Select Publications

Journal articles

Sholler GF; Kasparian NA; Pye VJ; Cole AD; Winlaw DS, 2011, 'Fetal and post-natal diagnosis of major congenital heart disease: Implications for medical and psychological care in the current era', Journal of Paediatrics and Child Health, 47, pp. 717 - 722, http://dx.doi.org/10.1111/j.1440-1754.2011.02039.x

Winlaw DS; Badawi N; Jacobe S; Kasparian NA; Cooper SG; Murphy DN; Sherwood MC; Leclair K; Scarfe G; Sholler GF; Roberts PD, 2011, 'Hypoplastic Left Heart Syndrome in context', Journal of Paediatrics and Child Health (Vol. 48, Suppl. 2, 2012, 1–13), 48, pp. e7 - e9, http://dx.doi.org/10.1111/j.1440-1754.2011.02084.x

Philipson S; Wakefield CE; Kasparian NA, 2011, 'Women’s knowledge, beliefs and information needs in relation to the risks and benefits associated with use of the oral contraceptive pill.', Journal of Women's Health, 20, pp. 635 - 642, http://dx.doi.org/10.1089/jwh.2010.2455

Parmar RC; Koene B; Kasparian NA; Cole A; Ayer J; Walker K; Nicholson I; Chard R; Sholler G; Badawi N; Winlaw D, 2010, 'Early and late outcomes of surgery for low birth weight infants (<2.5kg) with congenital heart disease', Cardiology in the Young, pp. 254 - 254

Sholler G; Kasparian N; Pye V; Cole A; Winlaw D, 2010, 'Fetal Diagnosis in a Cohort of Infants Undergoing Surgery or Catheter Intervention in the First Year of Life—Diagnostic and Management Considerations', Heart, Lung and Circulation, 19, pp. S249 - S249, http://dx.doi.org/10.1016/j.hlc.2010.06.608

Sholler G; Kasparian N; Pye V; Cole A; Winlaw D, 2010, 'Functional Single Ventricle (FSV): Outcomes After Birth for a 4-Year Cohort', Heart, Lung and Circulation, 19, pp. S249 - S250, http://dx.doi.org/10.1016/j.hlc.2010.06.609

Branstrom R; Chang Y; Kasparian NA; Affleck P; Tibben A; Aspinwall L; Baron-epel O; Battistuzzi L; Bruno W; Chan M; Cuellar F; Debniak T; Pjanova D; Ertmanski S; Figl A; Gonzalez M; Hayward N; Hocevar M; Kanetsky P; Leaf S; Van nieuwpoort F; Heisele O; Palmer J; Peric B; Puig S; Ruffin A; Schadendorf D; Gruis N; Brandberg Y; Newton-bishop J, 2010, 'Melanoma risk factors, perceived threat and intentional tanning: an international online survey', European Journal of Cancer Prevention, 19, pp. 216 - 226

Branstrom R; Kasparian NA; Chang Y; Affleck P; Tibben A; Aspinwall L; Baron-epel O; Battistuzzi L; Bergman W; Bruno W; Chan M; Cuellar F; Debniak T; Pjanova D; Ertmanski S; Figl A; Gonzalez M; Hayward N; Hocevar M; Kanetsky P; Leachmann S; Heisele O; Palmer J; Peric B; Puig S; Schadendorf D; Gruis N; Newton-bishop J; Brandberg Y, 2010, 'Predictors of Sun Protection Behaviors and Severe Sunburn in an International Online Study', Cancer epidemiology biomarkers and prevention, 19, pp. 2199 - 2210

Shermann K; Kasparian NA; Mireskandari S, 2010, 'Psychological adjustment among male partners in response to women's breast/ovarian cancer risk: a theoretical review of the literature', Psycho-oncology, 19, pp. 1 - 11

Kasparian NA; McLoone J; Meiser B; Butow PN; Simpson JM; Mann GJ, 2010, 'Skin cancer screening behaviours among individuals with a strong family history of malignant melanoma', British Journal of Cancer, 103, pp. 1502 - 1509, http://dx.doi.org/10.1038/sj.bjc.6605942

Kasparian NA; Meiser B; Butow PN; Simpson JM; Mann GJ, 2009, 'Genetic testing for melanoma risk: A prospective cohort study of uptake and outcomes among Australian families', Genetics in Medicine, 11, pp. 265 - 278, http://www.ncbi.nlm.nih.gov/pubmed/18554164

