By Associate Professor Nadine Angele Kasparian

Journal articles

Kularatna S; Jadambaa A; Sennanayake S; Brain D; Hawker N; Kasparian N; Abell B; Auld B; Eagleson K; Justo R; McPhail S, 2022, 'Economic Justification for Neurodevelopmental Support for Children With Congenital Heart Disease: A Scoping Review of Economic-Modelling and Recommendations for Future Practice', Heart, Lung and Circulation, 31, pp. S270 - S270, http://dx.doi.org/10.1016/j.hlc.2022.06.455

Eagleson K; Chin T; Justo R; Kasparian N; Bora S, 2022, 'Lucky and Valuing a “Normal” Life: A Qualitative Study of Parents and Siblings of Children With Dextro-Transposition of the Great Arteries', Heart, Lung and Circulation, 31, pp. S272 - S272, http://dx.doi.org/10.1016/j.hlc.2022.06.458

Sharbeen G; McCarroll JA; Akerman A; Kopecky C; Youkhana J; Kokkinos J; Holst J; Boyer C; Erkan M; Goldstein D; Timpson P; Cox TR; Pereira BA; Chitty JL; Fey SK; Najumudeen AK; Campbell AD; Sansom OJ; Ignacio RMC; Naim S; Liu J; Russia N; Lee J; Chou A; Johns A; Gill AJ; Gonzales-Aloy E; Gebski V; Guan YF; Pajic M; Turner N; Apte MV; Davis TP; Morton JP; Haghighi KS; Kasparian J; McLean BJ; Setargew YF; Phillips PA, 2021, 'Cancer-associated fibroblasts in pancreatic ductal adenocarcinoma determine response to slc7a11 inhibition', Cancer Research, 81, pp. 3461 - 3479, http://dx.doi.org/10.1158/0008-5472.CAN-20-2496

Chu KA; Schwartz C; Towner E; Kasparian NA; Callaghan B, 2021, 'Parenting under pressure: A mixed-methods investigation of the impact of COVID-19 on family life', Journal of Affective Disorders Reports, 5, http://dx.doi.org/10.1016/j.jadr.2021.100161

Kan JM; Dieng M; Butow PN; Mireskandari S; Tesson S; Menzies SW; Costa DSJ; Morton RL; Mann GJ; Cust AE; Kasparian NA, 2021, 'Identifying the ‘Active Ingredients' of an Effective Psychological Intervention to Reduce Fear of Cancer Recurrence: A Process Evaluation', Frontiers in Psychology, 12, http://dx.doi.org/10.3389/fpsyg.2021.661190

Sood E; Lisanti AJ; Woolf-King SE; Wray J; Kasparian N; Jackson E; Gregory MR; Lopez KN; Marino BS; Neely T; Randall A; Zyblewski SC; Brosig CL, 2021, 'Parent mental health and family functioning following diagnosis of CHD: A research agenda and recommendations from the Cardiac Neurodevelopmental Outcome Collaborative', Cardiology in the Young, 31, pp. 900 - 914, http://dx.doi.org/10.1017/S1047951121002134

McDonald HM; Sherman KA; Kasparian NA, 2021, 'Factors associated with psychological distress among Australian women during pregnancy', Personality and Individual Differences, 172, http://dx.doi.org/10.1016/j.paid.2020.110577

Tesson S; Swinsburg D; Kasparian NA, 2021, 'Maintaining Momentum in Infant Mental Health Research during COVID-19: Adapting Observational Assessments', Journal of Pediatric Psychology, 46, pp. 254 - 263, http://dx.doi.org/10.1093/jpepsy/jsab020

