.1177/1049732312448542

Sholler GF; Kasparian NA; Winlaw DS, 2011, 'Congenital heart disease', Australian Doctor

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