Wakefield CE; Juan A; Kasparian NA, 2009, 'Men at increased risk of developing breast cancer: language preferences for naming a cancer-related mutation', Genetic Testing and Molecular Biomarkers, 13, pp. 395 - 398

McLoone J; Kasparian NA; Butow PN, 2009, 'Psychological responses and coping strategies amongst melanoma patients: A systematic review of the literature.', Archives of Dermatology, 145, pp. 1415 - 1427

Kasparian NA; McLoone J; Meiser B, 2009, 'Skin cancer-related prevention and screening behaviors: A review of the literature.', Journal of Behavioral Medicine, 32, pp. 406 - 428

Kasparian NA; Rutstein A; Meiser B; Koehler J; Tyler J; Tucker K, 2008, 'An exploratory study of the unmet information and support needs amongst individuals affected by one of two rare cancer syndromes: MEN2a and VHL.', Psycho-Oncology

Meiser B; Kasparian NA; Mitchell PB; strong K; Simpson JM; Tabassum L; Mireskandari S; Schofield PR, 2008, 'Attitudes to genetic testing in families with multiple cases of bipolar disorder', Genetic Testing, 12, pp. 233 - 243, http://dx.doi.org/10.1089/gte.2007.0100

Juan A; Wakefield CE; Kasparian NA; Kirk J; Tyler J; Tucker K, 2008, 'Development and pilot testing of a decision aid for men considering genetic testing for breast and /or ovarian cancer-related mutations (BRCA 1/2)', Genetic Testing, 12, pp. 523 - 532

Kasparian NA; Butow PN; Meiser B; Mann GJ, 2008, 'High- and average-risk individuals’ beliefs about, and perceptions of, malignant melanoma: An Australian perspective', Psycho - Oncology, 17, pp. 270 - 279, http://dx.doi.org/10.1002/pon.1230

Mcloone J; Kasparian NA; Watts K; Meiser B; Butow P; Barlow-Stewart K; Menzies S; Mann G, 2008, 'Information needs and satisfaction with clinical care among melanoma survivors at high risk of developing new primary melanomas: A qualitative evaluation.', Asia-Pacific Journal of Clinical Oncology, pp. 251 - 251

Kasparian NA; Meiser B; Butow PN; Simpson JM; Mann GJ, 2008, 'Predictors of psychological distress among individuals with a strong family history of malignant melanoma', Clinical Geriatrics, 73, pp. 121 - 131, http://dx.doi.org/10.1111/j.1399-0004.2007.00949.x

Kasparian NA; Meiser B; Butow PN; Job RFS; Mann GJ, 2007, 'Anticipated uptake of genetic testing for familial melanoma in an Australian sample: An exploratory study', Psycho-oncology, 16, pp. 69 - 78, http://dx.doi.org/10.1002/pon.1052

Kasparian NA; Wakefield CE; Meiser B, 2007, 'Assessment of psychosocial outcomes in genetic counseling research: An overview of available measurement scales', Journal of Genetic Counseling, 16, pp. 693 - 712, http://dx.doi.org/10.1007/s10897-007-9111-6

Meiser B; Mitchell PB; Kasparian NA; Strong K; Simpson JM; Mireskandari S; Tabassum L; Schofield PR, 2007, 'Attitudes toward childbearing, causal attributions for bipolar disorder and psychological distress A study of families with multiple cases of bipolar disorder', Psychological Medicine, 37, pp. 1601 - 1611, http://dx.doi.org/10.1017/S0033291707000852

Wakefield CE; Kasparian NA; Meiser B; Homewood J; Kirk J; Tucker K, 2007, 'Attitudes toward genetic testing for cancer risk after genetic counseling and decision support: A qualitative comparison between hereditary cancer types', Genetic Testing, 11, pp. 401 - 411, http://dx.doi.org/10.1089/gte.2007.0013

Kasparian NA; Rutstein A; Meiser B; Tyler J; Koehler J; Tucker K, 2007, 'Development and trial of an international web-based survey to assess psychological adjustment among patients with one of two rare cancer syndromes: MEN2A and VHL', Asia-Pacific Journal of Clinical Oncology

Kasparian NA; Meiser B; Simpson JM; Mann GJ, 2007, 'Psychological responses to genetic information: What's the story for individuals with a strong family history of melanoma?', Asia-Pacific Journal of Clinical Oncology, 3, pp. A75 - A109, http://dx.doi.org/10.1111/j.1743-7563.2007.00128.x