Verrall CE; Yang JYM; Chen J; Schembri A; D'Udekem Y; Zannino D; Kasparian NA; Du Plessis K; Grieve SM; Welton T; Barton B; Gentles TL; Celermajer DS; Attard C; Rice K; Ayer J; Mandelstam S; Winlaw DS; Mackay MT; Cordina R, 2021, 'Neurocognitive Dysfunction and Smaller Brain Volumes in Adolescents and Adults with a Fontan Circulation', Circulation, 143, pp. 878 - 891, http://dx.doi.org/10.1161/CIRCULATIONAHA.120.048202

McDonald HM; Sherman KA; Kasparian NA, 2021, 'A mediated model of mindful awareness, emotion regulation, and maternal mental health during pregnancy and postpartum', Australian Journal of Psychology, 73, pp. 368 - 380, http://dx.doi.org/10.1080/00049530.2021.1908846

Paguinto SG; Kasparian NA; Bray P; Farrar M, 2020, '“It’s not just the wheelchair, it’s everything else”: Australian parents’ perspectives of wheelchair prescription for children with neuromuscular disorders', Disability and Rehabilitation, 42, pp. 3457 - 3466, http://dx.doi.org/10.1080/09638288.2019.1595749

Farrar MA; Carey KA; Paguinto SG; Kasparian NA; De Abreu Lourenço R, 2020, '“The Whole Game is Changing and You’ve Got Hope”: Australian Perspectives on Treatment Decision Making in Spinal Muscular Atrophy', Patient, 13, pp. 389 - 400, http://dx.doi.org/10.1007/s40271-020-00415-w

Lisy K; Lai-Kwon J; Ward A; Sandhu S; Kasparian NA; Winstanley J; Boyle F; Gyorki D; Lacey K; Bishop J; Jefford M, 2020, 'Patient-reported outcomes in melanoma survivors at 1, 3 and 5 years post-diagnosis: a population-based cross-sectional study', Quality of Life Research, 29, pp. 2021 - 2027, http://dx.doi.org/10.1007/s11136-020-02464-y

Carazo MR; Kolodziej MS; Dewitt ES; Kasparian NA; Newburger JW; Duarte VE; Singh MN; Opotowsky AR, 2020, 'Prevalence and prognostic association of a clinical diagnosis of depression in adult congenital heart disease: Results of the boston adult congenital heart disease biobank', Journal of the American Heart Association, 9, http://dx.doi.org/10.1161/JAHA.119.014820

Coffey MJ; Mckay IR; Doumit M; Chuang S; Adams S; Stelzer-Braid S; Waters SA; Kasparian NA; Thomas T; Jaffe A; Katz T; Ooi CY, 2020, 'Evaluating the Alimentary and Respiratory Tracts in Health and disease (EARTH) research programme: a protocol for prospective, longitudinal, controlled, observational studies in children with chronic disease at an Australian tertiary paediatric hospital', BMJ Open, 10, pp. e033916, http://dx.doi.org/10.1136/bmjopen-2019-033916

Dieng M; Morton RL; Costa DSJ; Butow PN; Menzies SW; Lo S; Mann GJ; Cust AE; Kasparian NA, 2020, 'Benefits of a brief psychological intervention targeting fear of cancer recurrence in people at high risk of developing another melanoma: 12-month follow-up results of a randomized controlled trial', British Journal of Dermatology, 182, pp. 860 - 868, http://dx.doi.org/10.1111/bjd.17990

O'Donovan C; Ingles J; Broadbent E; Skinner JR; Kasparian NA, 2020, 'How Patient Perceptions Shape Responses and Outcomes in Inherited Cardiac Conditions', Heart Lung and Circulation, 29, pp. 641 - 652, http://dx.doi.org/10.1016/j.hlc.2019.11.003

Wan HWY; Carey KA; D'Silva A; Vucic S; Kiernan MC; Kasparian NA; Farrar MA, 2020, 'Health, wellbeing and lived experiences of adults with SMA: A scoping systematic review', Orphanet Journal of Rare Diseases, 15, pp. 70, http://dx.doi.org/10.1186/s13023-020-1339-3