Kasparian NA; Meiser B; Butow PN; Job RF; Mann GJ, 2006, 'Better the devil you know? High-risk individuals’ anticipated psychological responses to genetic testing for melanoma susceptibility', Journal of Genetic Counseling, 15, pp. 433 - 447, http://handle.unsw.edu.au/1959.4/38178

Kasparian NA; Meiser B; Butow PN; Simpson J; Mann GJ, 2005, 'Precaution adoption, perceived risk, and psychological distress among those at high-risk of developing melanoma: Preliminary findings.', Hereditary Cancer in Clinical Practice

Kasparian NA; Meiser B; Hughes TMD; Job RFS; Mann GJ, 2003, 'An empirical study of the psychological consequences of genetic testing for melanoma susceptibility', PSYCHO-ONCOLOGY, 12, pp. S196 - S196, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000183225400360&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1

Conference Papers

Kasparian N; Pidcock M; McElduff M; Macintosh-Evans P; Sholler G, 2019, 'Engaging hearts and minds: An in-depth qualitative examination of health professionals' perceptions of, and experiences with, an integrated, hospital-based mental health service dedicated to childhood heart disease.', in INTERNATIONAL JOURNAL OF INTEGRATED CARE, UBIQUITY PRESS LTD, http://dx.doi.org/10.5334/ijic.s3378

Kasparian N; Dieng M; Morton R; Costa D; Butow P; Menzies S; Lo S; Mann G; Cust A, 2018, 'Long-term benefits of a brief, tailored psycho-educational intervention targeting fear of cancer recurrence in people at high risk of developing another melanoma: Results of a randomised controlled trial', in PSYCHO-ONCOLOGY, WILEY, pp. 11 - 11, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000448188000022&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1

Dieng M; Morton RL; Costa DSJ; Butow P; Menzies S; Lo S; Mann GJ; Cust AE; Kasparian N, 2018, 'Sustained long-term benefits of a psycho-educational intervention targeting fear of cancer recurrence in people at high risk of developing another melanoma: A randomised controlled trial.', in JOURNAL OF CLINICAL ONCOLOGY, AMER SOC CLINICAL ONCOLOGY, http://dx.doi.org/10.1200/JCO.2018.36.15_suppl.10082

Kasparian NA, 2010, 'Supportive care in the treatment of melanoma: Where, when, how, why?', in Ronai Z (ed.), Pigment Cell & Melanoma Research, Blackwell Munksgaard, England, presented at 7th International Melanoma Research Congress and 4th Melanoma and Skin Cancer Centres Meeting, Sydney, 04 November 2010 - 07 November 2010

Kasparian NA, 2010, 'When hearts and minds meet: A psychological perspective on fetal cardiac diagnosis. Symposium entitled: Holding hearts and minds together: Experiences of infants and families affected by congenital heart disease', Leipzig, Germany, pp. 104 - 104, presented at World Congress of the World Association for Infant Mental Health, Leipzig, Germany, 29 June 2010 - 03 July 2010

Watts KJ; Kasparian NA; McLoone J; Meiser B; Butow PN; Barlow-Stewart K; Menzies S; Mann G, 2010, 'Attitudes toward hypothetical genetic testing, satisfaction with clinical care, and information needs among high risk melanoma survivors: A mixed methods study', in European Journal of Human Genetics, Nature Publishing Group, London, England, presented at European Meeting on Psychosocial Aspects of Human Genetics, Gothenburg, Sweden, 12 June 2010 - 15 June 2010

Kasparian NA, 2009, 'When melanoma runs in the family: The psychological and behavioural implications of genetic testing for melanoma risk', in Voudouris N; Mrowinski V (ed.), Combined Abstracts of 2009 Australian Psychology Conferences, Darwin, Australia, presented at 44th Annual Conference of the Australian Psychological Society, Darwin, Australia, 03 October 2009 - 04 October 2009

Kasparian NA, 2009, 'Through the looking glass: A qualitative study exploring the psychosocial experiences and unmet needs of families affected by VHL', in Proceedings of the Twelfth Australasian Conference on Familial & Genetic Aspects of Cancer, Gold Coast, Australia, presented at Twelfth Australasian Conference on Familial & Genetic Aspects of Cancer, Gold Coast, Australia, 11 August 2009 - 14 August 2009

Kasparian NA; Meiser B; Butow PN; Simpson JM; Mann GJ, 2008, 'To test or not to test: Uptake of genetic testing for melanoma risk in Australia and associated psychological and behavioural implications', in Asia-Pacific Journal of Clinical Oncology, Blackwell Publishing Asia, Australia, presented at Clinical Oncological Society of Australia (COSA) Annual Scientific Meeting 2008, Sydney, Australia, 18 November 2008 - 20 November 2008

Meiser B; Kasparian NA; Lobb EA, 2008, 'Are individuals who choose to attend familial cancer clinics different to those who choose not to? Insights from cohort studies of high risk cancer families', in Proceedings of the Eleventh Australasian Conference on Familial & Genetic Aspects of Cancer 2008, Couran Cove, Australia, presented at Eleventh Australasian Conference on Familial & Genetic Aspects of Cancer, Couran Cove, Australia, 21 August 2008

Rutstein AN; Kasparian NA; Meiser B; Koehler J; Tyler J; Tucker K, 2008, 'An exploratory study of the information and support needs of individuals affected by one of two rare cancer syndromes: MEN2A or VHL', in Psycho - Oncology, John Wiley & Sons Ltd, Chichester, W Sussex, England, pp. S192 - S193, presented at Psycho-Oncology 2008

Kasparian NA; Meiser B; Butow PN; Simpson JM; Mann GK, 2008, 'Genetic risk assessment amongst Australians with a strong family history of melanoma: uptake and psychological implications', in Psycho - Oncology, John Wiley & Sons Ltd, Chichester, W Sussex, England, pp. S277 - S278, presented at Psycho-Oncology 2008

Juan A; Wakefield CE; Kasparian NA; Kirk J; Tyler J; Tucker K, 2008, 'Men at increased risk of developing breast cancer: A decision aid for men considering genetic testing', in Asia-Pacific Journal of Clinical Oncology, Blackwell Publishing Asia, Australia, pp. 145 - 179, presented at 35th Clinical Oncological Society of Australia (COSA) Annual Scientific Meeting, Sydney, Australia

Kasparian NA; Meiser B; Job RFS; Mann GJ, 2002, 'The psychological consequences of genetic testing for melanoma susceptibility', in Australian Journal of Health Psychology, Sydney Australia, pp. 157, presented at Postgraduate Conference, Sydney Australia, 15 November 2002

Conference Presentations

McLoone J; Meiser B; Karatas J; Chau J; Zilliacus E; Kasparian NA, 2012, 'Perceptions of melanoma risk among Australia adolescents: Is this the greatest barrier to sun adherence and what can we do about it?', presented at 14th World Congress of Psycho-Oncology, Brisbane, Australia

McLoone J; Kasparian NA; Meiser B; Butow PN; Barlow-Stewart K; Charles M; Mann G; Menzies S, 2011, 'Melanoma risk, clinical care and patients' fears of melanoma recurrence: what is the interplay between these factors?', presented at Clinical Oncological Society of Australia (COSA), 38th Annual Scientific Meeting, OZPOS/PoCoG Professional Day, Perth, Australia, 14 November 2011

Kasparian NA; Deans C; Bennett BK; Sholler GF; Winlaw DS; Kirk EP, 2011, 'Pregnancy disrupted: Thinking about the experiences of mothers and fathers after fetal diagnosis of congenital heart disease', presented at World Congress of Psychotherapy, Sydney, Australia, 24 August 2011 - 28 August 2011

Kasparian NA, 2011, 'Psychological support in paediatric cardiac care: What, where, when and how?', presented at Cardiac Society of Australia and New Zealand Annual Scientific Meeting, Perth Australia, 11 August 2011 - 15 August 2011

Meiser B; Gleeson M; Kasparian NA; Barlow-Stewart K; Ryan M; Mitchell G; Friedlander M; Tucker K, 2010, 'Attitudes and information needs of women newly diagnosed with ovarian cancer regarding treatment-focused genetic testing', presented at Human Genetics Society of Australasia Annual Scientific Meeting, Melbourne, Australia, 16 November 2010 - 18 November 2010

McLoone J; Kasparian NA; Watts KJ; Meiser B; Butow PN; Barlow-Stewart K; Menzies S; Mann G, 2010, 'Psychosocial adjustment and support needs of melanoma survivors receiving care at a high risk clinic: A qualitative investigation.', presented at Sydney Cancer Conference, Sydney, Australia, 15 July 2010 - 16 July 2010

McLoone JK; Kasparian NA; Watts KJ; Meiser B; Butow PN; Barlow-Stewart K; Menzies S; Mann GJ, 2010, 'Psychological adjustment and support needs among melanoma survivors at high risk of developing multiple primary melanomas: A qualitative evaluation', presented at Australasian Society of Behavioural Health and Medicine 7th Annual Scientific Conference, Brisbane, Australia, 10 February 2010 - 12 February 2010


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