Schofield DJ; Tan O; Shrestha RN; Rajkumar R; West S; Rice M; Kasparian N; Boyle J; Christie L; Leffler M; Murray L; Tanton R; Li J; Roscioli T; Field M, 2020, 'IDMOD: An Australian microsimulation model of lifetime economic and social factors in familial intellectual disability', International Journal of Microsimulation, 13, pp. 52 - 66, http://dx.doi.org/10.34196/ijm.00212

Strange G; Stewart S; Farthing M; Kasparian NA; Selbie L; O'Donnell C; Ayer J; Cordina R; Celermajer D, 2020, 'Living With, and Caring for, Congenital Heart Disease in Australia: Insights From the Congenital Heart Alliance of Australia and New Zealand Online Survey', Heart Lung and Circulation, 29, pp. 216 - 223, http://dx.doi.org/10.1016/j.hlc.2018.12.009

Marshall KH; D’udekem Y; Sholler GF; Opotowsky AR; Costa DSJ; Sharpe L; Celermajer DS; Winlaw DS; Newburger JW; Kasparian NA, 2020, 'Health-related quality of life in children, adolescents, and adults with a fontan circulation: A meta-analysis', Journal of the American Heart Association, 9, http://dx.doi.org/10.1161/JAHA.119.014172

Zentner D; Celermajer DS; Gentles T; d'Udekem Y; Ayer J; Blue GM; Bridgman C; Burchill L; Cheung M; Cordina R; Culnane E; Davis A; du Plessis K; Eagleson K; Finucane K; Frank B; Greenway S; Grigg L; Hardikar W; Hornung T; Hynson J; Iyengar AJ; James P; Justo R; Kalman J; Kasparian N; Le B; Marshall K; Mathew J; McGiffin D; McGuire M; Monagle P; Moore B; Neilsen J; O'Connor B; O'Donnell C; Pflaumer A; Rice K; Sholler G; Skinner JR; Sood S; Ward J; Weintraub R; Wilson T; Wilson W; Winlaw D; Wood A, 2020, 'Management of People With a Fontan Circulation: a Cardiac Society of Australia and New Zealand Position statement', Heart Lung and Circulation, 29, pp. 5 - 39, http://dx.doi.org/10.1016/j.hlc.2019.09.010

, 2020, '216 WITHDRAWN: Finding a New Rhythm: Child Health-Related Quality of Life and Parental Mental Health in Families Affected by Cardiac Channelopathies', Heart, Lung and Circulation, 29, pp. S132 - S132, http://dx.doi.org/10.1016/j.hlc.2020.09.223

Eagleson K; McCombs D; Kasparian N; Justo R; Bora S, 2020, '650 Appraising Measures Assessing the Psychosocial Impact and Adaptation to Congenital Heart Disease in Families: A Systematic Review', Heart, Lung and Circulation, 29, pp. S329 - S330, http://dx.doi.org/10.1016/j.hlc.2020.09.657

, 2020, '667 WITHDRAWN: Journeying With Patients: A Qualitative Study of Health Care Providers’ Perceptions of a Hospital-based Psychological Service for Children With Heart Disease and Their Families', Heart, Lung and Circulation, 29, pp. S337 - S337, http://dx.doi.org/10.1016/j.hlc.2020.09.674

Nielson-jones C; Sharpe L; Swinsburg D; Winlaw D; Badawi N; Walker K; Costa D; Sholler G; Kasparian N, 2020, '677 Predictors of Maternal Pregnancy-Specific Anxiety After Fetal Cardiac Diagnosis', Heart, Lung and Circulation, 29, pp. S341 - S341, http://dx.doi.org/10.1016/j.hlc.2020.09.684

Paida K; McKay IR; Coffey MJ; Kasparian N; Katz T; Ooi CY, 2020, 'P374 Evaluation of anxiety levels in a paediatric cystic fibrosis population', Journal of Cystic Fibrosis, 19, pp. S160 - S161, http://dx.doi.org/10.1016/s1569-1993(20)30702-5

Kasparian NA; Kan JM; Sood E; Wray J; Pincus HA; Newburger JW, 2019, 'Mental health care for parents of babies with congenital heart disease during intensive care unit admission: Systematic review and statement of best practice', Early Human Development, 139, http://dx.doi.org/10.1016/j.earlhumdev.2019.104837

Paguinto SG; Kasparian NA; Bray P; Farrar M, 2019, 'Parents’ perceptions of power wheelchair prescription for children with a neuromuscular disorder: a scoping review', Disability and Rehabilitation, 41, pp. 2750 - 2757, http://dx.doi.org/10.1080/09638288.2018.1474496

Lum A; Wakefield CE; Donnan B; Burns MA; Fardell JE; Jaffe A; Kasparian NA; Kennedy SE; Leach ST; Lemberg DA; Marshall GM, 2019, 'Facilitating engagement with school in students with chronic illness through positive education: A mixed-methods comparison study', School Psychology, 34, pp. 677 - 686, http://dx.doi.org/10.1037/spq0000315

Lum A; Wakefield CE; Donnan B; Burns MA; Fardell JE; Jaffe A; Kasparian NA; Kennedy SE; Leach ST; Lemberg DA; Marshall GM, 2019, 'School students with chronic illness have unmet academic, social, and emotional school needs', School Psychology, 34, pp. 627 - 636, http://dx.doi.org/10.1037/spq0000311

Dieng M; Khanna N; Kasparian NA; Costa DSJ; Butow PN; Menzies SW; Mann GJ; Cust AE; Morton RL, 2019, 'Cost-Effectiveness of a Psycho-Educational Intervention Targeting Fear of Cancer Recurrence in People Treated for Early-Stage Melanoma', Applied Health Economics and Health Policy, 17, pp. 669 - 681, http://dx.doi.org/10.1007/s40258-019-00483-6

Battistuzzi L; Franiuk M; Kasparian N; Rania N; Migliorini L; Varesco L, 2019, 'A qualitative study on decision-making about BRCA1/2 testing in Italian women', European Journal of Cancer Care, 28, http://dx.doi.org/10.1111/ecc.13083

Kasparian NA, 2019, 'Heart care before birth: A psychobiological perspective on fetal cardiac diagnosis', Progress in Pediatric Cardiology, 54, http://dx.doi.org/10.1016/j.ppedcard.2019.101142

Verrall CE; Blue GM; Loughran-Fowlds A; Kasparian N; Gecz J; Walker K; Dunwoodie SL; Cordina R; Sholler G; Badawi N; Winlaw D, 2019, ''Big issues' in neurodevelopment for children and adults with congenital heart disease', Open Heart, 6, pp. e000998, http://dx.doi.org/10.1136/openhrt-2018-000998

Wan HWY; Carey KA; D'Silva A; Kasparian NA; Farrar MA, 2019, '"Getting ready for the adult world": How adults with spinal muscular atrophy perceive and experience healthcare, transition and well-being', Orphanet Journal of Rare Diseases, 14, pp. 74, http://dx.doi.org/10.1186/s13023-019-1052-2

Marokakis S; Kasparian NA; Kennedy SE, 2019, 'Re: Caring for infants with posterior urethral valves: A qualitative study of parents' experiences', Journal of Urology, 201, pp. 429, http://dx.doi.org/10.1097/01.JU.0000553675.33041.9a

Denniss DL; Sholler GF; Costa DSJ; Winlaw DS; Kasparian NA, 2019, 'Need for Routine Screening of Health-Related Quality of Life in Families of Young Children with Complex Congenital Heart Disease', Journal of Pediatrics, 205, pp. 21 - 28.e2, http://dx.doi.org/10.1016/j.jpeds.2018.09.037

Tesson S; Butow PN; Sholler GF; Sharpe L; Kovacs AH; Kasparian NA, 2019, 'Psychological interventions for people affected by childhood-onset heart disease: A systematic review', Health Psychology, 38, pp. 151 - 161, http://dx.doi.org/10.1037/hea0000704

McGill BC; Wakefield CE; Vetsch J; Barlow-Stewart K; Kasparian NA; Patenaude AF; Young MA; Cohn RJ; Tucker KM, 2019, 'Children and young people's understanding of inherited conditions and their attitudes towards genetic testing: A systematic review', Clinical Genetics, 95, pp. 10 - 22, http://dx.doi.org/10.1111/cge.13253

Ayling L; Henry A; Tracy S; Donkin C; Kasparian NA; Welsh AW, 2019, 'How well do women understand and remember information in labour versus in late pregnancy? A pilot randomised study', Journal of Obstetrics and Gynaecology, 39, pp. 913 - 921, http://dx.doi.org/10.1080/01443615.2019.1575341

Kan JM; Cowan CSM; Ooi CY; Kasparian NA, 2019, 'What can the gut microbiome teach us about the connections between child physical and mental health? A systematic review', Developmental Psychobiology, 61, pp. 700 - 713, http://dx.doi.org/10.1002/dev.21819

Marshall K; d’Udekem Y; Sholler G; Costa D; Celermajer D; Winlaw D; Kasparian N, 2019, 'Depression and Anxiety Among People with a Fontan Circulation: Findings from the Australian and New Zealand Fontan Registry', Heart, Lung and Circulation, 28, pp. S348 - S348, http://dx.doi.org/10.1016/j.hlc.2019.06.498

Marshall K; d’Udekem Y; Sholler G; Costa D; Celermajer D; Winlaw D; Kasparian N, 2019, 'Mental Health of Parents of Children, Adolescents and Adults with a Fontan Circulation: Findings from the Australian and New Zealand Fontan Registry', Heart, Lung and Circulation, 28, pp. S351 - S351, http://dx.doi.org/10.1016/j.hlc.2019.06.506

, 2019, 'This abstract has been withdrawn', Heart, Lung and Circulation, 28, pp. S347 - S347, http://dx.doi.org/10.1016/j.hlc.2019.06.497

Kasparian NA; De Abreu Lourenco R; Winlaw DS; Sholler GF; Viney R; Kirk EPE, 2018, 'Tell me once, tell me soon: parents’ preferences for clinical genetics services for congenital heart disease', Genetics in Medicine, 20, pp. 1387 - 1395, http://dx.doi.org/10.1038/gim.2018.16

Farrar MA; Carey KA; Paguinto SG; Chambers G; Kasparian NA, 2018, 'Financial, opportunity and psychosocial costs of spinal muscular atrophy: an exploratory qualitative analysis of Australian carer perspectives.', BMJ Opem, 8, pp. e020907, http://dx.doi.org/10.1136/bmjopen-2017-020907

Chong LSH; Fitzgerald DA; Craig JC; Manera KE; Hanson CS; Celermajer D; Ayer J; Kasparian NA; Tong A, 2018, 'Children’s experiences of congenital heart disease: a systematic review of qualitative studies', European Journal of Pediatrics, 177, pp. 319 - 336, http://dx.doi.org/10.1007/s00431-017-3081-y

Dieng M; Kasparian NA; Cust AE; Costa DSJ; Tran A; Butow PN; Menzies SW; Mann GJ; Morton RL, 2018, 'Sensitivity of preference-based quality-of-life measures for economic evaluations in early-stage Melanoma', JAMA Dermatology, 154, pp. 52 - 59, http://dx.doi.org/10.1001/jamadermatol.2017.4701

Marokakis S; Kasparian NA; Kennedy SE, 2017, 'Caring for infants with posterior urethral valves: A qualitative study of parents’ experiences', Journal of Child Health Care, 21, pp. 424 - 434, http://dx.doi.org/10.1177/1367493517725833

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